|
Post by debbie on Oct 14, 2005 8:23:18 GMT -5
Hi alex & all
What a great idea & sounds like a lot of work on your part (thanks). I have not visited the site yet, I'm going there in a minute.... I'm not in America, but would still like to fill out the survey. I hope this won't be a problem........
I'm feeling pretty guilty........ great moderator I am, when I have only read this thread for the first time tonight.... sorry.... (don't know how I missed it).....
wishing you all well.......
|
|
|
Post by debbie on Oct 14, 2005 9:19:21 GMT -5
Wow, I just filled out the survey & checked the survey resullts.... Great job
I never did add a comment in the theories, speculation, comments section....... But reading over all the replies, so many of them hit home for me..... Thanks for all your input & everyones input....
wishing you all well.....
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Oct 14, 2005 23:45:39 GMT -5
To Debbie, I wish you had added your input to the sections of the survey about theories, strangest manifestations or any others. Even if whatever you would have said was redundant, that is actually good because it adds validation and credibility to each of us. I don't know if you looked at the results before you did the survey, but obviously if people decide to skip parts of the survey or even to not do it at all because they have seen the results already, then I have to change it so that the results are only viewable after completing the survey. Okay, I have some work to do. For everyone that has done the survey already that gave me an email address, I will be sending you a link and a password to check the results pages. Anyone doing the survey from now on will get a password on the confirmation page or by email.
Alex
|
|
|
Post by jwf on Oct 17, 2005 17:52:13 GMT -5
The survey results were fascinating. Something that just jumped out: 3 out of 4 or 75% of respondents have not been tested for Lyme disease. I know there are many barriers to getting a reliable Lyme test plus Babesia and Ehrlichia, but--- If you have Chronic Fatigue, Arthritis, Fibromyalgia, Multiple Sclerosis, Alzheimer's, ALS, or persistent Brain Fog, Lyme disease is a strong contender for one reason you are ill. If left untreated, Lyme disease will persist (for life). My SWAG for now: Over 50% of those with Morgellons are Lymies. Blue Skies.............John
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Oct 18, 2005 6:17:18 GMT -5
Yes I am very surprised at that number too. And I hate to admit it but I am one of those who hasn't tested yet. But that will be changing soon now that I finally got insurance. I just now added the percentage to the results ... 71 % untested Alex
|
|
|
Post by Ms. Kitty ( kraz as a kat) on Oct 19, 2005 15:04:30 GMT -5
i am looking for the salt & c thing? duckdoctor@peoplepc.com ladycop10
|
|
|
Post by Ms. Kitty ( kraz as a kat) on Oct 19, 2005 15:05:17 GMT -5
i am looking for the salt & c thing? duckdoctor@peoplepc.com ladycop10
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Oct 20, 2005 6:14:23 GMT -5
I finally got around to reading your story (the longer version in the survey) and I was wondering about the pictures you took. I have similar equipment. I think, optical microscope with a digital camera attached. ANyway, I'd like to see some of your pics and see if you can help me get better pictures. I only have a few hundred images, not a few thousand. And most of them aren't worth saving. I hope you got your email working or created a Lymebuster acct. You can contact me either way....email or Private Message.
Alex
|
|
guest
New Member
Posts: 0
|
Post by guest on Oct 20, 2005 10:28:55 GMT -5
Well I'm confused. I just completed the information and thought I could review results of the survey by using my user name and creating a password. I thought an email address was not required, but when I tried to enter a password, under my username, a page came up that I was an unauthorized user. Can you explain what I need to do? If email is required to view all results, then just delete all of my information from this survey please.
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Oct 20, 2005 16:59:29 GMT -5
Well I'm confused. I just completed the information and thought I could review results of the survey by using my user name and creating a password. I thought an email address was not required, but when I tried to enter a password, under my username, a page came up that I was an unauthorized user. Can you explain what I need to do? If email is required to view all results, then just delete all of my information from this survey please. It isn't that sophisticated yet. If you don't have or don't want to use an email address, you could send me a Private Message thru Lymebusters and get the PW that way. I can't delete your data safely because there are others that don't have email addresses too. I changed the way it works today so you can view the results without giving an email. But I strongly recommend using email because there is a new survey with new questions suggested by people taking the survey and I will notify everyone by email when it is started. Also, if you email me with your username I will give you password without putting your email in the database if that is what concerns you. Nobodys usernames or email addresses are published anywhere in the results or anywhere else.
|
|
|
Post by Guest on Oct 20, 2005 22:30:27 GMT -5
Thanks Alex. Results are interesting.
|
|
|
Post by connie chung on Oct 22, 2005 17:08:47 GMT -5
I took it. It was good. There were symptoms I had never considered. Though, I was able to add one that wasn't mentioned.
Thank you for doing that.
|
|
|
Post by leftykoalabear on Oct 28, 2005 2:19:21 GMT -5
Greetings I am a newbie and I wanted to know how I can get access to the findings of the survey or to add my comments.
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Oct 31, 2005 3:43:04 GMT -5
Greetings I am a newbie and I wanted to know how I can get access to the findings of the survey or to add my comments. If you did the survey and included your email address (which is kept private, of course) you will get an email within 1 day with access directions. You will get the access info immediately after the results display is updated. Also when you complete the survey you will get access directions, but your data will not be entered yet. There are several areas in the survey where comments can be written. If you already did the survey but did not include an email address, you can email me or use Lymebusters Private Message to request access. If you do that, please include the username you used in the survey.
|
|
|
Post by Fred on Nov 13, 2005 17:06:23 GMT -5
Hi,
Just a note. I have spoken to an old doctor friend at the CDC and he told me they were aware of a outbreak of the symptoms in the Jacksonville Fl area. I know this Dr. from the old Hepatitis wars. When they did not believe That HIV and HCV did exist, The local TV station here has done 6 spots on the 11 O"Clock news. Showing the neglected promise of the Duval Health Dept. to investigate the infected population and report it with a plea to research this problem. The Jax Health Dept. has data from 80 respondents on geographical and symptomatic replies to their limited questions. I can get the number of the head nurse at DHP if you want. With hope,
Trime
|
|
|
Post by The Intuitive on Nov 15, 2005 3:54:32 GMT -5
For what it's worth, whether you want to believe what I say or not, if you do, you will slowly be on your way to health and know how to defend yourself in the future.
This is related to biological experiments on the population perptuating through vaccinations primarily and secondary co factors.
It has been going on for a long time but not untill 2001 was the use of biological agents on US civilians Ok'd under the patriot act to be exptended to all federal agencies, not just the CIA and NSA as before, so the DEA has been using these agents in neutralizing alleged drug criminals etc, the FBI, violent criminals ie rapists, hostiles, the DHS, alleged terrorists, alleged percieved threats to national security, and more, and the ares are very grey. Worse yet, under the patriot act. with enough evidence, even trumped up, as in these "times of war" just saying the wrong thing in the presence of the wrong person can bring the use of biological agents against a person, WITHOUT a criminal trial or even appearance before a judge, so in 2001, post 9-11, the DOD extends the use of a biological fuungus to the federal agencies and puts the antibodies / gene therapy in the federal vaccines and flu vaccines, of which these vaccinated people become super spreaders for and indefinate period of time.
The federal agents disperse the biologicals on the targets, and anyone whos immune system breaks down because of a vaccine, or who passes on the vaccine but is exposed to others that are vaccinated on a regular basis(Troops, health care, teachers etc) come doen with the deblilitating diseases the more and longer they are esposed.
It serves the pharmaceutical industry well, the global health and populkation control agencies well, the federal agencies in "non-lethal" weapons testing and proliferation well and more,.
You are a victims of gulf war illness/lyme disease/morgellons etc. It is all the same, for the most, a stelath pathogen with an incredible gene envelope, and exo/mycotoxin production for neurtoxicosis symptoms and all metabloic/biological dysfunction, as for treatment, because these stealth pathogens evade our defenses, detroy our immune systems, are contagious, attach to our DNA, disrupt mitochondrial function and intracellular functions, protuce waste toxins and destroy all bodily systems...the treatments are the same.
Depending how much you have been exposed to, prolonged repeated and severity, your state of health at the time and a few predisposing gentic factors, wherever you are along the slope of destroyed, toxic and infected health, you need to address all with same.
ALL will be drug resistant, so mega doeses of the choice drugs for Lyme or GWI will do, (Benicar for special effect) then your diet (PH, raw foods-no animal proteins they create acid by products, no sugars unless they are mono polysacharides, like mannose or galactose, fatty acids /3 and 6 especially flax seed oil, ionic minerlas and precurses to amino acids and imple proteins and sugar synthesis, Like Lysinem glutamine/Glutahione, DHLA, CO-Q10, alpha lipoic, and the sulpher based aminos and proteins, so MSM and DMSO are great, enzymes for digestion and fibrin and protein, and as well as the minerals like vanadium and magnesium, and we cant forget vitamin C and salt, and echinacea and cats claw(Toa free if you wish but not necessasry)
If you think of this as a worst case scenario and treat it as such and aggressvely you will avoid the worst case scenarios, cancer , diabetes, ALS, AIDS, blindness, stroke or heart attack and even the simpler, skin cancer, acce;erated aging, brain fog and memory and sleeping disorders etc..... all related to the toxins......
A bacteria that is cotnagious like tularemia and plague, stealthy like mycoplasma, virulent like HIV and plemorphic and resilient like LYME ... are you starting to get the picture?
HEAVY clindamycin and quinine....... try it. With MSM and Vit C and salt.
Actually, something that is part virus, part mycoplasma, part bateria, part spirochete and part fungus repsonds to alot of different drugs, but the reading before describes what is necessary to get our body back to be able to manage the problem.
...Glyconutrients!!!
Transfer factors!
Anti Inflamatories! (MSM, Una Degato etc)
Immune regulators ( Echinacea, Una Degato)
Enzymes
Water
Minerals
Vitamins (C, A, E)
Mineral Salts (Sodium, phosp, potash, sulphur)
THere is evil in the wprld, and it corrupts all, it is in our military and government too, they are trying hard to fight it, imagine that, a government and military that is fighting itself from the dark side of the force, from traitors and evil....... remind anyone of star wars, or alias, or 24, or T-2/termiantor, or the Matrix etc? You see, people ARE trying to help us, only one must not be a fool, and not choose the red pill......
It's all about money and "controlled chaos" as a market...
The Intuitive......
|
|
guest
New Member
Posts: 0
|
Post by guest on Nov 15, 2005 7:43:50 GMT -5
AMEN! This is exactly the truth. To the letter. The herbs you state are great. But the exception is, with what ever they did to us, these vitamins will not kill the creature eating on your body. No matter how you change your diet. It's made not to stop at anything. That's why we have had to fight it so hard. They created these germs to kill. Or it would not be effective as a germ warfare. It will help you fight it, to keep your immune up. But this bug is one that wants to eat you from the inside out and does not want to leave. It's in every part of your body. It's the mother of all germs right now. There is nothing as bad right now as this stuff. It's is the disgrace of our country as to what they have done to us. For over 5 years they have let this stuff eat on us and have done nothing or alerted the public. Who ever made this germ, they knew what they were doing. They did not care, as long as they got to test it. The CDC in involved and that's why they won't help you. They know they messed up. Now they hope to shut us up and they had hoped they would get away with it. But now, they found out they can't stop it. Our whole country is at risk. Yet they keep screaming bird flu. Wasted no time telling you about that did they?. It can kill you faster, but it does not compare to this. We all have already had this to long. It's been in our bodies way to long. It's no telling what it will cause later even if we do get rid of it. This germ is made to live with or without us I think. Or else we would all be cured by now, because we have tried everything on it. Even some have had chemo, and it still did not kill this stuff. That alone tells you what your dealing with. There are other places that have tried almost everything in the book on this stuff. They have not had any better luck . They got improvement, then other stuff started up. The best way is try to kill it as fast as you can. By slamming it as hard as you can stand until you feel them letting go of your insides. Rotate and rotate and slam it with everything you can. It's the best way. Slow only allows it to keep spreading. Making other things go wrong in your body. Then it just tries to keep coming back. Relapse after relapse. Now, they want us to follow there protocols. Follow the rules. When they have allowed us to suffer and lose everything for over 5 years. They are no better than murders in jail. They know this is going on. Yet they still won't tell the public. They will down play it like they don't know what it is. But will say,Sure is strange.hey you guys might get this though. Now everyone in the whole US will have Lyme's. It is now contagious. It has mutated. To a worm that eats your body. Well, if that's what you want to believe....
|
|
|
Post by J Jill on Nov 15, 2005 21:44:47 GMT -5
I agree with you to a point, Guest.
Intuitive, I always agree with everything you have to say.
The point I mention is the fact that a woman that I know was DX'd with Lupus about 8 years ago. Long story short, she went to a Naturopath and started on various herbals. She never came right out and said she took this or that but it would come out in conversation from time to time. I do recall her saying that she took Teasel. I also know that she changed her eating habits. Quit the diet pop (aspartame) and made numerous other changes. Lots of yogurt and whole grains and veggies.
Turns out she didn't really have Lupus. Also, she is now healthy as a horse which brings me to the possible source of the pathogen- her horses.
She (and her family) learned a lot from the Vet. I somehow believe that the horses had something (she never told me what) and the family members got sick from it. Her brother was ill as well- he spent the most time with the horses. He went through a time of bad brain fog and had a really bad accident driving a county vehicle. He was looking pretty haggard at that time but he has come around as well (to better health that is).
Other friends of mine who had this grunge are also well. They moved to Arizona- have a hot tub and when I saw them last year, they were well. No more bites/lesions. And these were the people that I truly believe gave me this stuff. He was being treated for "Chronic Fatigue" and she for something similar. Whatever they took, it sure helped them. I think the hot tub had a role in the healing process which is why I mention it.
Yet another family isn't doing as well. The husband died this past June and one daughter was DX'd with EBV after a lengthy hospital stay. She had to drop out of college due to severe brain fog/fatigue etc. Another daughter had a baby with Autism (could be related?) and my friend (the Mom) is having her share of health problems as well.
The irony is the latter family knows a group that sells all the "right" products for this disease. The herbals, ionic minerals- the whole 9 yards. None of them ever took any of the products even though they do listen to the man's radio program where he touts all the stuff. What a shame.
Another group of friends that moved out of town have this as well. The husband had to go on SSI (at the age of 36) due to the severe symptoms. He ballooned up. He was slim and is now very heavy. His wife seems to be ok- her symptoms seemed to clear up, but the husband and the kids are ill. That couple/family was also close to the couple that I believe gave me this illness (the ones with the hot tub).
My point is that the folks that I know with the disease get better with herbals and/or antibiotics and diet change. The hot tub seems to work as well.
Some are lucky enough to find good doctors and some are not.
I'm fortunate in that I have found the right combination of herbals to keep me functional. Now and then I get antibiotics from somewhere (dentist, last time) and really start to feel good. I'd love to try the Glyconutrients. May bring me to 100%?
Thanks for the info about that, Intuitive!
|
|
Alex
Junior Member
Posts: 52
|
Post by Alex on Nov 16, 2005 1:30:01 GMT -5
Hey!!...I am glad to see you are here. I want more info. please email me thru the link in this thread or use a LBPM (LymeBusterPrivateMessage)
Thanks Alex
|
|
|
Post by TonyM on Nov 16, 2005 10:16:37 GMT -5
I am no longer bothering with a support group, as I feel it would bring back the sores I had when I first got this....I am sorry for this for the people close to me (Fullerton), but I haven't got any sores (lesions) for quite a while now, and I don't need to be infested even more to the point of getting the lesions back again. The last one's I had took like 4 months to heal, but then my friend introduced me to this new ointment. If you have them - you can try this out - I used a powerful ointment and covered with band-aids/bandages for 2-3 days to a week - reapplying the ointment 2 times a day (or as needed because of rubbing off accidentally from clothes and whatnot and putting a clean bandage on over it 2 to 3 times a day. The best result was making sure the bandages were at least changed rite before I went to bed for the night and again rite after a shower in the morning after waking up. The ointment I used was called FOILLE - Antiseptic/External Analgesic - sold by Zee Medical in Irvine, CA (made by Blistex- Oak Brook, IL 60521). I have a friend that works there, so I get it for free. Maybe you can contact them and get a free sample or 2 or contact Blistex in Illinois and order some (not expensive at all). This Worked on Me and DID get rid of the sores I had a while back COMPLETELY, and every time I see one starting, I do the same thing, I put a bit of the stuff on the spot where the sore is beginning, and put a Big band-aid (flexible - NOT Sheer, because the sheer ones never stay on) over it. I used a generous, not overkill though, amount each time I reapplied the ointment. I don't know why it worked, but, ever since the last sore was healed by this stuff, I have yet to get another lesion/sore. I attest to this by my word. Please try this if you have sores/lesions as it will make dealing with the "bugs" allot better without having sores that itch And burn a bit at the same time. Good luck, and God Bless.......I added this to another forum as I think people should try this for themselves.....no pills to take too.....it won't get the "bugs" gone, and they will still be with you, but it Should get the sores gone, at least it did for me. p.s. - If you Do get this ointment - Do Not put too much, as it might make the sores take too long to heal, I used a LITTLE BIT Extra then I would have for a cut or severe scrape and threw on the band-aids/bandages. Make sure to discontinue the band-aids when the sore is pretty much gone, skin needs to breath too y'know - meaning, don't Over-wrap. TonyM - God Bless you all.....back to job huntin for me....weeeee!!!! Stay strong and powerful mentally!!!! OMG - Looks like I have a job, just gotta cell call from Kimco to start tomorrow at a new job!!! YYAAYYYYYY!!!!! See!! If ya let the "bugs" keep ya down, they will Always win!!!! ;D
|
|