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Post by rhorn789 on Feb 16, 2006 9:24:55 GMT -5
Has this data been completed, if so where is it. Im going to my new doctor tomorrow. I have seen him once before and he seems workable, but it was for something else and I did not bring up the parasites subject. I have been to many doctors and the ER 12 times in 2 years, and it got me committed twice. I have bipolar disorder and have seen a great psychiatrist for medication, for many years. I finally told him all about what has happened expecting him to send me to the nut house, but to my surprise he blew a gasket over it! He has a family member with collembola also, and wrote my doctor a long letter, and sent me a copy of it. It basically said “I have been this mans psychiatrist for many years, he is bipolar, but is “in no way delusional” he has a newly emerged form of parasitic condition that must be taken seriously and addressed with medical treatment”. I need to know what to tell the doctor to prescribe to me.
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Post by rhorn789 on Feb 17, 2006 5:53:23 GMT -5
I will take that as a "NO"
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guest
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Post by guest on Feb 17, 2006 6:27:52 GMT -5
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Post by rhorn789 on Feb 17, 2006 15:58:18 GMT -5
I dont have a password to view that.
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Post by 2hojo on Feb 23, 2006 1:14:59 GMT -5
Alex again you are the man, sorry been to busy to do more research but I have two Biologist and UCLA on it. Still no ants, none, I mean none! Hojo
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Alex
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Post by Alex on Mar 5, 2006 8:28:58 GMT -5
[glow=red,2,300]Sorry I have been away and missed these posts. I have not even been checking email lately. I kinda got overwhelmed with tasks: after posting the USA USP-Morg Map, I got requests from people that wanted to contact the other people near them and I have to ask each one for permission and at the same time I have been working on the new survey and the new web site and the whole online database access authorization thing which will have to have individual accounts to allow people to edit their survey records and the additional/updated questions...and of course there has to be a " change password" function and a "forgot password" recovery function.....BUT....I am getting close...or at least closER...The good news is that when it is all done...it will be almost entirely automatic so if I get a thousand surveys, or ten thousand...it won't be too much to handle. and I know there probably are 100's of thousands that are in the early self diagnostic stages...thinking it's just fleas or jock itch or an allergy. Anyway, I need to check my email. I have avoided it for over a week, but I gotta check...
Alex[/glow]
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Post by Patti on Mar 8, 2006 12:48:54 GMT -5
............I got requests from people that wanted to contact the other people near them and I have to ask each one for permission and at the same time I have been working on the new survey and the new web site and the whole online database access authorization thing which will have to have individual accounts to allow people to edit their survey records and the additional/updated questions...and of course there has to be a " change password" function and a "forgot password" recovery function..... Alex, we hear ya on all this.......very complex and time-consuming to say the least, eh? But I know how much effort you are putting into this and we all appreciate it very much. Thank you from everyone here! Hugs, Patti
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nadie
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Post by nadie on Mar 9, 2006 0:41:42 GMT -5
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nadie
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Post by nadie on Mar 9, 2006 3:48:21 GMT -5
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Post by guest on Mar 9, 2006 14:52:02 GMT -5
Pretty good sites and I will bookmark them.
Thank you.
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Post by questionhair1 on Mar 14, 2006 15:59:25 GMT -5
Alex: Your work to make this more automatic sounds terrific! May I request that you put a link to your map and the portion of the survey results available to the public (Age/Gender/Professions data) on the wiki for Morgellons on Wikipedia? The reason I ask is that the end of the wiki Morgellons article leaves the reader on the DOP emphasis. Also, the majority of the links at the bottom of the wiki are to DOP articles - leaving a sufferer who is only checking a few links thinking they still haven't found the right place yet. (Not everyone clicks links in the order presented - so even though MRF and Southcity have links - someone might miss those) More links to the reality of what's going on as opposed to the unhelpful delusional theories would be better for someone who is suffering with the itching, crawling, lesions, rashes, and strange things in their body. Here is the website: en.wikipedia.org/wiki/MorgellonsThank you, QH
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Post by Mynette on Apr 13, 2006 20:57:20 GMT -5
We have started a fund to help Dr. Schwartz. It is through his attorney. Please send any little bit you can. it all helps. Make the check out to: Dr. Schwartz Defense Fund C/O Kennedy&Han 210 12th st. Northwest Albuquerque, New Mexico 87102-8662
Thankyou
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Alex
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Post by Alex on Apr 20, 2006 4:12:37 GMT -5
Hey everyone, I am still here! I know that many of you are farther along in the course of this poop than I am and I admire your courage and stamina. The survey is still open but I am planning to close it soon and start the new expanded survey. I can't believe that I was able to do what I have done already. I doubt I could fix it if it got broke. Ever since I was on Bactrim for a few weeks that ended in the most unbearable pain of my life, the brain fog and CFS has gotten so much worse. I recently tired neem oil and karanja oil and it has helped but I don't think it is "the CURE". I have bathed in it, applied it directly (undiluted) and hot, and ingested it (10 cc/day) and it does do something. But like everything else I have tired, it had good initial effects but quickly had minimal effects. I am doing the best I can. I appreciate any support. I am also dealing with my mother who is now unable to remember anything we talk about for more than 5 minutes. She lost her purse (with $250 in it) and then her car keys within 48 hours and now thinks someone stole her purse and asks me everyday form the past 10 days if I have her car keys. She can't remember what day it is and everything I do is forgotten by the next day. I am going outta my mind.
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Post by mookie1957 on Apr 26, 2006 2:49:11 GMT -5
does anyone remember my son Travis Wilson? I'm so very sorry to say he lost his battle with moegellons, I'm his father and extremely distraught.
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Post by ANTHILL on Apr 26, 2006 6:10:03 GMT -5
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Post by Chicago Bonnie on Apr 29, 2006 0:52:11 GMT -5
Mookie, my deepest sympathy. My heart hurts for you and I pray for your heart. If you need us here at this board, we are here for you. Do not keep it all in, when you are ready, we will listen, and we will wrap our arms around you and love you and hold you in our big board arms and hope that somehow you will feel our love and that you know we care for you and that your son will be deeply missed. Love to you and your family, Bonnie P.S. If you need to talk, try our "support" section.
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Post by Ms. Kitty ( kraz as a kat) on May 4, 2006 20:47:46 GMT -5
mookie check your private messages, krazykat,old cop
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Post by cilla on May 25, 2006 14:00:48 GMT -5
Alex,
I am sorry to hear that you are so unwell. I am not sure, but I think that this weird infection/infestation tries to fight back against the treatment applied and taken, in a fashion that has never been witnessed before in medicine. I think that the different elements of it can almost 'protect' the element, e.g. by twisting over it in a protective fashion, that the drug would otherwise destroy.
If this is true, (and I don't know if it is), maybe the drugs, such as those contained within the Schwartz protocol or similar, should be taken in a specified order or regimen, so that you can exert control over the 'attacker', and not allow things to be the other way round.
I do not think that the helminths possess much in the way of this defence mode, as they apparently succumb to the appropriate drug at the proper prescribed dose. That is not to say that their eggs may not hatch later, unless the prescribed drug deals with these too. I believe, but do not know for certain, that it is the helminths and the burrowing fly larvae that release noxious substances into the bloodstream, thereby causing the terrible fatigue and brain fog. Some anthelmintics have been used to treat some cases of myiasis in the so called 'third world', because, at a given dose, and length of treatment, they will also kill the fly larvae as well as the helminths.
Another point is why are there geographical clusters in this apparently new clinical condition? Is there a reason? Oh, there is a reason all right. Ask yourself what each putative reason could possibly be.
While allowing all of that to churn around your subconscious, have a long read of what Tam tam has stated, and also what has been alluded to.
Think about all of this, and then consider writing to the responsible authorities at the NIH. Part of their website contains material with regard to biosafety of high containment level (C3 and C4) laboratories. If there was some accidental leak of this type of pathogen, from a university laboratory somewhere, e.g., (not necessarily in the US, but perhaps possibly), what would a moral and honest head of department do, (if he or she knew about it?).
Would one expect to find some cases in the surrounding environs of the laboratory concerned? Would it make any difference if an infected arthropod became an escapee? Could this escapee have married and procreated, and all the family moved to southern California, on account of the fine weather? That could explain the clusters! As could the fact that some of these individuals are 'old hippies'. Small wonder that the Bay Area of San Francisco was chosen, as it is well known that many of the residents there will give any theory their deepest consideration, such as chemtrails, UFO's etc.
And what about the infected seed pods that apparently arrived in quaint England quite recently, having travelled on a crate on a boat from the self same area of erstwhile hippiedom?
Some, from the very area where English lasses are known to die of love, are already in advanced stages of infection! How would you like to go from the 'early self-diagnostic stage' of apparent tinea cruris, and then shoot straight to feather emission from the subcutaneous tissue, without any apparent brain fog in between?
Could it be that the elements of this infection are using the seed pods for aerobic classes, thereby arriving at their chosen destination fitter than ever before, just like the stray target that apparently infected those of you with this condition uses the inside of the protozoal element with the same aim and purpose, viz. daily aerobics to build strength, stamina and suppleness?
My humble advice to you is to write to the authorities cited supra, stating what an averred scientist has repeatedly stated on the other site, because he has made a definitive link between something pathogenic being 'released' in the US around the year 2000, and that this sample of pathogenicity was originally a stray target from a high containment level laboratory, and that this is what has caused the novel clinical syndrome from which many of you allegedly suffer.
You would not be accusing anyone of anything, but you would have an inalienable right to seek an investigation from those authorities whose actual remit it is to oversee the health and safety of these biosafety high containment level laboratories in the US. Demand the source code for the cloned infection culture of the type described by the scientist, in his posts, and on the videos. NB, a new video is to be released in June. Who assembles and supplies this type of culture, containing cloned pathogenic elements and insects, inter alia? Which laboratories have bought and used them, (provided they can meet the strict safety criteria and have the necessary permits allowing them to build such a laboratory, and do such research and experimentation)? Could a department subsequently lose their permit for any reason, and, if so, what might the sequelae be for it and others?
Can you explain the reason for the clusters to me? The scientist mentioned has said not to put too much weight on them and the stray target that escaped from the original laboratory, or at least not geographically.
I would urge you to consider the fact that Trojan horses can go hither as well as thither.
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Post by questionhair on Jun 27, 2006 22:25:14 GMT -5
Alex:
Are you doing okay?
I hope so.
QH
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Post by questionhair on Aug 19, 2006 22:49:06 GMT -5
Hey everyone, I am still here! I know that many of you are farther along in the course of this poop than I am and I admire your courage and stamina. The survey is still open but I am planning to close it soon and start the new expanded survey. I can't believe that I was able to do what I have done already. I doubt I could fix it if it got broke. Ever since I was on Bactrim for a few weeks that ended in the most unbearable pain of my life, the brain fog and CFS has gotten so much worse. I recently tired neem oil and karanja oil and it has helped but I don't think it is "the CURE". I have bathed in it, applied it directly (undiluted) and hot, and ingested it (10 cc/day) and it does do something. But like everything else I have tired, it had good initial effects but quickly had minimal effects. I am doing the best I can. I appreciate any support. I am also dealing with my mother who is now unable to remember anything we talk about for more than 5 minutes. She lost her purse (with $250 in it) and then her car keys within 48 hours and now thinks someone stole her purse and asks me everyday form the past 10 days if I have her car keys. She can't remember what day it is and everything I do is forgotten by the next day. I am going outta my mind. Alex: There are so many new people that are finding their way to the message boards due to the media coverage. Are you still around? I think it is important that your survey is completed by people - it's a good picture of what's going on and where this is happening. I hope you will respond. QH
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