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LymeBusters :: Morgellons :: Morgellons - General Discussion :: YOU KNOW WHO YOU ARE!!!!!!! Author Topic: YOU KNOW WHO YOU ARE!!!!!!! (Read 478 times) l46cheetah Guest YOU KNOW WHO YOU ARE!!!!!!! « Thread Started on Jun 11, 2006, 8:54pm » I have been reading these boards all morning and all day. DO NOT LET PEOPLE MAKE YOU FEEL BAD ABOUT YOURSELF!!!!! Been there. Done that. You know your body, mind and soul. Just gotta let it roll off and not waste energy on what other people think when it is negative. Others can say all they want about crazy and delusional but we don't have to buy into it. I have doubted myself off and on over the last 3 years and no... NO MORE!!!! It all started when I heard the first Dr. say DOP!!! That planted the seed. I have been an athlete all my life. 115 llbs of rock solid muscle. Now I look like a skinny little old lady about 100 lbs. If a Dr wants to be in denial that something physical is wrong then he has to do it on his own time and without me in the room. I have fired about 15 Dr.'s for the way they talked to me . I finally got sick of it and started trying things on my own. Then my nurse friend sent me to her Dr friend and he listens and he is at least trying. I have been to 32 Dr.'s in 3 years. If we all stick together and try not to take it out on each other and try to understand that we all have bad days and there are going to be times that we make a mistake and or misunderstand and will have to apoligize then it will be ok. Sounds like that has happened The last thing we need is to turn on each other. We of all people know what it's like to have a bad day. All I know is I have high hopes of kicking this things ass. I refuse to let anyone stand in my way. I love life too much! and even though there are days that I hardly have strength to get to the bathroom. I force myself. Don't get me wrong there has been a few times along the way where I had thoughts that were very unpleasant and it would have put me out of my misery but would have caused alot more misery for others. DON'T doubt yourself!!!!!!!!FORTITUDE IS MY WORD. I PASS IT ON TO YOU!! I have lost alot of friends too along the way but what I found out was who my real friends are and I am down to 3. (plus my 2 grown children) I feel blessed. I just looked at it like letting go of extra luggage. It burns when you carry it but it feels so good when you put it down. You all have grit and guts for hanging in there and some day you will be able to say, I am a morgellons surviver!!!! and you will be able to tell your grandkids about how brave and strong you became. Good luck and hang tuff!! Please love youself and believe in yourself no matter what. Eat good....................Laur Link to Post - Back to Top   Logged belikewater Guest Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #1 on Jun 11, 2006, 9:21pm » Hi, 146cheetah, Great post. Now that you mention it, we are already Morgellons survivors. Maybe T-shirts/bumper stickers would help get the word out. Link to Post - Back to Top   Logged l46cheetah Guest Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #2 on Jun 11, 2006, 9:37pm » Good thinking! By the way I have on order some rubber wrist bands that are coral red that read FORTITUDE on one side and MORGELLONS.ORG on the other. Found a company that would make them and sell them to me and not put me in the poor house. We shall see. Ya, check out some sites that make bumpers stickers or anything you can think of. Sounds like you have a good head on your shoulders. Way to go little miss positive! Laur Link to Post - Back to Top   Logged DOCP Senior Member member is offline Joined: Mar 2005 Gender: Female Posts: 353 Location: Idaho Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #3 on Jun 12, 2006, 6:23am » cheetah - Absolutely! Great for morale. Here's a story that I remind myself of to never second guess myself... or my intuition. I took my 3 yr old to doc in the box for a cough he couldn't shake. I know better than to go for just a virus since there's rarely much a doctor can do. This is a progressive rattling cough, high fever, tearing eyes. The Dr. says... its a virus go home, rest, drink liquids. I call at end of day saying I think we may need antibiotics may we come back in? Nurse says, viruses are going around and we should wait through weekend and only call if something new develops. Sat at like 4 a.m. I can't stand it aany more, I scoop him up, dragging his 5 yr old brother out of bed and head to ER. ER doc says... just a virus and writes something stronger for cough. I explain how can't breath, how he coughs every 10 seconds even while asleep, he moans and his fever only comes down for an hour right after tylenol then spikes. I say he's had viruses and this is just different. Doctor gets impatient and says some condescending thing "to make sure that I get some sleep as well" then he left. We wait around for the discharge nurse and finally I'm gathering his clothes as the Dr. happens to walk by glances in the room, then does a double take and says, has his oxygen saturation been that low on monitor. I said... it's been in the 60s 70s the whole time we've been here. Frankly I forgot it was on. The Dr. says I'm going to order an x-ray. He shows me the e-ray and says... we're going to need to start an IV and admit him to the hospital for at least a few days because he has full blown pneumonia in both lungs. End story. Link to Post - Back to Top   Logged "All truth goes through three stages: First it is ridiculed. Then it is violently opposed. Finally it is accepted as self evident." -Schopenhauer belikewater Guest Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #4 on Jun 12, 2006, 7:46am » If you are a middle-aged woman, the medical establishment automatically classifies you as crazy. I walked on a broken leg with a spiral fracture at the knee for three years before the surgeon doing my hip replacement discovered it. I have a very high pain tolerance. I must have seen 10 practitioners and none of them saw it. Link to Post - Back to Top   Logged ((BB)) Ultimate Member member is offline Joined: May 2006 Gender: Female Posts: 844 Location: Central Texas Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #5 on Jun 12, 2006, 9:56am » freakin' quacks! I say we line up and ........................ Link to Post - Back to Top   Logged justhanginin Ultimate Member member is offline Joined: May 2006 Gender: Female Posts: 673 Location: Long Island NY Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #6 on Jun 12, 2006, 12:37pm » Oooh Becky, You're in rare form today. Unfortunately it is all too true, as soon as you are no longer cute and nubile the doctors decide that you are stupid, neurotic and just seeking attention. One of the effects of Morgs with me is that I was COLD all the time and trhat made waiting in Drs. exam rooms almost intolerable. felt like I was in a refrigerator and did nothing to improve my disposition. I saw at least 12 docs with this cr@p and got nowhere so I finally just changed my designated doc with the insurance plan just to deprive the office of the stipend they would otherwise have still gotten paid. It wasn't nearly enough but at least it made me feel a little better. Link to Post - Back to Top   Logged betsy Ultimate Member member is offline Joined: Sept 2005 Gender: Female Posts: 1,026 Location: Southern California Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #7 on Jun 12, 2006, 8:46pm » DOCP- Your story said it all. Betsy Link to Post - Back to Top   Logged linagin Full Member member is offline Joined: Jun 2006 Gender: Female Posts: 166 Location: Massachusetts Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #8 on Jun 12, 2006, 9:25pm » Quote: Hi, 146cheetah, Great post. Now that you mention it, we are already Morgellons survivors. Maybe T-shirts/bumper stickers would help get the word out. what a great idea!!! How about make t-shirts and And Donate $ all profit to the morgs foundation with selling them? anthill or someone who has those great pictures inserts in the posts could design a good one I bet! Link to Post - Back to Top   Logged Lynne junebook Senior Member member is offline Joined: Dec 2005 Gender: Female Posts: 293 Location: Oklahoma City Re: YOU KNOW WHO YOU ARE!!!!!!! « Reply #9 on Jun 12, 2006, 10:05pm » You all have grit and guts for hanging in there and some day you will be able to say, I am a morgellons surviver!!!! and you will be able to tell your grandkids about how brave and strong you became. Good luck and hang tuff!! Please love youself and believe in yourself no matter what. Eat good....................Laur? Hey, tuff girl. I'm with you. Go git'm. Lots and lotsa hugs. Link to Post - Back to Top   Logged Whenever I am tempted, whenever clouds arise, When songs give place to sighing, when hope within me dies, I draw the closer to Him, from care He sets me free; His eye is on the sparrow, and I know He watches me Forum Jump--------------------» Home--------------------» Rules, Tips, and Other Related Info--------------------- Rules, Regulations, and Legal- Message Board Tips--------------------» Lyme--------------------- Lyme Discussion- Lyme Support Groups--------------------» Morgellons--------------------- Morgellons - General Discussion- Research and Publications- Morgellons Scientific - Theories & Speculation- Morgellons - Support - What You Can Do- Media & Important Morgellons Announcements--------------------» General Topics--------------------- General Health Board- Fun and Inspiration- Off-topic, General Issues- Government, Economics, Politics- Computer Questions & Answers--------------------» Photos Only--------------------- Photos....Please Add Your Own Link--------------------» Supplement & Alternative Treatments--------------------- Supplement/Herbal/Natural--------------------» lymeBusters live Chat Room!--------------------- lymeBusters live Chat Room!--------------------» For Our Members & Guests--------------------- Messages From Lymebusters--------------------» --------------------

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