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Post by bessie on Jul 2, 2008 8:56:12 GMT -5
I have not been very active the last few days, as my sister in MA began to have medical issues that have preoccupied me and my family. She heard yesterday morning that she has a basal ganglia tumor. She's had a CT scan the day before, and yesterday had an MRI that confirmed and gave greater detail. Her deterioration has been very rapid. She had been working until about 3 weeks ago as an Administrative Assistant. In the last week or so she had 2 car accidents, both her fault. Now is falling repeatedly and needs assistance walking, especially showering. Her personality has changed and she is somewhat incoherent. It appears to be an aggressive tumor. They are currently awaiting word to have her admitted to Mass General. I am in FL and terrified of flying because of having to handle everything that others are handling, sitting in an airplane for 4 hours, breathing that self-contained air that is notoriously contaminated. I will occasionally post/respond to PMs, but this is really an hour by hour thing and I may suddenly "disappear". I'm praying like crazy for guidance and protection. Bessie
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Post by toni on Jul 2, 2008 9:03:05 GMT -5
Bessie,
This is such saddening news, and our prayers are with you and your sister. I'm so sorry. Please keep us posted when you can, and take care.
Hugs and lots of strength and success in treating this. Toni
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Post by cheetah on Jul 2, 2008 9:29:07 GMT -5
Bessie Dear Bessie... That is so upsetting.. It is so hard to hear of family being sick and the magnitude of it... You know you and your whiole family are in my prayers. Sometimes I just have to say SCREW MORGELLONS and go.. but that's just me...(airplane) You will do what's right for you... Bessie I am just about speechless as my heart is aching for you... I am so sorry please when you can let me/us know how things are going ok? So much love, hugs, support coming your way...know it... XO
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Post by silverangel on Jul 2, 2008 12:03:01 GMT -5
bessie my dear, i am so sorry.....i don't know what to say. i'm praying too. i know this isn't what u had planned, and it sounded like u had some good plans too..... i know what u mean about flying, all that yucky air! but i think cheetah's right and sometimes u have to say screw it and do what ya have to do. i am traveling by car this weekend to see my family (back to northeastern ohio, anyone in that area?) .....i don't get to see them often enough. i'm hoping that i can forget about morgellon's for 5 days, but it's so hard when u see signs of it everywhere. i'll be checking in if i can. love u!
hugs and prayers, silverangel
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Post by beckybailey on Jul 2, 2008 16:24:43 GMT -5
Bessie, your family is in my prayers, too. How far do you have to travel?
I understand about not wanting to fly, I pray I never have to again. My fear is that "they" would act up in the compressed air, or someone would contract it from me.
We have an older model travel van that is a God-send. It has everything an RV does. It is the same size as a van but taller and it fits in a normal parking space. If necessary, I can go just about anywhere in the U.S.
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Post by lilsissy on Jul 2, 2008 18:05:01 GMT -5
Praying for you, I just saw something the other day about a new treatment for brain tumor.' It was sad to me to read as Chaos lost her best friend to it 2 years ago. Have you tried to do a news google search for revoltionary treatment for brain tumor. Also look at medical trails. Praying for a Miracle for you and your sister, Jennifer here is just one article I found in the news google for brain tumor flordia, include.nurse.com/apps/pbcs.dll/article?AID=/20080616/FL02/106160023with this going on maybe there is a good nano. www.medicalnewstoday.com/articles/113606.php
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Post by skytroll on Jul 2, 2008 18:29:24 GMT -5
Bessie,
This is so heartbreaking, but, you will find a way to be there. I know you will.
We will be thinking of you.
Take care and prayers for you and all in your family.
Skytroll
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jlk
Full Member
Posts: 146
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Post by jlk on Jul 2, 2008 18:52:44 GMT -5
Bessie, Prayers to you and your family.
If you decide to fly use a hospital surgical mask over your face with essential oil drops in it - Young Living's "Purification" is a good one but even Vicks has Nutmeg and Thymol essential oil in it. You do not need to keep the mask up on your face all the time - you could even hold a kleenex up to your nose for five minutes or so and then do it every 10-30 minutes during the flight. This will kill pathogens that get into your lungs from the airplane air. Don't worry about you being the contaminator - the planes are so full of this now that you are but another passenger who just happens to know they have it - while hundreds more have it and do not yet know it. So don't carry the guilt - go to your sister! Best wishes to all - Judy
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Post by bessie on Jul 2, 2008 21:24:06 GMT -5
Thank you all for your prayers. My sister was admitted to Mass General tonight, and her neurosurgeon is the one who is caring for Ted Kennedy. He will be reviewing all the diagnostics and doing a brain biopsy, but the family doctor already told my other sister that her "days are short". And all of this makes me hate Morgellons all the more, if that is at all possible. I WISH I could take this for her - my life is nothing, I try to get through each day just to get another day closer to the end. She has a husband and two sons, had a great life, everything to look forward to! And I am fretting about how I am going to see her while she is still able to know who I am This #$@%$ affliction!!! Bessie
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Post by robertalouise26 on Jul 2, 2008 21:49:49 GMT -5
Dearest Bessie words are so difficult at this very sad time in your life. Your sister will go to a better place and be out of her pain I am sure that she would want you to fight this thing with all your might. Do it for her. My love thoughts and prayers are with you and your Siser. Much love and big hugs. Roberta.
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Post by godsgrace on Jul 2, 2008 23:04:06 GMT -5
bessie, my friend...
I am praying for you and your family.
I am here for you, for what that's worth.
In my thoughts
godsgrace
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Post by justhanginin on Jul 3, 2008 9:37:49 GMT -5
Bessie, Get on the plane and go, you will kick yourself if you don't. Put a light coating of petroleum jelly on any exposed skin if you are concerned about transmitting this to anyone. this will also protect your skin from invaders. I hope the docs up there are able to help your sister, there have been many advances made in this field, perhaps one of these will help.
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Post by godog on Jul 3, 2008 10:58:55 GMT -5
Bessie, I am so sorry about your sister. What a sad time for you and all the family. Best wishes.
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Post by gertie on Jul 3, 2008 22:53:30 GMT -5
Bessie, I am so sorry. I wish we could help you in some way. We will be praying and thinking of you. Send strong vibes your way, so you can be strong for your sister and her family. Love, Gertie
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Post by felixwillford on Jul 4, 2008 0:37:21 GMT -5
Bessie,
Sorry to hear the news. As with the rest I will be praying and believe in the power of prayer and positive thoughts.
Kmarie
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Post by chaosonline on Jul 5, 2008 0:24:48 GMT -5
Bessie,
There is no wisdom, no words, to ease your heartache. My prayers are with you, your sister, and your loved ones. I also pray that God will guide your sister's physicians.
Sincerely, Karen
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Post by bannanny on Jul 5, 2008 2:31:57 GMT -5
Oh Bessie, I'm so sorry your heart has to hurt like this. You need to forget about morgs, get on that plane and get to your sister now. Fu*k morgs, don't you dare let it keep you away from your sis. Show it what you're really made of....... love is stronger than any kind of fear.
Anyway, just like some have already said above....... morgs is everywhere. You're not the one passing it along to others, this thing doesn't work that way. You said it should be you and not your sister....... if you need to find your reason for being here, it's where you need to go right now. I know you're hurting and I hope I'm not being hard on you by saying what I'm saying. I should probably just say how sorry I am that you have to go thru this, but I can't. I feel so strong about you going and maybe telling you to go is my reason for being here. You know you can call me anytime Bessie, either number. I'm praying for you and your family and for the doctors too....... we will all continue to.
Stay strong and look to the love inside,
I love you and I'm holding your hand ~~ bannanny
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Post by suebe on Jul 5, 2008 20:39:36 GMT -5
Bessie,
I've been avoiding this thread because I'm hurting so bad for you. You would think I'd have some great words of wisdom being i was in your shoes just a few short years ago.
The right decisions will come to you sweetie, to go or not go. I've never regretted one moment with my Josh but he also had Morgellons along with me so I didn't fear giving it to him. I already had when I carried him under my heart.
Do whats best for you and your sister sweetie. And know we are sending you our love and prayers.
If you need to vent, call me, I'll pm my number.
I am with you in my heart and I'm so sorry Bessie.
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Post by bessie on Jul 6, 2008 8:32:21 GMT -5
Thank you all for your support and suggestions. Last night I had a revelation of sorts. If my life has so little meaning, then what am I afraid of? I don't think I am shedding anything, as my skin healed over some months ago and I can't see anything around the house. So I don't think I am going to infect anyone; my fear is for myself. I just don't know what out there is dangerous. We are supposed to keep ourselves and our environments very clean...how do you do that in crowds, sitting in public places like airplanes, etc? So here's the revelation: If my life has no meaning or worth, then what am I afraid of (except getting sicker and not dying)? So I get sicker. An update: My sister had the biopsy and the tumor is a glioma, but the stage hasn't been determined yet because of the holiday weekend. Gliomas are incurable, and hers is deep within the brain and so is inoperable. She will be getting radiation and chemo, but that would be only an effort to slow it down. Her treatment plan will be ready tomorrow or Tuesday. When I know what will happen, I will then make plans to fly up. I'm expecting that will be in about a week. Bessie
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Post by bannanny on Jul 10, 2008 0:08:54 GMT -5
My heart goes with you Bessie and I'm so sorry the news is what it is. This life throws us alot of curveballs, but remember that when we get to home plate, it will be an eternity of peace, love and incredible happiness....... and we'll be sharing it with the ones we love.
God bless you ~~ bannanny
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