Post by liz on Mar 22, 2009 1:24:09 GMT -5
hi.....I hope you all know I have missed you all and love and care
deeply for each and every one of you even the members I have not met yet ........I have spent time off line because of a lot of emergencies and I have just plain been without Internet service at times.....I am worried as some of my real close Friends seem to have not logged in here ...at Lymebusters..for a long time and I do not know where they are or why they have gone....I don't know what is going on and don't really want to get involved I just wanted you all to know I have never stopped thinking of you......
I lost my Mother in April to what she was told was Lupas...( I think it was Morgs but she preferred to have Lupas..... Most of my family which is only one or two left.... I am very angery with! They have treated me very bad since I told them or tried to tell them about Morgellons and then some of them saw it as an oppurtunity to deam me as crazy and hold onto mt inhertance ....now key have died leaving everything my Grandparents left to me in the hands of my wicked stepfather who drinks it away and lives large.....I could not be with my inlaws and with my Grandmother WHEN THEY WERE DYING as I didnt want to infect them.......mY Mother she never believed me about Morgs but apoigized over the phone on the day she died and told me how loved me and I forgave her..........I let go of all my close freins except for ones infected as I do not want to infect anyone and its so damn hard to try to explain this disease to anyone and scare the hell of them I have just dissapeared out of their lives some of them actually thinkiing I must have just paqssed away from MS....this makes me so sad........
I have stopped trying to inform anyone as I almost gave my Sister in law a nervous breakdown as here kids are showing symptoms...She Took the kids on a long trip after thaqt along with her husband and then found God and a church and thqats how she iws coping...t ...Its just too much for some people to handleoe even dicuss so I decided the longer they don't have to know the better.....this was a hard decision to make. ...but its the one I made and found peace with it.....
Tom's nephew Tommy was ran over by a car in OrangeCounty Calif and survived but does have Nuerological illness.....This happen in about last September ...(Don't worry his mother is not to sick to do the legal paperwork and is sueing the teacher who ran him down while talking on her cell phone and blew through a crosswalk where a little boy had the right away as he walked his bike acorss while wearing a helmut that saved his live.... .Then Tom's Mother I belive the very same week was diagnosed with breast cancer that Had spread to Lymph nodes....They think they got it all and she will survive...Tom drug himself to Pennsylvania as he is really sick and while he was there for his Mothers Cancer operation his Father whom Tom is so very close too...as with all his large family.... dad had a pain under his left rib checked out the Doc had been ignoring for months and he was diagnosed with terminal cancer and we buried him just a few days before Christmas eve.....He was given a 21 gun salute due to his service World War 2......Thos has broken Tom's hard but he was very proud to be his son and witll continue living with his morals....thats why he is such a good man and takes such good care of me....his mom is the same way....We may go back there to live for awhile.....people are here one day and gone the next and we are all sick.....
Tom"s Lyme has gotten bad so has his Morgellons and now he has one arm and hand that tremors all the time called Lyme disease Parkinson's or something like that.....
And me......I have gotten pretty bad too and have tested positive for something called Candida Krusea (spelled something like that)
The bad part is it almost always over 50% goes along with cancer usually some sort of blood cancer.....I am desperately trying to get hooked up to a pic line with this Apothericin B (thanks to the research of my dear freind Toni that I'm not sure medicare will pay for this treatment as it is considered experimental...Do you know some docstors don't believe in yeast and candida and fungal infection s....I was bblown away to here this ....even though I have papers from a lab called Diagnostic techs saying I have these infections....I have read..it is very hard to treat and has a poor prognosis......ll.....my abdomen has blown up like I am pregnant with 6 babies...I have gained weight and am testing positive for a lot of other staph like infections and just doing all I can to fight this monster and not get too depressed....It's like I feel like asking is there anything I do not have? maybe it would be easier to start there...hee hee...see I still have my sense of humor
Thats where have been .......I still love to tell jokes and laugh and I still plan to someday move to Hawaii and still have my Tom....we figure if we put both are body parts together we may have one good body......neither of us can remember a damn thing and pretty much have to pin a note to each other if we have to go to the store ;D ;D
Please take a minute to check in and respond to this msg and tell me how your doing and how your feeling.....and for those I have not met ...I care aboutt you too so tell me your name and how your doing... I do not want to lose track of any you.... new people sorry if this brought you down......I still think we are going to beat this but we must all be there for each other and I am sorry I have been out of touch....I think the people I have met here are the strongest....bravest....smartest.....toughest ....most loving....giving people I have ever known and I am going to live to meet you at a huge celebration when we find our cure....If we can beat This8s we will live the rest of our lives knowing we can beat anything.......I love you all...... Lizzy
deeply for each and every one of you even the members I have not met yet ........I have spent time off line because of a lot of emergencies and I have just plain been without Internet service at times.....I am worried as some of my real close Friends seem to have not logged in here ...at Lymebusters..for a long time and I do not know where they are or why they have gone....I don't know what is going on and don't really want to get involved I just wanted you all to know I have never stopped thinking of you......
I lost my Mother in April to what she was told was Lupas...( I think it was Morgs but she preferred to have Lupas..... Most of my family which is only one or two left.... I am very angery with! They have treated me very bad since I told them or tried to tell them about Morgellons and then some of them saw it as an oppurtunity to deam me as crazy and hold onto mt inhertance ....now key have died leaving everything my Grandparents left to me in the hands of my wicked stepfather who drinks it away and lives large.....I could not be with my inlaws and with my Grandmother WHEN THEY WERE DYING as I didnt want to infect them.......mY Mother she never believed me about Morgs but apoigized over the phone on the day she died and told me how loved me and I forgave her..........I let go of all my close freins except for ones infected as I do not want to infect anyone and its so damn hard to try to explain this disease to anyone and scare the hell of them I have just dissapeared out of their lives some of them actually thinkiing I must have just paqssed away from MS....this makes me so sad........
I have stopped trying to inform anyone as I almost gave my Sister in law a nervous breakdown as here kids are showing symptoms...She Took the kids on a long trip after thaqt along with her husband and then found God and a church and thqats how she iws coping...t ...Its just too much for some people to handleoe even dicuss so I decided the longer they don't have to know the better.....this was a hard decision to make. ...but its the one I made and found peace with it.....
Tom's nephew Tommy was ran over by a car in OrangeCounty Calif and survived but does have Nuerological illness.....This happen in about last September ...(Don't worry his mother is not to sick to do the legal paperwork and is sueing the teacher who ran him down while talking on her cell phone and blew through a crosswalk where a little boy had the right away as he walked his bike acorss while wearing a helmut that saved his live.... .Then Tom's Mother I belive the very same week was diagnosed with breast cancer that Had spread to Lymph nodes....They think they got it all and she will survive...Tom drug himself to Pennsylvania as he is really sick and while he was there for his Mothers Cancer operation his Father whom Tom is so very close too...as with all his large family.... dad had a pain under his left rib checked out the Doc had been ignoring for months and he was diagnosed with terminal cancer and we buried him just a few days before Christmas eve.....He was given a 21 gun salute due to his service World War 2......Thos has broken Tom's hard but he was very proud to be his son and witll continue living with his morals....thats why he is such a good man and takes such good care of me....his mom is the same way....We may go back there to live for awhile.....people are here one day and gone the next and we are all sick.....
Tom"s Lyme has gotten bad so has his Morgellons and now he has one arm and hand that tremors all the time called Lyme disease Parkinson's or something like that.....
And me......I have gotten pretty bad too and have tested positive for something called Candida Krusea (spelled something like that)
The bad part is it almost always over 50% goes along with cancer usually some sort of blood cancer.....I am desperately trying to get hooked up to a pic line with this Apothericin B (thanks to the research of my dear freind Toni that I'm not sure medicare will pay for this treatment as it is considered experimental...Do you know some docstors don't believe in yeast and candida and fungal infection s....I was bblown away to here this ....even though I have papers from a lab called Diagnostic techs saying I have these infections....I have read..it is very hard to treat and has a poor prognosis......ll.....my abdomen has blown up like I am pregnant with 6 babies...I have gained weight and am testing positive for a lot of other staph like infections and just doing all I can to fight this monster and not get too depressed....It's like I feel like asking is there anything I do not have? maybe it would be easier to start there...hee hee...see I still have my sense of humor
Thats where have been .......I still love to tell jokes and laugh and I still plan to someday move to Hawaii and still have my Tom....we figure if we put both are body parts together we may have one good body......neither of us can remember a damn thing and pretty much have to pin a note to each other if we have to go to the store ;D ;D
Please take a minute to check in and respond to this msg and tell me how your doing and how your feeling.....and for those I have not met ...I care aboutt you too so tell me your name and how your doing... I do not want to lose track of any you.... new people sorry if this brought you down......I still think we are going to beat this but we must all be there for each other and I am sorry I have been out of touch....I think the people I have met here are the strongest....bravest....smartest.....toughest ....most loving....giving people I have ever known and I am going to live to meet you at a huge celebration when we find our cure....If we can beat This8s we will live the rest of our lives knowing we can beat anything.......I love you all...... Lizzy