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Post by toni on Jun 17, 2008 18:45:49 GMT -5
What a sweetheart you are Violet.
I sure do feel the same exact way, I am thankful every day for this family!
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Post by bannanny on Jun 17, 2008 21:12:30 GMT -5
Thanks Sid, I know you're right but most of the time doing anything causes me to react to it. It's the environment here, ya know?
I also sent her the chip pix of mine, fighters and chaosonlines....... I thought she'd be interested in seeing those.
I love you lots ~~ bannannas
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Post by Sidney on Jun 17, 2008 21:41:38 GMT -5
Violet, so sorry you have this horror, but welcome to Lymebusters. Everyone here seems to be afflicted with the same symptoms, so we do understand your suffering.
Bannanny, good going and thank you for sending images too.
I swear this has been one of my worst days in a long time. I guess it's just that some days are harder to bear than other days when we get a tiny bit of relief from our symptoms.
I've always known that there were tiny holes near my facial lesions, sometimes, as many as four to six.
As Suebe described the staple look I realized that's pretty much what I see to a lesser or greater degree. Today I noticed there was a hair sticking out of one of the holes near a lesion and I plucked it and felt movement in the lesion. End result, the tunnel that connected the in and out hole, breathing hole, whatever it is, contained two black cat hairs. Cat hairs are so easy to identify, especially from black cats and we have two.
Anyway, the lesion is horrible and at times my entire left jawbone hurts.
Feeling very discouraged today and news from a friend made me feel even worse. He asked the doctor he saw today to follow a simple protocol and do a skin scraping to be sent for examination and the doctor laughed at him. This man is in so much pain with his hands he's miserable and black specks come out of his hands-fingers constantly. I'd like to slap that doctor up side the head.
That's my rant for the moment. (I love you too, Bannanny...hang in there and if you don't feel like doing anything, just don't.)
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Post by robertalouise26 on Jun 18, 2008 0:22:18 GMT -5
Dearest Sid I am sooo very very sorry that you are going through this rough patch, please remember that there are better days ahead I have Kyras hair coming out of my skin. What happens is that in any one place the itching hair come out of my skin usually three or four when they are all out the itching stops for the time being. I firmly believe that both Ayla and Kyra had or have a mite on their hairs and that they attack us and bury themselves under our skin and then for some reason they decided that they want to exit our skin and cause this terrible itching and lesions. Hope this bad day passess quickly Sid. Much much love and hugs. Robbie
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Post by bannanny on Jun 18, 2008 18:56:57 GMT -5
I hope you feel better very very soon Sid....... you do so much work and are always helping the rest of us. I'll say x-tra prayers for you tonight along with the one I just said for you. Get some rest as I'm sure it's much needed, and you don't do anything either if you don't feel up to it. There's nothing you need to catch up on....... you're way ahead of the game already!
Big hugs ~~ bannanny
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Post by Sidney on Jun 18, 2008 22:33:57 GMT -5
Thanks, Bannanny and Roberta.
Remember Toni-Sue's ugly critter with all the wild hair-like things sticking out of it as well as the forked tail? Well, Hello! I swear I have an identical one that came from a facial lesion today after much work getting it and a snarl of black hair out. It's truly hideous, and I think it must not be fully developed although examination under Toni's scope will reveal the truth. I'm mailing it to her tomorrow for Kodak Moments.
Today was even worse than yesterday, but will spare you all the details. Suffice to say, Morgies have enough trouble thinking for themselves, but when they have to think for their spouse too, it's enough to make us run screaming. (or maybe run away from home.)
The mind is a precious thing. To watch a loved one slipping is sheer torture.
So, cherish the good times and try to maintain your sense of humor and patience if this happens in your family.
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flyawayredbird
Full Member
Psalms 91:1He that dwelleth in the secret place of the Most High Shall abide under the shadow of the
Posts: 101
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Post by flyawayredbird on Jul 10, 2008 23:25:18 GMT -5
OH My....today is my first day to be here and post. And I want to say thank you! Thank you for whoever put this site up....thank you. I feel like I' am not alone now. I feel like there is hope.
On March the 8th 2008 I lost my life.....and I want it back.
We stayed at Yellowstone Park at a hotel in Gardnier. My life has not been the same sense that night. Around 2:00 am I felt a bite in the pubic area. I went to the bathroom and saw nothing.
My husband and I have not slept together sense Feb. so that night we were in separate beds. He was the blessed one. He has nothing, and I' am glad he doesn't. I don't think he could endure the pain very well.
I had contacted scabies in the past, so I felt that was the problem after the intense itching begin.
Then it began. Not a doctor one here in Montana, believe I had scabies. After begging, I finally received medicine. But nothing seem to work. Not even Lindane.
By this time, my husband is convinced this is all in my head. We have only been married for 4 and half years.
Because of March the 8th, I' am so sad to say, we are now going to get a divorce. He has not been supportive at all. In fact he has made things even worse. Telling the doctors I' am crazy and telling my kids, not to mention he tells me every single day this is all in my head.
Not only do I have to deal with the agony of the parasites, but now I have a divorce to go through now.
How much more can a person take? I said I would quit saying that because every time I say that.....it get's even worse.
The crawling, biting, stinging...and mostly at night when I try to rest. The pain at times has been so unbearable, I begin to think of ways to end my life. But this is not suppose to be the way my life ends. It just can't be this way. I want to live.
I have all the signs of Morgellons, but the only thing, I don't have black fibers, although I have tiny white cotton ball like fibers that appear on my skin for no reason. I have very little rash.
Every three to five days, I have what I call a break out. Then it is very intense. I have tried everything, and I mean everything. I have spent lots of money trying to find what ever I thought would help.
I just want to say thank you for being here, and I' am praying for all of us.
I want to live, flyawayredbird
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Post by bessie on Jul 10, 2008 23:49:02 GMT -5
flyawayredbird - Welcome! I'm sorry you had to find us, but glad you did. It's a triple whammy - no help from doctors, hardly any support from family (if any at all), and the personal horror of the affliction. Not only no help, but actual harm from most doctors. But you are not alone...everyone here knows how you feel and will give you support and can make suggestions about ways to try to care for yourself so that you can be more comfortable. Relax if you can, and read the areas that are most relevant to you now - ex., the supplement area. Where do you live? Bessie
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Post by belindadillon1 on Sept 24, 2008 23:51:43 GMT -5
I sent my story posted on Charles Holmes Foundation. I just have no energy or brain to add much to it, right now. Going in a downward spiral!
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