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Post by aherah on May 22, 2006 18:23:48 GMT -5
Well wishes for success in your endeavors You always cut and run when the going gets tough, just like a dop doctor.
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Post by aherah on May 22, 2006 18:31:55 GMT -5
So sorry. "You apply oil on his skin that you don't further damage it when you notice that he has fibers coming out of his skin too. Later he keeps changing his shirts because, according to him, there are bugs in his shirt. You assure him that is not the case. Then he tells you that there are bugs in his body. You share this with his doctor who decides that you are the one with the issues." I can't imagine that it would feel good for me to scratch my sons back without something on there so my nails wouldn't cut him?!? Oh yes, you know better. There was no oil on his skin when he said there were bugs in his shirt. You only know half-stories, and you have decided how to shape them to suit your beliefs. That is not a discussion; it's a spin, but it is typical in politics. Are we still playing thunderations? So, what's you're story? Oh, let me guess; you're not open to an attack on your vulnerabilities.
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Post by little g on May 22, 2006 18:50:03 GMT -5
Oh, I thought I would have been deleted by now. So, just bear with me, and we can discuss a few things. I think what people need, afterall, is a "mentor", an "advocate" for their health, one-on-one, to assist them. Brb.
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Post by aherah on May 22, 2006 19:23:22 GMT -5
Oh, I thought I would have been deleted by now. So, just bear with me, and we can discuss a few things. I think what people need, afterall, is a "mentor", an "advocate" for their health, one-on-one, to assist them. Brb. So, we should abandon the Morgellons cult, as you termed it, and follow whom, you? Again, who's the nutjob here? You really must stop trying to "save" us thunderations (et al.). Your own mental illness is showing. I know how your ego would wallow in its own cult of hopeless, helpless poor sops, but you may have to look elsewhere.
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Post by SueLinMD on May 22, 2006 19:39:02 GMT -5
I had a blood test, no elevated eosinophis but also had a skin biopsy, showed high eosinophils also stated I had an unidentified arthropod attack. Hum, none in the blood but high in the skin. Whats that mean. Love to all SueLinMD
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Post by ANTHILL on May 22, 2006 19:51:10 GMT -5
Please just ignore the trolls on this board their is probably nothing you can say that will pacify them they have there mind made up and it seems their only objective is to creat discourse on the board I am doing my best to get them off of the board and hopefully this one is gone
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Post by little g on May 22, 2006 19:59:45 GMT -5
--Try to realize that not everyone from the outside world is always against, and attacking you, when they see a need for some direction in the sufferings of the confused, disadvantaged, and medically challenged population.--
--The first step to effective communication is an honest exchange of words. Have you ever made available to yourself any of the self-help guides that are online, relating how patients can effectively communicate with their doctors within the short timeframe of office visits?--
"I don't like going to doctors. I don't want to go to doctors. I was raised not to bother them with petty ills, but this didn't feel petty at all. When the fibers finally started coming out, I fully expected that now my doctor would "get it" because of course he must know about the fibers. I thought all would become clear and we could proceed toward a treatment. Instead, he looked at me dumbfounded and said the fibers looked as if they came from a sweater. What? Had I been eating sweaters in my sleep and now I expel them through my skin? I never denied that the fibers could have an environmental component, BUT IF WE CAN'T ADMIT THAT THERE ARE FIBERS HOW CAN WE EVEN HAVE THAT CONVERSATION?"
"There are no heroes coming to our rescue, or very few. I guess it's the disappointments that our doctors couldn't have been more there for us that eventually brings about the anger. If we can't get help from them when we feel like we're dying then things really look pretty bleak (add kids to the mix and you've got a mob of ballistic mothers). I don't even expect a cure, treatment, or anything other than the ability to speak honestly about what's happening to me without concern that what I say will be construed to suit somebody's labels."
"Assertive, not so good--looks crazy. They may take your kids away. I've found that it is better to be polite, well-spoken, then sit back and either wait to die or to be experimented upon."
--You have a deep-seated distrust that has arisen from your own ineffective attempts at communication with doctors. You have "assertive" skills confused with "aggression".--
After you've stated you "politely talk" to doctors, after saying "assertiveness" has put you at risk with them, you've commented, "I don't speak to my doctor about how I feel because, frankly, there's too much going on for her to believe it all. I don't know that I have brain lesions; I am suspicious of it. I do have something that isn't dandruff mixed in with fibers coming from my itchy scalp. It's not lice either, but many have thought that it was, thus the NPA research into this disease." "Aside from the skin issues, I look healthy. I do have occasional chest tightness and possibly circulatory issues."
--Let's not concern ourselves with "what many have thought that it was", concerning your "itchy scalp". You need to get your mind in focus and to be rational, so you can help yourself and your children. You are letting your emotions rule your ability to think, and make wise decisions, for yourself and your family. Use a medicated shampoo. I recommend Nizoral. Use it daily, and no other hair care products. Formaldehydye is in a lot of the clothes we wear, and it's also in carpets. Please entice your middle child into a nutritious diet, don't saturate your childrens' skin with lotions and oils, and put a sheet down if you must place your baby down on the carpet. Practice the correct way to be effective in speaking to a doctor in the short time there is to get what you want them to understand across. They are forming the wrong opinion of you, due to the manners in which you present to them. Please mention your chest tightness. You are a wife and a mother with people who need you.--
"This is really a horrible position to be in. I've asked repeatedly, but none of you students(?) will tell me what you would do in our shoes. Each time one of you explain what we should have done, or should be doing, it is a been-there done-that. So, now what would you do? Think about it. You'd be here trying to figure out how to help yourself. You'd be praying that Dr. Wymore gets a hold of something quick so that you can actually talk to a doctor (about this) again. If you have the resources, you'd attempt to do some research on your own; we have some who do that too. But real research requires time, resources, and MONEY. And none of that will materialize until the medical community can look beyond the surface appearance of dop and consider that what looks crazy might be a part of an infectious process as occurs with syphilis. Lyme and syphilis are both spirocytes, no? Isn't it reasonable to believe that they might behave similarly in the body? This would certainly explain how my kids got this. This thing is just too big for us, but we have no one else. It just sucks the big one. I should say that I don't know what the relation is between Lyme and Morgellons. I simply need something to hold on to when trying to understand what's happening and Lyme seems to fit the bill."
--You need "yourself". You are scared to death, and reinforcing all of your fears. Calm down some. Nobody can behave rationally when they allow their fears to rule them. Regain your focus.--
"The truth is out there but it is scewed by the the minds that must analyze, interpret, and present it. Ultimately, it is the imperfect human minds that manipulate the science, whether they realize it or not, that is the problem. We need objective research, or as close to it as one can get. I don't believe Dr. Wymore began this endeavor as a believer; he must have been persuaded by some other means."
--I am going to have this post deleted, and Aherhah, you know that as well as I do. Get rid of your feelings of persecution, your suspicions, your accusatory nature, and, most of all, your anger, and realize that I am not "cutting and running when the going gets tough". I have no vulnerabilities for anyone to attack. You know how the routine goes here, all too well.--
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Post by aherah on May 22, 2006 20:59:47 GMT -5
Little g,
You will notice that I might not have taken on a negative tone had you not been so patronizing. I suppose you expect complacent agreement? Find another puppet. You are delusional, concerned 1, delusions of grandeur.
I'm always open for discussion, as your lengthy accumulation of my quotes demonstrates. You're asking a lot when you ask someone not to be angry about brushing up against death, then being turned away by the only ones with the ability to change that. I get depressed at times, who in this day and age doesn't, but I really, really want to live. I want my children to live. I want to open a business. I want to run a marathon. I want to see my kids graduate, go to college, get married, have babies. Judging from my strange array of symptoms, it isn't looking likely to happen. Yes, this makes me angry, and I am 100 percent justified in feeling that way. The only way you could understand what I am saying is if you, like I, knew the reality of this disease. This is not a psychiatric manifestation. I'm sorry you feel that you think so. Nothing I have ever said will make sense unless you understood this disease as a real, verifiable, physical phenomena of some sort. I don't know if it is bugs, parasites, or abnormal nerve sensations accompanied by textile crap. I don't know what it is. I find it very odd that as a suffer of a disease, it is my job to tell the world what I have. Nonetheless, I know it is absolutely something, and that it really doesn't feel good.
I wonder if you suffer from multiple personality schizophrenia as you have taken on so many characters. It would be much easier to feel friendly toward someone who isn't putting on a variety of personas with a myriad of bs stories to dupe us. Just get real.
You've never answered the question of why you are here.
What is your interest here? What is your purpose?
Sorry I can't play anymore today. Life beckons.
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Post by little g on May 22, 2006 21:34:50 GMT -5
Aherah, you know that unless a person becomes a "registered member" that they have to tip-toe cautiously around trying to speak on this message board. I'm sorry it has induced so much suspicion and troubled you, and others, like it has. I don't limit myself to just coming here, Aherah, I go where I please. The purpose in my life is to make valuable use of the time I have, which I do. It's apparent that you have a whole lot to try coping with, that none of it is your fault, and that you shouldn't expect that you ought to try doing it all without any assistance. That's all.
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Post by ridgewalker on May 22, 2006 22:46:39 GMT -5
Said I wasn't gonna post again unless it was information, but you go Carrie! Thunderations! Don't you all remember who that is? In my own personal email archives I have an email from this person claiming her recovery from DOP. Please Carrie, you are too sharp for playing into this adapted person's games. I hate to see these threads going down the toilet again. Let's help and support one another or go somewhere else, please!
Carrie, you've done such great work and I've watched you grow and learn and I'm with you on your ideas and your message, so don't let these folks get you down and keep up the good work. I know I promised, but I couldn't take this backbiting any more. Point made little g....and it WAS a good point but no need for the sarcasm let's be KIND people, please, from personal experience, no more hurting one another. We're in this together.
Sorry guys, had to pop this one in. Be well and blessed, Okie
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Post by little g on May 23, 2006 0:03:57 GMT -5
Ridgewalker, you stated: "Please Carrie, you are too sharp for playing into this adapted person's games. I hate to see these threads going down the toilet again. Let's help and support one another or go somewhere else, please!"
You didn't read the dates on the posts in this thread, or you would have realized this was a conversation strictly between Aherah and me, today. I don't know what your motivations would be for wanting to interfere with the two of us (with Aherah and me), but whatever is contained on the older portions of this thread topic arent relevant to the discussion she and I were having. I'm sure you meant well, though, and that's all right.
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Post by Carrie♥ on May 23, 2006 0:40:56 GMT -5
You share this with his doctor who decides that you are the one with the issues." I've shared this with myself and have decided you are the one with the issues...Yo! Anthill...I so don't even take the time to read them at all anymore...I brush through...then next!!! I've read the board members response briefly...but that's it. Glad I can do that today. Ridgewalker...there you are. Nice to see you. Thanks. Oh one more... Posted by guest little g on Today at 2:44am Ah sorry, nope. The only thing that is really misunderstood is how obviously ignored worm parasites are in this country and how common they are. Even more...how commonly they are involved in the top two disease's listed in the title thread. Hum...gene mutations...what comes first the chicken or the egg. What mutates the genes? Does the parasite infected mutate genes? Are the mutated genes passed on from generation to generation or are our parasites passed on from our mothers like a bitch to her pups? Do we have to do this again? Topical cures...topical treatments. Asthmatic inhalers...symptom treators...when are we going to the source huh? And you think you have the answers for me and mine by treating the symptoms? I don't think so...that could have been done. That wasn't good enough for me. I suspect that wasn't good enough for many of us. If it has been or was good enough for you...so be it. Please do not try to discourage me from getting to the source of my disease...I want to be free of the cause...not just ease the symptoms of it...that's the easy way out. I'm not an easy woman.
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Post by little g on May 23, 2006 0:54:56 GMT -5
Hello, Sue. I didn't mean to not answer you, but you should have addressed any questions that you had to your treating physician, at the time. It sounds as if you must be saying that you received a bite(s) or sting(s) from any of the following: spider, scorpion, tick, mites, lice, fleas, bedbugs, flies, bees, or ants. I'm sorry, but that's about the only thing I can say in response to your question.
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Post by little g on May 23, 2006 1:17:31 GMT -5
Aherah, I apologize. When you have time from your busy schedule to view this conversation between the two of us today, you will see that there were some misunderstandings that developed. Excuse me, Carrie, but your interference here, with the quote that you stated as being mine, from yesterday at 7:22 pm, you took from a portion of a quote that I had posted to Aherah earlier, when I was attemptig to make a point to her, in our discussion. If you are deriving something from being so meddlesome, at least, please look back prior to that, and you can see it for yourself. I believe your last comment, Carrie, wholeheartedly.
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Post by specuelatin on May 23, 2006 1:45:10 GMT -5
HA HA HA HA!!! Carrie this is directed at you! It is so fun to watch these abberant personalities come onto this board and teach us about all sorts of mental disorders by their educational demonstation. It is so amusing! You and I have talked about how much fun it is too watch the show. See here, how she calls you "meddlesome" !! Now do you see her big fat finger pointing directly back at her? I mean, who is the "meddlesome" one here? I don't remember seeing Aherah running over to the board crying out "Adapted, please come rescue me! I haven't a brain in my head and just am in such a muddled despair, and don't know what to do! Oh please GOD, I mean, Adapted, please come with your great concern and rescue me from my ignorance!" I mean, seriously, have you seen Aherah doing that!! Ha HA HA! You go adapted, don't you let it bother you one bit that we are all watching your antics. Oh and PLEASE don't be calling me any more names! Especially Not MEDDLESOME.. because, I am not interferring in your business with Aherah whatsoever. This conversation is between Carrie and me. So BUTT out! Actually don't you go, because we love to see these educational demonstrations. spec
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Post by Carrie♥ on May 23, 2006 1:56:20 GMT -5
Speaking of Big Fat Butts...I thought that is what this board is for. I don't mean to be "ganging" up on any one in particular Butt... I've heard it mentioned a few times through out this thread...if I wanted to have personal conversations with members of this board...or non-members...I'd be sending them PM's or asking for their home boxes. Oh wait...Spec said Big Finger...my bad...my impression of Big like that is just my Big Butt...sorry, that stuck in my head. Oh wait...there was a Big, Fat, Finger and Butt...in your post Spec...better keep Friski away from here huh !?! No...Aherha isn't begging is she...she doesn't strike me as such...far from it.
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Post by little g on May 23, 2006 2:13:19 GMT -5
Aherah, I apologize. When you have time from your busy schedule to view this conversation between the two of us today, you will see that there were some misunderstandings that developed.
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Post by friskers on May 23, 2006 2:45:49 GMT -5
Speaking of Big Fat Butts...I thought that is what this board is for. I don't mean to be "ganging" up on any one in particular Butt... I've heard it mentioned a few times through out this thread...if I wanted to have personal conversations with members of this board...or non-members...I'd be sending them PM's or asking for their home boxes. Oh wait...Spec said Big Finger...my bad...my impression of Big like that is just my Big Butt...sorry, that stuck in my head. Oh wait...there was a Big, Fat, Finger and Butt...in your post Spec...better keep Friski away from here huh !?! No...Aherha isn't begging is she...she doesn't strike me as such...far from it. Oh Carrie Stop teasing me ;DHehehehe Yerba mates got me horned up as it is excuse me while I go find BOB ;D :-*Frisk
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Post by Carrie♥ on May 23, 2006 2:47:18 GMT -5
Dang...you got me...I knew you would !!!
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Post by little g on May 23, 2006 4:16:36 GMT -5
Sue, Of course, I don't know your medical history, but maybe this can be of some help, since I see nobody else has offered you a reply yet. Sporadic cases of it have been associated with arthropod bites, sites of trauma, and scars. In addition, several systemic diseases have been associated. www.thedoctorsdoctor.com/diseases/granuloma_annulare.htmBest wishes, little g
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