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Post by dkushner on Sept 1, 2012 16:12:44 GMT -5
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Post by Lynn on Sept 1, 2012 17:58:13 GMT -5
Hi Dhusker
I am so afraid to understand this or how I am misunderstanding this. Okay they published this further and if I understand. It was published in such a way as being excepted by the medical field, and or Doctors?? If I get health insurance in the next three months will I be able to take this info to a Doctor and make him give me a proper diagnosis? This all confuses me. Sorry.
In Light Lynn/TorpedoLynn
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Post by ibzahp on Sept 2, 2012 5:32:36 GMT -5
Yay!!!! ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D This is friggin awesome news!!!! You are making my day Kush- Our disease-Morgellons-published in a peer reviewed journal as real and in the top 2 percent of well done research. All I can say is THANK YOU STRICKER, THANK YOU Middlevene (spelling) You are bringing our plight into the light of day! Thank you for not abandoning our cause and many blessings to you! May the sun always shine on your faces!
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Post by dkushner on Sept 2, 2012 14:21:20 GMT -5
Hi Dhusker In Light Lynn/TorpedoLynn TorpedoLynn, I saw this doctor before. He is on our side and is the only doctor that I have met that understands what we are going through. He and his nurse have been actively trying to figure this out for years and have been trying educate doctors. One of the problems we have as sufferers is that the medical community is very conservative. Things (sadly) change very slowly. This type of documented, scientific proof from doctors doing research is the only way things will change. This will not result in us getting medical treatment, but it WILL result in the medical community slowly becoming aware that Morgellons IS REAL, and we ARE suffering and being mistreated. For instance, I have had Morg for nine years. One of the biggest problems that I have is that I cannot get medical attention for any of the co-infections and complications that have resulted from Morg. This has resulted in my almost giving up at life. This sort of data will help. Yes, I will print this, and the other letters to doctors from this page along with my photos of personall horrors and take it to my doctor and I will ask for help ... not for the Morg, but for all of the other problems I have because of the Morg. It is STEP-1!!! - daniel
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Post by itchin4answers on Sept 2, 2012 19:22:55 GMT -5
Hi guys,
This IS good news. However, I feel very down and out about it all. I know that someone has to get the ball rolling with the research and I agree Daniel things are very slow. Lynn I am like you, get confused about all of this.
I doubt the article would hold any weight in Australia, though guessing on that one. Our hope in Australia is that Dr Peter Mayne is backing this research. The more I am tortured with this evil disease the more I understand about the fibers, Lyme and Keratin.
I've had the Caviar type stuff coming out of my skin. My knee that has been troubling me, I took the advice of my GP with rubbing cream in. I didn't want to believe my knee cap is full of bundles, the Caviar too.
The fibers in my face are plenty, not very good with measurement but just looking at this ruler in front of me the fibers from my face would have been 5 inches long, and almost clear. This disease literally rips one to shreds.
When I started with Morgellons an area on my right cheek would start to bleed spontaneously. I have had that happening recently because the skin is so tight and there is no room for the bundles. My skin turns a shade of black, any wonder with what is living in me.
Thank you to the doctors who believe this disease is real. Thank you to the doctors behind this recent article. I pray you guys in the USA can work wonders, I need hope and some days I have to wonder.
Love to all itchin
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Post by Lynn on Sept 2, 2012 21:19:55 GMT -5
Hi Dkushner
Thank you for taking the time to explain it to me. I think I understand now and at some point will do that also. My hubby is always trying to get me to tell the Dr. about stuff, but he does not yet understand how it has to happen. Instead of collecting 3 days worth of black specks out of my bed to take to a Dr. Like he would want me to do. I can go and say hey I got this hard bumped on my arm for 3 years can you get rid of it and give him this documentation to help put them in a right direction. At times I get a small hard bump in the back roof of my mouth. Been going through a small period of small sores on my head. Then a couple other small items I get rid of and keeps coming back but I keep it beat down to small. Still get what looks like bite marks here and there. Those heal up real quick though.
I have lots of debre coming out of the pores lately. Even though I take 1 to 2 showers a day I feel grimy after a an hour of stuff coming out of the clean skin.
In Light Lynn/TorpedoLynn
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Post by ibzahp on Sept 5, 2012 4:50:49 GMT -5
Well It is not all that it could be in the sense they are saying it is like bovine dermopathy.That the fibers are made of kerating.Of course it would be a lot better if it said 100 patients with Morgellons were found to have keratin fibers and that study be peer reviewed. Plus I am not sure who the peer docs are. Are the peer reviewers actually MD's or hard science folk.I couldnt afford to buy the abstract so i can't say. But damn its the best news i've heard in awhile (a real long time,like before the stunt the cdc pulled. Anyone hear from them lately? Helloooo out there))))
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