|
Post by toni on Jan 28, 2016 14:32:57 GMT -5
Hi Itchin,
I'd read your posts, and I'm sure hoping one of these docs will have heart enough to try and understand...which without Morgs or even Lyme in your area being recognized, you do have nothing but an uphill battle. Just keep your body strong, that's the only thing we've each got going for us, without anything that's going to treat what we need treated.
And the post about Lyme, oh yes...every line is on target.
It's a harder life than we all hoped or thought normal life would be, even at it's most difficult because it's not normal- everything is as though our mouths are taped, because we have so much to say, yet only a few listen, really listen, and nor do we get treated "normally" by those that don't understand. I think we have to try and stand back a lot of times, and see how others see us, and then we can see how "truly blind" most people are to a lot of realities that they could even imagine in their wildest nightmares or dreams. But it's with that always in mind, that we can possibly reach them, and really.... that's not for sure either, because some people have an auto'block mind, where they just don't want to hear it, but, it helps us too trying to see their position. Frustrating to the max, which is an understatement, and then sometimes, we just have to walk away to save ourselves, and that's hard too because when one is in need of something from someone like a doctor, the truth is, if the doc is putting up his feathers, to only rub them more, can hurt us. We have to save ourselves first, and truly, eating right, drinking lots of water daily, vitamins, and sunshine, (helps). Not the cure for Morgs or Lyme, but....it helps. I find that engulfing myself in something enjoyable, a hobby, a project, things like that, are very uplifting to the soul and mind, and then the body. I got into "picture taking" of hummingbirds (put up feeders a few years ago) and I can tell you, I've never done anything like that in my life before. And it is funny how I never knew they
did what they do, and sometimes, I laugh so hard because of the things they do, and I later feel like wow ...that was fun! And in thoughts even later I'll chuckle to myself and think that was some good medicine. I know you do lots to keep your "ship" afloat" as we all do, and it's sooooo much extra that our daily needs require, the vitamins, the this and that....always trying to make sure we don't allow negativity to seep into our deepest parts, because the doctors and negative unbelieving people are (honestly) harmful to our health....if or *when* they don't at least try and understand. And that is what it takes, the 'others' at least 'trying 1/100th' of what we ARE doing....which is simply trying to be understood, for starters. And if someone isn't willing at the very least to "try", all I can say to that is, *imho* then it is "they" who are truly not worth it - *the draining of our immune* in our explaining until we're purple. It's almost like we have to take on a different attitude "whether we like it or not to be strong enough to walk away from those that drag us down " and it's not only a dragging down of our health, but it hurts deeply, but once one can feel some sort of foundation within ourself, it is easier to stand up against all the odds, the negativity that gets attached to us and the ones that don't hear what's being said, the ones that won't even try to understand.
I know you're afraid of cancer, I am too. I am afraid because I have watched people I know die of cancer, and they all were what we'd call too young to die. I'm sure you have seen the same. None of us want to die, and we are by nature geared to survive, and trying to survive around those we have cared and loved, and then to have them not understand, almost takes the guts right out of a person, but, we can reach out to God when no "man believes or understands" , and not to preach, but... God is our best friend when all others don't understand, and then we can better understand the fact that people are only people, and then it seriously does become easier for us to understand them.
That's the part too that 'seems backwards' yet...it is true. Here we are the ones that need HELP, and yet it is "us all" that are the ones not only living this horror and torture, but we're the ones reading everything there is to read, buying all we can buy to "try" and fix this, and we are the ones doing it ALL, and all while the NON-understanders sit back and tell us there's nothing wrong. hahha Oh...I have to laugh! It really helps make it tolerable (because it is just as difficult trying or attempting) to tell someone that doesn't understand the reality of this, and that seriously is just as bad as living with this lyme/morgs/whatever it all is, inside of us. And, yes, we're the ones that almost have to carry 'them' as when we step back, we can see how it must be for them too, which is strengthening to us, believe it or not.
I hope when you're feeling "alone"....that is when no one is understanding - that you can feel God's hand in yours, and then you'll know, you're not alone at all,....besides all us other Morgies here that I know have feeling and understanding for all you're going through.
|
|
|
Post by itchin4answers on Feb 7, 2016 0:30:32 GMT -5
Hi toni, I want to thank you for your post. I read your post last weekend and seriously it kept me going, I kept thinking on what you said, thanks so much coz it sure helped me in many ways. I wanted to update on things with me in Australia. I saw the Oncologist Friday and my CAT scan is all clear he said. He had some results in front of him which my LLMD had ordered. I have 5 of the Spotted Fever Group infections back, showing titres of only 128, but enough for the Oncologist to want to treat. I couldn't believe it, he had his little book of "microbial diseases" and was looking at antibiotics. He said "I can give you Doxycycline, what dose did you take in the past?". I explained I'd been given an elephant dose of Doxy in 2012 which upset my liver and made me ill and then a low dose Doxy in 2014 which destroyed me gut. I declined his offer of Doxy. He said he could give me another antibiotic but I declined that too saying that they destroyed my gut, he agreed! He said that my Lyme test was negative, therefore I do not have Borrelia. I said "incorrect", as my LLMD hand wrote on the bottom of my results saying the labs show negative and not as good as overseas. I said I got my clinical diagnosis of Lyme in 2012 and my Igenex results showed that Borrelia was gone from my blood stream, "quiescent" as my Lyme doctor then said and wrote on my results. I explained to him that Lyme tests in Australia are inadequate and if we go by the Rickettsial Research Laboratory - Geelong in Victoria Australia, they are always going to be negative because Dr Stephen Graves is a debunker and doesn't believe in Lyme. The Oncologist said that I have a chronic infection in my body that there is currently no treatment for. I said to him I believed that Bartonella had a role to play bigger than the Borrelia for what it had done to my Lymph nodes and said that it protects itself in a biofilm. I said to him "you and I both know Borrelia is a clever bacteria and evades detection". I was pleased he acknowledged I do have a chronic infection/disease, sad that he can't treat it with anything to knock these infections out. All the money spent having IV treatment in 2005/2006 to still have these infections just proves to me that the Antibiotic of Dalacin C back then did absolutely nothing other than harm my body. This link shows the Spotted Fever Group; www.cdc.gov/otherspottedfever/I still have 5 out of 6 of the spotted fever group, 1 is in dormancy. African Tick bite fever, Mediterranean spotted fever, Queensland tick typhus, Rocky Mountain spotted fever, Flinders Island spotted fever. Also have the Murine Tick Typhus www.health.nsw.gov.au/Infectious/factsheets/Factsheets/typhus.PDFSo the Oncologist said I don't have cancer just a chronic infection in my body though his concern was the MTHFR C677T gene mutation. He emailed the Peter MacCallum Cancer Institute requesting their help and course of action, mentioning that my son had 2 copies of the gene mutation. He did a search in this search engine which he said is one they use; cancer.sanger.ac.uk/cosmicIn the email to Peter Mac he attached the only article in this search engine on the MTHFR which was this (though very scientific) cancer.sanger.ac.uk/cosmic/study/overview?pmid=15837541He said to me we don't know enough about this gene mutation, but it's to do with polymorphism and bone marrow cancer. I think I said to him 2 or 3 times "prevention is better than cure". I was ever so anxious about my son and said I wanted help for him. He said he wanted to get me sorted first then Peter MacCallum will assess my son and incorporate a Paediatrician. To think I've had to move to the middle of no where literally and find a doctor (specialising in cancer) who doesn't charge a consultation fee, he bulk bills and is willing to help me. I sure do hope this goes somewhere. I do like the Doctor so far because he hasn't dismissed me, he can see that I have real infections, there is no talk of me being delusional. It really is a different experience to what I experienced in the psychiatric hospital, this tortures my mind a little and I was thinking I could always write to the psych hospital and the CEO (who is my old boss!) with copies of my sons POSITIVE Borrelia results and say that is very damaging to tell a woman that she is DELUSIONAL believing that her son has LYME. IF I have the energy to do this I will, because seriously this sort of medicine is bad medicine, and those treating psychiatrists do have a serious issue with labelling people and they themselves have an issue with believing someone. I know many people lie but I sure didn't lie to them about my health or my sons health. I have been taking the "Yoga of Herbs" mix and I can only take these until the end of the month as per the instructions on the bottle. They are doing something, as in, you know by bowel motions that detoxing is happening. I am not sure if my headaches, body aches, tiredness are in fact detox symptoms. It is hard to know. I get the sweats which could be "relapsing fevers". My son and partner see these happening to me, and quite often have to move away from me if we're sat on the couch because I burn up. It's hard to know what's going on. Just like anyone with this disease you never know from one day to the next what is going on. I'm walking at least 20 minutes a day, as per instructions from my psychologist and breathing exercises. I am walking without a dropped foot on the right hand side thanks to having a Lomi Lomi massage, it's Hawaiian. My partner has a friend who is a therapist, she's done this for 25 years and knew what she was doing. She realigned my legs hips and jaw. My gait and walk is somewhat normal now and that makes me happy and people don't judge you when you're not limping. I am working on gaining weight, but this isn't an overnight thing. I know I have lost muscle tone and all in good time I hope to try to be as healthy as I can. I had a medical grade needling last week. I look in the mirror and think I look terrible, it's really hard to repair the damage, having one side of my face twisted up makes my heart ache. I can't become too vain about it, but it does torture me. I need work done to my teeth too, another worry. All this from root canal work in the 90's and money grabbing dentists who never told me then that all root canaled teeth should be crowned. Dental is not covered by medicare in Australia, so I'm looking at over $12,000 to get my straight smile back. Need time to think this through and I am waiting on my total permanent disability payout which won't buy a house or yacht lol but it may get my teeth fixed....I'll just have to see how things go. I hope we get some help from this Familial Cancer Research with Peter MacCallum and feel somewhat human that people stop treating me like a delusional moron. I never did this to myself.
|
|
|
Post by itchin4answers on Feb 19, 2016 23:52:03 GMT -5
It's been 2 weeks since I saw the Oncologist and still no word from the Peter MacCallum Cancer Institute.
I am totally fed up, thinking there is no end to any of this. If I just had myself to think about I don't think I would want to continue to live.
My brain function is getting worse. I do all the right things, diet, supplements, walking, sleep plenty, sunshine, keep life simple and then what? I've spent a near fortune to be just right back at the start of it. Scars stare back at me from the mirror.
I want to scream because we are made to live in this bubble which is not real.
Lyme will never be recognised in Australia, the whole thing is a joke.
Remodelling the skin is very difficult. The right side of my face is very disfigured, but doctors just think I always looked this way. Their job is writing prescriptions. I find it difficult to live knowing that there is only health care for those that believe their lies.
I would like to write a good post, but my brain won't let me.
|
|
|
Post by toni on Feb 20, 2016 15:59:02 GMT -5
Hi Itchin,
I just wanted you to know I'm still here, all over the internet in fact, but, like you know.....nothing really new, except even more people all over having with the same horrors happening, and without help.
It is unreal.
I'm glad you're sharing what's happening too. Thank you.
|
|
|
Post by itchin4answers on Feb 22, 2016 0:10:10 GMT -5
Hi Itchin, I just wanted you to know I'm still here, all over the internet in fact, but, like you know.....nothing really new, except even more people all over having with the same horrors happening, and without help. It is unreal. I'm glad you're sharing what's happening too. Thank you. Hi toni, I'm pleased you've told me that even more people have this horror, not that I'm happy at it. I guess it just gives me a little piece of mind. Speaking of which my mind struggles terribly, I don't know why, sometimes, well a lot in fact I struggle to form words and sentences. I take great care of myself though the denial makes things worse. Only today another experience my son and I would rather have not had. We go to the local GP because my boy has red raw tonsils his face looks a little puffy, flushed and he has 3 spots on his left cheek. Like my son said to me "look mummy these spots are in a triangle". This GP is the same doctor that prayed for me to be rid of Lyme, now she is not very nice to us. She checks my boys tonsils and says "they're not that bad, red, but no pus". She didn't take his temperature or check his ears, didn't feel his glands. She muttered on about plenty of water, vitamin C...yes yes I know all that, we do it everyday, but no point telling her that. I pointed out the spots of his face, she tells me pimples! I said he's only 8 years old almost 9, he's already in puberty...she doesn't bat an eyelid. I mentioned could my son see a psychologist and could she do a referral, she asks "what for?"...I said the psychologist I was seeing for victims of crime suggested this, and also the school had mentioned this because they don't believe my son has Lyme disease. I said I think psychologists can sometimes make things worst for kids. Well she didn't want to do the referral because she didn't know what to write...and then she had the cheek to look at my son and say "he doesn't have Lyme disease"....I said "he certainly does! and a double gene mutation". I went on to say to this doctor "I know this consultation was for my son but I was going to mention to you that I have no energy and feel terrible but the worst part of this disease is your denial and the denial of every doctor". I didn't go from 0 to 100 I went from 0 to 50...because how dare this doctor say this in front of my son. So I came home got out our medical files and copied all our results and dropped them into the doctor. Since the doctor had the cheek to say to me "YOU don't have Lyme disease because your recent tests show this". For goodness sake, any fool can Google that Borrelia evades detection and you're lucky to show a positive. They need to read up on Bartonella. I am warn out from it all. Not long after dropping the lab results at the doctor I get a call from child protection, she wants to visit to sight my son and close our case. I really got my back up, I was very polite but said to this protection worker "did the school phone you or was it just a coincidence"...she said the school didn't phone she just wanted to close our case. She said she had read my medical file and said she feels sorry for me because I am ill and trying to get people to believe that is trying to push through political red tape. She said the problem with you being thin makes people think otherwise! She said to me she had been through a very stressful time in her life and has lost a lot of weight and people are questioning if she is on drugs!! lol...because people are so stupid! So child protection have closed our case and will be reporting to the school that the mother they beat up on is in fact ill!! not that it makes it any easy for me. I wonder what can I do to feel better? I am doing all I can, but one thing I have decided on is that I am not parting with anymore money, I am over spending money on doctors, no more, no way!
|
|
|
Post by toni on Mar 4, 2016 13:52:55 GMT -5
Hi Itchin, I just wanted you to know I'm still here, all over the internet in fact, but, like you know.....nothing really new, except even more people all over having with the same horrors happening, and without help. It is unreal. I'm glad you're sharing what's happening too. Thank you. Hi toni, I'm pleased you've told me that even more people have this horror, not that I'm happy at it. I guess it just gives me a little piece of mind. Speaking of which my mind struggles terribly, I don't know why, sometimes, well a lot in fact I struggle to form words and sentences. I take great care of myself though the denial makes things worse. Only today another experience my son and I would rather have not had. We go to the local GP because my boy has red raw tonsils his face looks a little puffy, flushed and he has 3 spots on his left cheek. Like my son said to me "look mummy these spots are in a triangle". This GP is the same doctor that prayed for me to be rid of Lyme, now she is not very nice to us. She checks my boys tonsils and says "they're not that bad, red, but no pus". She didn't take his temperature or check his ears, didn't feel his glands. She muttered on about plenty of water, vitamin C...yes yes I know all that, we do it everyday, but no point telling her that. I pointed out the spots of his face, she tells me pimples! I said he's only 8 years old almost 9, he's already in puberty...she doesn't bat an eyelid. I mentioned could my son see a psychologist and could she do a referral, she asks "what for?"...I said the psychologist I was seeing for victims of crime suggested this, and also the school had mentioned this because they don't believe my son has Lyme disease. I said I think psychologists can sometimes make things worst for kids. Well she didn't want to do the referral because she didn't know what to write...and then she had the cheek to look at my son and say "he doesn't have Lyme disease"....I said "he certainly does! and a double gene mutation". I went on to say to this doctor "I know this consultation was for my son but I was going to mention to you that I have no energy and feel terrible but the worst part of this disease is your denial and the denial of every doctor". I didn't go from 0 to 100 I went from 0 to 50...because how dare this doctor say this in front of my son. So I came home got out our medical files and copied all our results and dropped them into the doctor. Since the doctor had the cheek to say to me "YOU don't have Lyme disease because your recent tests show this". For goodness sake, any fool can Google that Borrelia evades detection and you're lucky to show a positive. They need to read up on Bartonella. I am warn out from it all. Not long after dropping the lab results at the doctor I get a call from child protection, she wants to visit to sight my son and close our case. I really got my back up, I was very polite but said to this protection worker "did the school phone you or was it just a coincidence"...she said the school didn't phone she just wanted to close our case. She said she had read my medical file and said she feels sorry for me because I am ill and trying to get people to believe that is trying to push through political red tape. She said the problem with you being thin makes people think otherwise! She said to me she had been through a very stressful time in her life and has lost a lot of weight and people are questioning if she is on drugs!! lol...because people are so stupid! So child protection have closed our case and will be reporting to the school that the mother they beat up on is in fact ill!! not that it makes it any easy for me. I wonder what can I do to feel better? I am doing all I can, but one thing I have decided on is that I am not parting with anymore money, I am over spending money on doctors, no more, no way!
Hi Itchin,
How is William? and yourself? I hope better, though I know it's a roller coaster. I should say, I hope you're feeling strong. And those red dots or spots in the triangle on your sons face, did they go away yet?
I understand about the appearance of a triangle, as this is "connected under the skin" like a woven mat, (a mycelial mat) and it "seems" imho those are "satellite" erruptions. Like a "seeding" for new growths if not stopped in it's tracks. Let me tell you about something I've read fairly recently. Now...of course there's much more to it than I will explain, but it is very interesting.
You know how I've been "going on about plain yogurt and milk for years" to the point of sounding like an idiot? hehehehehe Well, I did that because "there IS something to it" - and now I found a few things about that. The yog and milk mix made me sound like a broken record, because "from my OWN personal experience over the last 10 years of itching burning lesions, and finding that by LUCK, well, some common sense played into it too, hehe, but, that keeping my lesions from scaring me" was the "mix". Topical probiotics. Why? Who knows at this point, but...it's what's being studied because (((( IT HAS ANTIFUNGAL PROPERTIES))) that work when NO OTHER medicine KNOWN to man does!
Yes!!!
So, I'll find what I was reading (it's not as simple as yog and milk) but...as I've been going on and on about the application of that mix, well....(something IN IT) IS WHAT WORKS. I'm definitely not saying (open up a capsule of probiotic like acidophilus) because that is only part of it, and it doesn't YET work as well as the ( 2% milk with plain yogurt).
As I've also always maintained, it's not ( the cure ) but....it WILL rid each and every lesion (if the application is consistent for less than a week). The "mix" will not stop new itch spots or bumps and lumps, but it will get RID of exisiting ones "without leaving a trace".
I bring this up again, because of your son, and his cheek.
If you want to try it again:
Mix about 1/8 cup ((((plain white yogurt/live culture/low fat))) it will say that on the label, with ONLY 2% cows milk from the store. Only use about 1 tsp of the milk to the 1/8th cup plain live culture yogurt, and mix the two together with a spoon and glob it on ANY bump (even if the skin isn't broken) it STILL works, and NEVER wash it off except when washing the skin, then (immediately re-apply). It only takes less than a week to rid any new "breakouts".
Plain yog does not work by itself on Morgs spots/lesions, nor does just milk by itself. Nor does "lactic acid". I say this "with great confidence as I've tried for years" combinations, no combinations, you name it, I've tried it. These two products *combined*, specifically, are the ONLY thing I've found that does - which is only "grocery store yogurt and milk" (and I AM living proof there's something to this whether it's well...whatever it is) I'm not a scientist, hehe I only am a victim of circumstances that has found how to rid lesions when they crop up.
Please see this "NEW stuff in Dermatology" hhahaha it's like someone's been reading about Morgs (because I don't know anyone and haven't read it until recently) about (Probiotics) being used for "treatment of bacteria etc" using "probiotics", except Toni hahha harping on the yogurt and milk mix for our lesions, "which has done the job for me" in all my thousands and thousands of lesions in the beginning of Morgs AND left me without scars ALL because of "the mix I drove everyone crazy with" on here.
American Academy of Dermatology
www.aad.org/media/news-releases/could-probiotics-be-the-next-big-thing-in-acne-and-rosacea-treatments
I know this is about "acne etc"....but this is where "it's the crux of the *concept* that matters", just like us and our "infection" and "the concept remains" as it works, I can't say anything more about it, I don't know "exactly why" it works, but...who cares why....it just works.
Here's a sentence from the link I copied:
Antimicrobial Properties • Dr. Bowe explained that sometimes the substances produced by probiotics have antimicrobial properties, meaning they can create holes in bad bacteria and kill them.
I "bolded that sentence" because it's "critical".
|
|
|
Post by toni on Mar 4, 2016 14:09:22 GMT -5
drroshiniraj.com/a-surprising-new-cure-for-acne-eczema-rosacea-and-more/\
This next article I BELIEVE you'll LOVE!!!!!
Here's a paragraph: Although slightly tongue-in-cheek, the word “kefir” in the title of this article has a legitimate place in the wound-healing literature. Kefirs are natural probiotic compounds (yeast/bacteria fermentation starters) with anti-inflammatory and anti-microbial properties, which are typically packaged into drinkable yogurts and labeled as such. Huseini and colleagues researched the application of kefir-based gels of varying durations of incubation/potency on mice with cutaneous burns. The kefir gels were compared to no intervention, gel vehicle alone, or silver sulfadiazine (conventional therapy). Overall, the kefir gel with 96 hours of incubation (longest) yielded superior results in terms of inflammation, scar formation, and wound re-epithelialization.12 As a purported mechanism in wound healing, Wong and colleagues suggested that probiotics may help to normalize disruptions .....(the rest in the article).
So much left out (that I've seen myself from this) and it seems they don't have the "mix" down yet, not that I do, but I'm closer than they, I can tell, and....the protein adhesions that occur during "the mix drying on the skin" is....so outrageous, it's unreal. Maybe they do know, (and aren't saying for reasons of keeping this simple) but the bottom line is.....(it works). Really it does, because I've got Morgellons (was confirmed by Ginger in 06) which I already knew back in the end of 05 that something was seriously "off" with my skin. The "breathing pores" as they appeared when I'd put on a thin film of lotion across my face, which Never in life happened, or could I even imagine just that part of Morgellons being "that" bizarre, but, how little I knew (and still do) but moreso then about what was to come.
And here's from Dermatology Times:
dermatologytimes.modernmedicine.com/dermatology-times/news/probiotics-healthy-skin?page=full
These are fairly recent articles, and it tickles me (thinking anyways) that these doctors have been reading ALL over the place, and have had patients with "skin issues" they couldn't rid, the patient nor the doc. So...someone's been lurking, it seems. Or ...they're FINALLY catching up! This is why "dermal aggravators" don't work (as we've all tried them) on our sores and itches, and scalps and skin, and everywhere. We don't want to "oxidize" our cells, as we need the armies, we want to "penetrate and cause holes" ONLY in the intruding cells - not the ones that belong there.
|
|
|
Post by itchin4answers on Mar 6, 2016 22:03:59 GMT -5
Hi toni, I'm pleased you've told me that even more people have this horror, not that I'm happy at it. I guess it just gives me a little piece of mind. Speaking of which my mind struggles terribly, I don't know why, sometimes, well a lot in fact I struggle to form words and sentences. I take great care of myself though the denial makes things worse. Only today another experience my son and I would rather have not had. We go to the local GP because my boy has red raw tonsils his face looks a little puffy, flushed and he has 3 spots on his left cheek. Like my son said to me "look mummy these spots are in a triangle". This GP is the same doctor that prayed for me to be rid of Lyme, now she is not very nice to us. She checks my boys tonsils and says "they're not that bad, red, but no pus". She didn't take his temperature or check his ears, didn't feel his glands. She muttered on about plenty of water, vitamin C...yes yes I know all that, we do it everyday, but no point telling her that. I pointed out the spots of his face, she tells me pimples! I said he's only 8 years old almost 9, he's already in puberty...she doesn't bat an eyelid. I mentioned could my son see a psychologist and could she do a referral, she asks "what for?"...I said the psychologist I was seeing for victims of crime suggested this, and also the school had mentioned this because they don't believe my son has Lyme disease. I said I think psychologists can sometimes make things worst for kids. Well she didn't want to do the referral because she didn't know what to write...and then she had the cheek to look at my son and say "he doesn't have Lyme disease"....I said "he certainly does! and a double gene mutation". I went on to say to this doctor "I know this consultation was for my son but I was going to mention to you that I have no energy and feel terrible but the worst part of this disease is your denial and the denial of every doctor". I didn't go from 0 to 100 I went from 0 to 50...because how dare this doctor say this in front of my son. So I came home got out our medical files and copied all our results and dropped them into the doctor. Since the doctor had the cheek to say to me "YOU don't have Lyme disease because your recent tests show this". For goodness sake, any fool can Google that Borrelia evades detection and you're lucky to show a positive. They need to read up on Bartonella. I am warn out from it all. Not long after dropping the lab results at the doctor I get a call from child protection, she wants to visit to sight my son and close our case. I really got my back up, I was very polite but said to this protection worker "did the school phone you or was it just a coincidence"...she said the school didn't phone she just wanted to close our case. She said she had read my medical file and said she feels sorry for me because I am ill and trying to get people to believe that is trying to push through political red tape. She said the problem with you being thin makes people think otherwise! She said to me she had been through a very stressful time in her life and has lost a lot of weight and people are questioning if she is on drugs!! lol...because people are so stupid! So child protection have closed our case and will be reporting to the school that the mother they beat up on is in fact ill!! not that it makes it any easy for me. I wonder what can I do to feel better? I am doing all I can, but one thing I have decided on is that I am not parting with anymore money, I am over spending money on doctors, no more, no way!
Hi Itchin,
How is William? and yourself? I hope better, though I know it's a roller coaster. I should say, I hope you're feeling strong. And those red dots or spots in the triangle on your sons face, did they go away yet?
I understand about the appearance of a triangle, as this is "connected under the skin" like a woven mat, (a mycelial mat) and it "seems" imho those are "satellite" erruptions. Like a "seeding" for new growths if not stopped in it's tracks. Let me tell you about something I've read fairly recently. Now...of course there's much more to it than I will explain, but it is very interesting.
You know how I've been "going on about plain yogurt and milk for years" to the point of sounding like an idiot? hehehehehe Well, I did that because "there IS something to it" - and now I found a few things about that. The yog and milk mix made me sound like a broken record, because "from my OWN personal experience over the last 10 years of itching burning lesions, and finding that by LUCK, well, some common sense played into it too, hehe, but, that keeping my lesions from scaring me" was the "mix". Topical probiotics. Why? Who knows at this point, but...it's what's being studied because (((( IT HAS ANTIFUNGAL PROPERTIES))) that work when NO OTHER medicine KNOWN to man does!
Yes!!!
So, I'll find what I was reading (it's not as simple as yog and milk) but...as I've been going on and on about the application of that mix, well....(something IN IT) IS WHAT WORKS. I'm definitely not saying (open up a capsule of probiotic like acidophilus) because that is only part of it, and it doesn't YET work as well as the ( 2% milk with plain yogurt).
As I've also always maintained, it's not ( the cure ) but....it WILL rid each and every lesion (if the application is consistent for less than a week). The "mix" will not stop new itch spots or bumps and lumps, but it will get RID of exisiting ones "without leaving a trace".
I bring this up again, because of your son, and his cheek.
If you want to try it again:
Mix about 1/8 cup ((((plain white yogurt/live culture/low fat))) it will say that on the label, with ONLY 2% cows milk from the store. Only use about 1 tsp of the milk to the 1/8th cup plain live culture yogurt, and mix the two together with a spoon and glob it on ANY bump (even if the skin isn't broken) it STILL works, and NEVER wash it off except when washing the skin, then (immediately re-apply). It only takes less than a week to rid any new "breakouts".
Plain yog does not work by itself on Morgs spots/lesions, nor does just milk by itself. Nor does "lactic acid". I say this "with great confidence as I've tried for years" combinations, no combinations, you name it, I've tried it. These two products *combined*, specifically, are the ONLY thing I've found that does - which is only "grocery store yogurt and milk" (and I AM living proof there's something to this whether it's well...whatever it is) I'm not a scientist, hehe I only am a victim of circumstances that has found how to rid lesions when they crop up.
Please see this "NEW stuff in Dermatology" hhahaha it's like someone's been reading about Morgs (because I don't know anyone and haven't read it until recently) about (Probiotics) being used for "treatment of bacteria etc" using "probiotics", except Toni hahha harping on the yogurt and milk mix for our lesions, "which has done the job for me" in all my thousands and thousands of lesions in the beginning of Morgs AND left me without scars ALL because of "the mix I drove everyone crazy with" on here.
American Academy of Dermatology
www.aad.org/media/news-releases/could-probiotics-be-the-next-big-thing-in-acne-and-rosacea-treatments
I know this is about "acne etc"....but this is where "it's the crux of the *concept* that matters", just like us and our "infection" and "the concept remains" as it works, I can't say anything more about it, I don't know "exactly why" it works, but...who cares why....it just works.
Here's a sentence from the link I copied:
Antimicrobial Properties • Dr. Bowe explained that sometimes the substances produced by probiotics have antimicrobial properties, meaning they can create holes in bad bacteria and kill them.
I "bolded that sentence" because it's "critical".
Hi toni, This is great stuff you've posted. Finally I'm doing something right lol. William is a lot better thanks. Out of the 3 spots only one was slow to heal, developed a crust. Will said that the spots were painful and "he" said shingles. It could well have been like what I get, at the time Will had the 3 spots I developed a tiny spot on my face in the area I always do. I also developed the sore throat, a cold sensation and sinus. I was relieved that my experience with this flare or virus didn't knock me off my feet. We're both keeping as healthy and strong as possible. My thoughts on the Kefir for the skin was; I'll needle my face then put on the kefir grains like a face mask...you never know it could do something. I lack interest perhaps, give in to what is at times with treating the skin. I get very depressed and have troubling coping with any form of stress. I'm thinking perhaps it's time for another dose of the Yoga of Herbs that I have. These were only to be taken for a month. The Kefir taken internally is truly the best thing. I don't know where I'd be without that to start the day. William liked the Kefir smoothie at first then went off them. We've tried different things for him for breakfast but surprisingly William has requested and gone back to the Kefir. As he's growing he's learning to listen to his body of what helps him. I get sad to think how Will feels when his body runs 80% slower due to this gene mutation. No surprise that I haven't heard from the Familial Cancer Research people. I get so peeved with it all. How do you find absolute peace with all this going on.
|
|
|
Post by toni on Mar 7, 2016 14:04:41 GMT -5
Hi Itchin,
That's great you're drinking the keifer, both of you that is.
Yes, our "guts" are key to the rest of the body, and keeping the bacteria right sure does seem to help the rest of our body too.
Itchin, can I ask what the needling procedures you're doing are for? I mean I know it's for the skin ...but "what in particular"?
Also, something that works incredibly "great" not for morgs, but...for (any skin treatment) that may break the skin.
It's called Bismuth Subgallate, it's a yellow powder, it's applied on the skin (after the skin has been abraded) or is "open" as it helps as a protectant, and an antiseptic and wound healer. When I had a "chem peel" where the face is literally "raw meat", the doc in San Diego put that all over my face, and it stayed on (I had to apply more throughout the week) but it was left on for a week straight. It's incredible what that does "on raw meat/skin". Now if the skin is "not" broken, it does nothing at all.
Or, like you were saying Keifer to apply on your skin, (I'd personally just use 2% milk, mixed with plain live culture yogurt) as it's those two ingredients that work synergistically, which produce the desired results.
But I understand "trying everything" is what we do.
|
|
|
Post by itchin4answers on Mar 10, 2016 20:43:02 GMT -5
Hi toni,
The medical grade needling has been to try and help with the appearance of the scars on my face. It has helped somewhat with the disfigurement my face isn't so tight in areas. I do believe my facial appearance is of a connective tissue disease but our doctors have blinders on or say "I don't know you"...easy cop out.
I'm only having a couple more sessions of the medical grade since the needle roller will have to be thrown out. I have been rather slack doing it at home too. It is painful and anything to do with treating the skin is surrounded by a bag of memories as you know.
I do apply the Neova and can only hope with time my skin does show improvement..
|
|
|
Post by ruthintoronto on Mar 11, 2016 11:16:33 GMT -5
Hi Toni, Hi Itchin,
Itchin, sorry for all the crap you have to go through with Doctors, especially when a child is involved. Yes I too believe I have a connective tissue disorder, I think mine is EDS, Ehlers Danlos. I am doing a whole program to heal the gut cause that is where everything starts. It involves taking organic colstrum with a fridge pro-biotic that you make into a paste and hold in your mouth for a minute before swallowing. I will let you know if I have any success.
Toni, had an outbreak on my leg about 75 sores and a few on my back since Nov. having been doing your recipe of 2% yogurt and milk. It's about 75% better at this point at 5 days. I will keep it up. Thanks for this one. Again in the beginning your mustard recipe really got rid of the itching so thanks for that one too.
I am still working on the skin, added in vitamin C, so I do on different days from the copper. Still trying to improve the sag at my jaw and neck. Hopefully the gelatin and Whey in my smoothie will help with this.
|
|
|
Post by toni on Mar 14, 2016 13:30:03 GMT -5
Hi toni, The medical grade needling has been to try and help with the appearance of the scars on my face. It has helped somewhat with the disfigurement my face isn't so tight in areas. Hi Itchin. I'm replying "in between" yours, because I sure can feel for you, and want to help suggest things you might run by your "derm or surgeon" "if I can". Scars, they come in all kinds of shapes and depths, and depending on 'what kind of scar it is'....well, they need treated differently, which I'm sure you know. If one has a scar "usually more than 2 millimeters in width" usually a punch excision is used as to "remove the binding tissue", and then it's sutured as to bring the skin together to heal so the results become a "flush surface" when the "meat" I call it (grows back). Sometimes with a small scar like that too, subcision can be done, which is a "special needling "under the skin which "roughs it up" and also breaks up the binding tissue that holds it in place, which that also will allow for the "meat" to grow back to a flush surface. Same with "divits" in the skin, (my terminology for all this) but, I think it gets the point across. Divits (I call them) are like "depressed spots" in the skin, not really a "hole", but a shallow bowl shape, and a small width in diameter. Those types of scars also are best "removed" by excising them" and then a suture brings the "skin together" and it heals flush. Also "what they call *ice pick* scars" are another type of scaring. Those look like a pore that's wide open and deep, and those are best removed with what's called The TCA Cross Treatment. They poke a "tooth pick" of all things, (it works though) dipped in TCA (acid) into what looks like a 'fine hole, or large pore" and that "literally eats the walls of that type scar off, so the sides and bottom of that "hole" that is (( less than 2 millimeters wide)) can then release it's binding scar tissue to allow for "the fill in of that hole" and when that heals, the skin becomes flush again. You're saying your face is tight (and YES, that's what the needling) is great for, breaking fibrous tissue that binds the skin, as to allow for a "relaxing of the tissue". Sort of like a cotton fabric, IF one were to use a sewing machine on it, without thread, just the "needling" of that foot by foot square piece of cotton fabric (after needling it over and over) it would literally stretch out to a foot PLUS a few inches. That's the concept behind needling....to relax areas, if repeatedly done. Skin on our face is very "workable" depending on the procedures. Scars that are raised too, above the "dermis", also benefit from needling, as the needling slowly breaks that tissue that "binds" and holds everything in place where we don't want it to hold it.
I do believe my facial appearance is of a connective tissue disease but our doctors have blinders on or say "I don't know you"...easy cop out. I know, it does "seem like that" in the way that "this stuff growing within the skin can literally "hold it in another place" than it's original setting. And then once the "fibrous" tissue is removed, or broken/cut....the skin sure does seem to relax perfectly again. I sure don't know what this garbage is in our skin, or if our "own body" has gone wild from some outside influences, which that is what I do think (outside influences) like GMO, but...something has caused everything to go into "hyper'drive" so I sure can relate. And I know your skin can be fixed to where you're happy about it too. Don't give up. But, make sure you're getting the appropriate treatments for each specific scar. I'm only having a couple more sessions of the medical grade since the needle roller will have to be thrown out. I have been rather slack doing it at home too. I've "only heard" of the home needling "with the roller" and I do believe over years, it could work. Not that I'm saying this here in what I'm about to write is the way to go, but...something I did learn years ago, was "when something regarding our skin" is more than slight, then more aggressive treatment is needed.
I'll give you an example. Many creams "out there" say they can do what a face lift can. Well...IF someone "needed and wanted a *face lift"...with results that exhibited a taut face, well...no cream in the world is going to lift and shrink slack skin. A facelift would then be the route to achieve the "results wanted". But, if someone just wants very superficial wrinkles removed, not slack skin, then a light peel is in order. And if wrinkles are deep, then a deep penetrating peel or laser would be needed. Every "drastic change wanted for instance" needs drastic treatments. But...when the 'problem' isn't drastic, the treatment doesn't need to be drastic. Hope that part makes sense. Maybe if you could send me your facial pic, I might be able to help give you "options to run by your doc"? I'm only saying that because I've been through and learned so much "before Morgs" as I was really into "the skin" and I was lucky enough to experience my "experiences with some really down to earth plastic surgeons that were not only there to collect money, but they shared the why's and how's with me, which is why I just thought they were very special people to begin with. It is painful and anything to do with treating the skin is surrounded by a bag of memories as you know. I've known so many women over the years that had procedures done also, as when one gets into that stuff, we then meet so many on the same paths, and so many had tried so many treatments out there, and it was obvious as to why their particular procedures didn't give them the results they'd dreamed for. But, that's 'imho' because (some) doctors needed to pay off their equipment, like the Thermage, and things like that and the poor unknowing patient was the one footing the bill, and without them getting full satisfactory results.
It's all relatively simply in skin manipulation, and don't let anyone tell you differently. Now, I know you said about the (needling and what it's being used for), but (you doing this at home) with a hand held roller for "binding tissue" within your dermis "cannot" reach that area. Only a qualified aesthetician can, while your skin is numbed, because your skin will bleed profusely when "the procedure to remove" binding tissue is done. The top rolling (at home) is only good for (surface texture) sort of like a (do at home dermabrasion) sort of like a "scrub for exfoliation".I do apply the Neova and can only hope with time my skin does show improvement. Yes, and imho, the Neova works best for helping the skin "repair itself" after any 'procedure that ablates the skin".
|
|
|
Post by toni on Mar 14, 2016 16:58:57 GMT -5
Hi Toni, Hi Itchin, Itchin, sorry for all the crap you have to go through with Doctors, especially when a child is involved. Yes I too believe I have a connective tissue disorder, I think mine is EDS, Ehlers Danlos. I am doing a whole program to heal the gut cause that is where everything starts. It involves taking organic colstrum with a fridge pro-biotic that you make into a paste and hold in your mouth for a minute before swallowing. I will let you know if I have any success. Toni, had an outbreak on my leg about 75 sores and a few on my back since Nov. having been doing your recipe of 2% yogurt and milk. It's about 75% better at this point at 5 days. I will keep it up. Thanks for this one. Again in the beginning your mustard recipe really got rid of the itching so thanks for that one too. Hi Ruthintoronto, I'm SO GLAD you're finally having success with those sores. I sure know what you mean. 100%. I know. My Mr. Toni once broke out in itching sores on his legs (once it happened years ago) and he hated me slopping on the mix on him, hahhaa BUT....he "let me" put it on, because I guaranteed him that was the ONLY thing known that would work. He said it took everything for him to not scratch the skin off his legs because his breakout that time was so bad, and he got almost instant relief just from the application of it, but better than that, the sores/lesions were all gone come Monday (as that happened on a Fri or Sat). Now and then Mr Toni will get a "batch of tiny itchy bumps grouped on his arms" which is the only place he gets it, and here we are about 11 years later after the "onslaught" of Morgs, we're still able to "control" our itchy bumpies and make them go away in just a couple or few days. Nothing else I've tried works. I don't know why or how that mix does what it does, but...it does the job perfectly whereas nothing has worked for us in all this time of having this "horror". I'm SO happy you can now experience the relief of getting those suckers gone as soon as they crop up, which they will, as they never seem to stop, well, the numbers of them/breakouts will lessen over time, but...it's still there. Wish we had a pill that could do the same. I guess internally probiotics are a little "key in this mess". Not to over do them though, as the "bacteria in our guts" must be kept in balance and most probiotics are to be taken once a day. But as for the "topical application" ....something "must be" working synergistically for this to do what it does. I am still working on the skin, added in vitamin C, so I do on different days from the copper. Oh yes, that's great, as one product will negate the other. Sort of (my laymens way of saying it) the copper will neutralize out the Vit C topical or the C will neutralize out the copper. They're both (excellent) for your skin, and alternating days as you are, you're getting the most from your products. Still trying to improve the sag at my jaw and neck. Hopefully the gelatin and Whey in my smoothie will help with this. You're giving you body "good stuff" and when we do that, good stuff *the body* gives back. And some exercises too, like "some women" I guess men too, but we don't hear about it much, (or I haven't) but they'll lose some weight and get "how do I say this delicately"? "they'll get flappy upper arms".
Well, *they* use to say, one cannot rid that, unless they had surgery. Well..that's not true, one only needs to firm that less taut skin by tightening it with some exercise. They say "women after menopause" need to keep up weight bearing ((( light weight bearing ))) exercises to maintain muscle and tone. It's true. We're all going through stages of life, and aging is part of being born and when we're young we're mostly all full of energy, and over the years, and genetics too play a part, but...there's so much we can do to help things not get out of control by us just doing things like exercises, *and the neck area, there are exercises just for that too*, and eating right and drinking a good amount of water daily to keep everything running it's best, and sleep, which is just as important. All that, helps preserve us longer. That's one of my missions too, hehe And honestly, imho, this is the MOST important. Love yourself, love the person GOD created, because there IS only one you on this entire planet, and there will never be another you, which makes you extra special! All of us are great! With or without Morgs, we ALL are the most intricate miraculous beings. And I understand so much in how we want to be our best and look our best. So, we do our best in doing what we can, and love our self unconditionally, and try and keep positive no matter what, that's all key too. And then all those things we do - really DO seem to start working for us.
|
|
|
Post by itchin4answers on Mar 16, 2016 20:48:27 GMT -5
Hi toni, The medical grade needling has been to try and help with the appearance of the scars on my face. It has helped somewhat with the disfigurement my face isn't so tight in areas. Hi Itchin. I'm replying "in between" yours, because I sure can feel for you, and want to help suggest things you might run by your "derm or surgeon" "if I can". Scars, they come in all kinds of shapes and depths, and depending on 'what kind of scar it is'....well, they need treated differently, which I'm sure you know. If one has a scar "usually more than 2 millimeters in width" usually a punch excision is used as to "remove the binding tissue", and then it's sutured as to bring the skin together to heal so the results become a "flush surface" when the "meat" I call it (grows back). Sometimes with a small scar like that too, subcision can be done, which is a "special needling "under the skin which "roughs it up" and also breaks up the binding tissue that holds it in place, which that also will allow for the "meat" to grow back to a flush surface. Same with "divits" in the skin, (my terminology for all this) but, I think it gets the point across. Divits (I call them) are like "depressed spots" in the skin, not really a "hole", but a shallow bowl shape, and a small width in diameter. Those types of scars also are best "removed" by excising them" and then a suture brings the "skin together" and it heals flush. Also "what they call *ice pick* scars" are another type of scaring. Those look like a pore that's wide open and deep, and those are best removed with what's called The TCA Cross Treatment. They poke a "tooth pick" of all things, (it works though) dipped in TCA (acid) into what looks like a 'fine hole, or large pore" and that "literally eats the walls of that type scar off, so the sides and bottom of that "hole" that is (( less than 2 millimeters wide)) can then release it's binding scar tissue to allow for "the fill in of that hole" and when that heals, the skin becomes flush again. You're saying your face is tight (and YES, that's what the needling) is great for, breaking fibrous tissue that binds the skin, as to allow for a "relaxing of the tissue". Sort of like a cotton fabric, IF one were to use a sewing machine on it, without thread, just the "needling" of that foot by foot square piece of cotton fabric (after needling it over and over) it would literally stretch out to a foot PLUS a few inches. That's the concept behind needling....to relax areas, if repeatedly done. Skin on our face is very "workable" depending on the procedures. Scars that are raised too, above the "dermis", also benefit from needling, as the needling slowly breaks that tissue that "binds" and holds everything in place where we don't want it to hold it.
I do believe my facial appearance is of a connective tissue disease but our doctors have blinders on or say "I don't know you"...easy cop out. I know, it does "seem like that" in the way that "this stuff growing within the skin can literally "hold it in another place" than it's original setting. And then once the "fibrous" tissue is removed, or broken/cut....the skin sure does seem to relax perfectly again. I sure don't know what this garbage is in our skin, or if our "own body" has gone wild from some outside influences, which that is what I do think (outside influences) like GMO, but...something has caused everything to go into "hyper'drive" so I sure can relate. And I know your skin can be fixed to where you're happy about it too. Don't give up. But, make sure you're getting the appropriate treatments for each specific scar. I'm only having a couple more sessions of the medical grade since the needle roller will have to be thrown out. I have been rather slack doing it at home too. I've "only heard" of the home needling "with the roller" and I do believe over years, it could work. Not that I'm saying this here in what I'm about to write is the way to go, but...something I did learn years ago, was "when something regarding our skin" is more than slight, then more aggressive treatment is needed.
I'll give you an example. Many creams "out there" say they can do what a face lift can. Well...IF someone "needed and wanted a *face lift"...with results that exhibited a taut face, well...no cream in the world is going to lift and shrink slack skin. A facelift would then be the route to achieve the "results wanted". But, if someone just wants very superficial wrinkles removed, not slack skin, then a light peel is in order. And if wrinkles are deep, then a deep penetrating peel or laser would be needed. Every "drastic change wanted for instance" needs drastic treatments. But...when the 'problem' isn't drastic, the treatment doesn't need to be drastic. Hope that part makes sense. Maybe if you could send me your facial pic, I might be able to help give you "options to run by your doc"? I'm only saying that because I've been through and learned so much "before Morgs" as I was really into "the skin" and I was lucky enough to experience my "experiences with some really down to earth plastic surgeons that were not only there to collect money, but they shared the why's and how's with me, which is why I just thought they were very special people to begin with. It is painful and anything to do with treating the skin is surrounded by a bag of memories as you know. I've known so many women over the years that had procedures done also, as when one gets into that stuff, we then meet so many on the same paths, and so many had tried so many treatments out there, and it was obvious as to why their particular procedures didn't give them the results they'd dreamed for. But, that's 'imho' because (some) doctors needed to pay off their equipment, like the Thermage, and things like that and the poor unknowing patient was the one footing the bill, and without them getting full satisfactory results.
It's all relatively simply in skin manipulation, and don't let anyone tell you differently. Now, I know you said about the (needling and what it's being used for), but (you doing this at home) with a hand held roller for "binding tissue" within your dermis "cannot" reach that area. Only a qualified aesthetician can, while your skin is numbed, because your skin will bleed profusely when "the procedure to remove" binding tissue is done. The top rolling (at home) is only good for (surface texture) sort of like a (do at home dermabrasion) sort of like a "scrub for exfoliation".I do apply the Neova and can only hope with time my skin does show improvement. Yes, and imho, the Neova works best for helping the skin "repair itself" after any 'procedure that ablates the skin".Hi toni, Thank you for your informative post. I am not under a dermatologist or surgeon. I just see the beautician and have the treatment they offer. No doubt more money down the drain. I will have the next medical grade needling in a couple of weeks but then I think I'll perhaps stop. I did a home needling last night. I get so depressed with it all it seems there is nothing to fix my skin from being placed in positions it never originally was. I saw the Oncologist this morning and I have the low down on the MTHFR gene mutation. This is part of what the genetics people from the Cancer Institute said; The C677T variant in MTHFR is a common variant occurring in approximately 40-50% of the (Caucasian) population. Carrying one copy of this variant usually does not cause adverse health outcomes. There are currently no recommended changes in clinical management based on an MTHFR test result. So the Oncologist wrote a prescription for William and I to take high dose Folinic Acid once a week. I asked him if I should continue to order expensive supplements for William as advised by this doctor we were seeing, he said "no". There was a Lyme segment on the morning show today. I don't usually watch morning TV so I was unlucky to see it. There is a Sydney based doctor saying no Lyme in Australia and those testing positive in Australia is from unaccredited labs. He said people are being misdiagnosed and possibly have MS or non specific migraines. I feel it has been so many years for me that by the time the Government do something I won't even get a looking. I hope for the future of my son. I have to let go of what they didn't do for me all those years back. My damaged skin and looks. The diagnosis of Fibromyalgia has been nothing but a curse to me. I suffer depression, irritable bowel syndrome and have co infections associated with tick borne disease. I hate going to the doctors and feel all these years of ill health have been so damaging and the money I have thrown at doctors on their own agenda peddling nothing but BS. I reckon too Baraka that there is a disease being hidden by the drug companies. How and why this bizarre stuff happening to my skin and still can produce hair is beyond me. It has ruined my life and I hope I can learn to get over the mental damage from a health system worse than a third world country.
|
|
|
Post by itchin4answers on Mar 16, 2016 20:51:41 GMT -5
Hi Toni, Hi Itchin, Itchin, sorry for all the crap you have to go through with Doctors, especially when a child is involved. Yes I too believe I have a connective tissue disorder, I think mine is EDS, Ehlers Danlos. I am doing a whole program to heal the gut cause that is where everything starts. It involves taking organic colstrum with a fridge pro-biotic that you make into a paste and hold in your mouth for a minute before swallowing. I will let you know if I have any success. Toni, had an outbreak on my leg about 75 sores and a few on my back since Nov. having been doing your recipe of 2% yogurt and milk. It's about 75% better at this point at 5 days. I will keep it up. Thanks for this one. Again in the beginning your mustard recipe really got rid of the itching so thanks for that one too. I am still working on the skin, added in vitamin C, so I do on different days from the copper. Still trying to improve the sag at my jaw and neck. Hopefully the gelatin and Whey in my smoothie will help with this. Hi Ruth, Interesting you have EDS Ehlers Danlos. I only heard of this connective tissue disease this January when I was having blood tests. The nurse taking my bloods said she suffered from chronic fatigue syndrome and had EDS - I think she mentioned Fibromyalgia too. By looking at this woman I thought her skin looked fine and she was over weight, but what would I know. The stupid doctors I've seen have only said things like "have you been diagnosed with scleroderma?". I wish you well with the continued management of your health, seems we're totally on our own with this.
|
|
|
Post by itchin4answers on Mar 17, 2016 19:54:58 GMT -5
Hi Toni, Hi Itchin, Itchin, sorry for all the crap you have to go through with Doctors, especially when a child is involved. Yes I too believe I have a connective tissue disorder, I think mine is EDS, Ehlers Danlos. I am doing a whole program to heal the gut cause that is where everything starts. It involves taking organic colstrum with a fridge pro-biotic that you make into a paste and hold in your mouth for a minute before swallowing. I will let you know if I have any success. Toni, had an outbreak on my leg about 75 sores and a few on my back since Nov. having been doing your recipe of 2% yogurt and milk. It's about 75% better at this point at 5 days. I will keep it up. Thanks for this one. Again in the beginning your mustard recipe really got rid of the itching so thanks for that one too. I am still working on the skin, added in vitamin C, so I do on different days from the copper. Still trying to improve the sag at my jaw and neck. Hopefully the gelatin and Whey in my smoothie will help with this. Hi Ruth, Interesting you have EDS Ehlers Danlos. I only heard of this connective tissue disease this January when I was having blood tests. The nurse taking my bloods said she suffered from chronic fatigue syndrome and had EDS - I think she mentioned Fibromyalgia too. By looking at this woman I thought her skin looked fine and she was over weight, but what would I know. The stupid doctors I've seen have only said things like "have you been diagnosed with scleroderma?". I wish you well with the continued management of your health, seems we're totally on our own with this. Ruth, I didn't mean to sound short...I should have said "I am sorry to hear you've been diagnosed with EDS". I have trouble expressing myself somewhat these days.
|
|
|
Post by ruthintoronto on Mar 20, 2016 9:17:56 GMT -5
Hi Toni, Hi Itchin Toni, I am going to start facial exercises again, I have been doing light weight for the body for about a years now, have really stuck with it. Not seeing much change, sagging still, lol. Now according to the Charles Holman Foundation, the stuff coming out of our skin is collagen and keratin. Well we know it's more than just that but I wonder if this is the reason I am having such a hard time putting on muscle. I am the perfect weight but cannot put on muscle. Oh well I will keep at it. Hi Itchin, hope your doing well. I am now doing a program for SIBO. I did not feel I had a big gut problem but I am so sick of killing that now I am just trying to use healing protocols. www.alternavita.com/wp-content/uploads/2016/01/SIBO-Cheat-Sheet-1.pdf
|
|
|
Post by itchin4answers on Apr 9, 2016 2:24:49 GMT -5
Hi Toni, Hi Itchin Toni, I am going to start facial exercises again, I have been doing light weight for the body for about a years now, have really stuck with it. Not seeing much change, sagging still, lol. Now according to the Charles Holman Foundation, the stuff coming out of our skin is collagen and keratin. Well we know it's more than just that but I wonder if this is the reason I am having such a hard time putting on muscle. I am the perfect weight but cannot put on muscle. Oh well I will keep at it. Hi Itchin, hope your doing well. I am now doing a program for SIBO. I did not feel I had a big gut problem but I am so sick of killing that now I am just trying to use healing protocols. www.alternavita.com/wp-content/uploads/2016/01/SIBO-Cheat-Sheet-1.pdfHi there ladies, I'm doing as best as I can thanks Ruth. Yeah I was told by the LLMD who had to retire due to a stroke that the fibers were collagen and keratin. I don't mind people saying what they "think" the fibers are I would just like someone to perhaps commit to testing mine. That would be a really good place to start. Face exercises sounds like a good idea. So many things sound like a good idea but my motivation I think is living under a rock. I have to share something with you all and I was going to start a thread entitled "Arrogant Doctors!" but posting here will do just fine. I don't like going to the local doctors as you know, and the woman I prefer to see never seems to be there. As I've told you all before I've learnt that the clinic I go to the doctors are trainees from overseas. So yesterday I finally pluck up the courage to make an appointment. I really needed a prescription for my Melatonin because this lady doctor failed to give repeats on my last script, she did one repeat on my son's so I had been sharing his Melatonin. I was hoping to also get a chronic pain management plan to entitle me to hydrotherapy, yoga and tai chi at the local community centre. I have been wanting this since last November! When things come up in our lives it is easier to put things off, especially with the depression it all seems too hard. Anyway I book into the doctor yesterday and low and behold the lady doctor is away again!! so very much in need of Melatonin for my sleep I book in with anyone. I am not being racist, I am just saying that after Googling this doctors name I learn he had to be Arabic. Let me tell you all he was the most ARROGANT AND RUDE SOB!! He was ok at the start when I asked for my prescription and I also said could I have Valium too? He leaned back in his chair and said "oh you don't need Valium you have Melatonin". Well I was very calm, sweet and nice and said "If you had the chronic disease I had mate you'd want Valium and besides I haven't had a prescription of it of ages". So he gave me a script for 10 Valium! OH Wow!! I had a little list written on a piece of paper because I do forget when with a doctor because they make me so nervous (though didn't get to address all on my list because of his attitude). I find the "silence" when they are looking at their computer printing up the prescriptions to be so uncomfortable. Where do you look? lol....it's so impersonal and the way the desk is set up is that the patient sits at the side of their desk, not across from their desk, so you can sort of see what they are doing on the computer, but not really if you get me. Anyway, I look on my list and say "I had a UTI and I was wanting to know the lab results". Well this guy spoke like a shot gun "when was the UTI? last week?"....I say "um no"...."two weeks ago?"...."um no". I couldn't remember!! Then he sees on the computer and says "you had that UTI in January and you should have returned to the surgery 5 days later for your results!!". I have never had such a hard time trying to get a person to hear me out. What happened in January when I had this UTI was that I went to the doctor, had to see someone different coz the other doctor was away again. I describe my symptoms and the doctor immediately prints up a script for antibiotic...THEN she hands me a specimen jar and a pathology slip, tells me to go wee in the jar and go to the pathology nurse. That was the END of the consultation a WHOLE 5 MINUTES!! LOL! I stand in the hallway of the surgery thinking what the heck? so I do the specimen and wait my turn to see the pathology nurse and I say to this nurse "why am I seeing you with my specimen". She tells me that my specimen will be sent to the lab in Melbourne to see if I have a urinary tract infection. I said that's weird because shouldn't my urine be dip stick tested in the surgery first BEFORE giving me an antibiotic? So this is what I was trying to say to this doctor yesterday. I was trying to say that my concern back in January was that I took an antibiotic, YES I had symptoms of a UTI, though not all UTI's I have had are all the same. I tried to say to him that the doctor prescribed an antibiotic on my symptoms alone without doing a dipstick test to see if my urine showed, lets say...blood, or leukocytes. All my life since my teenage years whenever I visited a doctor and said I felt I had a UTI they would ask me to wee in the jar THEN they would dipstick it THEN they would prescribe the antibiotic THEN send to the lab. This doctor yesterday, spoke so fast and he was getting angry with me saying "Dr so and so prescribed you an antibiotic based on clinical symptoms and it was her judgement". I was saying "yes, yes I know but but..." and he kept talking over the top of me!! I said to him "perhaps I am old school where a doctor would once dipstick test urine before jumping to an antibiotic". He got so aggressive and said "dipstick tests are home stuff and not adequate, laboratory testing is what is required and the doctor made the right judgement, and are YOU a DOCTOR?!" I said "NO I am not a doctor and hey I am not STUPID!". If this complete dickhead had of done his job, shut his flapping gums and just heard me out. I was trying to say that I was concerned I was taking an antibiotic and perhaps my UTI wasn't really a UTI but I had the symptoms. For goodness sake who wants to take antibiotics when we really don't need too. I ask him for a "chronic pain management plan". He says "see your usual doctor and besides it's Friday!!"...what a stupid comment! He rammed into me saying "if you have tests or bloods done through this clinic you must return after 5 days for your results". I said "OH yes doctor I will really try to remember that given I have memory issues! thank you good bye". I had to literally peel myself off the ceiling when I got home, how rude he was, and yeah perhaps because of his place of birth. Seriously though, what are these doctors being taught. How dare he speak to me the way he did. Though perhaps that's the way they speak to women in their own country. I am not stupid and in fact I do believe what I was asking I was well within my right. You know he wasn't going to give me the lab result on the computer because I should have gone back after 5 days. The ego of these people is absolutely shocking "listen to ME I am God, you must do as I say, I will not listen to you I will dictate to you, you are only a number not a person!!". That is how he made me feel. Yes he did eventually tell me I did have a serious bacterial infection but WHY the lecture and rudeness. I believe it all goes with the training now, we the public the patient are scum, THEY doctors are nothing without us, they just don't get it. I will be finding another clinic to go to with Australian doctors because I'm over those idiots.
|
|
|
Post by itchin4answers on Apr 10, 2016 0:39:32 GMT -5
I had forgotten to say in my post yesterday, not wanting anyone to think I am a pill popper. I also didn't get a chance to say this to the doctor....my reason for wanting the Valium for sleep is that the Melatonin prescription costs $33 and that is for 30 tablets. I was advised by a doctor interstate to take 2 because of my fractionated sleep issues, to try to keep me asleep. The Valium is on PBS so only costs $5.20. The cost is a big issue especially with my son needing them too. For me a prescription was only lasting 2 weeks. So depending on my sleep and how it cycles I would interchange between valium and melatonin. These doctors don't care that we're on a pension and that all our money goes straight back to the government for medicine.
I am of the opinion these doctors don't like to give repeats because they want you to return to them...money money money.
My son saw his Paediatrician the other day and she had no problems in prescribing his Melatonin with 5 repeats. So there you have it, it's all about business, not making it easier for the patient. We have better things to do than sit waiting for 45 minutes in a stinking waiting room especially when you're lucky to even get 10 minutes, and whatever one asks for they will either talk you out of it, or pass the buck to someone else.
|
|
|
Post by ctbarb on Mar 2, 2017 16:54:33 GMT -5
Hi Toni, Just thought I'd stop by and see how everyone here is doing, unfortunately, there are still so many who are struggling with this disease.
In the last five years, since totally eliminating ALL GMO products from my diet (where and when I can), I no longer am invested with this disease! All lesions, sores, fibers, etc. are GONE! I still have the scars where they were, but no longer suffer from this horrific illness! As I posted in one of my last posts years ago when I first started my protocol, I started by eliminating the most invasive product...CORN. After 3 months, there was a notable change in my body, so I added soy, canola, sugarbeet, etc. until they were all out of my diet. It is now more than five years later, and I am free! If I slip up and eat anything with a corn derivative, I see signs of the disease within a very short period of time. That tells me that I ate corn in some fashion and must not eat that product again. I wish more folks would try eliminating the GMOs from their diet...glyphosate is toxic and Lord knows what else is in the process that is affecting our bodies! Good luck to everyone here, and I wish everyone well and God Bless!
|
|