Post by Alex on Aug 14, 2005 19:07:37 GMT -5
I have created a survey specifically for people that have or had symptoms of the USP (Unidentified Skin Parasite) or Morgellons. And the results are FOR the people taking the survey (myself included) to use to learn where , how, why we got it and see what remedies have worked best. I don't think that a "cure" will be coming along soon for 3 reasons: 1) the "authorities", such as the CDC, "say" that it's a delusion. 2) pharmaceutical companies don't try to find cures, they create drugs that might relieve symptoms if it is profitable. And if an herbal remedy worked, they will never tell us and 3) this is a illusive disease because it seems to be a group of different things, perhaps fungus, yeast, bugs, worms, mites, chemicals, etc. working together. So I think the best way to find what works best (and what doesn't work) is to ask those who have done the most research.....US.
www.usp-db.com/index.asp
The primary goal is to condense the knowlege exchanged here into easily accessible statistics that will maximize efficiancy in finding effective remedies and help avoid ineffective or harmful remedies.
Alex
Please Register first
www.usp-db.com/Morg-dbase/register.asp
Then go to the Survey
www.usp-db.com/Morg-dbase/DBform.htm
[glow=red,2,300]Revised, expanded, clarified and almost ready....the NEW Survey including questions and topics suggested by previous survey participants![/glow]
The new survey will allow updating/editting of data entered in first survey (automatically filled in) and have more built in choices (faster to complete). You will have to input your username to extract your data. If you forgot it, you can email me with some other personal details (like age, state & city) to get your username.
I am shooting for mid December so it will probably be early January
Thanks for pinning the thread Kerry!!
[glow=red,2,300]NOTICE
[/glow]
19 NOV 2005 - Regarding this map (above) It does NOT display locations with the dots. It is only average "density" that is displayed with the dots. I want to display approximate locations but I don't have the software to do that. I had to use Excel 2000 to get this map because for some reason Excel 2003 doesn't even have map charts built in Anyone have MS MapPoint? I bet it can plot locations which could be very helpful.
11 October 2005 - I am working on a U.S. map view that groups states into regions and displays the numbers of people and duration of infections graphically. If the USP is spreading out from an origin point or points, and is airborne, it might be possible to see in the map view. There are still over 20 states that have not yet been "heard" from in this survey. Even after adjusting the proportions for the populations of each state, some states seem to be "under-represented". There are other factors that affect the probability of someone finding this survey that vary between states, but if this trend continues, it may be a significant clue.
Alex
29 December 2005 - I am back after a couple weeks of illness. I Haven't been able to update the results or even collect survey data due to either allergic reaction or side effects of Bactrim. It has helped my skin symptoms but I had horrible pulsing pains in my head near the ear for days then pain in my shoulder like a pinched nerve but no position relieved pain and couldn't sleep for over 2 days. I also had chills and severe stomach cramps. Now I stopped the Bactrim and feel good except my left arm doesn't work well. It acts weird, twists in odd ways when I reach and no strength. I don't know if it's over yet.
Anyway, I finally updated the "Theories..." & "Manifestations..." & "Unlisted Symptoms" pages. The first 2 pages of results are working well, but the other pages are still un-repaired. I have however added some details to the first page that are interesting.
Also there was a huge spike in surveys submitted on Christmas Day.
Alex
03 January 2006 - I added a couple new pages including an interactive table. It is not password restricted and I hope that people can see the potential of this database and want to contribute their personal data. The Profession/Work Status Table has columns for AGE, GENDER, LOCATION, PROFESSION, and WORK STATUS. Each column can be used to sort and/or filter the records to display any correlations in the data. Here is the link:
home.comcast.net/~usp-db/WorkList.htm
I am working hard to get the new survey ready but I am also working on the existing database and also still repairing the pages that were corrupted somehow. Pages 1, 2, 4 and the Theory, Manifestation and Unlisted Symptoms pages have all been repaired and expanded. Page 1 has gotten very big.
There is also a new page with charts showing an interesting correlation between USP/Morg cases per state and "non-white" population percentage (US Census 2000). Although the survey shows almost 90% of USP/Morg cases are "white", the highest percentages are in states with highest percentages of "non-white" population. e.g. California is 37% non-white and ranks #4 in non-white population percentage (after Hawaii, Washington DC and Mississippi) and yet has highest number and percentage of USP/Morg cases. Those are facts.
home.comcast.net/~usp-db/results/AgeGroupGenderDetail.htm
(this page requires passord)
Now, my comment: The government was slow to respond to the disaster in New Orleans and the people most hurt by Katrina were "Non-white" and now here in California with a large non-white population and the largest number and percentage of USP/Morg cases, again the government is inexcusably slow to react. What's up with that??!!
Email me at usp-db@comcast.net with any comments regarding this and put "Inverse correlation in CA" in the subject box.
www.usp-db.com/index.asp
The primary goal is to condense the knowlege exchanged here into easily accessible statistics that will maximize efficiancy in finding effective remedies and help avoid ineffective or harmful remedies.
Alex
Please Register first
www.usp-db.com/Morg-dbase/register.asp
Then go to the Survey
www.usp-db.com/Morg-dbase/DBform.htm
[glow=red,2,300]NOTICE![/glow]
19 November 2005
[glow=red,2,300]Revised, expanded, clarified and almost ready....the NEW Survey including questions and topics suggested by previous survey participants![/glow]
The new survey will allow updating/editting of data entered in first survey (automatically filled in) and have more built in choices (faster to complete). You will have to input your username to extract your data. If you forgot it, you can email me with some other personal details (like age, state & city) to get your username.
I am shooting for mid December so it will probably be early January
Thanks for pinning the thread Kerry!!
[glow=red,2,300]NOTICE
[/glow]
19 NOV 2005 - Regarding this map (above) It does NOT display locations with the dots. It is only average "density" that is displayed with the dots. I want to display approximate locations but I don't have the software to do that. I had to use Excel 2000 to get this map because for some reason Excel 2003 doesn't even have map charts built in Anyone have MS MapPoint? I bet it can plot locations which could be very helpful.
11 October 2005 - I am working on a U.S. map view that groups states into regions and displays the numbers of people and duration of infections graphically. If the USP is spreading out from an origin point or points, and is airborne, it might be possible to see in the map view. There are still over 20 states that have not yet been "heard" from in this survey. Even after adjusting the proportions for the populations of each state, some states seem to be "under-represented". There are other factors that affect the probability of someone finding this survey that vary between states, but if this trend continues, it may be a significant clue.
Alex
29 December 2005 - I am back after a couple weeks of illness. I Haven't been able to update the results or even collect survey data due to either allergic reaction or side effects of Bactrim. It has helped my skin symptoms but I had horrible pulsing pains in my head near the ear for days then pain in my shoulder like a pinched nerve but no position relieved pain and couldn't sleep for over 2 days. I also had chills and severe stomach cramps. Now I stopped the Bactrim and feel good except my left arm doesn't work well. It acts weird, twists in odd ways when I reach and no strength. I don't know if it's over yet.
Anyway, I finally updated the "Theories..." & "Manifestations..." & "Unlisted Symptoms" pages. The first 2 pages of results are working well, but the other pages are still un-repaired. I have however added some details to the first page that are interesting.
Also there was a huge spike in surveys submitted on Christmas Day.
Alex
03 January 2006 - I added a couple new pages including an interactive table. It is not password restricted and I hope that people can see the potential of this database and want to contribute their personal data. The Profession/Work Status Table has columns for AGE, GENDER, LOCATION, PROFESSION, and WORK STATUS. Each column can be used to sort and/or filter the records to display any correlations in the data. Here is the link:
home.comcast.net/~usp-db/WorkList.htm
I am working hard to get the new survey ready but I am also working on the existing database and also still repairing the pages that were corrupted somehow. Pages 1, 2, 4 and the Theory, Manifestation and Unlisted Symptoms pages have all been repaired and expanded. Page 1 has gotten very big.
There is also a new page with charts showing an interesting correlation between USP/Morg cases per state and "non-white" population percentage (US Census 2000). Although the survey shows almost 90% of USP/Morg cases are "white", the highest percentages are in states with highest percentages of "non-white" population. e.g. California is 37% non-white and ranks #4 in non-white population percentage (after Hawaii, Washington DC and Mississippi) and yet has highest number and percentage of USP/Morg cases. Those are facts.
home.comcast.net/~usp-db/results/AgeGroupGenderDetail.htm
(this page requires passord)
Now, my comment: The government was slow to respond to the disaster in New Orleans and the people most hurt by Katrina were "Non-white" and now here in California with a large non-white population and the largest number and percentage of USP/Morg cases, again the government is inexcusably slow to react. What's up with that??!!
Email me at usp-db@comcast.net with any comments regarding this and put "Inverse correlation in CA" in the subject box.