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Post by bannanny on Jan 12, 2010 22:58:16 GMT -5
Barb... are you looking at our pictures to see if you wanna use any of them, or do you want us to just post here what we think might match? I'd think it would be easier if you just looked at everyone's pics cuz you know better (than I do anyway) what will or won't match. It's hard for me to go from my pics back to all the ones you've posted here on each page and then go to photobucket too. If I had a split screen or something it would be easier... you know what I mean? Anyway, let me know what you wanna do either way ok?
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Post by ctbarb on Jan 13, 2010 0:17:43 GMT -5
Thanks for your question Bananny, I am going through as many as I can, but if there are hundreds to look through, it is an arduous task for me. If folks could post what they "think" look similar to mine that would help a great deal, however, if they really aren't sure, just send me the link and I'll look through when I have time. What I need is just one "near perfect" match from at least 25 people, to get their attention and make them listen! Then I can provide them with whatever makes sense to have them start an honest, dedicated investigation into our problems. I am NOT mentioning the dreaded word "Morgellons" because I feel it is not an appropriate name for what we have. This is way beyond what was described initially...and is not indicative of that disease except for fibers. These are not just fibers...it is something else entirely, in MHO, as you will see. I know how difficult this all is, so just send me whatever you wish to Bananny, and I'll deal with it. I know you're going through a tough time too... Thanks for helping me here, I do sincerely appreciate it. Love to you, ctbarb
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Post by ctbarb on Jan 14, 2010 22:21:36 GMT -5
Dear Folks, I need more people to participate in this research...please! There have only been a few of you that have and I thank you for that, however, the magic number is 25 and I'm way low on that scale. So, please if you have anything that looks similar to what I have, then please post or send to me. Otherwise, this research is for naught. They won't even look at just a small number of folks...just coincidental they'll say. And I can't blame them for that. We know that there are more of us with these organisms, we've seen them posted. I am not going outside this forum to look for samples because I know the folks here and their integrity and honesty. To do otherwise would be putting us all at risk, I think. So please, take a few minutes and look through your slides and pix again.... Thanks and here's hoping we can put together a reasonable showing for Boston. Love and prayers, ctbarb
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Post by lilsissy on Jan 15, 2010 0:23:08 GMT -5
I will be getting samples from Karen a little delayed with so much going on , Karen is collecting them and I am shipping them, I know you need all of our supprt right now.
Love, Jen
Please everyone help!!!
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Post by ctbarb on Jan 15, 2010 16:43:38 GMT -5
Thanks Jen! And thank you everyone who have replied...we still need more folks to check their samples... Will be posting more photos later today. They are coming out of me with a vengeance! And in some very "delicate" places. Love, Barb
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Post by glennb on Jan 16, 2010 5:07:16 GMT -5
Thank you for the excellent info and images. I have stuff that looks like many of your images. Also in the past when I have used my frequency machine at settings for shistosomes I have gotten a response that would indicate that I am infected with them.
I just recently started back on albendazole.
The images posted that showed a fat, pinkish slug-like or shrimp-shaped thing look just like what I pulled out of my back a few years ago. There were 6 of them all lined up under the skin and the area was driving me crazy with itchiness. I finally ripped the skin open with a fingernail and ripped them out. I believe that I saved these in a specimen jar somewhere, will look for it.
Do you think that thing that moves around under your skin (the large thing that can be seen though the skin) is a shistosome?
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Post by bannanny on Jan 16, 2010 19:26:59 GMT -5
Ok barb... I'll see what I can do but you have my links. I think the best albums for you to look thru of mine are "Happy Tummy" and "More Morgellons."
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Post by ctbarb on Jan 17, 2010 1:20:27 GMT -5
Dear GlennB, My "Sleeping Giant" as I call it, I think is a pseudocyst filled with Schistosoma, of all stages of the lifecycle. When I have the attacks, I get various lifecycle stages all at once. The size of the organisms also indicates that they are of different generations. Since the female Schistosome can generate as many as 3,000 eggs per day, you can just imagine how many there must be inside of me! Not a good feeling. As I have mentioned previously, I believe that they have created their own little path directly to the intestines from the trail left behind from the open lung biopsy. They no longer feel as though they are going through the stomach, but directly into the small and then large intestines. From the time of the initial insult, to the time they emerge can be less than 3 minutes in some cases! When you hear the 'roar of the giant' - you'd better be headed to the bathroom! There's no two ways about it. I'm kinda hopin' that this will happen when they are in the process of examining me! I won't be in any hurry to get away... It's either that, or I head for the streets of Boston trailing my nasty Schistosomes behind me! Lady Godiva has nothing on me!!! Well, Paul Revere had his midnight ride, then I guess I can have my midday Schistosome Stride! ctbarb
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Post by freaky on Jan 17, 2010 1:34:22 GMT -5
You can count on me, I think. It's going to take me awhile though because my pics are on 3 computers, & I need my husbands help, LOL. I'll give him hell though.
Love, freaky
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Post by Sidney on Jan 17, 2010 1:53:19 GMT -5
"It's either that, or I head for the streets of Boston trailing my nasty Schistosomes behind me! Lady Godiva has nothing on me!!! Well, Paul Revere had his midnight ride, then I guess I can have my midday Schistosome Stride!" Barb, if you're going to do the Lady Godiva thing please buy a long wig. I can see it now..... So very sorry you're going through this, Barb. You're a strong woman!
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Post by ctbarb on Jan 17, 2010 10:40:14 GMT -5
Dear Sid, Already have it, packed and ready to go!!! If you see the front page of the Boston Globe and there's a woman of indeterminate age, riding a white horse (with brown spots...) and a long blonde wig...through the medical community of Boston...waving a placard that says "Morgellons IS REAL" - you'll know who it is! Then please send money for my bail....
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Post by jeany on Jan 17, 2010 10:58:19 GMT -5
Dear Sid, Already have it, packed and ready to go!!! If you see the front page of the Boston Globe and there's a woman of indeterminate age, riding a white horse (with brown spots...) and a long blonde wig...through the medical community of Boston...waving a placard that says "Morgellons IS REAL" - you'll know who it is! Then please send money for my bail.... ;D ;D ;D..imagining...too funny, Barb, I love your sense of humor! Jeany
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Post by ruth on Jan 17, 2010 12:53:31 GMT -5
hi barb, sorry for not participating in your image search.
my images are at the photo section.
i lost interest when everyone started culturing out different molds. each will look different in tissue and from the lesions,
the sameness should be from our immune system kicking stuff out. it is all so complicated and i am so tired.
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Post by ANTHILL on Jan 17, 2010 13:54:58 GMT -5
Dear Sid, Already have it, packed and ready to go!!! If you see the front page of the Boston Globe and there's a woman of indeterminate age, riding a white horse (with brown spots...) and a long blonde wig...through the medical community of Boston...waving a placard that says "Morgellons IS REAL" - you'll know who it is! Then please send money for my bail.... ;D ;D ;D..imagining...too funny, Barb, I love your sense of humor! Jeany I'm cracken up ;D
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Post by toni on Jan 17, 2010 13:58:47 GMT -5
;D me too!
We'll be watching for the Globe's next front page article Barb ;D
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Post by ctbarb on Jan 18, 2010 0:14:53 GMT -5
Maybe I should call myself "The Morgellons Madame" It kinda has a nice 'ring' to it, doncha think??? Look for The Morgellons Madame on the MTA!!! Just me and Charlie...remember that song? Hee-hee-hee! I'm kinda likin' it! ;D
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Post by glennb on Jan 18, 2010 16:51:10 GMT -5
I can relate to what you are saying about the hurry up calls for the bathroom. Lately when the urge strikes I had better be near toilet facilities or there could be a disaster. This is true for 1 and 2 with me. Also sometimes I have to go through about a roll of toilet paper before my behind is clean. Other times I am very constipated and everything is like hard rocks.
I also have alot more gas than I used to.
There is nothing charming about this disease, that's for sure.
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Post by ctbarb on Jan 19, 2010 0:49:40 GMT -5
Glenn, I hear you! I've been on the "short end" of a roll so many times, I can't even count! This disease takes away your dignity in so many ways...the doctors and medical community take it, the lack of help and/or acknowledgement from the government takes it, and just trying to do everyday chores and errands outside the home, takes it if you have the 'urge' and you can't get there in time. I no longer leave the house without the following: Depends, one pair on and another in my purse, a map of the store(s) that I'm going to to locate the bathroom facilities, a container of WetWipes and liquid antibacterial soap in a small bottle. And, I have the biggest purse I can find!!! ;D A guy will have a problem with carrying the purse, I'm afraid, but there are alternatives! Get yourself one of those "Green shopping bags" some even come with a zipper (to keep those prying eyes of busy-bodies from looking inside)...nobody even thinks twice anymore about anyone carrying one of those...so there you go! I'll be carrying one of those on my ride to Boston - and if I get the chance - through the streets of Boston!!! Green is Green...just make better use of it - and it's Better than BROWN! I know it's so serious to have this happen, and believe me, I've had my share of accidents...at home and away. Just get your "Greenie" together and hit the road! If you gotta go, then hop to it and find a sheltered out of the way place. I'm going to share a very personal 'event' that happened to me awhile ago...just to let you know that it "can happen at the most inappropriate times and places"...I was driving on the MassPike, it was a beautiful sunny day and I got the "feeling" and it wasn't a good one. I pulled over to the shoulder, hopped out of the car, opened both front and back doors of my Jeep, (put your flashers on first if you can do that and get out in time), I draped a blanket over the back door, and let 'er rip! Just about the time I was cleaning things up - me and the car - a Trooper pulls up behind me, just a flashin' his blue lights like he was in a parade! He came around to the driver's side, and got a nice view of MY backside, and I told him, "I don't have my license and registration handy right now!" He told me that he would "block my view" until I was ready to roll again! Nice guy, and I never saw him again until I was on my way. He pulled up alongside me at 65MPH and smiled, and tipped his hat! I ROARED all the way to Boston!!! That's a day I'll never forget - and let me tell you, I think I killed the grass alongside the highway and anything else that lived or breathed within 5 miles of that site! ;D I just thank my lucky stars that none of you folks really know who I am, or I'd be as red as a fire engine right now!!! But, it can happen, and "You CAN get that here!" totally applies. So, take care Glenn, you have to have a sense of humor about it, and hope that you have some understanding people around you when it happens! God love you! Love, ctbarb And now the rest of the world knows too!
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Post by Sidney on Jan 19, 2010 9:31:37 GMT -5
Maybe I should call myself "The Morgellons Madame" It kinda has a nice 'ring' to it, doncha think??? Look for The Morgellons Madame on the MTA!!! Just me and Charlie...remember that song? Hee-hee-hee! I'm kinda likin' it! ;D Barbara, I love that song. I started playing it on my Ukelele many years ago when I was young. Still play it on guitar and over the years have made up so many silly songs using that theme. Obviously, you and Charlie came to my mind immediately. Funny that you thought of it too. Love it! Glennb and Barb, thanks for bringing up the subject of the bathroom hurries. You're not alone and it's beyond horrible in my opinion. My "problem" began in the early years of Morgellons. I think many of us suffer this indignity and sympathize!
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Post by bannanny on Jan 19, 2010 19:44:34 GMT -5
Yep... it's either hurry up and get there or solid rocks for me too.
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