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Post by itchin4answers on Mar 13, 2013 1:43:15 GMT -5
OK - cough clear throat - I did get to speak to my Lyme doctor though unfortunately whatever the receptionist thought she was looking at on the computer last week was NOT my SPEC scan. So the receptionist kindly chased up the hospital in Melbourne to find out where the scan report is. Apparently the hospital say that my brain scan report has not been "released as yet". Hmmm pardon me for thinking this odd, but may I say....it's VERY odd!!! I worked in Radiology years back and I have never heard of a report not being "released yet" - also meaning to quote the receptionist "the report is not finalised yet". Hello....we have this world of amazing technology and you know folks I wouldn't want to be holding my breath! So, if the Radiologists are not accustomed to looking at a scan that is eaten by Lyme would someone please kindly tell me. I mean come on people!!!!!!!!!! Mystery disease cover-up? wow you betta believe it, this is not fair and totally insane! Breatheeeee.................
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Post by Baraka Obam on Mar 13, 2013 14:22:18 GMT -5
Many of the people with our issues have lesions on the brain.
Your correct about there being something odd about the scans not being delivered to the doctor, they are ready soon after being taken.
I would suggest you get a copy of them yourself, if the place is close enough go get them yourself and get a copy for yourself.
My friend that was crippled by STROKE LIKE SYMPTOMS, whatever that means has lesions on the brain.
Because the doctors gave him this diagnosis he is being treated as a stroke case because nobody can get past the words stroke LIKE symptoms.
He is suing the lot of them, doctors hospitals and all.
The other thing that has happened to him since the problem, WHICH WAS IN NO WAY A STROKE, his bones are dissolving.
He walked just fine, he had no issues walking , after the so called stroke like symptoms event he even talked perfectly, no stroke issues, no hanging face, but now his hip has been eaten away.
This is the same thing that is happening to my brother in law, something is dissolving his bones.
I have a very funny feeling the bruise has something to do with a hidden lesion/TUMOR, there is a possibility that 35% hydrogen peroxide will show this very well.
If you run the peroxide over the bruise area, you will see a outline of where the lesion is sending the fibers up through the skin or not.
I can not say for sure but would be interested in the result.
Hydrogen peroxide does not affect normal skin, except the palms of the hands, anywhere you have fingerprints, special skin like genitalia, inside ears or in the case of arm, legs, torso, neck it will only react where there is something growing under the skin.
If you find that spot you will easily see this, usually the spot that bubbles will be perfectly round, the surrounding skin will NOT be bubbling or stained unless it too is afflicted.
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Post by itchin4answers on Mar 13, 2013 22:10:13 GMT -5
Hi Itchen It has been a while but I get light bruised area on my cheeks/face. The place where black specks will pop out and sink back in and once in a great while a slight oily liquid slightly black in color will seep out. In Light Lynn/TorpedoLynn Is the scan you had like an MRI? Hi Lynn, Sorry you have the bruises on your face. Thank you for your input sounds the same hey. NO the scan is nothing like an MRI. I didn't have to pay! The scan I had was called a SPEC scan. This scan measures the blood flow to the brain. This is the link to the medical imaging section of the hospital I had it done at. I can not find the info about the scan I had, sorry. Though it's a starting point; tinyurl.com/ce9v28rI will explain how the scan worked. I arrived at 11am, was put into a darkened room for about 15 minutes to destress my brain. I was lying down on a trolley with a blanket over me. After 15 minutes the young woman came back into the room to administer the contrast into my vein via the IV line that was put in on my arrival. She didn't speak to me and I was to keep my eyes closed as to not arose my brain. I was told that I had to stay there for about an hour. To take the images (pictures) of the brain the brain needs to be as close to sleep mode as possible. The young woman left me alone with the contrast flowing through me around 11.20am, I was woken by a young man at 12.40pm!! and I had slept because I still had the flu. Then I was taken to the imaging room. The machine was similar to a CAT scan, lying on a very narrow table. My head was padded in with little towels and then strapped down. A big machine moved around my head for 30 minutes taking photos. I had to keep ever so still (and breath lol) at the same time. Time went rather quick and I kept thinking about food because I was a little hungry. That's about all I can tell you. I hope someone can find via that link the SPEC scan, anyway that's the hospital website medical imaging page. Thanks itchin
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Post by itchin4answers on Mar 13, 2013 22:19:38 GMT -5
Many of the people with our issues have lesions on the brain. Your correct about there being something odd about the scans not being delivered to the doctor, they are ready soon after being taken. I would suggest you get a copy of them yourself, if the place is close enough go get them yourself and get a copy for yourself. My friend that was crippled by STROKE LIKE SYMPTOMS, whatever that means has lesions on the brain. Because the doctors gave him this diagnosis he is being treated as a stroke case because nobody can get past the words stroke LIKE symptoms. He is suing the lot of them, doctors hospitals and all. The other thing that has happened to him since the problem, WHICH WAS IN NO WAY A STROKE, his bones are dissolving. He walked just fine, he had no issues walking , after the so called stroke like symptoms event he even talked perfectly, no stroke issues, no hanging face, but now his hip has been eaten away. This is the same thing that is happening to my brother in law, something is dissolving his bones. I have a very funny feeling the bruise has something to do with a hidden lesion/TUMOR, there is a possibility that 35% hydrogen peroxide will show this very well. If you run the peroxide over the bruise area, you will see a outline of where the lesion is sending the fibers up through the skin or not. I can not say for sure but would be interested in the result. Hydrogen peroxide does not affect normal skin, except the palms of the hands, anywhere you have fingerprints, special skin like genitalia, inside ears or in the case of arm, legs, torso, neck it will only react where there is something growing under the skin. If you find that spot you will easily see this, usually the spot that bubbles will be perfectly round, the surrounding skin will NOT be bubbling or stained unless it too is afflicted. Thank you for your post Baraka. I am so very sorry to hear of your friends problems. Seems we all know someone worse off, suffering and dying in agony. I believe you could be right about the hidden involvement. I would like to try that IF and when I can. Life is a little hectic as I'm pretty much on my own - superMUM - but I love being a mum. Thank you for suggesting the HP. Yes, I couldn't agree more Baraka, the whole thing with my scan being delayed is wrong. Why are they holding back? Does the scan look similar to Alzheimer's, are they seeing tangles? Hmmm the mind boggles. IF my scan comes back revealing all is well, you know I won't and can not believe that because I know, you know my mind has changed (or damaged is a better word). I'll do my utmost to get a copy of what is rightly mine, my scan results. One can see now why the Government "bulk bills" the cost, no fees to me, hahaha method in their twisted madness. Cheers itchin p.s. I had STROKE LIKE symptoms in 2004 and the hospital ER sent me home with a referral to a neurologist who can not see me for 3 months - crazy...
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Post by Baraka Obam on Mar 13, 2013 23:27:35 GMT -5
There are so many good things that are available to modern man.
The simple fact we have it very good compared to lets say people in 1900, if you got sick then, many times even for the young it was lights out.
These things we suffer from are not to be taken lightly and truly affect every part and moment of our lives, still we are just so lucky.
Hope your results are clear.
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Post by itchin4answers on Mar 14, 2013 18:40:45 GMT -5
There are so many good things that are available to modern man. The simple fact we have it very good compared to lets say people in 1900, if you got sick then, many times even for the young it was lights out. These things we suffer from are not to be taken lightly and truly affect every part and moment of our lives, still we are just so lucky. Hope your results are clear. Well thank you Baraka. If my results do come back clear, I will surely be scratching my head. My Lyme is dorment in my blood, was on my Igenex results last year. My GP said I am Late Stage Lyme and said that at late stage Lyme moves to other parts of the body. I would assume the brain, because there are lots of goodies there for the bacteria to eat. I phoned the Hospital this morning. The young woman found my report on the computer, which is flagged saying "NOT RELEASED". I did tell her that I had never heard of such a thing. Of course this woman did not have authority to comment, though put in a request for the Doctors to release my report. Forgive me please, God gave me a brain, with the power to think which is great! thank you Lord. I have to wonder why they have not released my report. Will keep ya'll posted.
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Post by itchin4answers on Mar 14, 2013 22:08:59 GMT -5
There are so many good things that are available to modern man. The simple fact we have it very good compared to lets say people in 1900, if you got sick then, many times even for the young it was lights out. These things we suffer from are not to be taken lightly and truly affect every part and moment of our lives, still we are just so lucky. Hope your results are clear. Well thank you Baraka. If my results do come back clear, I will surely be scratching my head. My Lyme is dorment in my blood, was on my Igenex results last year. My GP said I am Late Stage Lyme and said that at late stage Lyme moves to other parts of the body. I would assume the brain, because there are lots of goodies there for the bacteria to eat. I phoned the Hospital this morning. The young woman found my report on the computer, which is flagged saying "NOT RELEASED". I did tell her that I had never heard of such a thing. Of course this woman did not have authority to comment, though put in a request for the Doctors to release my report. Forgive me please, God gave me a brain, with the power to think which is great! thank you Lord. I have to wonder why they have not released my report. Will keep ya'll posted. For those of you who do not go on Facebook I'm copying and pasting my post to save me repeating myself. I'll just pop my "conspiracy hat" down beside me....cough - clear throat - OK folks after my little walk around the shops my brain was tinkering away in the background. When I got home I decided to phone the hospital back, so I did. I asked to speak to someone in Authority. I got another clerk and she told me the scan hadn't been reported on. Well I was very polite and said "that's spin"...so she got me one of the Consultant Radiologists to speak to. This guy I spoke to said that he was under the impression there is NO LYME DISEASE IN AUSTRALIA....I roared with laughter!....I said "get on the internet mate we have an EPIDEMIC". This Doctor was honest with me and I thanked him so. He said "look me and another consultant looked at your scan and went hmmmm....nah this isn't normal and we are not game nor qualified to report on this". He said he could have given the report a half hearted go, but it wouldn't be the truth. The other Consultant Radiologist who has seen other brain scans of Lyme patients is currently....wait for it...on Holiday!!...and she will be back 2 days after Easter. So in a nut shell, my scan is not normal and I have to wait for the report. Well I've been waiting all these years, and pray another 3 weeks + will not kill me (literally). Baraka, I may need to borrow your "God speakers" ;D ....the mountains I'm climbing these days are getting bigger and bigger.
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Post by itchin4answers on Mar 14, 2013 22:31:25 GMT -5
Lyme Disease in Australia Discription of the neurological nature of Lyme disease in Australia. Yet Lyme disease existence in Australia is denied by the government. tinyurl.com/ax39bmg
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Post by Baraka Obam on Mar 15, 2013 11:26:24 GMT -5
It seems you will need the extra big GOD SPEAKERS, it seems the US government kinda put a word in with your government. I lauged when I remembered the god speakers, we all need some of these. Some US bureaurat (did I spell bureaurat wrong?) called and told the Australian government to watch out, after all they say the lie started here. Do you know what the Chinese government does, you want to know what the horrible Chinese Red Communist government does. I will tell you what they do, to aleart their people of a possible issue with Ltme disease they have made commercials for the TV, I was awestruck to say the least. The TV all of a sudden shows farmers working the fields and then like as big as the TV screen they show in perfect clarity a tick, then they show the woods and fields and alot more Chinese I do not understand. That is what TV commercials should be for but here in the good old USA they are for the new cheese flavored noodle dish that is made of pure chemicals that your children will love. What is wrong with people, how much more taken care of will they allow, we are being murdered by greed. I do not know if you have ever seen this but this is the other lie, this is the lie where the disease started, no matter what started it. I know it was not chemicals, agent orange is a lie. wiki.answers.com/Q/What_experiences_of_the_Vietnam_War_had_an_impact_on_Australian_Vietnam_Veterans_and_their_familiesNow there are other articles also on how the women of Australian Vietnam Veterens have gotten their mates PTSD, really, how do you think they got that. Actually that is a suggestion in the article because the couples are in such bad shape, like they inherated advanced aging disease. Look at the wording in the article, birth defects, blood disease, oh yeah, this is definatley when birth defects started.
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Post by itchin4answers on Apr 4, 2013 20:25:52 GMT -5
YES Baraka, I think God now has the SPEAKERS in XXXL - which is great coz we really really need em!
Copied this from my FB post;
I got my brain "scam" results yesterday. I did ALL the hard work, phoned the hospital asking if my scan had been reported on and it had. I asked them to fax to my Lyme doctor in NSW. Then I phoned my Lyme doctor and asked receptionist to fax to my Local GP. I had a phone consult with Lyme doctor yesterday and he wants me on IV Treatment since the following are effected; frontal and anterior-inferior temporal lobes bilaterally, and the basal ganglia (more pronounced on the left side). I saw my GP yesterday afternoon and got a copy of the report. My GP is mighty confused coz he thinks I should be cured since I'm on DOXY!!! AHHHHH!!!! Now this is my opinion only and since I worked in Medical Imaging as a Medical Audio Typist (when I had a career) there are certain things that are important. As far as I am concerned the "report" is not worth the paper it's written on - there is NO report DATE. The scan was not reported on by the supposed "Lyme brain specialist" it was only "reviewed" by this person. When the conclusion of a report says "COULD be secondary to Lyme disease" that there tells me this is yet just another pass the buck cover up and "WE" the "DOCTORS" do not want to admit nor put our name to a disease such as LYME because the Government say it doesn't exist and our livelihood is our job as DOCTORS and we will not jeopardise that for ANYONE, not even a PATIENT. Hello but without us suffering, dying people you wouldn't have a job, shame shame shame on you all. Will I be having the IV Treatment? Not on your life!
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Post by Baraka Obam on Apr 4, 2013 21:24:31 GMT -5
Every time I talk with a person that is really really sick it seems the more they go to doctors the sicker they get and some just plain old die.
I have this friend that was supposed to have had a stroke, well, for years they will not treat him for his problems, all along they just keep saying your paralyzed because of the stroke.
Well just lately they find out he never had a stroke from his brain scans, but what he did have was something in his hip that was grinding away
This caused blood clots in his body but not in his brain, he was never not for a moment confused, slurred speech or unresponsive, still the doctor said stroke.
4 years in a wheel chair, all the time complaining about the leg, complaining about the pain, he would cry the pain was so bad, I thought he was gonna kill himself.
He has complained about the hip since the beginning, they ignored it because the original doctor blurted out stroke, can you imagine this.
At my urging he called the insurance commissioner and a lawyer, now with their help he has had all the MRIs needed to sue the pants off of all of them, starting with the very first nurse that saw him and said he was drunk because the man that found him, picked him off the floor had beer in his hand and spilled it on him.
For this, he was left for 5 hours in the waiting room, this very first contact, your not sick your drunk, the man does not even drink!!!
My other buddy was diagnosed with cancer, this without a biopsy, they sent him to another hospital with his diagnosis, they took one look at him and the diagnosis, then suggested HOSPICE, OMG, no biopsy and HOSPICE, if the would have put him in HOSPICE he would have died.
Nobody listens to me, I asked the results of the biopsy that concluded cancer, I asked what kind of cancer, I was told to shut up the doctors know what they are doing.
The next item they took a last hit or miss shot at treating him, when he went to the cancer doctor he asked my friend that told me to shut up where the biopsy results were, ahhh I don't know.
The cancer doctor concluded they did not know what exactly was wrong and sent him back for testing, guess what, the doctor was a genius.
If my friend would have heard me out, he would not have spent 3 months in hell.
It was a infection that filled his body cavity, they drained gallons of streptococcus Urease from his body. It has taken five months to be able for him to walk from what was only a small infection when it all began.
The infection started when they treated him for hep C with a failing liver, the guy needs a transplant and they treat his already failing liver with a 3 drug cocktail, he almost died then also.
Altogether the doctor help has cost him over a year in bed.
Health care, more lawyers need to be involved, that is the fact of the matter
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Post by scabdraggr on Apr 5, 2013 7:59:25 GMT -5
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Post by violet on Apr 5, 2013 10:13:55 GMT -5
Every time I talk with a person that is really really sick it seems the more they go to doctors the sicker they get and some just plain old die. I have this friend that was supposed to have had a stroke, well, for years they will not treat him for his problems, all along they just keep saying your paralyzed because of the stroke. Well just lately they find out he never had a stroke from his brain scans, but what he did have was something in his hip that was grinding away This caused blood clots in his body but not in his brain, he was never not for a moment confused, slurred speech or unresponsive, still the doctor said stroke. 4 years in a wheel chair, all the time complaining about the leg, complaining about the pain, he would cry the pain was so bad, I thought he was gonna kill himself. He has complained about the hip since the beginning, they ignored it because the original doctor blurted out stroke, can you imagine this. At my urging he called the insurance commissioner and a lawyer, now with their help he has had all the MRIs needed to sue the pants off of all of them, starting with the very first nurse that saw him and said he was drunk because the man that found him, picked him off the floor had beer in his hand and spilled it on him. For this, he was left for 5 hours in the waiting room, this very first contact, your not sick your drunk, the man does not even drink!!! My other buddy was diagnosed with cancer, this without a biopsy, they sent him to another hospital with his diagnosis, they took one look at him and the diagnosis, then suggested HOSPICE, OMG, no biopsy and HOSPICE, if the would have put him in HOSPICE he would have died. Nobody listens to me, I asked the results of the biopsy that concluded cancer, I asked what kind of cancer, I was told to shut up the doctors know what they are doing. The next item they took a last hit or miss shot at treating him, when he went to the cancer doctor he asked my friend that told me to shut up where the biopsy results were, ahhh I don't know. The cancer doctor concluded they did not know what exactly was wrong and sent him back for testing, guess what, the doctor was a genius. If my friend would have heard me out, he would not have spent 3 months in hell. It was a infection that filled his body cavity, they drained gallons of streptococcus Urease from his body. It has taken five months to be able for him to walk from what was only a small infection when it all began. The infection started when they treated him for hep C with a failing liver, the guy needs a transplant and they treat his already failing liver with a 3 drug cocktail, he almost died then also. Altogether the doctor help has cost him over a year in bed. Health care, more lawyers need to be involved, that is the fact of the matter ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ And I'll bet my life on the fact that it was the way in which you talked to the doctors treating your friends that had them ignoring you.
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Post by Baraka Obam on Apr 5, 2013 12:57:26 GMT -5
Right Violet so he almost died for not listening!!! He almost got shoved into HOSPICE because he did not listen, your killing me here.
You people will search for anything to be bad, won't you, Christian, do not make me laugh.
Oh and your wrong.
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Post by itchin4answers on Apr 7, 2013 20:29:37 GMT -5
Hi Itchen You are in my thoughts. Wish Tony could have had a longer life. I am glad you got to those scan results. So messy how things get handled. I would be scared of the I.V. thing also. There is a hand full that have won their life back with no more symptoms. So there has to be a way for us to. Unfortunately we are left to figure it out without Dr.s help and some of us do not have enough time. Hang in there and hope you can get a computer in the future and get the support. In Light Lynn Hi Lynn, Thank you. Everythings a mess, not just with the handling of my health but with everyones. The last time we saw Tony was the 3rd February 2013, and he showed me a discharge summary from the local hospital ER, he asked me to promise not to tell anyone. Well I did promise and never told BUT now he is dead I want to share. Around the end of January 2013 I phoned him one morning and he sounded sober, and I asked what was wrong and he didn't want to say, so I kept asking. He told me that he had brushed his hair, right side above his ear and he was bleeding like no tomorrow. I called him 3 times that day and the bleeding still hadn't stopped. He was going into the DT's because he'd only had a beer. I made him call the ambulance which he did. Tony was in the ER overnight and reading his discharge summary was like an out of body experience because lets face it, no one seems to know what is going on! Above Tony's right ear was a 4cm scratch and at either end of the scratch was round 5mm by 5mm circular (I think the word they used was) - punctuated lesions BLEEDING profusely. Tony said the ambulance drivers said they had never seen anything like it, as one of the lesions created a hugh bulbous type blood clot before their eyes!! The doctor in the ER made a joke saying "you look like you've been bitten by a vampire"....yeah haha jerk. The ER staff took blood to be sent upstairs to test (routine). Then they came back down to Tony and said "the strangest thing just happened but your blood clotted before we even got upstairs so we have to take more". Bottom line was - on this discharge summary was that the "scratch" was put down to an old wound. Tony made them stitch it up, which they said they didn't like to do, but did anyway. The scratch was blamed on Tony's alcohol in take as this had been his second presentation to the ER in 3 months. The first presentation was because he had tripped over at the washing line at the rooming house he was living at and needed 5 stitches in his eye brow. I swear to God I couldn't have done anymore for Tony as much as I am going through agony of this man's life being cut so short. He was broken down, physically, mentally and spiritually. He had lesions on his skin, his balance was terrible, his hands were covered with fungus which was spreading to his face. His mental decline was awful beyond words and he had increased his alcohol intake to full strength wine, which he couldn't tolerate!!! The coroner wouldn't let William & I say goodbye even after me writing a very good letter with the truth! as William & I were the only people in Tony's life (other than the men he was living with at the rooming house). Tony's only close friend who was still speaking to me, as I had to break the news to him about Tony dying. This friend was asked by family to keep funeral arrangements from William and I. They had open casket at the funeral, so all the hangers oners that didn't give a flying "F" about Tony would have been there paying their respects because they were consumed with guilt and shame!!!!!!!!! William is angry beyond words, and I can not describe how I feel, sort of. I feel I've lost my will to live, but then that waxes and wanes too!!! To be told by Tony's friend that Tony's family wanted to erase the last 12yrs of his life because they blame me for his death is pretty darn hard to live with right now. I won't be entertaining the IV Treatment. How can it help? - well it can't - the blood flow in my brain is restricted to all lobes and I know it because I live with it everyday. I know one should be careful what they wish for. Also, have no idea as yet as to the cause of Tony's death it could have been a number of things. I wouldn't be surprised if it were the melanoma on his left cheek, first excised in 2005 and then it came back bigger and blacker than ever. This cancer when first removed was full of deep black dark hairs. I'm so fed up with this illness shite, and I've finished all my treatment for Bartonella and I ain't putting another stupid so called medicine in my mouth again. I take supplements and vitamins and just try (like everyone else) to get through the day. I try to find a reason to live (yes my son). I try to find some purpose for my being on this messed up planet!!! I won't be sorry to leave this world, that I know. Thanks itchin
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Post by scabdraggr on Apr 8, 2013 6:45:03 GMT -5
I'll be sorry when that happens, you speak the truth and you write so well. I'm so sorry now for your pain and for your grief.
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Post by itchin4answers on Apr 8, 2013 21:42:22 GMT -5
I'll be sorry when that happens, you speak the truth and you write so well. I'm so sorry now for your pain and for your grief. Thank you scrap, and also thank you for the link you posted above "Mycoplasma". Cheers itchin
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Post by itchin4answers on Apr 8, 2013 21:52:06 GMT -5
Hi Itchen Very sorry. That must have been such a scary nightmare. I wonder if the friend who does talk to you found out from any one what the cause of death was. So awful. Hang in there I will say a prayer for comfort and strength. Lynn Hi Lynn, This "friend" has been in contact and to date there is no news. I will find out the real cause of death (maybe) - from what I was told by bumping into a complete stranger who once worked for the Coroner's Court - he told me that quite often the cause of death is "that'll do" sort of thing. I will have to jump through some hoops in the near future for the "truth" on the death, but until such time I am still pushing my way through red tape. "Hanging in there" is something us Lymies and Morgies must do. I just today picked up a book at the Library which I'd had on hold, there is only one book on Lyme disease in our Metropolitan Libraries which doesn't surprise me. I just started reading the book whilst waiting for my computer booking, and the words "hanging in" were at the start, how's that huh. The book is called "BEATING LYME - Understanding and Treating This Complex and Often Misdiagnosed Disease" its by Constance A. Bean with Lesley Ann Fein, MD, MPH. I'm hoping by reading this book I can understand my disease a little more, find some peace (I hope). Thank you for your prayers. itchin
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Post by itchin4answers on Apr 18, 2013 20:13:03 GMT -5
'Worldwide Lyme Protest' AustraliaWhen: Saturday May 11th 2013
Where: Please follow link for meeting point directions tinyurl.com/cy2w95z
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Post by itchin4answers on Apr 25, 2013 18:52:25 GMT -5
I'm very much looking forward to the Lyme Protest on the 11th May. I'm trying to think of a couple of banners I can make, though my brain gets stuck and I can't think of anything to say, well I can but my banner would be MASSIVE.
I feel totally damaged by the denial of Lyme and Morgellons. The humilation others have put me through and by the mistreatment I have endured.
Just needed to get that there off my chest.
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