Things are coming back to me about the beginning of my symptoms, from out of no where, just having serious recall lately.
I do REMEMBER at the very onset of this nighmare I had 2 severely itchy spots on my scalp! And one behind my left ear.
I used Neosporin (not the pain free one) JUST the plain Neosporin on the spots for 3-4 days, and have NEVER had that return.
After that when I began getting all the lesions all over my body and face, I think that I thought Neosporin wouldn't be "powerful" enough and then beginning the doctor visits and all...totally got me going other directions and in using all kinds of different things.
Not that Neo will rid this, but I believe it's safe enough for anyone to try on their heads....ONLY a thin spread of it, more IS NOT better because it's transdermal...so please don't try and blast it away with one application.
But...try it on your scalp lesions, sure can't hurt. And do this for at least 3 days, 2X a day apply it "thinly" without a cover, no bandaids etc.
This is "only" a suggestion, and because it has come back to my recollection, you may want to try it too since it WORKED for mine and I've NEVER SiNCE had a lesion on my scalp.
You're right Tonie. I use Neo on mine and they do heal alot faster using this. Neo is wonderful stuff. Also you are right again about the more is not better. BUT I've not tried it in my head. I don't have lesions but I have places that seems like there is some sort of build-up in several spots. When I wash my hair it feels like I can't get my scalp wet enough. I've had tea tree oil on them for about 2 hours today. I think I'll apply some neo too. Can't hurt. Thanks for the info. Oh, I'm sorry I never did thank you for the answer to my pm. I sure do appreciate it. and now I remember reading about that. uhm..uhm..uhm.
Tonie, my daughters friend had one of the scalp sores and it was cancer. the dr.removed it, the size of a nickel, i seen it. do u think some of us could in up with scalp cancer?i don't think we should scratch them. and we should keep them clean. and it is a real good ideal to use the neo.
yesterday I started to itching again my hair so I hadn't done this in a long time. I wet my hair a little and got some shampoo pored some lysol with it and left on my hair for a few minutes. OMG I thought I was going to lose all my hair! I heard a lot of popping noise and some goffey stuff droping down. I had a white t-shirt and it got cover with some pink stuff and lite blue fibers. but the pink stuff looked like running color my hair is dark brown with some grey. the hair was moving I could feel it, smelled like burn too. but no after I took it off it looked very good and healthy.
please give the shed enders comb a try, it's for dogs but it's a wonderful tool for removing fibers from the hair and oh my goodness you'd never believe just how many are in there till you try it, has been a life savor for me. Love ya's SueinMD
Oh shoot wanted to talk about the neosporin and forgot that fast, gonna change my middle name to Brainfogged It's wonderful stuff. The nurses were using silver on Joshua's lesions and I hated what it did to them. I sometimes used the neosporin on him and I felt it was much better than the silver.
cyn, Could you please elaborate on the information you present in your signature line? What are the 3 bacterial pathogens that show up? Also could you explain the 'proinflamatory markers'? I agree with your other material. The slow capillary refill is noted in "Mold Warriors" book as a sign of bio-toxins.
I know what you mean about the "buildup" on the scalp. After a "treatment" I'd had, to remove some lines on my upper face (before I knew I had Morgs) I got this mega crusty buildup, almost like layers of light yellowish crud around the sides of my hairline...like a crust that was glued on..... "cradle cap" is what the doc said it was, but it was probably the beginning of this too, I just didn't know any better.
He told me to use a low strength salicylic, "like T-Sal" shampoo and gently take a tooth brush and lightly scrub that off after I was in a warm shower under the water to help loosen it, which that did remove it.
Then afterwards to use a "low strength" like 3% salicylic cream/lotion to change the structure of those cells, as they were "dividing" too fast, which causes a buildup of dead cells on the surface, and that would normalize them, and it all worked.
(That too is why I love that copper peptide serum from Platinum Skin Care), as they sell two different ones, but one of them has 3% salicylic in it, and that also stimulates the follicles and keeps them functioning normally without anything in our system clogging them up, because hair follicles will literally get choked off, then the hair falls out due to "congestion of the follicle", and can't be replaced as the hair follicle then dies. No reversing that situation. So "preventative measure" is critical.
There are many brands, I only like that one because it can be used completely safely on the skin or scalp (as long as you're not allergic to aspirin), and I've used it for so long with excellent results always.
Please for your "hairs" sake look into those things, there's lots of reading about hair follicles, how hearty they are, yet fragile if they're "plugged" and hair loss is what happens when a hair follicle remains 'congested/plugged'.
I wonder if you have the same thing I had gotten, because when you said you can't seem to get your scalp wet, sure sounds familar to me.
The neosporin will not "debride" that crust, it will only add to it, the base ingredients added to the neosporin will slowly adhere to that. So maybe "getting it gone" first, then using the neo would help you greatly.
I only prefer "salicylics" over all the rest because of any ingredients because "selinium sulfide" in shampoos can in itself over time cause hair loss too which is in many "dandruff shampoos" and salicylics can be used without irreversible damage.
I never thought about cradle cap but that is exactly what this is like. I remember Kappy (my daughter) had cradle cap when she was about 5 and my mom took her outside, sit here on a stool, put baby oil on the places and then took a fine tooth comb and literally comed her hair until she got it all out. The only difference here is that I don't remember the gluey stuff with her. It was just more crusty stuff. It still was hard to remove but not nearly like this.
Hey I thought i had told you but I did get the copper peptitude serum from Platnium skin care. BUT I'v not used it in my hair. So I should just put it all over my scalp? I sure hate to waste it that way, but I will if it will get rid of this stuff.
My eyebrows are extremely bad too. I shaved them quite a while ago and boy did I get some comments from friends and family. Most of them just rolled their eyes. (like they were thinking 'and you really think this is going to help your DOP')
lydski started a great thread (above) the whole informative thread is below
If you have scalp issues - it's a good one to study:
From a post on Lymebusters - here's my favorite part, an excerpt from the whole thread, below:
" . . . Subject: Re: Entymology/Insects specialist From: lalla-ga on 04 Oct 2004 11:57 PDT I think this problem is often compounded by a fungal scalp infection, which is commonly caught from cats, or from fomites from their fur, deposited on soft furnishings etc. As I've said, dermatophytes often give off a fruity odour, (particularly when dying), and this is attractive to the keen sense of smell possessed by fruit flies. Furthermore, some dermatophytes, (invisible to the naked eye), growing rapidly and unchecked, branch into hyphae, then myceliae, both of which are visible, looking like whiteish threads. Minute pores are propagated and dropped, increasing the infection. The resourceful hyphae can change shape, e.g. appear 'fluffy', can 'sprout' hooks that burrow painfully into the scalp, and can inject allergens into the sufferer. Painful furuncles, or furunculosis, can occur in the scalp, sometimes resulting in secondary infection, and increasing the attractiveness to egg-laying flies, (or other biting insects with the eggs already laid on them). Larvae may opportunistically burrow into the ready made furuncles, and scalp myiasis has begun. . ."
Oh yes! Here's how you use that on your "brows and scalp".
This will totally get your brows and skin of your scalp back to normal "where the "crud" is involved.
Use "equal" parts of "good water" to the copper peptide serum. Like bottled water.
So if you put into an "eye dropper bottle for instance-or anything with a dropper" by the way that works really well for this too....take and put 20 drops of the "blue copper peptide serum" and 20 drops of water to that.
Shake that up, and viola! You're good to go...just drip those drops onto your scalp and tap with your fingers to get it good on your scalp and not waste it getting it into the "hair"...just want it on the scalp. Same with your brows...just need two drops there. And tap it on and leave it as long as you can. Won't hurt a thing, your follicles and skin will love it.
If it tingles, that's totally normal. This can be used 24/7. But you won't need it longer, cause it will all clear up.
Now, it's great for skin rejuvenation...but you can do that after you get the "crud buildup gone".
Oh and yes, oil "mineral or olive" for "cradle cap" in children is generally used "ONLY" cause it's gentler for a child, as salicylics are too strong and irritating for kids under a year old on their tender skin. But us, heck we can take the dynamite, hahhaa
Today I've been trying some vicks vapor rub on my hair. I didn't think anyone could have so many gel like thingies on one's head. Also put some on my face and my lashes some much came out of them even the brown spot I thought was a mold part of it came off.
Vika: Please contact me, I'm desperate, I lyme and filariasis, I am a young girl, I was only 26 years old ... and I'm already dying from diseases .... .... Help me, help advice: vikiart87 @ gmail.com
Feb 21, 2014 5:29:21 GMT -5
sunny: ahh.. yes.. the ol' 'it's too complicated' tactic.. I'm just bothered by the fact that U were trying 2 use my curiousity 2 get me 2 register with the site.. Gnostic Gospel of Thomas 39 touches on the 'keepers of knowledge' & hiding the keys from others
Feb 21, 2014 9:24:38 GMT -5
lostintime: No not a tactic. It's just not worth me pointing out a ton of info for six people that can't find there way out of a paper bag with both hands and a flashlight. Bottom line is Cindy blew a gasket and wanted out. Franky (moderater) was busted
Feb 21, 2014 17:26:11 GMT -5
lostintime: busted for munipulating the board. Look "the cure website" was all about spewing prapaganda for Cindy's foundation but it just proved to be more frustrating then it was worth to her. Truth hurts. It was only for lyme groupies anyway.
Feb 21, 2014 17:31:20 GMT -5
lostintime: This is not complicated for those who look. Please read the CDC and Eva Sapi in the lyme section and then tell me why it is important then will talk more. I have years of collecting files and would love to teach you some things young grasshopper.
Feb 21, 2014 17:51:02 GMT -5
threader: I feel that the Cure website had some good debates and rare information. I agree with BO that removing the board is a slap in the face of free speech. If the site will close then the archives should remain public.
Feb 23, 2014 11:47:51 GMT -5
threader: Cindey Casey responded to this allegation by email to me, and said that the CEHF had nothing to do with the Cure website shutting down. Where is the basis or proof in the allegation that the CEHF is responsible. Why hasn't Franky come forward to explain?
Feb 23, 2014 11:50:37 GMT -5
threader: And the explanation for the Morgellons Support Network site shutting down is that it was bought out by advertisers Ceablue? Seriously? Somebody wants the site's name for an advertising search term but without any of the site's content? Who's domain owner?
Feb 23, 2014 12:08:00 GMT -5
lostintime: Where are the allegation that the CEHF is responsible? I am just trying to point out what happened over the last 72 hrs on the board.
Feb 23, 2014 20:48:39 GMT -5
lostintime: There were multiple problems going on with the Cure website.. I thought it was better as MDR and went down hill rapidly after it’s change. These are private websites threader and can be shut down anytime.
Feb 23, 2014 20:55:24 GMT -5
lostintime: threader, you were on the cure shoutbox during some of the debates leading up to the shutting down of the board. Don't you remember any of that?
Feb 23, 2014 22:21:15 GMT -5
threader: No Lostinline, I was a reg there but hadn't logged in for nearly a week right before it shut down. I knew it got heated with discussions of Lyme and STDs, but TBH I'm a bit in the dark regarding the last days.
Feb 24, 2014 10:15:55 GMT -5
csidegalNH: I all, I was on the days before it shut down. I backed Fibroid Mary that threads had been deleted. Franky said threads get deleted for misbehavior, but was oblivious to the deletion. He said he was fed up with the pettiness.
Feb 24, 2014 11:28:38 GMT -5
csidegalNH: There was talk on shout box saying it would be sad if forum got shut down next thing I know it was gone. I kind of thought I was banned too. Morg Support site says domain expired Jan 28 2014 and seems it could get renewed by owner
Feb 24, 2014 11:31:49 GMT -5
absurdlyhaywired: HI-The Cure site is back up-I saw it yesterday. Glad to see you guys "out and about". I don't feel good-I'll talk with you later.
Feb 24, 2014 17:10:31 GMT -5
fibroid mary: Hi cside, I never got the chance to thank you for 'backing' me on the cure site. I only wanted folks to be aware of the censoring, propaganda & thought manipulation of ill people that was taking place on the site. Hope you are well..
Mar 2, 2014 11:29:34 GMT -5
guest55: Is The Cure site back up?
Mar 5, 2014 15:17:40 GMT -5
Morgel Kombat: http://www.flickr.com/photos/110756413@N07/ my photos and experiments
Mar 8, 2014 15:54:08 GMT -5
absurdlyhaywired: Morgel Kombat- Hello and thanks for the link to your photos and experiments.
Mar 10, 2014 17:39:12 GMT -5
Morgel Kombat: You're very welcome! Been lurking and waiting for account activation for awhile now. I have many many more photos I hope to one day finish sorting and uploading!
Mar 11, 2014 11:05:43 GMT -5