carla
New Member
Posts: 42
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Post by carla on Mar 2, 2009 5:48:54 GMT -5
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Post by freaky on Nov 5, 2009 5:08:47 GMT -5
I can't get that to come up Carla. Is it my puter, or because there's no www.? Hugs, freaky
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Post by 22122agin on Nov 6, 2009 15:47:51 GMT -5
Hi freaky, If you google, "Sophia, CFS" you should get to pick your links. I have CFS and when I first got it could take no activity. None what so ever. Had they packed me off to a psych ward the way they do in England as they consider it a mental disease over there, the stress of being poked and probed would have killed me. It is hoped there will be more awareness and maybe with the recent discovery of XMRV, a retro-virus, that got published in Science, there will be more acknowledgement that this is not a disease of the head. It is a very sad story. I have had CFS since 1986 but one of my doctors thought I should try Rescue Remedy. It helped so that I got to be full time again at my job but it took 6 months. I had numerous relapses because you are never like you used to be and everyone is different, it seems, as to what they can tolerate. A local nurse in a clinic that I go to, her sister, only 24 years old, committed suicide. She had CFS and was bed bound.
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vasue
Junior Member
Posts: 63
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Post by vasue on Nov 6, 2009 19:14:32 GMT -5
Thank you, Carla, for bringing this tragic situation to our attention. Another illness in which it would appear a majority of medical professionals neither acknowledge nor "believe". A sad illustration of what I consider the mindset of current mainstream medicine.
My mom suffered from ulcers in the 50's that would double her up in pain. Her doctor told her it was "all in her head". Years later she was diagnosed & underwent procedures that were later abandoned as ineffective & harmful. Mom tried to tell them so. Barry Marshall was co-awarded the Nobel Prize in 2005 for the discovery that ulcers were caused by a bacterial infection...
I came down with a CFS-type condition in the mid-80's, too. My GP decided I was fine, though the standard labs results showed a few quirks, and I "looked too good" to be sick. Crushed by fatigue, with incredible headaches only relieved by complete immobility & darkness & severe allergy flare-ups, felt like I'd rolled down a hill of rocks & aged decades. Luckily, my allergist was about to retire & had nothing to lose. He made my health a pet project & ordered every test he could think of at the local hospital. Nothing was obvious despite slight abnormalities in the results. He thought outside the norm & we tried a number of strategies to find those to which my body would positively respond. Still recall my arguments with the pharmacist! I improved enough to resume my career & my life in a relatively short time. Will always be grateful to that special gentleman who well deserved his title of Doctor.
At the same time, I turned again to herbal, homeopathic & nutritional remedies that had served me in the past & expanded my studies. Those efforts went a long way towards correcting & healing. When Morgellons found me, turned to those again.
Agree that when I was so ill with CFS, just being dragged out of bed & hussled down the stairs would have have done me in. Also came to rely on Bach's Rescue Remedy during that time, though I'd used it occassionally for years. How interesting that your doctor recommended it to you, agin, and that it proved so helpful in your situation!
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