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Post by curry on Feb 28, 2006 16:25:49 GMT -5
LeighAnn... It said, "Alabama." I've not even looked at your thread.
As far as beating up this issue with the cattle and fluke...until people are getting it...the seriousness of it...I will continue to beat it up.
Isn't this part of them importance of the site? "You take your angle and I'll take mine" type of approach? We all have areas that are going to benefit each other. I personally don't dig the idea of big media coverage...however, I realize I am in the minority on that subject...it doesn't matter, don't get me wrong. I haven't given it a whole lot of thought, so will leave it in your hands. I'm down for being in this together...what ever you need...you got it.
I would love to get you the information that you are requesting...do you still need it or is it too late? That's a lot...it would probably take me a couple days...but would be good anyway just to have it all compiled in one person's hands. As the years drag on the chain of event's are easily fogged.
I'm sorry for what happened to your sister...makes me sad too.
Thanks...please let me know if you still need the information.
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leighann
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Morgellon's - The point where Nature and Man collide...
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Post by leighann on Feb 28, 2006 20:11:18 GMT -5
Carrie, Please DO keep beating up the theory of the fluke. I certainly agree with you! I have not settled completely on one theory or the other, not until each one is thoroughly researched. My function in this it to gather the data of the sufferers, of ALL the problems and co-infections this thing entails and push to get the federal government to order an investigation into this. "Goin' over the CDC's head" has been kinda my mantra. I want to gather all of us together with ALL our symptoms and have a focused, concentrated effort in our demand for help. I realize it is hard to galvanize so many people from so many places, so that is why I started my Alabama Activity thread. To try to get our stories consolidated so I can throw all of the statistics and data into the face of our representatives so that our cry cannot be denied!!! I am so furious at the unmitigated negligence of the health community I am not going to stop until I have answers. In order to do that I need LOTS of facts, stories and backup.
I would like to take the opportunity to ask for an individual picture of each one of us because I have noticed that until there is a face to put with the pain, it can remain merely written words with pictures of things that are hard to decipher if you don't know what you are looking for. One of the first hurdles we are going to overcome is to NOT ALLOW our representative to distant themselves or not make it personal. I want to make it VERY close and personal. My family is going to post their pics with their faces. I want to make this VERY PERSONAL and REAL. To put weight on the words, there has to be a connection with a person. "A GENUINE PERSON"!
Sorry, I got off on a tangent, but THANK YOU SO MUCH CARRIE for all your energy and research. You are a very valuable contributor to this board and I truly appreciate your input and help.
Everyone please continue to keep the information coming! It is NEVER TOO LATE!!
I have a dog in this fight and I'm starting to see TEETH!!!!! YYYeeeeeeeHHHHIIIIIIIIII! Kickin' little buggy butt and takin' names!!
Leigh Ann
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Post by curry on Feb 28, 2006 20:31:20 GMT -5
Thanks Leigh Ann for your appreciation and explanation of your motive. I have a better understanding of where you are going with this and the direction you are planning to take. I will work on getting this information to you. We have several laaaalaaaa diagnosis. I so agree with the thoughts on putting faces with our names. That may take some enlarging of my guts...my kids, no problem...but this disease has really made...hum...not take photo's!?
Thanks...again...thank you.
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Post by curry on Feb 28, 2006 20:49:00 GMT -5
Oh...and did I forget to mention that I appreciate you too...all that you are doing too!?
Everyone...even people new to the disease to are willing to share their experience and fear and circumstances...every one's issues are important to discovery in one form or another...if not to one person than to another...you know what I mean right!? Blah...Blah...Blah...you know me.
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leighann
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Morgellon's - The point where Nature and Man collide...
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Post by leighann on Feb 28, 2006 20:58:16 GMT -5
Absolutely! EVERYONE, deserves to be heard. This disease effects everyone in different ways, but the issure is still the same. We are being ignored. Keep up your good work!!! LeighAnn
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leighann
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Morgellon's - The point where Nature and Man collide...
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Post by leighann on Feb 28, 2006 21:43:16 GMT -5
Hey Flutterby, yes, I did get your info! Thank you so much for taking the time to submit that. It's starting to look better now! EVERYONE KEEP THE INFO COMING!!
Me:)
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Post by flutterby on Mar 3, 2006 13:58:35 GMT -5
Good Day, leighann, Just finished survey for you and sent info via your email. You, GO GETTUM GIRL!!!! God Bless. Let's all pray, please for Leighann's efforts to bring us all positive results, media exposure and help from a few good people who can rattle some cages. GO TEAM~ God Bless us All, Love, flutterby
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leighann
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Morgellon's - The point where Nature and Man collide...
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Post by leighann on Mar 3, 2006 15:46:31 GMT -5
Way to go! CLANG, CLANG, CLANG!!!!
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Post by 2hojo on Mar 7, 2006 22:41:26 GMT -5
Leighann I am slammed right now but I will try to get that to you. KEEP GOING YOUR DOING GREAT! HOJO
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leighann
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Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Mar 8, 2006 2:53:50 GMT -5
Thanks hojo!!!!
I am convinced that it is by our word (or cry) that will get us some recognition... Not the health industry,,, not the government,,,,(at least not right away), but the PEOPLE OF THIS GREAT UNITED STATES THAT WILL RALLY TO THE CAUSE!!
I anticipate a modern age "Tea Party", that will be based on the premise of the party of old....
Love, LeighAnn
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Post by Chicago Bonnie on Mar 16, 2006 0:43:58 GMT -5
will do, no photos
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Post by shirley from calif on Mar 18, 2006 1:08:03 GMT -5
Hi. Miss not talking to you. Hope you and your family are o.k. I finally got a computer. MY EMAIL fiberdisease@adelphia.net I have had a hard 2 weeks. I am having an alergic reaction to something. What did you think of the photos I sent you? I am finding people to look at my photos. Did you ever get any samples for me? I may be able to help.
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Post by Curious on Mar 27, 2006 16:59:34 GMT -5
Correction, the reporter just e-mailed me and said she will be up here in March! Even better! She will be staying up here for a while and wants to do a thorough, in depth investigation into this. KEEP STIRRING THE POT!!!! EVERYONE, PLEEEEEEEEEEEEEEEEEESE GET ME YOUR INFO! I was just curious if anyone had heard from Leighann about her TV interview? It should have took place by now. Also the study by Alex, anyword from him lately?
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LeighAnn as a Guest
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Post by LeighAnn as a Guest on Mar 28, 2006 23:08:31 GMT -5
Hey everyone. I'm so sorry that I have not posted in a long time. I've had a lot of things going on in the last few weeks that have prevented me from focusing on our fight....
Shirley, my friend, I'm so sorry that I have been out of touch... I did try to call you a few weeks ago but there was no answer and I have not been able to try you again after your messages....
I'm following up on the interview. I will keep everyone posted...
My family has been through a very rough time that last few weeks, along with my own personal changes...I am still in contact with the director of Alabama Watch and am still in the process of creating a summary of our stories for her to take to be heard before our legislature.
Let's keep our collective chins up and eventually, someone will look up our nose and notice that damn bug that is embedded there, and in so many other places...
THANK YOU ALL SOOO MUCH FOR YOUR STORIES... I am including everyone that has sent me information in my summary to Alabama Watch. Take care and I am thinking of everyone, everyday.
Love, LeighAnn as a Guest
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erika
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Post by erika on Apr 12, 2006 11:33:46 GMT -5
Please don't loose focus We need you!
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leighann
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Morgellon's - The point where Nature and Man collide...
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Post by leighann on Apr 19, 2006 20:42:29 GMT -5
I am meeting with news reporters tomorrow!! I have kept quiet for the same reasons we all are aware of.... strange things started happening to me and my family so I decided to lay low. Will advise soon.
Eveyone please take care!!!!!!!!!!!!!!!
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Post by imblownaway on Apr 19, 2006 23:42:55 GMT -5
Leighan,
thank you for all you done. prayers are with you.
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Post by glennb on Apr 20, 2006 14:14:48 GMT -5
Do you still want stories and pics?
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LeighAnn as a guest
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Post by LeighAnn as a guest on Apr 20, 2006 21:02:11 GMT -5
Absolutely glennb!!! I talked to the news crew today and the story is to air the 3rd week in May in the Mobile Alabama area. But I am still trying to compile all the data to get to the legislature and to also further our cause in the legal arena. I am still working on this but just not posting as much due to time constraints. I am still thinking of everyone everyday.
Love, Leigh Ann
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leighann
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Morgellon's - The point where Nature and Man collide...
Posts: 158
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Post by leighann on Apr 25, 2006 14:03:15 GMT -5
My oldest sister, Beth Mae Cofield Grisham died Sunday in a single car accident. It is believed she had a seizure, ran off the road striking a tree. The car rolled over and caught fire. (the car caught fire in the front and mostly burned the driver front area. Looked as thought it caught fire upon impact. No gasoline fire...)
She NEVER had a seizure until she came down with this and she just had a REAL BAD outbreak a couple of days before and a bad place on her forehead and neck. I know this killed her and I will get to the bottom of this.
We are laying her to rest tomorrow. Please keep my Mother, my Grandmother and other sister, Crystal in your prayers.
God Bless you all.
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