dreamer2u4u
New Member
I cant deal with all these worms coming through my skin I need info please
Posts: 22
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Post by dreamer2u4u on Jan 24, 2007 23:21:47 GMT -5
I just became a member and this is my first post.You can call me dreamer(small d please0AND I'M A 52 YR OLD FEMALE living in the greater L.A. area on the coast at Santa Monica beach.I have every symtom of Lyme and Morgellons Disease and then some.Some of the symptoms are quickly causing me to lose it big time.To get right to my problem........ I need a doctor i can go o in Los Angeles,doesn't matter exactly where,but,i would like to stay in the Westtside.I fully need to be diagnosed even tho theres no question in my or my boyfriends minds.He is symtom free so far,but i believe i got infected from his apt. or apt. building.For ow i take shower in bleach,or rather a bleach/water soluton and after al the white crap(i call it taking a milk bath0IS GONE AND THE BLUE RESIDUE AS WELL,I STAY RELATIVELY FREE FROM SYMTOMS FOR UP TO 5 DAYS.i KNOW BLEACH HAS GOT TO BE THE WORST THING FOR MY BODY,RIGHT NOW ITS THE ONLY THING I KNOW THAT WILL KILL THE F**KING SYMTOMS,AT LEAST TEMORARILY.If i had not done this ,its now been 3 times total since almost 2 mths ago when i first noticed the so-called "bite" marks.And indeed at that time i thought a spider was munching on me after we went to bed,but alas,the mark,sore,whatever wouldn't heal properly and go away as should all good spider bites.The day before xmas my girlfriend called us up and said she thinks she knows what i've got.Freak-out timeShes a very adept researcher but really all she typed in on her pc was "what disease makes a person feel like bugs are crawling inside and out of the skin?"BAMM!Morgellons came up and as we all had a phone conference sort of thing,we unanimously reached the conclusion that it was indeed Morgellons.After i began researching this disease every day now since then,more and more questions come up.And how come some of the more horrific symtoms are not mentioned at all?Anyway,i'm at a "MAC" Computer store at the moment and have run over the time limit. I beg you,any of you,to help m before i whack myself.Remember,i need an MD. To diagnose my symtoms and i totally need some kind of support group of which i am familiar as i have been clean&sober for approx 5 yrs now.This however is not a place to bring up Morgellons disease.Nobody would ever get closer than 10 feet from me from then on.Ya feel me here,guys?Any inf you think might help please don't hesitate,ok?I hope to come to know each and every one of you that has to go thru this nightmare.And i am alone,really.The boyfriends a contractor and busy 24-7 HELP,HELP,HELPaND THANKS IN ADVANCE, d
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Post by lurker on Jan 24, 2007 23:34:16 GMT -5
dreamer2u4u, you are amoung friends here, I hope you find a doctor that can help but that is not the norm, and you can do things to make you're life way better and not do harsh things like bleach, in the end that will futher weaken you, if you have the money (it really doesn't take that much try this)
Cats Claw and Graviola Capsules by Raintree (HerbsMD is cheap) MSM - (Sulfer, get at a vitamin store like Wild Oats or some such place) Talk Epsom salt baths
Cut way back on sugar, yeast, and carbo's like white flour based crap, by cinnamon sticks and clove and make tea, it's anti-fungal, you'll find anti-fungals help.
Also, by Nizoral shampoo, use it on your whole body, there's the new hope soap by MDCrafters that has helped me. Also, I rub DE (Diatromecious Earth - spelling) on my skin, it's 100% natrual, crushed shells, but works great, just don't breath it in or get it in your eyes, it is not a pesticde.
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Post by reliefseeker on Jan 25, 2007 0:03:56 GMT -5
hi lil "d", 15 years clean and sober here (Reliefseeker...whatever you do don't drink, it makes it worse I've been told...Lurker gave you some good suggestions...me and Ppy18 suggest ordering some Cumanda, grapefruitseed extract, use adhesive lint roller when your skin feels itchy or ticklish to keep from transferring infectious materials from one area to another esp your face. Tea tree oil, peppermint enyzme, (dilute both with water and olive oil) for itching and creepy crawler skin, I just started using Eco-Vie for itchy skin....need good antibiotics on board.....welcome...hang in there...
Reliefseeker & Ppy18
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Post by valerie on Jan 25, 2007 0:48:49 GMT -5
I have had this for 6 months and it is a nightmare to say the least--olive leaf extract in megadoses helps itchiness...and I use kleen-free enzyme spray.....take lots of salt baths and increase salt in your diet...Im still learning and Im pretty miserable a lot of the time....if they are in your eyes--rinse your eyes with baby shampoo....hang in there,.it will get better,....
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Post by cyn on Jan 25, 2007 1:05:15 GMT -5
WELCOME dREAMER, ALL THE ABOVE AND YOU NEED TO START TAKING SUPPLEMENTS FOR YOUR IMMUNE SYSTEM.
kEEP READING THIS BOARD, WE DO SPEAK OF THE BAD TIMES AND WHAT WE DID TO GET THROUGH THEM.
THERE IS A WEALTH OF INFORMATION, IF YOU TAKE THE TIME TO GO BACK A FEW MONTHS YOU WILL HAVE MOST OF YOUR ANSWERS.
SORRY YOUR HERE BUT YOU ARE NOT ALONE OBVIOUSLY. THIS IS YOUR SUPPORT GROUP.
YOU DO HAVE A MATE, MANY DON'T HAVE "EVEN ONE PERSON" TO DISCUSS THIS WITH.
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Post by Orion*** on Jan 25, 2007 3:18:30 GMT -5
It would be interesting to know how many people in the LA area have this condition... Excellent advise in the above posts--from the experts so to speak. Bleach is a definate NO NO. your toxic already no need to add insult to ingery. I strongly believe in the salt baths... do you have it on your head or in your ears--that is where it first showed up on me. As for doctors it is a roll of the dice--but I would not say the word morgellons or parasites to any that I went to and only as a last resort...If you can get one of those cheap hand held microscopes from RadioShack---and a 10x mirror...You might notice ugly black hairs here and there that do not belong to your make up-- with golf club hairs... Go to the picture section of this board and lok at all the picture--it will give you an idea as to what to look for--and help bunches with you or your dr. My pics (Orion) were put on a DVD and handed to my Dr. Eliminated a lot of BS right there--She had to admit thart she was up a stump as she had never seen any thing like it before. Stay on the board and talk to us.. Good luck- ***0***
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Post by justhanginin on Jan 25, 2007 9:03:39 GMT -5
dreamer, Bleach is a definite no-no. I use 20 Mule Team Borax and Nizoral shampoo to bathe in . Showers are too quick a bath allows some of the protective stuff to stay on you. Borax to wash clothing with and to soak clothing with before washing. alll of the above suggestions are also good. I see a homeopathic practicioner and he gives me anti-fungals and stuff for energy and to combat the depression that comes with this also. If you can find one it will be worth doing. Check my posts for more info if you like. We are each others support group . If you don't own a computer get one. Keeps you sane and connected to the human race.
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Post by tonie on Jan 25, 2007 9:59:26 GMT -5
I agree too that Lurkers suggestions are excellent. There's not any solution to rid this, but that will help you tolerate it.
Something on the diamataceous earth, (make sure it says "food grade diamataceous earth) I've sprinkled it too in my carpet very lighty and I keep it at my entry and exit doors across the door way, and yes, don't breathe it in, wear a scarf across your nose and mouth and tissue too, to catch any particles if you sprinkle it into the carpet.
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Post by godog on Jan 25, 2007 18:01:02 GMT -5
Welcome Dreamer, you have come to the right place. It sucks you have this disease, we all know exactly how you feel. But coming here will help you alot.
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Post by reasonable on Jan 26, 2007 1:18:37 GMT -5
Dreamer, are you aware that the CDC is supposed to be setting up the shop in LA to study this? I don't know where exactly it is/will be, but it be a good place to be diagnosed.
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Post by questionhair on Jan 26, 2007 8:32:09 GMT -5
Didn't the CDC state that the people for the study would be referred to them by Derms?
Since Derms don't believe in Morgellons, but they do believe in DOP, what will be the criteria used to refer someone to the study?
They could send people who don't have this.
Since many Derms don't pull out magnifying glasses, or use their microscopes, or examine their patients . . . anyone could be sent to the study.
QH
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Post by bannanny on Jan 26, 2007 23:06:46 GMT -5
You found us dreamer, and that right there will help you thru. You can say anything about what happens to you becuz of this disease, no matter how sci-fi you think it will sound. We've all been there and nothing can shock us or make us think you're a loony tune!
You can also choose to pm (private message) anyone on the board (if you find someone you feel a connection to and you'd rather talk privately about something) then you have that option too. And alot of us talk to one another over the phone....... Any kind of support you need is here! It's become my place for peace and I know it'll become yours too. These guys are family to me now....... they've been my life line, time after time! Just hang in there with us and know that you have all the support you'll want and need from this point on.
I live in So Cal too, so I'll leave you my phone# in a pm. (Look at the top of the page for "messages" and click there to get your pms) I know I'm repeating myself now, but I don't want you to forget that there's always gonna be somebody there for you now who will understand and who knows exactly what it is you're talkin about!
P.S. Everybody's given you some great remedies to try....... you can also click on "Supplements" to find out more.
Hugs ~~ bannanny
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Teri
New Member
Posts: 21
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Post by Teri on Jan 27, 2007 1:53:42 GMT -5
Hi I am not on the Westside but My husband lives their and I vist about 1 every week . It was that or divrous after 25 years and 7 children.Its been that way for 1 year now I have had this since 2001. I live off of topanga and Mulhuland Drive. I have no one that really does not think I am nuts they dont say so anymore but I have learned not to say much .I am tierd of trying to tell any one in my family what it is like. My oldest son called me last week and told me that if I just put on some sweats and went for a walk everyday I would get better .What a joke.Sorry I am not giving you much support. As for the CDC i heard they were going to do a study at the VA Hospital. That kind of scares me because they just did that study on Gulf War Syndrom and came up with it does not exxsist.I have been going to my Internist.He has been great but I dont think he believes me .I go to him with the problems that come from the Morgellions.I will get together the list of doctors that I have heard of and not tried yet They have been a few I have heard of .I am so tierd of being disappointed that I am taking a break.But I am doing really bad so I am sure I will see someone new soon.I have been thinking of calling Dr.Hildegard Staninger PD her office is right on Wilshire. If you want to talk you can call me .
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Post by godog on Jan 27, 2007 9:51:11 GMT -5
Hey Teri, your son's advice reminds me of my best friend who tells me I just need to get out more. I want to scream and smack their heads. I try to understand that they don't understand but this is the woman who I have been their just to listen to her troubles countless times. Her daughter has Crohn's and had part of her bowel removed. So what if I said to her, Oh, your daughter just needs to get out of the house more. She'd think I was being patonizing and shallow and plumb stupid. I am kind of letting her go as a friend. I don't need one-sided friendships at this point. But, maybe I am just feeling sorry for myself. Why not, no one else will, except you all.
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dreamer2u4u
New Member
I cant deal with all these worms coming through my skin I need info please
Posts: 22
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Post by dreamer2u4u on Jan 27, 2007 17:07:35 GMT -5
Thank you all,I just now got back online at this $3.00 ph internet store in Venice beach.My boyfriend asked me just last night what brand of Laptop I would like cuz' he intends to buy me one soon.I'm so relieved cuz' I go to the Venice Beach internet place and spend way too much every time ,but it's extremely PRIVATE.Livrary?FORGEDDABOUTTIT!You can only have one hr per day and i'm one of those that need as many as possible.Besides,mylocal library already "made" me because i go in with 3-4 library cards and they finally noticed.I do intend to call those of you that left phone #'s but i'm not sure when i'll call because i havn't been able to stop crying since before XMAS when i first found out what i have.Not only am I extremely depressed(and that's an understatement)but i'm mentally and physically worn out.This thing of ours is very demanding.I do believe my tweezers have become an extra appendage on me.I can't seem to put the dang things down!It reminds me of my little bro when he was smokin' crack.He would go to put the pipe down but it never did make it out of his hands.Not funny.There are so many different things goin' on in ams on my body that I can't keep up .What's the story on the eymptoms that every Morgellons site does not mention?I do believe you must know what i'm talking about.I'm scared to even talk about some of it with you guys cuz' it's so f**king horrible that I guess maybe i'm afraid you'll all tell me it's a very very BAD sign.I already think i'm going to die if not from Morgellons then by my own hand. d
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Post by godog on Jan 27, 2007 21:39:07 GMT -5
Dreamer, I don't know what to say. This disease is very horrible. But you can talk about your crazy symptoms here. You probably need to talk about it. It's too horrible to keep to yourself. This is too much for you by yourself. Prayer helps give you strength. This is a terrible road to have to walk. Totally sucks.
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Post by lurker on Jan 27, 2007 22:15:32 GMT -5
dreamer2u4u, go ahead a talk about it, I can tell when I read your posts that you are screamng inside, flight or frieght, you won't get kicked out of here, beleive me, I agree with godog, I was where you are once, it will get better, it will. Tell us what you are experiencing, above all, start adopting some of our remedies, go for anti-fungals to start. I think you need to let this out, and, we are but a small percentage, the large bulk of the population that is infected has no idea what is going on, you're ahead of the curve (believe it or not). It took me 6 months to get over the freakability of it all, you'll find the strength, stick around, we're here.
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Teri
New Member
Posts: 21
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Post by Teri on Jan 28, 2007 2:43:04 GMT -5
I am sorry but you just made me laugh for thew first time in weeks. I have an ex friend who would tell everyone that every where I went I had to buy tweezer.I was so mad but I look back and I did . At the beginning of this I thought I was going to die about every 6 months it was a cycle.That no one would believe.I think after years of so many disappointments you get used to it . I went to the doctor Steven J. Harris, MD that does the Lyme testing He travels and goes to Malibu about every 4 months I will give you his number.He put me on Doxy for 6 months and an anti fungal Oh and foot patch's .but he still did not no how to cure I think doing that saved me. after that I still had to see my GP and I think he is sick of me.The Lyme doc is the one that told me to forget trying to convince my family and start talking to people here .To tell you the truth I haven't said much till lately. But I am so depressed lately its all I can do to keep sane. I am having my last 4 teeth pulled on Monday and I look like I am 90 .I think stress has everything to do with this thing. It takes over when you are in some kind of trauma. As time goes on the itching and sores slow down but the pain in every joint and mussel is not bearable. I was on pain pills up until 2 weeks before Christmas and I am telling you this is no way to live all the symptoms are coming back twice as bad. My family thinks I will get better if I am off them ,well I dint Think soooo. Call me when you stop crying and we can talk you are lucky to have a mate that believes in you. I think having no one that believes me is what is really killing me. I would go to the devil for any of them if I felt I could make them better.But they cant even look at a cut or sore. I am home most of the time Its good to call around after 10 am then everyone is usually gone, By the way I think it is strange that people don't talk about the crazy stuff but I think we are so used to getting that your crazy look that we just don't talk about it.I also think all the joint pain stomach problems and mentai things we have are the things they don't stress its not just a skin thing.I no this is a bad time but you will have your ups and downs. I hope for you talking to some of us will help. Teri
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Post by godog on Jan 28, 2007 9:37:26 GMT -5
Yes, I am so sick and miserable. My joints are killing me and it's taking so much time to remove the masses of eggs and worms from my body, you guys, it's unbelievable what is c oming out of me!!!! Evidently, I have had these skin eggs and worms for 12 years and just now getting them to come out!!!! I am full of this crap!! I was looking at my medical records where ER says my stomach is distended. Which is strange wording as when you are fat they say obese. Distended stomach is classic sign of parasites in all creatures including humans. Gee, I wish they would've mentioned that to me 5 years ago. So now, I'm getting like cupfuls of worms and eggs out of my butt lesions Every Day and my stomach is getting flatter. The way we live is rediculous and somebody should call the Humane Society, maybe they will help us.. Haha Bad Joke.
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dreamer2u4u
New Member
I cant deal with all these worms coming through my skin I need info please
Posts: 22
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Post by dreamer2u4u on Mar 23, 2014 0:45:41 GMT -5
Hi, I'll make this short.I've had M.Diseasefor 10 yrs and it never gets better.If I take antibiotics it will however go into what I call "Remission",temporarily, for just enough time for me to stop agonizing and get some relaxation.My symptoms range from the bumps& lesions to everything I wear.or use to dry off with (towels) turning white. All over,whatever my body secrets after being wet BLEACHES. Out everything I touch.I NEED HELP!!
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