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Post by godog on Jul 14, 2006 9:00:57 GMT -5
Sometimes, I cannot swallow, cannot, and it takes awhile and much effort to finally make my throat muscles work. Isn't this a symtom of lyme or morgellons? anyone else with this?
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Post by ebgbgms on Jul 14, 2006 9:02:27 GMT -5
Flutterby discribed my problem perfectly. I too have this "stuff" so do several people around me. Just to let U know U are not alone. We have all discussed how hard it is to even get a saliva speciman checked. It is diffacult, and I doubt if anything would come of the test anyway as they see what they want to see. Thanks for bringing this subject up and your ideas 22122! Always, ebgb
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Post by 22122 on Jul 15, 2006 3:50:49 GMT -5
A friend of mine just went to her doctor and told her about me and my worms. Another doctor in the same office was my doctor when I lived in that city. She said to my friend that it was good I was coughing up worms and that they start in gut of the human, perhaps being taken in as dust in the air even. Then they migrate to the lungs and eventually die and when they are coughed up, they leave behind more eggs that are swallowed and go to the gut to begin the cyle again. She said it is tye typical roundworm cycle.
Clearly, I don't think I am alone and clearly I am something's food. I plan to stay on top of this. Could have gotten it drinking the spring water on the farm. Had everything in it. (lung worm from cows, sheep liver flukes, cow fluke and horse bots and some deer "doo doo" thrown in the spring as run off. I test as having toxoplasmosis in my brain too energetically. It could be worse, I am grateful it is not.
The swallowing problem, godog, you might refer to the beginning of this board where they play the nice music and the screen is green. There is a lot of lyme information and I seem to remember this is one of the signs of lyme. Might check with kerry.
ebgbgms, A lot of alternative M.Ds use a lab called Great Smokies Lab. You might want to look it up. You collect your own stool samples and bring them in the the doctors office. It is amazing what they can find. A pretty good lab, I have heard and have had some tests in the past. It did not catch the round worm, however but that was some time ago and maybe I got it later.
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tina
New Member
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Post by tina on Jul 18, 2006 20:06:03 GMT -5
I too am a "worm cougher" as well as classic Morgy-was convinced I had hookworm or roundworm a year after this all started 5 years ago. Had full parasite stool panel done thru Great Smokie Labs (negative), then stool culture & O&P (ova & parasite) thru another doc-negative, to my surprise & disappointment. being a nurse, continued on w/requesting a sputum culure as well as blood culture w/my doc.....@ that point, the DOP diagnosis started, and "all bets were off"- no more diagnostic tests ordered, just a referral to a shrink. Symptoms still subside & return still & my med records have me blackballed as a "skin mutilator" as well as DOP. Keep the faith!!
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Post by 22122 on Jul 18, 2006 22:47:02 GMT -5
tina, Thanks for your post. I see you are a new member. Welcome to lymebusters. there is so much here. Well worth crusing through the old threads way back. Very little gets repeated so a lot of it is back there in the threads. I decided to get the bottles as quickly instead of waiting to order everything so I got them from my doctor's office lab section as I knew it was my lungs they were coming from. I just not have had much exercise stamina and my lungs don't feel so good. So my doctor gave me specimen bottles that have the formalin in them so I transferred two specimens in there from some vodka samples I previously had submerged in a bottle. they did not think this was going to be a very good sample but drained off the alcohol and put it in the formalin with my new sample this morning. To hedge my bets, I called Dr. Amin's parasite lab and they are sending me 4 formalin bottles. When I get those, I'll put some worms in there too. Its $80 per sample to have the worms ID'd this way. Then I will know what i have. I double checked with everybody and formalin is what it has to go in. I plan to stay on the Q-based Solutions Paracleanse twice a day as I think after three months this is really what is getting them. I did think it was something else but I think it takes this amount of time, about three months. I cough up a worm almost every morning. ""Good morning dead worm, I see you have had fun a good life in my lungs, you are very well fed." Always a bloody tip where it was feeding.
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linda
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Post by linda on Jul 19, 2006 14:48:52 GMT -5
I coughed-up something different today. It looked like a whitish/clear miniture pile of s---t, or a very long worm squished on top of itself (like a pile). It is not a fiber/fuzzball as I have seen in the past. Is this what you see? I have to admit, I usually steer-clear of these threads because I know the appearance of things can make you think anything. About the sore throats, I have a sore throat more often than I do not. It has become one of those things I live with.
I wish Dr. Wymore could provide a little guidance on how to go about preserving this stuff. If we knew how to preserve our samples it would most likely expedite the discovery process.
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Post by 22122 on Jul 19, 2006 17:52:05 GMT -5
Linda, Take a hand lense to it and when it is compact like that, the worm might be visible all coiled up. There is blood in mine so I have incurred lung damage likely.At this point my gut feeling that there is a 50% chance that this has something to do with my very high inflammatory levels the doctor found with certain of their tests and something to do with at inception of the biting, stabbing stings I felt months in advance of the crawlies. I still do not know if the two are related though.
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Post by 22122 on Sept 2, 2006 19:28:34 GMT -5
(An Update) tina, Your observations here are very revealing now in retrospect that even under idea circumstances where these things are looked at directly by the medical profession, you were labeled ultimately as being DOP.
linda, A very good idea that someone with a link to Dr. Wymore should ask him how they want the samples preserved. I did why I was told and nothing.
First of all in explaining that, two samples I had in vodka I transferred to the formalin bottle my doctor had given me. I added one more fresh sample that day even and it was clearly a worm. That was sent out to a tradition lab and it came back as "no parasites seen." My doctor know me and I explained that the first one was the most well formed as it was stiff. I was not able to save that one. The remaining ones were not so ridgid but clearly worms of about 1/2 to one inch long. He said he did believe me and added that worms have an enzyme that makes them dissolve so unless I got them looked at right away even though it were in formalin, it might be hopeless.
The second bottle I will save to take up to SF. I must have a least 10 samples in there. The bottles Dr. Amin sent up, I had great hopes for. I had four vial of formalin and two samples in each one with instructions to save the best four of 8. At $80 per sample, it could get quite expensive. In some cases the worm was expelled in a sack with the sputum. You could see the worm clearly in the sack. The test results came back as "chunks of sputum. Well, I guess no one dissected to look inside or truly the worms dissolved like my other doctor said they would. Both doctors know each other. I do not think there was any foul play but hope that they went through the trouble to dig through the chunk of sputum.
I am not going to let my condition advance just to get a solid worm. I continue to take paracleanse but had a break where it had to be back ordered. I ceased to cough up anything then but now after two weeks of being back on, I am starting to cough up bloody chunks again. This time is seems like worms in their early develement.
My SF doc is my last hope and I will report after going there. I was very sad for awhile as my daughter is thinking this is all in my head and is looking to put me in a ward some day and throw away the key. How can one be normal all the time to family members?I do have some bad days. Both of my doctors here in LA believe me, though. Thanks all for listening. 22122
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Post by prevenge on Sept 2, 2006 21:02:09 GMT -5
orion what's the most commonly used and most powerful human anti-parasitic over the counter drug?
-M
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Post by flutterby on Sept 2, 2006 23:12:45 GMT -5
Dear 22122, Hope you are hanging tough. I have a lot of mucous also, sinuses, nasal passages, throat with chest congestion. The slime is so thick and very hard to expell. I haven't coughed up any worms, but I have the heavy, bloody mucous from my nose and it is usually accompanied by a fairly large disgusting fluke worm. At times, those suckers (literally) are hooked into the inside of my nose and sinuses, it sometimes takes a few days of honking my schnozolla to make the flukes release. In size one inch to almost 2 inches and alive and moving, you can clearly identify the sucker, sex organs, round black eye and a clan of white larvae emerging, squiggling.............they make me sick.
I did have a horrendous experience not long ago, so freaky, I think I'm still freaked a bit,. I had one of those extremely, piercing, pounding headaches. Makes your eyeballs feel like they could just pop out of your head from the painful pressure located behind them. I took some medication for the headache and it felt like I had a pill lodged in my throat and I could not wash it down or cough it up. It was just stuck in the middle.
I tried everything in attempts to dislodge "what I thought was a pain pill" nothing seemed to help.
I made myself gag and try to bring out "the pill" over and over and then finally........................it felt like lumps and lumps began to move slowly upward from my throat. I thought, ok, I guess all of the pain pills are history, as I forced the chunky lumps up and out. Along with very thick mucous, were "so many" fluke worms, chunks of what looked like worm pods (after expelling these pods, larvae began to show.) I couldn't believe my eyes. Looked like several different species of wormy thingys in addition to the flukes. The mucous, so heavy and thick, I had difficulty trying to obtain specimens, scooping with a spoon, the mucous would not seperate as I tried to retrieve it. The spoon would grab onto the mucous blob, I could pull it away from the Main Mass, but that's as far as it would go from the mother ship. The streak of glob rebounded to the main mucous mass. It was as "One Entity" that could not be seperated.
Gathered up more than a pint of the whole mess, dumped it into a glass bowl. The mucous blob remained in the center of the bowl, at the surface of the total liquid content and looking into the bowl, from the underside of the "Blob" appeared mucous hangy downers, looking like stalagtites from the roof of a cave.
Lots of life moving around. Things hatching. One particular species of wormy thingy which stayed atop of the surface began to reach out for each other, move about and couple. It was like a "Morgie Orgy."
VERY STRANGE FACT, As I was expelling all of the mess, I DID NOT FEEL NAUSEOUS at all, I did not feel as one does prior to "Vomiting." Really, no stomach distress at all, no sweats and I did not experience the production of excess saliva that seems to just run from your mouth before you get sick and you know you best grab a vomit recepticle. I don't even know if this creepy, wormy, yucky, blah,,,,,,, came from my stomach.
Forgive any typos, I am stiff from leaning over my laptop and will say Good night to all of you. God Bless, Love you All, Flutterby
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Post by 22122 on Sept 2, 2006 23:43:42 GMT -5
flutterby, Thank you for your post. Yes, terrible hacking to get it out. Might it really be in the lungs too though? Not just sinuses? I am thinking both and an actual fluke. Now you would think that if you had some formalin around that it would keep in there. And yes, the mucus is like rubber and does not want to separate from the organism, in your case a fluke and in mine, a worm. Could not pull it way with tweezers. Well, I did not try two tweezers pulling in opposite directions but I could not separate the mucus from the organism like the mucus was a part of it so it just became these sputum globs in my diagnosis.
prevenge, My doctor trusted me as to what I saw and prescribed Vermox(Mebendazole) 100 mg tablets at one per day for three days and repeat in three weeks. I had a hard time to find the brand name and ordered it from Canada at 77canadapharmacy.com and probably paid less too. It finally came.
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Post by tonie on Sept 3, 2006 8:02:29 GMT -5
Hi 22122,
That's what I'm on too the Meben. I do believe it will help with the crawlies, I think that's what's helped my crawlies alot.
We're on a different protocol with the Meben, I take one in the morn and one at night, 100 mg each, and I'd been on those for 30 days straight, then the Albendazole for 30 days, and now back on the Meben, the Albendaloze for some reason didn't seem to do anything. And maybe too it was the "cycle" these things are in.
It really seems that every two weeks they go into a "hatching" no matter what drugs I've been on. I've really noticed it all along. But one thing I have to say is, the number of "new hatching" is now becoming less, because just before Sept 1, is when I've "clocked" them to hatch again, and I only got about 10 new itchies, instead of the "usual" new 50.
So I think something is "working" or I'm hopeful anyways.
But your doc having you take the Meben only 3 days, then off and back on, I wonder why? Well..I do know my pharmacist did call me when I got my first 60 pills filled, he told me he was hesistant to fill my script, because 3 days is typical for "pin worms" I think he said, then he asked me what I'm prescribed to take it for a month at 2 a day for... hahhaa sure wasn't going to go there with him.
So the only thing I told him was, you'd have to speak to my doctor, because it's not "normal" or typical to take them for a longer period of time. But ask your doctor maybe to call Ginger Savely or email her which I'll give you that if you need, only because I'm really worried about you with the coughing and these "things" need a good dosing I think to really turn things around.
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Post by hannah on Sept 3, 2006 11:51:48 GMT -5
Sometimes, I cannot swallow, cannot, and it takes awhile and much effort to finally make my throat muscles work. Isn't this a symtom of lyme or morgellons? anyone else with this? Last Christmas Eve I felt very ill. Thought I had a chest infection and lay awake for hours finding it very hard to breathe and coughing a lot. I could not take even the smallest drink - it was pretty frightening. Eventually I decided to use my husband's inhaler and that helped a lot with the breathing and I was also able to take a drink. I have had this swallowing problem one other time when I was feeling pretty ill and just had to drink very, very slowly and small amount.
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Post by belikewater on Sept 3, 2006 12:38:34 GMT -5
toni, In my research, I see that Albendazole doesn't work on the parasites if you are immuno-compromised. I got my Strongyloides ELISA test. I hope results come back soon. This is why I am focused on Ivermectin and Thiabendazol, work with immune compromise.
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Post by 22122 on Sept 3, 2006 17:39:40 GMT -5
tonie, Yes, I don't think I am not enough on the Vermox but my doctor is being conservative so as not to get a red flag. I doubt it will touch it at three days and he would have not ordered more had I not said what about the hatch? The three weeks to do another three days was arbitrary too. I don't plan to take it until I see my SF doctor who is a homeopath, PA and looks at my blood with whole blood analysis and tell him my story. I am hoping to move back first.
hannah, I don't think I would have been coughing up worms if I wasn't on an antiparasitic herbal formula consistently. My breathing tests one years ago were only at 50% capacity. The doctor was alarmed.
belikewater, I am clearly immunocompromised with chronic fatigue so long so I will just wait to see my other doctor. When I run out of money, there is the GG bridge, just kidding, although I do think of it. I am managing inspite of it. Lips are especially crawly and inside of lips but then the full moon is on the seventh. 22122
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