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Post by itchin4answers on Nov 29, 2015 18:01:03 GMT -5
After letting it all sink in I looked into what I have, not too far, enough to know. This is a basic explanation on the mucus retention cyst in my sphenoid sinus. Sphenoid Sinusitis: One of The Most Dangerous Sinus Infection
Symptoms of sphenoid sinusitis are also the same with other sinuses. The patient may experience colds, mucus discharge and weakened sense of smell. A person can only determine if the infection has reached the sphenoid when he feels the pain on top of your head or at the back of the neck. This part of the sinus cannot be infected easily. The basic explanation for this is its location. It would be hard for bacteria or viruses to reach it because the location is not that easy to penetrate. It is not easy to diagnose sphenoid sinusitis. The doctor needs to get a sample of blood or sweat to know if there are traces of bacteria and fungus in the sinus. Another way to know the condition of the sphenoid is by CT Scan. Sphenoid sinusitis should not be taken for granted because progressive growth of the infection can cause neurological damage. Of all the sinuses, the sphenoid is one of the most sensitive because of the connection between the sinus and the optic nerve. sinuscure.org/sphenoid.htmlwww.ncbi.nlm.nih.gov/pubmed/12563914
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Post by itchin4answers on Nov 30, 2015 1:34:38 GMT -5
I could "delete" this thread however chosen not too.
You see, I took in what I read from those two articles. PubMed is reputable from what I know, all the doctors look to it?
I went to see my local doctor to try to understand my symptoms and took my CT scan results. Don't panic people, my doctor has a sphenoid cyst he says on his MRI and there is nothing to worry about.
To account for my symptoms...the doctor said they are "PSYCHOLOGICAL".
So glad we got that sorted doc! I'll go get on with my life now.
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Post by toni on Dec 2, 2015 17:53:26 GMT -5
I could "delete" this thread however chosen not too. You see, I took in what I read from those two articles. PubMed is reputable from what I know, all the doctors look to it? I went to see my local doctor to try to understand my symptoms and took my CT scan results. Don't panic people, my doctor has a sphenoid cyst he says on his MRI and there is nothing to worry about. To account for my symptoms...the doctor said they are "PSYCHOLOGICAL". So glad we got that sorted doc! I'll go get on with my life now. Hi Itchin, I'm sure sorry you can't get a straight answer from those docs. Everyone seems to be taking things so lightly. I sure don't get it. Maybe going to another doc, heck, maybe going to a few to "see if you can find one that's human" might be the way to go. I know every time I've ever gone to see a doc in any specific area, even a general GP, "in my head" I am interviewing them. If anything seems off with answers in "how they answer/their attitudes, demeanor, just them", then that's the last time I see them. I had one doc (before I knew I had morgs) - that I'd gone to because my eyes were tomato red, scratchy, and it wouldn't stop, for weeks. I looked into that "gigantic machine" he had me sit up to, so he could examine my eyes, and then he says: I don't see anything. I then was surprised, because my eyes felt like ground glass was in them, and I said to him : "You don't see anything"? I mean that was a simple question to him from me. Well, he wheeled his seat around facing me, and he said: "Do you need me to say it 10 more times!" hahhaaha that idiot! I'm sure he loses patients all the time, that jerk. It takes some time doing that, going to see different docs, but, it might help you weed out the ones that are there only for your money. Sure sorry you've got such a load of problems, and that "new" diagnosis leaves you wondering even more about what you should even do. What a horrible predicament. Somewhere out there are docs that do care though, it's a shame when you need help that you have to go searching and worrying in the meantime for a human doctor to start with. And (as you'd said about deleting your post) I'm glad you're not. It's important what all is going on with everyone, and since there's hardly anyone here, I'm glad you're sharing because this is Morgs related, whatever Morgs exactly is, it's truly messing up the human body, and please keep us or me updated. I pray you're going to be okay. Heck, I pray too that you can find a doctor that's got a marble or two of compassion. These fool doctors with their flippant comments of they have that "sphenoid too" who cares what they have! You're not him. He's not got lyme for starters, so what a stupid thing for him to say. He's the one that's suppose to comfort his patient in what to expect, and what's what, and how that's going to be treated, not "what his MRI" says. It's terrible the more I get chewing on this, that your doc is positioning himself as a GOD. Because for him to say (He has it too) has got absolutely nothing on this planet to do with you, except, "he's buying his way out" of something, that's what that tells me when a doc says "they have something you have too" or that I have, or anyone. That's unprofessional of them besides not even what you'd gone to see him for regarding the results of your health or life. And for him to say they're psychological? I don't know what he meant, do you? Does he think it was brought on by thinking about it? and it's not really real. I mean where's the psychological part? His MRI shows him it's there.
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Post by itchin4answers on Dec 2, 2015 19:08:27 GMT -5
Hi toni,
I so appreciate your post. I feel like I'm bursting at the seams with this worry of Lyme and Morgellons.
I had said to this doctor a visit or two prior to this one, asked if he'd looked into my story in the Age, newspaper article on Morgellons. He said he'd had a little look.
When I asked about the sphenoid cyst, I did say to him "could this mucous retention cyst account for what has taken place in my face and the long fibers that come out"....I pointed to the sides of my nose. He said "NO"...pointing to the computer saying "that research shows it's psychological". So "he" was referring to Morgellons.
I know what has happened to me, in 2003 I was diagnosed with a chronic sinus infection that had penetrated my skin and was on the Bactrim DS. It was terrible, grey and blue/green muck oozing out of my skin. I couldn't make that happen on my own, it just happened and it was as real as the nose of your face.
What a fool, the doctor, does not know the first thing about what is going on with me. He knew I was on to him because I spoke to him like I would any other person in this world, who has an unshakable belief about me. I told him about the Rheumatologist and his bogus explanation of Fibromyalgia. I said to this doctor "you know and I know Mycoplasma is involved in fibromyalgia".
To the doctors mind he has done the right thing because he has referred me to see a psychologist. Seriously, the look on this guys face is that he knows and he is clueless and he was scared. I wasn't rude to him, I stood up and continued to talk whilst slurring speech and limping. I said "my son and I have been to that many doctors and spent close to $60,000 of my dead defacto's superannuation to now get to here to be told psychological". I said "I shall continue to care for myself and you have a nice afternoon".
He was red faced as a left the room, I wasn't rude I was firm and I was honest.
We did have good doctors interstate but we have been unable to go with our lives falling apart because of another fool, boyfriend oops sorry fiancé who would rather think that I am a wanna be drug addict and my son is a pain in the bum.
It seems to me now where we stand today that Child Protection who I have always feared because they took my son from me in 2008 because of the delusional diagnosis. Do people know what it is like to live in FEAR? Fear of having your child taken when you haven't done anything wrong other than be human and wish to God that someone would take the time to look, to care, to educate. Their denial is the worst fuel for this disease that I have ever known. What it is doing to my son, is bloody unforgiveable.
I am so pleased to whoever phoned child protection to report me because you have done me and my son the biggest favour. Our child protection worker is not stupid and can see I am not well and is going to set things straight. So next week I hope things are a little different. Not that it takes away the pain and suffering we're going through right now.
Wrong is wrong, and when it comes to misinformation and people with unshakeable belief and damage being caused to a child because "they" all have their head in the sand, well I am prepared to be patient and wait for such time that we will be vindicated from this terrible position we are in.
The doctors comment of "psychological" well that's so interesting what you say toni because I came home with the exact same thought. I do not make the "knocks" and "ticks" happen with my head on purpose, I don't drag my leg for fun. It does leave one wondering about the "psychological" part. Does my head in.
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Post by toni on Dec 4, 2015 12:25:52 GMT -5
Hi toni, I so appreciate your post. I feel like I'm bursting at the seams with this worry of Lyme and Morgellons. I had said to this doctor a visit or two prior to this one, asked if he'd looked into my story in the Age, newspaper article on Morgellons. He said he'd had a little look. When I asked about the sphenoid cyst, I did say to him "could this mucous retention cyst account for what has taken place in my face and the long fibers that come out"....I pointed to the sides of my nose. He said "NO"...pointing to the computer saying "that research shows it's psychological". So "he" was referring to Morgellons. I know what has happened to me, in 2003 I was diagnosed with a chronic sinus infection that had penetrated my skin and was on the Bactrim DS. It was terrible, grey and blue/green muck oozing out of my skin. I couldn't make that happen on my own, it just happened and it was as real as the nose of your face. What a fool, the doctor, does not know the first thing about what is going on with me. He knew I was on to him because I spoke to him like I would any other person in this world, who has an unshakable belief about me. I told him about the Rheumatologist and his bogus explanation of Fibromyalgia. I said to this doctor "you know and I know Mycoplasma is involved in fibromyalgia". To the doctors mind he has done the right thing because he has referred me to see a psychologist. Seriously, the look on this guys face is that he knows and he is clueless and he was scared. I wasn't rude to him, I stood up and continued to talk whilst slurring speech and limping. I said "my son and I have been to that many doctors and spent close to $60,000 of my dead defacto's superannuation to now get to here to be told psychological". I said "I shall continue to care for myself and you have a nice afternoon". He was red faced as a left the room, I wasn't rude I was firm and I was honest. We did have good doctors interstate but we have been unable to go with our lives falling apart because of another fool, boyfriend oops sorry fiancé who would rather think that I am a wanna be drug addict and my son is a pain in the bum. It seems to me now where we stand today that Child Protection who I have always feared because they took my son from me in 2008 because of the delusional diagnosis. Do people know what it is like to live in FEAR? Fear of having your child taken when you haven't done anything wrong other than be human and wish to God that someone would take the time to look, to care, to educate. Their denial is the worst fuel for this disease that I have ever known. What it is doing to my son, is bloody unforgiveable. I am so pleased to whoever phoned child protection to report me because you have done me and my son the biggest favour. Our child protection worker is not stupid and can see I am not well and is going to set things straight. So next week I hope things are a little different. Not that it takes away the pain and suffering we're going through right now. Wrong is wrong, and when it comes to misinformation and people with unshakeable belief and damage being caused to a child because "they" all have their head in the sand, well I am prepared to be patient and wait for such time that we will be vindicated from this terrible position we are in. The doctors comment of "psychological" well that's so interesting what you say toni because I came home with the exact same thought. I do not make the "knocks" and "ticks" happen with my head on purpose, I don't drag my leg for fun. It does leave one wondering about the "psychological" part. Does my head in. Hi Itchin, First off, I do want to say (it was not me) that called anyone on you. The reason I'm saying that, is because you put it in your post, and I would too if that happened to me. So I understand you're not pointing any fingers, but, just so you "know inside" your thoughts of wondering, ((( as I WOULD ALSO))) who in fact did. There's too many "wonderments" you have - and I'm not going to contribute to that. Okay, now about the S.Cyst. From what I'm reading, (it's important to get things correctly diag'ed and plan of attack, asap) on something like this. I don't want to scare you, but heck, IF this were me, I'd be doctor shopping right now. I mean (get at least 2-3 different opinions), as this is very important, (imho). www.skullbaseinstitute.com/head-and-neck-tumors/paranasal-sinonasal-tumor-endoscopic-surgery.htmlAnd seriously, that doctor you'd gone to, for him to say "any part of that S.Cyst" is psychological, he needs reported AFTER you see a couple other doctors. (the medical establishment has no answers as to : what the cause is). For that doc to throw out his implication or comments on "what he thinks", and referring to everything being psychological, well...I'd sure NEVER go back to a fool like that. I call him a fool because sitting here reading what he's said to you, sounds like he's just treating you like you don't know your head from the next persons head. I mean that's what I'm getting out of 'his replies to you". I know I don't know "the whole story", but....this doctor that's said that-about the S. cyst being psychological, is saying things one can look up on the internet, and he's the only one in the world with that kind of a stupid comment on the cause, because "they" don't know the cause. Is this guy licensed??
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Post by itchin4answers on Dec 6, 2015 22:45:08 GMT -5
Hi toni, I so appreciate your post. I feel like I'm bursting at the seams with this worry of Lyme and Morgellons. I had said to this doctor a visit or two prior to this one, asked if he'd looked into my story in the Age, newspaper article on Morgellons. He said he'd had a little look. When I asked about the sphenoid cyst, I did say to him "could this mucous retention cyst account for what has taken place in my face and the long fibers that come out"....I pointed to the sides of my nose. He said "NO"...pointing to the computer saying "that research shows it's psychological". So "he" was referring to Morgellons. I know what has happened to me, in 2003 I was diagnosed with a chronic sinus infection that had penetrated my skin and was on the Bactrim DS. It was terrible, grey and blue/green muck oozing out of my skin. I couldn't make that happen on my own, it just happened and it was as real as the nose of your face. What a fool, the doctor, does not know the first thing about what is going on with me. He knew I was on to him because I spoke to him like I would any other person in this world, who has an unshakable belief about me. I told him about the Rheumatologist and his bogus explanation of Fibromyalgia. I said to this doctor "you know and I know Mycoplasma is involved in fibromyalgia". To the doctors mind he has done the right thing because he has referred me to see a psychologist. Seriously, the look on this guys face is that he knows and he is clueless and he was scared. I wasn't rude to him, I stood up and continued to talk whilst slurring speech and limping. I said "my son and I have been to that many doctors and spent close to $60,000 of my dead defacto's superannuation to now get to here to be told psychological". I said "I shall continue to care for myself and you have a nice afternoon". He was red faced as a left the room, I wasn't rude I was firm and I was honest. We did have good doctors interstate but we have been unable to go with our lives falling apart because of another fool, boyfriend oops sorry fiancé who would rather think that I am a wanna be drug addict and my son is a pain in the bum. It seems to me now where we stand today that Child Protection who I have always feared because they took my son from me in 2008 because of the delusional diagnosis. Do people know what it is like to live in FEAR? Fear of having your child taken when you haven't done anything wrong other than be human and wish to God that someone would take the time to look, to care, to educate. Their denial is the worst fuel for this disease that I have ever known. What it is doing to my son, is bloody unforgiveable. I am so pleased to whoever phoned child protection to report me because you have done me and my son the biggest favour. Our child protection worker is not stupid and can see I am not well and is going to set things straight. So next week I hope things are a little different. Not that it takes away the pain and suffering we're going through right now. Wrong is wrong, and when it comes to misinformation and people with unshakeable belief and damage being caused to a child because "they" all have their head in the sand, well I am prepared to be patient and wait for such time that we will be vindicated from this terrible position we are in. The doctors comment of "psychological" well that's so interesting what you say toni because I came home with the exact same thought. I do not make the "knocks" and "ticks" happen with my head on purpose, I don't drag my leg for fun. It does leave one wondering about the "psychological" part. Does my head in. Hi Itchin, First off, I do want to say (it was not me) that called anyone on you. The reason I'm saying that, is because you put it in your post, and I would too if that happened to me. So I understand you're not pointing any fingers, but, just so you "know inside" your thoughts of wondering, ((( as I WOULD ALSO))) who in fact did. There's too many "wonderments" you have - and I'm not going to contribute to that. Okay, now about the S.Cyst. From what I'm reading, (it's important to get things correctly diag'ed and plan of attack, asap) on something like this. I don't want to scare you, but heck, IF this were me, I'd be doctor shopping right now. I mean (get at least 2-3 different opinions), as this is very important, (imho). www.skullbaseinstitute.com/head-and-neck-tumors/paranasal-sinonasal-tumor-endoscopic-surgery.htmlAnd seriously, that doctor you'd gone to, for him to say "any part of that S.Cyst" is psychological, he needs reported AFTER you see a couple other doctors. (the medical establishment has no answers as to : what the cause is). For that doc to throw out his implication or comments on "what he thinks", and referring to everything being psychological, well...I'd sure NEVER go back to a fool like that. I call him a fool because sitting here reading what he's said to you, sounds like he's just treating you like you don't know your head from the next persons head. I mean that's what I'm getting out of 'his replies to you". I know I don't know "the whole story", but....this doctor that's said that-about the S. cyst being psychological, is saying things one can look up on the internet, and he's the only one in the world with that kind of a stupid comment on the cause, because "they" don't know the cause. Is this guy licensed?? Hi toni, Thank you for your post and not for a minute would I ever think yourself would report me to child protection. Though thank you for saying what you did, because yes there is so much to wonder about. People need to get off their soap box, the pot calling the kettle black, heck you know there are so many people on drugs, people one would never think and these people don't have what I have. In saying that, this DISEASE is enough to drive anyone to drink or drugs, though we know that is only a death wish. I am guessing perhaps the school called child protection and I had to do a drug screen, which was clear. The comment from child protection was "we'll make sure to get this straight and prove to the school that you have a real disease and are not a drug addict". That comment made me wild inside because I had wondered why the school were so evasive at not wanting to know about my boys disease, he has more than Lyme disease going on, we both do. See how information gets around. Just because I fell apart last year. I am human and grief and despair does terrible things to people. Not that I'm going to try and convince the school of the unresolved grief William and I have gone through since Tony's death. Then a goof ball of a man comes into our lives "I'll take care of you both darling"....It's a down right disgrace, but the law can deal with him which they are. Though he too could well have put in a report. Apparently, because of my difficulty walking and rapid speech lead to "that person" believing I was drug effected. If I was, it is nobodies bloody business and I so wish people would get off my back. I am seeing my eye specialist soon and this guy is smart and I plan to show him my CT scan results. I have narrow angle lens glaucoma and from what I read, these cysts in the sphenoid can create more "pressures" in the eyes. I have already had 2 laser holes to each eye to release the pressure. With narrow angle lens glaucoma "one attack" is all it takes and you GO BLIND...simple as that blind and there is no turning back. I woke up this morning with awful dreams about that doctor, and the thoughts in my head as I awoke was "people like HIM are making people like me sicker". Yes the doctor is licensed, though the doctors at this particular clinic are from overseas, and they disappear for weeks at a time for further training. They are earning a great salary to tell LIES and put LIVES at great risk. On another note, I am currently at the library, oh yeah my new computer I got last year has died. Luckily I took it back to the store I'd bought it from as they have an outlet in this town and I have a product warranty so the whole computer is going to have to be replaced. If you don't hear from me, it's only because of the computer issue, but it's good to get out and I joined the library today and here I am using the computer. I will not be letting this "sphenoid cyst" just "go" and forget about it. Today I am thrilled because I am able to walk so much better. However yesterday was not good for me. In the morning I wasn't feeling too great with all the stress, and the heat, and then the next thing I know I was trying to talk to William and I started with the "knocks" and "ticks" and on comes one of those strange seizures. William was going out with a friend so at least he was in good hands. I text my Mum in Melbourne and said "I don't understand what is happening to me". She instructed me to rest. I don't understand it, the day before I'd started with a stiff neck, but then put this down to perhaps sleeping funny, I just don't know. So yesterday morning I took 1 Valium and slept until after 2pm. All I can say is that I felt strange and also I am flying off the handle, like getting angry easy. I put that down to many things, perhaps post traumatic stress, I don't know. What I do know is that STRESS does not cause DISEASE. I'll keep you posted, and thank you.
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Post by itchin4answers on Dec 8, 2015 22:11:15 GMT -5
I got to make this quick, not much time left on this computer at the Library.
We went to the doctors late yesterday, my son is sick another throat infection and more antibiotics.
I spoke to the doctor about my concerns. I handed her the CT scan results. She drew me a picture of where the sphenoid sinus is situated, which is at the back of the skull. I said that I had been worsening and having more seizures. She said in light of the scan results and my seizures I qualify for a Neurologist. Now she instructed me to go home and Google a Neurologist in either Melbourne or Adelaide.
My next concern to the Doctor was my weight loss. I said my weight loss is ridiculous. So I hop on the scales and the doctor says "add to 2 kilo"...ok so I did it said 45 kilo so I add 2 kilo to make it a whopping 47 kilogram. I am skin and bone. The doctor asked if I was eating. I said I am eating 3 meals a day and protein drinks. I said there is something very wrong with me and my neck is very stiff and sore.
So she instructed me to find my own Neurologist one that can see me as soon as possible and the Neurologist will decide if they put something down my nostrils to clear this cyst.
Of course I wasn't happy once we got home and I text my Mum! poor Mum she was so worried about William not being well and the doctor even pointed out the abnormalities in William's bloods....I know! but they do nothing. The doctor said my bloods were fine, so yeah there has to be nothing wrong with me.
I replied to Mum's text saying "I would rather be dead, all these years of not being believed, I am over it!". Then I text her back asking about her Neurologist and how soon can he see me. So Mum (good old Mum!) phones me explaining that it's like trying to get through hells gates when booking with a Neurologist you have to have a referral. The doctor I saw last night said I was to find the Neurologist first, then she would do a referral.
I am sure you people in the USA are jaw dropping at the stupidity of our doctors. Are they sick too? Yes I think they are all rather deranged.
I have had a somewhat bad morning. A blessing my son was home from school, but then not, because he kept checking on me in the shower to make sure I hadn't collapsed. These seizures are changing and it's taken probably 5 hours for the knocks and ticks and weird speech to be under control. I feel I am losing my mind but then not.
I have a touch of a sore throat too, and I have the shingle thing on the right side of my face. You can't really see anything, I can feel it inside me. My son had a little bit of a cold sore on his lip. So we're sharing this loving disease.
Gosh 10 minutes left LOL
Mum and I have decided to wait till I see my eye specialist as we feel this will be the quickest way for me to get some help. You know, I am prepared to beg this Doctor of mine next week. He has to help me. I have my son to raise.
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Post by toni on Dec 9, 2015 11:15:43 GMT -5
Hi Itchin, First off, I do want to say (it was not me) that called anyone on you. The reason I'm saying that, is because you put it in your post, and I would too if that happened to me. So I understand you're not pointing any fingers, but, just so you "know inside" your thoughts of wondering, ((( as I WOULD ALSO))) who in fact did. There's too many "wonderments" you have - and I'm not going to contribute to that. Okay, now about the S.Cyst. From what I'm reading, (it's important to get things correctly diag'ed and plan of attack, asap) on something like this. I don't want to scare you, but heck, IF this were me, I'd be doctor shopping right now. I mean (get at least 2-3 different opinions), as this is very important, (imho). www.skullbaseinstitute.com/head-and-neck-tumors/paranasal-sinonasal-tumor-endoscopic-surgery.htmlAnd seriously, that doctor you'd gone to, for him to say "any part of that S.Cyst" is psychological, he needs reported AFTER you see a couple other doctors. (the medical establishment has no answers as to : what the cause is). For that doc to throw out his implication or comments on "what he thinks", and referring to everything being psychological, well...I'd sure NEVER go back to a fool like that. I call him a fool because sitting here reading what he's said to you, sounds like he's just treating you like you don't know your head from the next persons head. I mean that's what I'm getting out of 'his replies to you". I know I don't know "the whole story", but....this doctor that's said that-about the S. cyst being psychological, is saying things one can look up on the internet, and he's the only one in the world with that kind of a stupid comment on the cause, because "they" don't know the cause. Is this guy licensed?? Hi toni, Thank you for your post and not for a minute would I ever think yourself would report me to child protection. Though thank you for saying what you did, because yes there is so much to wonder about. People need to get off their soap box, the pot calling the kettle black, heck you know there are so many people on drugs, people one would never think and these people don't have what I have. In saying that, this DISEASE is enough to drive anyone to drink or drugs, though we know that is only a death wish. I am guessing perhaps the school called child protection and I had to do a drug screen, which was clear. The comment from child protection was "we'll make sure to get this straight and prove to the school that you have a real disease and are not a drug addict". That comment made me wild inside because I had wondered why the school were so evasive at not wanting to know about my boys disease, he has more than Lyme disease going on, we both do. See how information gets around. Just because I fell apart last year. I am human and grief and despair does terrible things to people. Not that I'm going to try and convince the school of the unresolved grief William and I have gone through since Tony's death. Then a goof ball of a man comes into our lives "I'll take care of you both darling"....It's a down right disgrace, but the law can deal with him which they are. Though he too could well have put in a report. Apparently, because of my difficulty walking and rapid speech lead to "that person" believing I was drug effected. If I was, it is nobodies bloody business and I so wish people would get off my back. I am seeing my eye specialist soon and this guy is smart and I plan to show him my CT scan results. I have narrow angle lens glaucoma and from what I read, these cysts in the sphenoid can create more "pressures" in the eyes. I have already had 2 laser holes to each eye to release the pressure. With narrow angle lens glaucoma "one attack" is all it takes and you GO BLIND...simple as that blind and there is no turning back. I woke up this morning with awful dreams about that doctor, and the thoughts in my head as I awoke was "people like HIM are making people like me sicker". Yes the doctor is licensed, though the doctors at this particular clinic are from overseas, and they disappear for weeks at a time for further training. They are earning a great salary to tell LIES and put LIVES at great risk. On another note, I am currently at the library, oh yeah my new computer I got last year has died. Luckily I took it back to the store I'd bought it from as they have an outlet in this town and I have a product warranty so the whole computer is going to have to be replaced. If you don't hear from me, it's only because of the computer issue, but it's good to get out and I joined the library today and here I am using the computer. I will not be letting this "sphenoid cyst" just "go" and forget about it. Today I am thrilled because I am able to walk so much better. However yesterday was not good for me. In the morning I wasn't feeling too great with all the stress, and the heat, and then the next thing I know I was trying to talk to William and I started with the "knocks" and "ticks" and on comes one of those strange seizures. William was going out with a friend so at least he was in good hands. I text my Mum in Melbourne and said "I don't understand what is happening to me". She instructed me to rest. I don't understand it, the day before I'd started with a stiff neck, but then put this down to perhaps sleeping funny, I just don't know. So yesterday morning I took 1 Valium and slept until after 2pm. All I can say is that I felt strange and also I am flying off the handle, like getting angry easy. I put that down to many things, perhaps post traumatic stress, I don't know. What I do know is that STRESS does not cause DISEASE. I'll keep you posted, and thank you. Hi Itchin, Gosh, hope it's not hard to find what I'm replying to as our posts with 'posts in them' can get a bit confusing. And in replying to the "child protective stuff"....I know you were not pointing any fingers at all towards me, I know you understand. I "only said that so you'd not have ANY thing to wonder about" here. And ....you know that too, so I'm glad. Interestingly you've answered a question I had regarding your "eyes". Gosh Itchin, I'm so sorry you've got the pressure and all the things they've done without giving you relief yet. Yeah...from what I've been reading about this, (the eyes) are an important "symptom". And I sure DO understand what you mean about having dreams about "feeling" like the doctor is making you worse. I don't know IF I should say this, but I will. Geeze, I don't want to sound off the wall, but I probably will to a degree....and because I do want to touch on that issue of you "feeling" or "dreaming" that the doctor is harming you in any way. ((( Sometimes))) and this is sooooo going to sound weird, but, I'm just sharing thoughts. And this "is ONLY" of my belief, or thoughts, or of my own feelings, but, I do want to share them, because well.... they've done right by me. In YEARS past, when I was "depending" on a doctor to know his "stuff" and felt confident by the things I was told by "the doctor", I'd have a dream the night before my surgery (for instance)as this is what happened with me. And when I had a bad dream, or bad thoughts that I'd awake with, (regarding a surgery with a particular doctor for the next day) for instance? well.... later I'd wished I'd of "listened to that little voice inside of me", my good conscience, or whatever it is that's very subconscious. Because later I'd find out, the hard way, that that "subconscious thought or little voice" in me, what ever it is, (that thing that tells us turn right instead of left) if you know what I mean, and when we go against it, we lose, but when we listen to it, we're okay...well, (that thing), was right! Everytime. So, not that I'm saying 'we've got ESP' or any of that, but, ((( what I do believe is))) and not what I believe means anything, (except) to help you take a second look. And what I mean by that is, "for yourself" get other opinions, because they can't just do "trial and oops" on you. You need someone that knows what that is, knows what's up, and what that can do or not do, and give you everything "they know" to help you feel you're in good qualified hands. And, for you to be having bad dreams about the doc, (means, IMHO) that you know "something isn't right, deep down inside your psyche"...you know. That is what to follow (that thing inside you) that knows the truth, not just what comes out of someone's mouth, like that doc that's seemingly to act as though it's okay that the S.Cyst is there. It really (could be) okay...as in some cases with the S.C. , but in many ((( if ))) the eye pressure is there, well, that can cause serious problems regarding your eyesight. Take care. Here's a couple of links, (you've probably read all there is already on this subject) but, just inform yourself as best as you can, then when you see a doc, you'll be able to understand what's going on much better too. Heck, my Mr. Toni has been to a few different doctors (because when a doctor gives him a script of something that has a law suit going because of so many deaths) I then know that doctor is not looking out for his health. There's so many that don't give a hoot, and finding one that genuinely cares about being a doctor is sometimes just as difficult www.ncbi.nlm.nih.gov/pubmed/12563914emedicine.medscape.com/article/862435-overview
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Post by toni on Dec 11, 2015 14:17:17 GMT -5
I got to make this quick, not much time left on this computer at the Library. We went to the doctors late yesterday, my son is sick another throat infection and more antibiotics. I spoke to the doctor about my concerns. I handed her the CT scan results. She drew me a picture of where the sphenoid sinus is situated, which is at the back of the skull. I said that I had been worsening and having more seizures. She said in light of the scan results and my seizures I qualify for a Neurologist. Now she instructed me to go home and Google a Neurologist in either Melbourne or Adelaide. My next concern to the Doctor was my weight loss. I said my weight loss is ridiculous. So I hop on the scales and the doctor says "add to 2 kilo"...ok so I did it said 45 kilo so I add 2 kilo to make it a whopping 47 kilogram. I am skin and bone. The doctor asked if I was eating. I said I am eating 3 meals a day and protein drinks. I said there is something very wrong with me and my neck is very stiff and sore. So she instructed me to find my own Neurologist one that can see me as soon as possible and the Neurologist will decide if they put something down my nostrils to clear this cyst. Of course I wasn't happy once we got home and I text my Mum! poor Mum she was so worried about William not being well and the doctor even pointed out the abnormalities in William's bloods....I know! but they do nothing. The doctor said my bloods were fine, so yeah there has to be nothing wrong with me. I replied to Mum's text saying "I would rather be dead, all these years of not being believed, I am over it!". Then I text her back asking about her Neurologist and how soon can he see me. So Mum (good old Mum!) phones me explaining that it's like trying to get through hells gates when booking with a Neurologist you have to have a referral. The doctor I saw last night said I was to find the Neurologist first, then she would do a referral. I am sure you people in the USA are jaw dropping at the stupidity of our doctors. Are they sick too? Yes I think they are all rather deranged. I have had a somewhat bad morning. A blessing my son was home from school, but then not, because he kept checking on me in the shower to make sure I hadn't collapsed. These seizures are changing and it's taken probably 5 hours for the knocks and ticks and weird speech to be under control. I feel I am losing my mind but then not. I have a touch of a sore throat too, and I have the shingle thing on the right side of my face. You can't really see anything, I can feel it inside me. My son had a little bit of a cold sore on his lip. So we're sharing this loving disease. Gosh 10 minutes left LOL Mum and I have decided to wait till I see my eye specialist as we feel this will be the quickest way for me to get some help. You know, I am prepared to beg this Doctor of mine next week. He has to help me. I have my son to raise. Hi Itchin, I hope you and William are doing better today with the sore throats. Does William have "strep" do you know? Or did the doc even do a culture? And the abnormalities in his blood. I hope they just don't stop there with that comment, and that they look to see what exactly that is. I sure hope you both get treated with what's needed. And Williams lip? how's that? Did the spot that looks like a cold sore go away? I sure hope so. Before I got Morgs, or rather before I knew anything about it, I'd had polyps on my vocal cord, and had that removed. The day after the surgery at home here I was, I got the worst Strep throat infection of all times, couldn't swallow, only could drool, it was baaaaad. Then not long after that, I got Morgs. Always wondered about that. But, what I wanted to say too was (and I don't know if this will help do anything) but....for the first few years of my knowing I had Morgs, on and off, both me and Mr Toni would get a scratchy throat. He'd have one and mention it, not that it was bad, but, it was there, and then the VERY next day, I'd have one. That went on for probably a few years. We'd gargle with warm salt water, and that always helped make it go away within 24 hrs. So, I don't know if that would help, and maybe you've already tried that. And, I hope your computer issues get resolved soon, as I sure know how aggravating that can be, been through a messed up computer so many times that sometimes I wonder if it's worth it, and...it is, (after it's fixed) heheh but boy oh boy, there's nothing that makes me want to pull my hair out more than when it does mess up. It's funny 'sort of' how a machine can do that. But, it can because we need it so much. Take care, and keep strong.
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Post by itchin4answers on Dec 26, 2015 5:07:11 GMT -5
I got to make this quick, not much time left on this computer at the Library. We went to the doctors late yesterday, my son is sick another throat infection and more antibiotics. I spoke to the doctor about my concerns. I handed her the CT scan results. She drew me a picture of where the sphenoid sinus is situated, which is at the back of the skull. I said that I had been worsening and having more seizures. She said in light of the scan results and my seizures I qualify for a Neurologist. Now she instructed me to go home and Google a Neurologist in either Melbourne or Adelaide. My next concern to the Doctor was my weight loss. I said my weight loss is ridiculous. So I hop on the scales and the doctor says "add to 2 kilo"...ok so I did it said 45 kilo so I add 2 kilo to make it a whopping 47 kilogram. I am skin and bone. The doctor asked if I was eating. I said I am eating 3 meals a day and protein drinks. I said there is something very wrong with me and my neck is very stiff and sore. So she instructed me to find my own Neurologist one that can see me as soon as possible and the Neurologist will decide if they put something down my nostrils to clear this cyst. Of course I wasn't happy once we got home and I text my Mum! poor Mum she was so worried about William not being well and the doctor even pointed out the abnormalities in William's bloods....I know! but they do nothing. The doctor said my bloods were fine, so yeah there has to be nothing wrong with me. I replied to Mum's text saying "I would rather be dead, all these years of not being believed, I am over it!". Then I text her back asking about her Neurologist and how soon can he see me. So Mum (good old Mum!) phones me explaining that it's like trying to get through hells gates when booking with a Neurologist you have to have a referral. The doctor I saw last night said I was to find the Neurologist first, then she would do a referral. I am sure you people in the USA are jaw dropping at the stupidity of our doctors. Are they sick too? Yes I think they are all rather deranged. I have had a somewhat bad morning. A blessing my son was home from school, but then not, because he kept checking on me in the shower to make sure I hadn't collapsed. These seizures are changing and it's taken probably 5 hours for the knocks and ticks and weird speech to be under control. I feel I am losing my mind but then not. I have a touch of a sore throat too, and I have the shingle thing on the right side of my face. You can't really see anything, I can feel it inside me. My son had a little bit of a cold sore on his lip. So we're sharing this loving disease. Gosh 10 minutes left LOL Mum and I have decided to wait till I see my eye specialist as we feel this will be the quickest way for me to get some help. You know, I am prepared to beg this Doctor of mine next week. He has to help me. I have my son to raise. Well truth be known I am skin and bone. Seizures talking in tongues banging my head with my own hands only once. An ER attendance then psychiatric admission more forced drugging cult tricks. First do no harm. Facebook is causing unspeakable harm and youtube is full of paedophiles. I speak the truth. The plane ride was fun ? but how dare you people do this to me. Whatever morgellons truly is is killing me. I am skin and bone my pain is 150 out of 19 and people hack my phone. I walk with grace. So many lives lost already more as I tap from from a mobile device this is the most heinous crime. I believe in God so does my son and future husband. When I chose to read my prayer book in an airport and have private communication with military personnel via Facebook I say enough already....because this is REAL. I will not go down without this crime being exposed. I own this this has been my entire life. I pray every day and my post thanking Joni Mitchell which I composed whilst they kept delaying the flight home the flight ✈ that went to land then back up in the air and around again? ?? . My fear has me at 45 kilo though this is different I haven't died before but I believe. God bless us and lets get this done with peace and love to end the agony. Love ❤ you all Gillian Penkethman
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