Of those who have been treated with the anti-parasitic medications "Ivermectin" and "Albendazole".. Which one seemed to be more effective?? How was it prescribed to you,, milligrams, daily or monthly dosage,, and, how long did you take it??
My instructions from the Infectious Disease Clinic in Boston was to take 5 (2mg) pills of Ivermectin each day for 2 consecutive days. That's all I took and within 2 weeks I felt better than I've felt in 10 years!
Perhaps each drug works differently on each person...and depending on the types of parasites too and what phase they are in.
I still have organisms with fibers exiting my nasal passages...so it didn't get them all!
For my "itchies" and "breakouts" definitely the Ivermectin/Stromectol worked best.
I took 5 Stromectol pills (people Ivermectin) a day for 6 months. They were 3 mg each.
I felt relief almost instantly (day two or three) and there after.
The relief continued "while" I remained on the pills.
Once I quit, (after taking them daily for 6 months straight) I broke out in at LEAST 100 brand new lesions "by day 3 of stopping".
At that time ( I did not want to continue the meds). Why? Because I saw they were only masking (imho) what was really going on. They didn't (rid) anything (imho). They only inhibited and covered up my symptoms, and I knew that by the way I broke out after stopping them.
(Cytokines/cell receptors) ARE influenced by certain drugs/meds AND by illness/diseases.
Psychotic meds, Ivermectin, etc ALL inhibit "cytokine activity". ((( maybe that's why when some have taken *antipsychotic* meds for lack right now of what they're called, they too "experienced breakout relief".
I read a lot about doctors saying that once "antisychotic" meds were administered, the Morgs symptoms ceased.
BUT....hahahaha (that IS how they fooled many) imho.
Saying "we're DOP".... JUST BECAUSE WHAT THOSE MEDS REALLY DO IS SLOW DOWN CYTOKINE ACTIVITY! And not what they were saying which was: As soon as the patient took an antipsychotic med, they got better.
No they didn't!
Ivermectin WILL do the same thing, as there IS an ingredient in it (I'd posted about this awhile back) that WILL also do the same thing - inhibit or hinder (cytokine activity)...so...we then experience relief, but......Morgs doesn't go anywhere.
No differently than taking an "antihistamine". I'm not saying "Ivermectin is like antihistamines"....I'm using antihistamines as a parallel to what I'm trying to explain.
This is the example:
When the body sometimes is allergic to something ...say a food- it then produces "histamine".
One might get itchy bumps (as the histamine is released). Well, an ANTI-histamine will inhibit/hinder the release of histamines...so "relief happens". No itchies.
And in all reality, taking an antihistamine, did not rid histamine from the body, no - it only "hindered/inhibited it" - same as what the Ivermectin will do, and the antipsychotic meds, IMHO.
So the parallel is: Ivermectin, or antipsychotic meds, BOTH have an ingredient that "also does this inhibiting thing to our cytokines".
When cytokines (cellular signals) cannot be connected, the body feels pretty darn good, because everything isn't going haywire, meaning the infection isn't causing the body as much distress, because nothing is signaling the reaction as much.
But...these meds (from my experience) not the antipsychotic, hadn't tried that one, but the Ivermectin I did, that will give relief, sure seems to be "only temporary while taking the drug/med".
When I stopped taking the Ivermectin, and saw that it was in fact only temporary, I then took a supplement and got the same relief, and have ever since.
I don't break out anything like I use to. I don't believe Morgs is gone at all, but I've managed to "copy" by using supplements what Ivermectin did for me. And the reason I went this route, is because (imho) taking meds that much does more harm than good in the long run. I prefer not to deliberately put chemicals in my system IF I can avoid it.
Of course had I not found the supplements to give relief, I'd have to keep with the Ivermectin.
So much I could say about it...which I did also find that before I quit them, I did find ((( consistently ))) that taking them ONLY 5 days during the beginning of each month, and then stopping and then again only taking 5 days worth during the middle of each month, I did get the same relief as when I took them every single day for 6 months.
(why?) do I believe that I got the same relief taking them daily as "then doing the 5 day run with them only at the beginning of each month and during the middle of each month)?
Because it is fact that "cytokine activity" is influenced by the lunar cycle. Gravity. (Fact) as much as it's influenced by infections/diseases.
NASA found that "anti gravity" too...slowed cytokine activity.
But, we here on Earth, have to deal with the lunar cycles of gravity, just as the tides of the oceans do.
(one last note, sorry this is a book) but so much to say about this, that I sometimes burst at the seams:
I watched a progam on Discovery last weekend too, and there ARE many *critters* that DO hatch only at full moons every month. So, whether it's cytokine activity in our body going haywire because of our (infections) or whether it's *critters* hatching, or both....I wish we knew. But there sure seems to be something to it if you keep a calander of "it's" schedule.
I'm thinking that it might be best to rotate from what I'm seeing with the doctor's protocols. Do one - one time, another one the next.
I felt improvement with Ivermectin.
I'm taking an herbal called - Artemisia and Jeany is taking Quensyl... (for the parasite aspect) I'm taking 2 in the morning and 2 in the evening for 2 weeks, stop for 2 weeks, and then resume for 2 weeks. Jeany is taking Quensyl everyday for 8 weeks.
And, we'll probably end up taking another 2 weeks of Flagyl at the end of the 8 weeks.
IMO - Our parasites tend to become immune - you have to keep them off balance.
In order to get optimum results - you also have to also address the fungal and bacterial aspects at the same time you're doing the antiparasiticals, (as per the doctor's protocols.)
Oh yeah, I remember that one of the medications that you have listed is NOT water soluable. It's the one that has the little white pills. VERY STRONG and will make your hair fall out and thats a fact. THE GOOD NEWS IT WILL GROW BACK WHEN YOU STOP.
Doctor told me that I should crush up the pills into a teaspoon of vodka and then add that to a glass of water and drink. I took like bunch of the pills at once. I think it was eight pills. Check out the directions. If u don't make it soluable, you are just paying good money and passing it right out of the body . .
And if you see the "ingredients" you'll see (Orap which is an anti psychotic) as well as Ivermectin, they BOTH have particular ingredients that:
HAVE CYTOKINE ACTIVITY INHIBITING PROPERTIES.
Sure don't mean to sidetrack your thread Rhorn, just trying to help regarding your question about Ivermectin. Maybe you could ask your doc too IF there's anything less (chemical-ized) that can help also with "cytokine" calming.
Okay, this is an "AH HA"!!! Found what I was looking for (one of the things anyways).
Regarding the IVERMECTIN - and WHY it "acts" like it works, when "I've sure not found anyone who's been cured of Morgs by it...imho.
It only WORKS while taking the med, but once stopped, all the itchies/sores/breakouts come right back.
Now, none of this is "in stone anywhere of WHY" Ivermectin and anti psychotics really do keep the lid on In regards ONLY to MORGS because it is proven Ivermectin does inhibit "cytokines" , but....if:
you put the "facts of these chemicals together and what they do, and how cytokines are released by the immune etc, and how cytokine activity IS IN FACT dictated by gravity ...it SURE makes sense" of "why the cycle of Morgs seems to happen to many" and why the itchies/sores subside when taking these medications.
They don't "cure" imho, they only calm.
Calm the cytokine activity - which the "activity of the cytokines being secreted in abundance (called cytokine storms medically) ARE what make us feel super lousy - and calming them with particular meds, makes us feel better. Not cured, just better.. or able to tolerate "infections" with lesser distress to the body.
And "microgravity" effect on our cytokines:
Dysregulation of the immune system has been a well-documented effect of human exposure to a microgravity environment during space flight. These effects have included altered cytokine production....
The Albendazole definitely helps to knock things back and it does seem to clear parasites out of the digestive tract, at least temporarily. I was on Albendazole for over two years, taking occasional breaks. I am taking it once again.
My impression about the Ivectermin is that it is a little more dangerous than the Albendazole. I have taken the Ivectermin for five days at a time once every 3-4 months.
I have also used the Ivectermen paste that may be ordered from vet supply places on line mixed it with DMSO and applied the mixture directly to lesions. This tactic is helpful, although even with all the meds I have taken the best thing I can say is that they have helped control the symptoms and slow it down but no cure.
Three nights ago I started taking the Ivermectin again, as I had been out about a month. By the third day the parasites were on a rampage exiting. At least you can clean-up a little, if you know what I mean. The best way to take it that I know of is to buy the liquid. The paste made me gag. I take 6 cc's, & I really don't know if it's too much, but I wouldn't say it's too little. I mix it with pomegranate juice which masks the taste, about 3 oz, I think, or about 2 & 1/2 " in a glass. The prescription pills, I think are way too expensive, depending on your insurance. I do this about 3 X's, 2 X's a month. The other times, I take Albendazole off, & on, and I'll probably run out soon. I take the boluses, which are the horse pills. I just bite off a third. Was getting them from Greece, & I think I got them from e-bay, but don't remember now. If you want me to just write me. They quit selling them for some reason, but may have started back up again. Non of the feed stores seem to carry the boluses. I just think they help clean out some of the garbage, but nothing made me feel better than the Ivermectin, which you get at the horse feed place, with a syringe, a big one so you don't have to draw it out twice. Suppose it's a matter of personal preference. Do you want to feel like garbage while waiting for a cure? I get off on seeing my parasites floating in the toilet, and just that mentally makes me feel better. I always take the Ivermec. during the full moon, as it is the most potent. You should be careful with it though, as one evening I believe I had mixed it with too many other things, which made me a little psychotic. I was looking for the kitchen upstairs. I was having a narcolepsy attack at the same time though. I make sure I always take Milk Thistle with them, as they are both hard on the liver. My dr. wouldn't prescribe them to me, because of that. Sorry for no paragraphs. I'm in a hurry to retire. Take care, big hug, freaky
Life isn't about waiting for the storm to pass. It's about learning to dance in the rain, or rioting in the rain, if justice, truth, & the cure for Morgellons does not prevail. Remember the Boston Tea Party.We remember the reformation of the 16th century religgious movement that resulted in establishing the protestant churches. We're already dancing in the midsts of the morgellons reform movmt
What I do (how I take supplements) is, well, first off, they're cumulative. They take at least a week or two before they're really "in the system". Unlike meds, where meds/drugs work almost instantly, (supplements) need taken constantly to be beneficial.
They're (supplemental to what we eat and drink daily) the nutrients in them, since we can't eat all the vitamins in all the food groups we need daily.
But, I don't take the same ones (for long hauls).
I'll take the basic (Super B Complex with added B-12 everyday). And Vit C daily (everyday). Acidophilus (everyday) Milk Thistle (everyday)
But...as for the rest of them, like Red Clover, CoQ10, Olive Leaf, Alpha Lipoic, oh...there's many, I'll take all these types for about a month, then I switch to "another batch" of supplements and take all those - like the Bone,Flesh & Cartilage.
I rotate them all about every month to 6 weeks.
Except the B's, C's, Milk Thistle, Acidophilus (those are every day no matter what)....I never stop one a day of these. For me, these are the bare bones "foundation" that I have to have, or I'll feel dragged out/tired.
All the rest of them, are 4 weeks to 6 wks "run" I'll do with them, then switch to others for 4-6wks.
I thought some might be interested in this in the future. Ivermectin is the fermented by product of Streptomyces avermilits and is an antibiotic classified as an avermectin originally used in parasite targeting. It has paralytic affects on the target parasite by causing hyperpolarization of their CNS. It will make them quite active before becoming paralyzed.
sunny: seriously M? you're going to with hold sharing information with me under the condition of whether I register or not? but you already know who I AM
Feb 20, 2014 12:50:37 GMT -5
lostintime: I do? I only know one sunny and if you are her you could just call me up, tell ya all about it.
Feb 20, 2014 16:16:20 GMT -5
lostintime: It’s too complicated for a one liner in the shout box, plus I would like to see more people get back to the boards, bringing people together
Feb 20, 2014 16:39:39 GMT -5
Vika: Please contact me, I'm desperate, I lyme and filariasis, I am a young girl, I was only 26 years old ... and I'm already dying from diseases .... .... Help me, help advice: vikiart87 @ gmail.com
Feb 21, 2014 5:29:21 GMT -5
sunny: ahh.. yes.. the ol' 'it's too complicated' tactic.. I'm just bothered by the fact that U were trying 2 use my curiousity 2 get me 2 register with the site.. Gnostic Gospel of Thomas 39 touches on the 'keepers of knowledge' & hiding the keys from others
Feb 21, 2014 9:24:38 GMT -5
lostintime: No not a tactic. It's just not worth me pointing out a ton of info for six people that can't find there way out of a paper bag with both hands and a flashlight. Bottom line is Cindy blew a gasket and wanted out. Franky (moderater) was busted
Feb 21, 2014 17:26:11 GMT -5
lostintime: busted for munipulating the board. Look "the cure website" was all about spewing prapaganda for Cindy's foundation but it just proved to be more frustrating then it was worth to her. Truth hurts. It was only for lyme groupies anyway.
Feb 21, 2014 17:31:20 GMT -5
lostintime: This is not complicated for those who look. Please read the CDC and Eva Sapi in the lyme section and then tell me why it is important then will talk more. I have years of collecting files and would love to teach you some things young grasshopper.
Feb 21, 2014 17:51:02 GMT -5
threader: I feel that the Cure website had some good debates and rare information. I agree with BO that removing the board is a slap in the face of free speech. If the site will close then the archives should remain public.
Feb 23, 2014 11:47:51 GMT -5
threader: Cindey Casey responded to this allegation by email to me, and said that the CEHF had nothing to do with the Cure website shutting down. Where is the basis or proof in the allegation that the CEHF is responsible. Why hasn't Franky come forward to explain?
Feb 23, 2014 11:50:37 GMT -5
threader: And the explanation for the Morgellons Support Network site shutting down is that it was bought out by advertisers Ceablue? Seriously? Somebody wants the site's name for an advertising search term but without any of the site's content? Who's domain owner?
Feb 23, 2014 12:08:00 GMT -5
lostintime: Where are the allegation that the CEHF is responsible? I am just trying to point out what happened over the last 72 hrs on the board.
Feb 23, 2014 20:48:39 GMT -5
lostintime: There were multiple problems going on with the Cure website.. I thought it was better as MDR and went down hill rapidly after it’s change. These are private websites threader and can be shut down anytime.
Feb 23, 2014 20:55:24 GMT -5
lostintime: threader, you were on the cure shoutbox during some of the debates leading up to the shutting down of the board. Don't you remember any of that?
Feb 23, 2014 22:21:15 GMT -5
threader: No Lostinline, I was a reg there but hadn't logged in for nearly a week right before it shut down. I knew it got heated with discussions of Lyme and STDs, but TBH I'm a bit in the dark regarding the last days.
Feb 24, 2014 10:15:55 GMT -5
csidegalNH: I all, I was on the days before it shut down. I backed Fibroid Mary that threads had been deleted. Franky said threads get deleted for misbehavior, but was oblivious to the deletion. He said he was fed up with the pettiness.
Feb 24, 2014 11:28:38 GMT -5
csidegalNH: There was talk on shout box saying it would be sad if forum got shut down next thing I know it was gone. I kind of thought I was banned too. Morg Support site says domain expired Jan 28 2014 and seems it could get renewed by owner
Feb 24, 2014 11:31:49 GMT -5
absurdlyhaywired: HI-The Cure site is back up-I saw it yesterday. Glad to see you guys "out and about". I don't feel good-I'll talk with you later.
Feb 24, 2014 17:10:31 GMT -5
fibroid mary: Hi cside, I never got the chance to thank you for 'backing' me on the cure site. I only wanted folks to be aware of the censoring, propaganda & thought manipulation of ill people that was taking place on the site. Hope you are well..
Mar 2, 2014 11:29:34 GMT -5
guest55: Is The Cure site back up?
Mar 5, 2014 15:17:40 GMT -5