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Post by specuelatin on May 29, 2006 1:38:52 GMT -5
hey Hojo, Hope to catch up with you before you call it a night. There was a big mixup on this thread. The 'Little g" troll that keeps popping on the threads with ludicrous ideas attacked Orion this morning ...and Tonie, me and ERika were addressing her, not Orion. Anthill deleted the little g post and so there is some confusion. Tonie is cool, you'd like her if you had time to read all these posts, which I know you don't. Just hoped to clear this up. spec
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Post by H on May 29, 2006 1:53:04 GMT -5
Thanks Spec. I Didn't know
thanks again H.
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Post by Lynne on May 29, 2006 7:59:07 GMT -5
Orion I thought you were younger than that! Korea? wow. Ok any ways.. I definetly agree with Carrie that some fluke) Trematode) or nematode was involved with my case. I saw it clear as day. The eggs and other stage incubate in the lesions. When mature they begin to errupt out and that is when you feel the itchiest. They carry the bacteria or/virus that makes the fibers and that give us the fatigue and other symptoms. Without a doubt. that doesnt mean that other insects are not also carriers.
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Post by Patti on May 29, 2006 8:17:12 GMT -5
I guess it's possible that this is similar to EBV in that most people could have it........many could be carriers but not sufferers. It could be a generational thing passed down where stress or other factors bring it out in some while others never know they have it. A century ago there weren't all the cancer-causing agents around like today yet the average life-span was much shorter.....maybe this is one of the reasons why? And maybe the very first DOP cases were not cases of imagination but real medical infections causing those symptoms.
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Post by Ukguy guest on May 29, 2006 8:33:23 GMT -5
Yo folks And well done for dealing with the troll. All these guys (including the Mwatch moron) are going to get increasingly desperate as time goes on. With the CDC study now a fact, these goons have already lost the battle. What will be interesting, some day in the future, when the cause of this is finally known, is that these hidden agendas and the motives behind them will become apparent and that is going to be very interesting. As for flukes. Orion and Carrie: I have enormous respect for you both but still don't see this as being the underlying cause of this disease, at least not for everyone. Some people appear to have Flukes, some have worms, some mention insect vectors. In_the_uk, over on BIo online had a story to tell: She's based in the UK. Her friend (whom she hadn't seen in ages) took delivery of an engine from the BAY AREA and he was working on it before delivering to a customer. He felt like he was getting bitten all over when working on this engine and before long he has: lesions and fibres. After getting sectioned by his doctor under the mental health act for 28 days, he met up with this girl by chance and she tried to help him by doing research. Now pretty soon after this meeting and she has the fibers coming from her body also. This doesn't seem to have been caused by Flukes. Now please don't flame me....well if you really need to you can....but there's more to this wouldn't you say? Not trying to debunk anyone's research since you guys know a helluvalot more than I, but from my experiences there's more to this than just flukes. Hopefully, the answers are not too far away now. Take care Ukguy (donning flame-proof outfit right now....
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Post by Lyyne on May 29, 2006 8:45:54 GMT -5
Hi Ukguy, When I got the initial bite in 1999 i did not see any thing biting me at all. I was itchy all over. These flukes must have a stage where they are very very tiny. I did not actually see the fluke until last summer, by then I had had this for 6 years already. some stages can be dormant and migrating for long periods of time until the cycle begins again. Up until last summer i never looked at my skin with a magnifying glass. I just though I was having allergic reactions or fleas or mites were biting me. Finally I though when I felt the worst itch imaganable on my knee that I would look with magnification and when I did that is when I saw the fluke and the other black seed shaped things in a lesion.
In between the other stages migrate under the skin and can not be seen.
At least this is my case. I believe there is an other tropical worm type of thing the white spaghetti shaped fibers that is a different vector.
In the UK has the same tiny black fibers as I have.
Its about the various stages you see.
Hugs Lynne
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Post by ukguy guest on May 29, 2006 9:47:52 GMT -5
Sure Lynne I don't doubt it. But I've found no evidence of flukes. I have found a clear worm - and I dont mean a clear fibre - definitely a worm and much bigger than the fibres. I need more compelling evidence before I say 'me too'. Until someone can link these fibres with a fluke or I find a fluke in some of this debris that comes off me then I'm remaining sceptical. You said you found a fluke or a nematode or trematode Lynne. Which was it Lynne ? Thanks Ukguy
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Post by Lynne on May 29, 2006 9:59:32 GMT -5
Which was it? I am not a fluke expert you know. It was black and pointed at both ends. I think i have mentioned that enough. Ukguy remember there are different vectors. Regardless of which one cause the disease is it the same disease? do you have the same fibers from the organism that your vector caused? That is the question. Some may have nematodes some may have trematodes is what I meant.ukguy. Judging I guess from my short term self education I guess Mine is a trematode only a very very small variety. We didnt cover trematodes in entomology.
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Post by ukguy guest on May 29, 2006 10:29:21 GMT -5
Hi Lynne .. I just want to keep an open mind until this thing gives me another surprise Last night being one of those times...fibre production overdrive! Just when I thought things were calming down.. Your fluke/worm thing was black ? Didn't someone post an image of a black hair-like worm recently...Greta? Not sure...but it looked more like a worm than the usual fibres. I've found nothing like that as yet but I'm prepared for anything with this thing.. Lynne, how are you getting on with your regime? did you try Samento..? This has been used for Lyme sufferers so I'm told but I hear it's great as an immune booster....In_the_Uk told me about this so gonna give it a try along with everything else. I'm due to hear the results from a microbiologist about the worm and fibre sample I sent - hopefully this week, so will keep you posted. Take care Lynn...! Ukguy
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Post by Lynne on May 29, 2006 23:23:18 GMT -5
UKguy, Did you read the post by Cliff? RE: on Rense? He mentioned the slug like thing but also a worm stage too. i try to not look very much any more. My regimen is still helping tremendously as long as I do not stop it. I think I would be in very very bad shape if I stopped. It is under control. Sporadic breakouts from time to time, this last mo. But I get it under control quickly with the vinegar. Just apply more than the usual (my unwelcome buddy really can not stand it. hehe ;D (that is the scab like stage where "black scabs" start forming on my skin. But compared to last year its nothing. I had no fibers at all for three months now. I am feeling a wee bit better today as far as fatigue goes. just went through a very bad spell. Good news : I did some beloved gardening today!!!! That was so nice. Even though this is under control I believe it has left me with other things in my insides. I just feel something is bad. Am planning my will just in case. In the UK told me about the samento I have not made it to the herbarium yet to see if they have it. I didnt feel up to going any place lately. Take Care and please e-mail me, your address just disappeared from my buddy list. ~Lynne
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Post by Carrie♥ on May 30, 2006 2:29:45 GMT -5
UKGuy...hope you still have your suit on! Ha...you stop that...no stone bashing here. However...you know me. There was a point when I came on here sayin' perhaps our Morgellons are different issues...but today I can't say that...at all. Perhaps we have co-infections yeah, okay but Morgellons, fibers, flukes...why we are here! I hope you still love me though. Just like you are entitled to yours I am entitled to mine right ! You sound like Orion UKGuy...well how he's always sounded to me...he'd tell me, "Okay Carrie, but I have no evidence of a fluke disease." I'd tell him, "I hear yeah...you'd be a fool to take my word for it with out makin' sure for yourself!" I mean, what could you expect? He aint no dummy I don't expect him to act like one...something I think many of our Bloggers fail to realize, it's not like we are a bunch of suckers or something. From time to time I'd have to make sure that my dear friend realized perhaps he didn't agree he had a fluke infection or he didn't see evidence of a fluke with his issues...but I know I have a fluke infection...causing my disease...a disease that we share...with out a shadow of a doubt. Not that it should mean much...nothing more than a little consideration of that!? I've never recovered a fluke off of my skin...I could swear on everything I love I saw a couple but obviously can't be positive. It wasn't until I killed them and recovered them from my stool that I found a fluke come from my person. When I noticed the fibers through out that organism in early Feb. before I went to see Dr. S I didn't recognize how strong that really was UKGuy. Until last week when I dug that last specimen I had out and the "chains" and began to look again, a little closer in a little more depth. I just want to mention to you...it's not going to be that easy and the chances of you recovering a fluke from your skin are probably slim to none. Actually I doubt it will ever happen with out serious invasive procedures and then you'd have to know exactly where it is...trust me, I've tried. Even the latter but not too serious, I'm too chicken. So UkGuy...did you happen to see the last set of pictures that I posted? Regarding what I think to be fluke eggs and the fiber connection to them? Just curious...because I think the flukes produce a large amount of the fibers...and I think it produces the blue and bluish shades one for sure. Perhaps the red and red hue family we produce as an immune response!? Hum...don't know but for some reason, even though I have honestly tried, I can't un-sway. Yeah we have nematodes, some have insects but the fibers...the fiber, speck, possibly lesions disease...flukes yo! Bannanny...I just wanted to mention to you my thoughts as to what you said about a fluke at the skin and how obvious it'd be. I don't think that would be the case...like the SLF would look just like the skin, I don't think we'd be able to see it. I don't think most of the time they are on the skin either I think they are under. Just thought I'd mention my thoughts on that because I do agree with you...they are so big...we are so exposed...it just seems it should be too damn simple. Lynne...you've made a couple great points! With my experience a lesion wouldn't heal until all the crap was removed...and even then I've wondered if it is properly healed. I'm just starting to really recognize the bacterial connection...still can't grasp much on virus'. I saw this okay...I don't know how to explain it really except what migrates under the skin that can not be seen is the chains of eggs...I can't explain really how exactly I saw them...but I did...they were just like the ones that I recovered from my stool except they are and were completely transparent. With in those chains are massive amounts of fibers...and they don't go anywhere either...they are just too big for your body to remove. They are embedded and etched in your tissues. They have to literally be ripped out of the skin or what ever tissues they invaded. There have been many people talk about this...it aint no joke. I think I'm just now realizing that the "spikes" that we have in our slides the derms consider to be the way the skin forms on a callous are in fact those very same chains. Yep...a calling card sign for our disease. But hey...I really don't know nothing...this is all what I think I know. Patti...I couldn't agree with you more.
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onme2
New Member
Posts: 16
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Post by onme2 on Jun 1, 2006 23:27:01 GMT -5
Orion...I do agree that "Something" was there first, long before the fibers appeared.
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Post by Carrie♥ on Jun 5, 2006 12:14:41 GMT -5
Orion's home ;D!
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ukguy
Full Member
Posts: 193
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Post by ukguy on Jun 7, 2006 17:50:40 GMT -5
Hi Carrie I certainly did see your photos many times. The problem is that different people are focused on different aspects based on their experiences, what they've read, what they gravitate towards and resources available to them. You have experience with what you have found and can see patterns there as I can with mine. I'm not sure what I'm looking at sometimes with your images because they're not immediately familiar to me. You are probably the same with my images...Carrie: 'Hmmm....that don't look like no fluke' See what I mean Carrie? I hope you do...like I said I mean no disrespect to you or Orion or anyone else on ths board as long as you agree with me. Just joking I'm in awe of this board... Carrie, what treatment have you looked at for Flukes? Did you try any meds? Please let me know and keep up the fight Carrie...did you need any more from me? Not sure I answered your question... ;D Take care Ukguy
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ukguy
Full Member
Posts: 193
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Post by ukguy on Jun 8, 2006 2:54:03 GMT -5
Carrie: 'Hmmm....that don't look like no fluke' Carrie, by that I didn't mean your images don't look like flukes! I meant you looking at my images, if that makes sense... Meds? Ukguy
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Post by Carrie♥ on Jun 8, 2006 12:35:40 GMT -5
Hey UkGuy...ooops. Friski told me I got a big mouth in a nice way :-Xsorry. I bet you are so excited and I so hope you enjoy every minute of it.
I zap and have done and do Dr. Clark's weekly protocol. I've used a lotta Biltricide but took Fendbendazole before the Biltricide and it was the Fendbendazole that the flukes came out "whole." When I drank Milk of Mag they came out like the clumps of chains...boy what a mess but it killed them...must have. That was the first real recognition that there was something bigger that bacterial and fungal goin' on even though I knew it I'd not really accepted it yet ya know!?
I've looked at Scandi's thread for that one guys zapper. Sounds good. I just ordered the "Terminator" zapper from Tools for Healing because the little copper things are on the zapper so the kids didn't have to sit there with the hand holds in there hands. They get tired of it and hate to do it. I kind of wish I hadn't ordered it yet because Scandi's zapper sounds good but what's the use if the kids fight you about using it!? So this "Terminator" one may not be as efficient but it will still work. A little is better that nothing for my kids ya know. I haven't replied there yet because I'm slow and tired but will. Just wanted to let ya know.
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