|
Post by lilsissy on Mar 2, 2010 2:07:02 GMT -5
yes bannanny, I know jj is not personally accusing me of a hoax but it was I who first found this and it took me back for a moment.
It was however no hoax and I believe it may play out to be a very important piece of Morgellons history especially if this was a future planned event and they want all of us to call in a rat out those who have Morgellons so we are forced to get in line for chips or fema camps.
DO YOU THINK IN THAT EVENT THEY WOULD SAY THE TRUTH , IF THEY DID THEY WOULD WRITE SOMETHING LIKE,
IF YOU THINK YOU KNOW SOMEONE WHO HAS THE CONTAGIOUS AGENT MORGELLONS PLEASE REPORT THEM.
I think this could have thwarted a plot to have rounded us up in the future. Maybe that's what is holding up their plans right now , don't know. All the secrecy creates a mystery to this illness that results in fear. I hope this never comes true but all the contracts with Baxter International who admitted to tainted flu vaccines and Verichip incorporating with the flu sensor make me fear the worst which is the coming of the beast and Morgellons being a good cause to scare the public into accepting it .
|
|
|
Post by greemajan on Mar 2, 2010 7:48:55 GMT -5
Here is my comment about all of this. I saw this web page while on the internet several years ago. Karen sent me the URL and I looked at it as a full web page. What qualifications or motivation gives anyone the right here to determine that this page is a hoax ? What is in it for them to do so.? Jennifer, Karen and I are not liars. Those who would try to portray us as such seem very quick to strike.
The information and page WERE NOT A HOAX. How many people could even imagine a link between the 1 q42 gene and Morgellons? Unless you had a personal reason to even know about the existence of the 1 q42 gene as Jennifer's family does who in God's name would even know about it's existence? This genetic anomaly was certainly not in my frame of knowledge. Then to type it into a search engine with term Morgellons was a complete shot in the dark. The fact that she pulled up a page was no less than a miracle.
Then to try to say that this page was a Hoax would indicate to me that you think that someone purposely made a false web page regarding Morgellons and the 1q42 gene to trick her and the rest of us when she typed the phrase in. Who would be in charge of a hoax like this? The Thought Police. How could anyone ever anticipate this and have a bogus page waiting and ready. This is ludicrous.
Karen did mention to me that the first time she posted news of this page there was someone at this board who contacted her and told here they were tight with someone at the CDC and tried to indicate to her that this page must be bogus since they had these connections. Curios is it not? This page should have received much more attention when it first was found 3 years ago but somehow it was diffused and negated and never hit the media. I decided to resurrect the past and give this story it's due.
You many not agree with the implications of this hidden web page but it was a real page. If people need to think the page was a clerical error in order to stay in their own comfort zone then that is their choice. Considering that 3 years ago Morgellons was being ignored by the CDC and the NIH why would the phrase Morgellons be in any of their pages at all? Questioning all of the information we have is the only way to move forward with the research.
Greema Jan
|
|
|
Post by jj on Mar 2, 2010 13:59:48 GMT -5
Some responses will be within quotes (orange) in the hopes it will be easily understood. My computer timed out this A.M and I was knocked off and needed to retype everything. Just noticed now (this afternoon)I had forgotten things the second go around I meant to be included which were refferenced in reply to Greema earlier. As usual my intentions and words were misunderstood. This was not the first discussion on LB nor was it the first on the net. Maybe it was you or your sister who first brought it to attention here. That I do not remember. However, I participated in a discussion HERE before the 2007 thread linked to it. That I remember clearly as well as the time I spent articulating what I found within my focus. When It was first posted or discussed or by whom is of NO IMPORTANCE TO ME. However, it is a concern to me when people are intentionaly mislead or abused in areas of vulnerability. My addition to this thread was not pointing a finger at you or your sister Lilsissy. Greema, it was also not pointing a finger at you. I was not holding any of you responcible. I was referencing past discussion about the original Rare Disease page in it's intirety. That's all. I understand why I was misunderstood. I'm sorry if anyone feels hurt or targeted. That was not my intention. It never is, yet it tends to come down to that doesn't it? Has anyone ever been the victim of a misunderstanding, hoax, lie, or manipulation that carried over to others who were then as mislead as you? It doesn't feel good to be made to look like a fool. It doesn't feel good to of hurt others (in any way) because you personally misunderstood or misrepresented something because you JUST trusted someone or something? Have you? I have. It's all in the past. But it has had an effect on how things are approached now. I DO NOT want to be a part of misrepresentation ever, for any reason. I will always check the validity of everything within my means. Always! With everyone. I did that with that Rare disease page within my means at that time. Many did. They did so from different perspectives and different focus. I do not wish to force my opinions on others EVER. We are all adults and have a right to come to our own conclusions with what is presented. I chose only add to the table of discussion. After that, what decisions anyone makes should be THEIR OWN. It was not at all a hoax, I stumbled on this and told Karen . The information (morgellons warning page) was on the rare disease pages from the N.I.H. maybe elsewhere too but I highly doubt it was discussed with our community before this but it is possible. My research and comparisons with legit N.I.H and legit Rare disease pages led me to believe it was not a legit N.I.H (rare disease) page. I do not believe it was an N.I.H article. I goggled Morgellons and 1q42 many times and researched the results well. Bannanny question, As far as I know rhorn, the NIH article is factual... it just wasn't supposed to be released to the public (for whatever reason, who knows.) Isn't that right Jen? I think that's right bannanny . They said it was an accident ans should not have been on that page but I find that hard to believe. all due respect jj that was no hoax and I highly doubt it was discussed before the post I submitted. If it were a hoax at that point why did one bother to delete the pages off the N.I.H. rare disease pages? Again, I don't believe it was an N.I.H page and N.I.H was not the one to delete it.No one had ever heard of this at the time I posted it nor was there any other sites with information on the finding of the Morgellons page warning until Karen started the thread here at Lymebusters. As far as finding something first or wanting credit , I care less about that . I had my fifteen minutes of fame and it was about 15 minutes too much. Likewise, I seek no personal fame or personal recognition. I love my family and they love me that is all the recognition I need in this world but to set the record straight for the cause ,I feel I must speak here. I'm sorry if my statements made you feel targeted. That was not my intention. I could have just stayed quiet from fear of retaliation. I choose not to and add my research and info garnered to the table.
"Only Thing We Have to Fear Is Fear Itself" FDRJen jj, Gotta say the original posting with that Rare Disease page partially captured (and copied on Greemas site) was a hoax What makes you say that?? From what I know they was no hoax?? How could there have been? I found this information on the rare disease pages from the N.I.H.Jen Here is my comment about all of this. I saw this web page while on the internet several years ago. Karen sent me the URL and I looked at it as a full web page. What qualifications or motivation gives anyone the right here to determine that this page is a hoax ? What is in it for them to do so.? "Qualifications"? "Motivation"? "What is in it for them" (who's them) I am one who deemed the original page bogus or a hoax.? That should be clear from my statements above. "The right". The right ............... you’ve got to be kidding me. If I honestly feel something is not quite right that has an affect on me or my loved ones, I will take whatever steps I have within my reach to verify it. THAT IS MY RIGHT! If I am wrong I will be the first to come back here and say so. What on earth do qualifications have to do with this? Greema, I RESENT the implcations made with these statements. This is the second time you pointed a finger in my direction with implications THAT DO NOT BELONG. Yet, I understand.
Jennifer, Karen and I are not liars. Those who would try to portray us as such seem very quick to strike.Again whose those? I never tried to portray that Greema, NEVER. I was not one quick to strike.The information and page WERE NOT A HOAX. How many people could even imagine a link between the 1 q42 gene and Morgellons? Unless you had a personal reason to even know about the existence of the 1 q42 gene as Jennifer's family does who in God's name would even know about it's existence? This genetic anomaly was certainly not in my frame of knowledge. Greema, just because it wasn't in your knowledge base means what exactly? Then to type it into a search engine with term Morgellons was a complete shot in the dark. The fact that she pulled up a page was no less than a miracle. I had no idea she typed the key words in as you say and then found the page. I thought the page was found and then further information garnered from other searches. My, apologies for assuming that. Then to try to say that this page was a Hoax would indicate to me that you think that someone purposely made a false web page regarding Morgellons and the 1q42 gene to trick her and the rest of us when she typed the phrase in. I didn't say that Greema, you came to that conclusion. Who would be in charge of a hoax like this? The Thought Police. How could anyone ever anticipate this and have a bogus page waiting and ready. This is ludicrous. Again, I never made such statements nor did I think them and I agree it sounds ludicrous. I was one to indicate a hoax based on lack of identifiers compared to legitimate pages from a completely separate starting point. I chose not to link out from the page in question but start from the N.I.H, Rare Diseases and other sites that should be affiliated. Page could not be found. Then I did the same from the page in question. I firmly stand behind what I found and did not find. The Page was not legit nor did it indicate affiliations it should to be legit, hidden or not. If it was a work in progress only viewable to a select few those identifiers would be there. What motivations were behind it is only speculation. I will not speculate. Karen did mention to me that the first time she posted news of this page there was someone at this board who contacted her and told here they were tight with someone at the CDC and tried to indicate to her that this page must be bogus since they had these connections. Curios is it not? What do mean by curious? Looks to me like someone put themselves in a position of knowledge and authority to look like they were in the loop when they were not in this case. This page should have received much more attention when it first was found 3 years ago but somehow it was diffused and negated and never hit the media. I decided to resurrect the past and give this story it's due. Resurrect what you wish. Use it as you wish to project whatever story you want. I disagree with it's roots and your perception. Please don't interject me by insinuation in the same vein of conspiracy and government coverup just because I disagree with you. You many not agree with the implications of this hidden web page but it was a real page. If people need to think the page was a clerical error in order to stay in their own comfort zone then that is their choice. "Comfort zone"? Hardly, nothing comfortable about it. Considering that 3 years ago Morgellons was being ignored by the CDC and the NIH why would the phrase Morgellons be in any of their pages at all? Questioning all of the information we have is the only way to move forward with the research. Greema Jan " Considering that 3 years ago Morgellons was being ignored by the CDC and the NIH why would the phrase Morgellons be in any of their pages at all? Questioning all of the information we have is the only way to move forward with the research. " Exactly. Lilsissy, again, I'm sorry for being a party to causing anymore pain to you and your family. JJ
|
|
|
Post by bannanny on Mar 2, 2010 17:50:00 GMT -5
JJ never accused any of you that you were behind this so called hoax you guys. Why can't you see that? This is gettin ridiculous... we can all think what we want to think, but what we should be doing instead of arguing about nothing here is try to find out more about it ok?
Kiss and make up... and let's get on with it.
|
|
|
Post by lilsissy on Mar 4, 2010 10:38:22 GMT -5
I'm not mad at anyone . I hope I have not offened anyone.
I still say I can call it this or you can call it that but we just don't know at that point , all we have is opinions .
This is something that time will tell.
If they do a round up of Morgellons Infected Individuals the chances are that it was a paragraph released before it's time of purpose.
Let's all calm down ,
Jen
|
|
|
Post by bannanny on Mar 5, 2010 18:54:18 GMT -5
I'm calm Jen... I just don't want everyone to be arguing about whether this was a hoax or not or whether you guys were wrong or not in posting it initially. It's important info I think... so it's best we just continue to find out everything we can about it. I sent the link to this entire thread to Dr. Thrasher to see if he could give us some more insight into it, but all he had to say was this... Robin: I said what I wanted to say regarding basic research. Everyone will have his/her opinion.Hope I didn't upset him by posting his responses to me. I better email him again and make sure I didn't! love ya's ~~ bannanny
|
|