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Post by morgellonsmoe1 on Jun 23, 2009 11:37:22 GMT -5
Did anyone else see this on Morgellons? It was an updated re run . It was interesting but no new news Moe
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Post by bessie on Jun 23, 2009 16:47:56 GMT -5
Morgellonsmoe -
Was it Cindy Casey's (Emergency ER)? I think that is the only one they've done on Morgellons.
It's not new info for us, but it is new to people who know nothing about Morgellons. A lot of people learned about Morgellons through it and have contacted the NMO.
Hope they run it again.
Bessie
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Post by bessie on Jun 23, 2009 17:07:00 GMT -5
Just checked, and it will be on again Friday at 4:00.
Bessie
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Post by morgellonsmoe1 on Jun 23, 2009 17:07:33 GMT -5
bessy re read my post please? I said it was an UPDATED RE RUN . There was some differences and I am asking if anyone saw it as well in its updated form?
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Post by browncircles on Jun 23, 2009 21:45:00 GMT -5
I watched it last night but I didn't notice any differences. Did you?
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Post by bessie on Jun 24, 2009 11:02:59 GMT -5
As I said, Morgellonsmoe, I didn't see it so I can't comment on any changes, but I will watch it when it shows again on Friday. I pray to God that they didn't insert any DOP crap. What I liked the best about that piece "String Theory", is that it was the first major production with a lot of viewers and respect to run it without ANY suggestion that it was psychological.
Bessie
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Post by jj on Jun 24, 2009 11:34:51 GMT -5
Know my feelings about this are not popular but that's OK.
Disregarding, hiding or not addressing DOP or psychological mis-diagnosis is part of the problem. How can we discredit the misdiagnosis if it is not addressed as part of the problem we face?
JJ
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Post by bannanny on Jun 24, 2009 18:30:17 GMT -5
I finally saw it myself the other day too. Mom happened to have the tv in the living room on the Discovery channel and hollered out to me that it was on. We watched it together and we thought it was really good. Just watching the part where Cindy was sitting up in bed in a panic trying to get the things off of her, and the part where she finally saw Ginger and was given a diagnosis had me in tears. I sure would love to be able to see Ginger... but she's just too far from where I live. Hopefully, she'll be able to recruit doctors in my area too one day soon. I'm crying just thinkin about that too. I sure have become the cry baby lately! Everything touches my heart so much these days. big hugs ~~ bannanny
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Post by bessie on Jun 24, 2009 20:14:50 GMT -5
The shows on Discovery Health address a single patient's experience. They are NEVER an attempt to be a treatise on the disease itself. In my opinion, every time that DOP crap is part of an article, it opens the door to misinterpretation and does us no favors. I LOVED the idea of being treated like a legimate patient with a legitimate disease!
Bessie
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Post by jj on Jun 24, 2009 22:18:51 GMT -5
I understand that Bessie and know you are not alone in your thoughts and that's Ok too. Personally, I can't ignore or pretend an obstacle of incompetent medical literature doesn't exist. Reality is (unfortunately) it is there and it is referred to to diagnose for lack of knowledge of much else and other reasons.
If I may make myself more clear. My comments were and are not referencing the Discovery Program. They were addressing a concept of avoidance of DOP and psychological misdiagnosis discussion with Morgellons in general.
Good thing is ..... is that some professionals are breaking that obstacle down and publicly discrediting it like Elizabeth Rasmussen, Bransfield and others. People are talking and psychological misdiagnosis is getting a bad rap. That communication facilitates discussion and opens the door to understanding and change.
Without open discussion there is no understanding. Without understanding how can there be change?
JJ
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Post by rhorn2006 on Jun 25, 2009 3:25:42 GMT -5
I saw a clip about Morgellons they did on, CNN, Prime-Time, or one of those big TV NEW'S shows. (Dr Wymore was on it too) You know how they always get a doctor or two that they will interview about the show they put together, asking these doctors for there input then editing it into the program before they air it....
I could be wrong but I am pretty sure "the doctor I am talking about" was a highly respected professor teaching at some big "University of dermatological Medicine" somewhere,, in other words,, this guy was considered to be a leading expert in "any and all" skin related conditions!
I can't quote what was said "word for word" (I am sure that it will ring a bell with someone on here, who will know where to get it and post a link to it for us to watch) The interview went something like this........
Anchor Lady; What do you think about Morgellons?? What is it??
Doctor; These people have a well known mentally delusional disorder that has been around for hundred of years.. There is nothing more to it than that!"
Anchor Lady; Well, what about these fibers there finding in patients who say they have this condition? Laboratory's are studying these things and scratching there heads over what they see!
Doctor; These people are digging into there own skin and inflicting these wounds themselves, trying to dig out "non-existent" parasites,,, then picking up a bunch of common household threads and pushing them down into there wounds and running to the doctor claiming they have Morgellons! It's just not so!! Morgellons is not a medical condition its a mental condition!
Anchor Lady; They have extracted these fibers from beneath areas of unbroken skin. (then she reads this aloud to him) Scientist Ron Pogue at the Tulsa Police Crime Lab in Oklahoma checked Morgellons fiber sample against known fibers in there fiber data-base of over 800 common fibers, and found no match! Then using the FBI's crime labs fiber forensic national database, with well over 100,000 known fibers listed for search,, still no match,, no match at all! Forensic scientist Ron Pogue stated; "This is some strange stuff, the skeptics are wrong!! This isn't lint. This is not a commercial fiber! It's not!" The lab's director "Mark Boese" stated "The fibers are consistent with something that the body may be producing." He added "These fibers cannot be man-made and do not come from a plant. This could be a byproduct of a biological organism."
Doctor; (grinning like the crime lab has no clue what there doing, and the ditsy little anchor lady was stupid enough to buy into that kind of ridiculous bull-poop) He said; "I don't know what to say to that" (chuckling like he felt that addressing the question any further was a wast of time and an insult to his superior intelligence)
Anchor Lady; Aren't you the least bit concern, having taken such a strong stance against this illness being a real medical illness,, aren't you at least a little worried about this blowing up in your face, later on down the road?
Doctor: (trying hard not to laugh) replies; "No,, not at all"
Here is one of the most highly respected leaders in modern medicine, teaching Americas future doctors and nurses.. He basically says that we are picking at our own "T-shirts, underwear, sweaters, and bath towels" and sticking them into self-inflicted sours... When the anchor lady told him that the fibers were taken and tested from beneath areas of unbroken skin, and have been run through the FBI's fiber database containing a profile of "EVERY SINGLE TYPE OF FIBER EVER FOUND ON THE ENTIRE FREAKEN PLANET!" also that,, the forensic crime lab's director stated that the fibers "cannot be man-made"!!!! Any real doctor who had the least bit of concern for his patients health, would have responded by saying "I didn't know that" as if he cared to learn more.. for his patients well-being..
Most 9 year old's would find just that little bit of "scientifically documented laboratory information" as enough to question there original "nothing to it" assumption.. Nooooooo, not this alcoholic in-bread snub-nose nitwit, the moron laughed it off and stuck with his original assumption,,, on national TV (that shows how stupid the guy is) The only answer he gave during the whole interview, that showed he had at-least a little seance was when he responded with "I don't know" in relation to a topic he claims to be an authority on!!
This clueless idiot and thousands more just like him, have been, and still are, teaching people how to "not give a crap" and become the best "Dr Worthless" they can be! The health of our children and grandchildren is doomed!!
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Post by toni on Jun 25, 2009 7:27:53 GMT -5
OMG Rhorn, I know exactly who you're talking about. I can't think of his name (but I will) and he is one ((( I can only wish))) that he learns, and learns the hard way, by experience or (experiencing)! JJ, I think I know what you mean (maybe not)...but I do believe doctors need a refresher course in DOP-a major over-haul in that area. It seems like they're all hanging onto the witch days, in that when they hear something that doesn't jive with their 'knowledge' from a patient, the patient is *automatically labeled*.
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Post by jj on Jun 25, 2009 10:17:31 GMT -5
Thanks Rhorn
Doctor; "These people have a well known mentally delusional disorder that has been around for hundred of years.. There is nothing more to it than that!"
In general his statement would indicate that new discoveries, scientific and medical advancement can't happen over that period of time? 100 years? That's rediculous.
That definate approach to medicine is dangerous. He needs a good swift Fruedian, kick in the ( ! )
Toni, you more than likely do understand. If not, effort and genuine thought went into it.
It's the thought that counts.
JJ
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Post by jj on Jun 25, 2009 10:26:44 GMT -5
I understand Kmarie and I'm sorry your feeling discouraged and in so much pain.
JJ
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Post by kiki on Jun 25, 2009 11:16:41 GMT -5
Kmarie a good vent and/or cry now and then is good for you
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Post by bannanny on Jun 25, 2009 17:10:03 GMT -5
You're 100% right tho Karen... I couldn't have said it any better myself. You go girl!
... and you don't even wanna hear what I think about that "doctor." Certain things you just can't say on a public forum!
hugs ~~ bannanny
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Post by bessie on Jun 26, 2009 16:59:09 GMT -5
Sorry - It's on again on SATURDAY at 4 pm, not Friday.
Bessie
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Post by rhorn2006 on Jun 27, 2009 8:58:33 GMT -5
Sorry - It's on again on SATURDAY at 4 pm, not Friday. Bessie YESSSSSSSSSSSSSSSS!!! Thank's Bessie!!! I did not remember it was coming on until late yesterday evening (Friday night) and was so aggravated at myself for not taping a reminder note on the tv so I would not miss it I got a note on it now though!! ;D
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Post by bessie on Jun 27, 2009 15:56:33 GMT -5
I just watched it again (I've seen it many times, and am very familiar with it). It is identical, there are no changes at all. I always feel better after watching it. One line that jumps out at me every time is when the narrator says "What Cindy is about to learn will stretch the bounds of medicine". I am so grateful that Discovery Health had the courage to take this thing on, and do it right. It is very hard very anyone to argue whether this is real or not after seeing this show. Just outstanding.
Bessie
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Post by rhorn2006 on Jun 27, 2009 19:36:38 GMT -5
I missed the first 15 minuets of the show but watched the rest of it.. It must have been on during the first 15 min's because there was nothing about morgellons on it?? I went to the discovery health web site and read the "mystery diagnoses" program description for today, but they only listed the 2 cases I did see watching the last 45 min's of the show.. I searched the site for the key-word "morgellons" but they showed "0" results??
I give up!!
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