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Re: KENS TV News segment « Reply #20 on May 14, 2006, 12:31pm »
I'm glad that this news segment came out - the video and the accompanying side links to additional information are excellent.
Unfortunately, those that want to prevent recognition and treatment of this disease are furiously working to portray this as a mental illness.
I can only hope that those who are interested in this topic will examine all sides and motives.
Also, note that those who quickly dismiss the disease as not scientifically proven do so without doing the correct and appropriate scientific proof or disproof themselves.
Sorry, but for some vocal debunkers, viewing a photograph and declaring it to be merely lint or scabs is a sorry act against people who are suffering and against the effort to stamp out what may be a spreading disease.
The photos offered are not scientific proof, but the photos help describe the problem to many when in-person demonstrations cannot be done for all. Also, for all those who have been to doctors and were not believed or given treatment but were told they were imagining these things or doing these things to themselves - for all who could not get their doctors to listen or even look at their skin or scalp let alone do any testing - the photos serve to quickly identify that they are not the only ones seeing these things come from their bodies.
The same photographable things. What are the odds that people all over the world are imagining the SAME THINGS happening to their bodies and finding each other AFTER seeing and being rejected by their doctors?
Most people don't go to the internet to find a disease to suffer. The people who have found each other on this and other websites already had the symptoms. It was the disbelief by doctors and lack of treatment that drove them to look on the internet.
It's the television and newspaper articles that drive others to find more information about a disease they thought they were suffering alone.
The very furious effort to cloud these skin, scalp, and systemic body symptoms as a mental illness has risen the past few days.
Re: KENS TV News segment « Reply #21 on May 14, 2006, 6:25pm »
I just forwarded that to my local paper, but they are probably going to ignore my e-mail like they usualy do. >: (I think I will just keep pestering the media until they listen. When Massachusetts listens then maybe we will get some place. Because there are so many universities and we have MIT here.
Re: KENS TV News segment « Reply #22 on May 14, 2006, 6:40pm »
Not one of the videos/ links posted above worked for me but the Drudge report and I could not find the video on that link.
I saw where John posted one too but yet again- does not work for me.
Yesterday, I posted a video on Gregs strand where he list all the visitng websites and this video showed Ginger and it also had Sweet Travis on it. Is this the same one you guys are referring to?
Re: KENS TV News segment « Reply #24 on May 14, 2006, 7:59pm »
dON'T GET IT- TO KEEP UP WITH THE MOVING ADDRESS? John, I have a pretty good idea of what you may be referring too but I'm not for sure.
Could you please explain your version of why the address keeps moving?
Here's the video I posted yesterday......when it opens, it takes excactly 30 seconds for an ad to complete before it will show you the video.
Earlier it would not play but I was able to just now view it again.
Note* One does not have to go searching this page for the video; it should open right up to it. Just remember to wait the 30 seconds for the commercial.
For once you have tasted flight. You will walk the earth with your eyes turned skyward; For there you have been, And there you long to return. ---Leonardo da Vinci
Lisa Wilson Guest
Re: KENS TV News segment « Reply #26 on May 18, 2006, 4:58am »
I'm Lisa, Travis' mother. It was extremely hard, doing the interview two days after Travis died. However, they were so nice to not show the times where I broke down. I was so worried about that. And, I wanted to do whatever I possibly could to not let Travis' death be in vain.
I was also interviewed in WA state, where I took Travis home to be buried. A Seattle station interviewed me, but the show will be on a Portland station. They told me that it would be longer than the average 1 1/2 minutes. I was so glad to hear that the word is getting out. They were also interviewing a doctor in Portland who has both Lyme and Morgellons to be on the same segment.
I was also interviewed by phone for PrimeTime Live with Diane Sawyer. That is the segment that keeps getting pushed back (for political reasons?). Travis and I were so looking forward to seeing it one night and had told two of his "not sure if I believe in Morgellons" doctors so they could watch it. We were very disappointed that it didn't air and that we couldn't find anything that mentioned when it would air. I heard sometime in June or July. I am having video of Travis put together for a DVD for the show.
As a side note, Mary Leitao (spelling?) from the Morgellons Research Foundation called me right after my son died, within a day, and has been calling every few days since. She has been a very strong presence in helping me to get through this somehow. Anway, she had the good sense enough to ask if I would mind donating some samples from Travis' autopsy to help others try to discover what this horrific Morgellons really is. Of course. Anything to help. Travis would have wanted it. I know that Oklahoma State Univ got what it needed. The CDC, Ginger Savely, and Dr. Wymore (spelling) also asked for samples. Travis so wanted to help others. I don't want his death to go unnoticed and in vain.
I did want to let you all know that I wasn't sure if Travis had taken his life or not, as he would just want it all to be over with when he had his horrendous attacks. Also, after he died, I found empty bottles of his pain pills, anti-anxiety pills, and sleeping pills. However, last week, while I was going through his 20 bottles sitting on his coffee table (a small percentage of the total number), I found another anti-anxiety bottle that had 83 anti-anxiety pills in it, 26 pain pills, and 24 sleeping pills. If Travis had wanted to end it, I think he would have taken everything. I wouldn't have blamed him at all. But, I was glad to see that no matter how much pain he was in, he was trying to soldier on. He had been emailing a local gal who had Lyme disease. She was 18 years old. Two days before he died, he emailed her a lengthy message. They were going to meet and get something to eat. Also, he didn't leave me a note. He left me tons of notebooks with poems, songs, and two novels, but no note. I'm sure he would have told me goodbye in a note. He loved to write.
I am missing him so, so much. It is such a shame to know that he wanted to go on, despite the pain, despite the depression, but his body just gave out. He was in the ER twice in the week and a half before he died. They didn't even exam him the last time. I told the doctor that you could actually see the black and white fibers coming out of his skin and to come over and look and the doctor totally ignored me. There was no help to be found there. No compassion. It bordered on malpractice. I'm angry. I am so angry. I just wished that I was this angry before his death. However, I am sick, too. And, I can only do so much. I tried to help him and failed. I'll have to live with that the rest of my life.
Re: KENS TV News segment « Reply #27 on May 18, 2006, 5:17am »
Its me, again. I just watched the clip that was posted above, and its from the same interview I gave, but totally different information was shown. So, there is another clip out there as well that has additional info. I guess they did get me crying.
Re: KENS TV News segment « Reply #29 on May 18, 2006, 11:42am »
Quote:
I'm Lisa, Travis' mother. It was extremely hard, doing the interview two days after Travis died. <snipped> . . . As a side note, Mary Leitao (spelling?) from the Morgellons Research Foundation called me right after my son died, within a day, and has been calling every few days since. She has been a very strong presence in helping me to get through this somehow. Anway, she had the good sense enough to ask if I would mind donating some samples from Travis' autopsy to help others try to discover what this horrific Morgellons really is. Of course. Anything to help. Travis would have wanted it. I know that Oklahoma State Univ got what it needed. The CDC, Ginger Savely, and Dr. Wymore (spelling) also asked for samples. Travis so wanted to help others. I don't want his death to go unnoticed and in vain. . . . " <snipped>
When I go to the CDC website and enter "Morgellons" - there is no information that comes up.
However, you mentioned that the CDC asked for samples, as well as the others.
Thank you for letting us know.
Thank you for your strong advocacy in the midst of your grief.
The right to do something does not necessarily mean that doing it is always right.
Joined: Nov 2004 Gender: Female Posts: 1,634
Re: KENS TV News segment « Reply #30 on May 18, 2006, 11:52am »
Curious, isn't it QH???? You'd think they could at least put some little something on there, even a small blurb to say they are working on it. After all, they evidently are telling everyone that they are.
I imagine you and I have pretty much the same questions on our minds.
The right to do something does not necessarily mean that doing it is always right.
Joined: Nov 2004 Gender: Female Posts: 1,634
Re: KENS TV News segment « Reply #31 on May 18, 2006, 12:01pm »
Quote:
As a side note, Mary Leitao (spelling?) from the Morgellons Research Foundation called me right after my son died, within a day, and has been calling every few days since. She has been a very strong presence in helping me to get through this somehow. Lisa Wilson Missing Travis Immensely
Thank you for putting this on the board, Lisa. Most people have no idea just what Mary and the other MRF members do (and go through) on a daily basis, so it's nice to see recognition where it's definitely due.
I hope you had as relaxing a weekend as was possible with your daughter, and that you were able to gain a little peace of mind. I am back from my trip also......tiring but worth it.
We really appreciate all that you are doing to bring awareness to Morgellons disease. I know that much of it can't be pleasant but we thank you immensely for it.
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