Is anyone else experiencing weird breathing problems? Certain movements bring on a breathing crisis. If I get out of a car and start walking too fast I get hit with this thing, feel like I am going to pass out (and very nearly have passed out, averted only by laying down on the ground), suddenly I am gasping for breath, it is so bad that I can not even speak when this is happening as I feel like every speck of energy I can muster must be focused on trying to get my breath back. Sometimes it is set off by getting up out of the bath tub.
I know I need to see the doctor about this. Because of the Lyme I have developed a heart block, maybe this is causing it. Or maybe my lungs are infected. I read that Chlamydia Pneumonia had been found in some Lyme/Morgellons sufferers.
Has anyone been diagnosed with Chlamydia Pneumonia?
To date the approach towards Morgellons has been much like Lyme. But there's a docs working on this who thinks that C. pneumonia is the underlying infectious agent causing many of our immuno-deficiencies.
The impaired immunity then allows a variety of infectious agents to cause problems. It also enables the reactivation of a number of other viral agents, especially the herpes groups.
It seems reactivation of herpes viruses may be a big player in causing some symptoms especially fatigue and pain. And so the logic is that the pain in many patients with chronic Lyme, Morgellons, Fibromyalgia, etc., is that the Varicella/Zoster virus is the culprit. Instead of causing only a single dermatome to become inflamed, there is generalized inflammation up and down the spinal column causing more generalized neuropathic pain.
So, the thought is, treat C. pneumonia, and a bunch of these other symptoms ought to go away.
The treatment is generally antibiotics and antifungals.
You probably know about "Bubba's" site www.morgellonstreatmentsteps.com The link to the following page from this site discusses the potential co-factering effects in Morgellons patients of 1: Chlamydia Pneunonia in patients with 2; Lyme vectored Borreliosis (Borrelia Burgdorferi) and 3; Clinical Babesiosis. This page also covered the authors (a morgellons patient) diagnostic and treatment history re Morgellons. It goes on the discuss the details of the treatment (from a LLMD) that got her well (along with the diagnostic tests he used to diagnose her various conditions and then to measure the effect of the treatment). www.morgellonstreatmentsteps.com/Morgellons_Medical_informat.html
I think there are many good, clear, practical and potentially effective treatment recommendations here. Kudos Bubba!
I had a chlamydia problem along with herpes (mouth type) high Epstein Barr , toxioplasmosis after my bulls eye rash. I always thought my ex gave me chlamydia . I have recently read on the net chlamydia is also vectored in by insects. Just do a wiki search, chlamydia. I became careful who I told this to after my nephew thought I had said ,I got high at Epstein Barr and caught herpes. Had to laugh, lil sissy
I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs.
Has anyone with these breathing problems been significantly helped by anything? (medications, herbal remedies, etc.)
I used to have a lot of lung/breathing/coughing problems until I started taking Olive Leaf Extract. It can be expensive, but I found a really good brand, relatively inexpensive, at Swanson's vitamins. It costs about $12 per bottle, 120 capsules (a really good deal).
The brand is Swansons Superior Herbs, Olive Leaf Extract, standardized to 15% oleuropein, 500 mg capsules. (no, I do not sell it nor am I affiliated with the company). The dosage I started at was 5 capsules, three times a day for two weeks. Then I went on a maintanace dose of two caps, two times a day. This helps keep the lung thing under control.
You may need to experiment with maintenance dosage. But when starting out you want to hit it hard with 15 caps a day total. I did not have any side effects. Olive leaf is basically a food, just concentrated. It really helps in the standardized extract. Do a google search to find out the benefits. I keep OLE in my house at all times. I will not be without it, ever!!! Let me know if you have any questions.
Is there an alternative to taking Doxy? Perhaps this is exasberating your other conditions if you are sensitive to it.
SIDE EFFECTS: This medication may cause stomach upset, diarrhea, nausea, headache or vomiting. If these symptoms persist or worsen, notify your doctor. Very unlikely but report: stomach pain, yellowing of the eyes or skin, vision changes, mental changes. Doxycycline increases sensitivity to sunlight. In the unlikely event you have an allergic reaction to this drug, seek immediate medical attention. Symptoms of an allergic reaction include: rash, itching, swelling, dizziness, trouble breathing. If you notice other effects not listed above, contact your doctor or pharmacist.
"I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs."
After further thought, I should not have brought up the medicine. It is unlikely that medicine you have been on would cause these problems, when it is much more likely to be a parasite. I have had an increase in shortness of breath just recently and have not been taking Doxy, or Albendazole for atleast two weeks. One thing we have in common is the blood pressure medicine. Another commonality is I know I have a parasitic infection in my lungs and head. Sometimes feel long strands in throat that cause a choking reaction. So you do not have a productive cough? Mine is definetly tinted lime green.
When I experience the most difficulty it feels like, not a problem with lungs, but a lack of oxygen to the brain. If that makes any sense. Just this morning while gargling with peroxide, all of a sudden I could not breath, had to spit out the rinse and gasp for breath. Isn't it equally possible that parasites are blocking air channels in the head?
Anyway, you are right to speak with your doctor about this, and I would take the report mentioned above with you to see what your doc has to say. If I had the funds and had a doc, CPN is the path I would follow more than any other I have read about. It does look quite expensive though.
Take care Glenn
It would go as a silent plague into the DNA of every living creature on this planet to reveal its true face in the generations to come. Dr. H. Staninger
Post by abbienormal on Aug 15, 2007 18:15:30 GMT -5
The Mister and I are now, almost on a daily basis, loosing our breath (as if a mechanism of some kind clicks and shuts off the air passage). Sometimes it only lasts a couple of seconds and sometimes it is excruciatingly long and I fight to get air.
Also more and more choking on food.
We are going to start (god willing) the C. Pneumoniae protcol next week. We are going through a battery of tests, one of which is for the C. Pneumoniae and hope to attack the lyme and morgellons with the CPn protocol.
I was surprised to hear that some are experiencing the breathing problems just out of the blue, or triggered by something like gargling peroxide.
My breathing problem is almost always set off by doing something physical. The most common cause is getting out of a seated position in a car and starting to walk. A couple of times it hit me so hard that I had to lay down on the ground in public to keep from passing out. Sometimes getting out of the bath tub too fast sets it off.
I am not sure exactly what is happening physically with the shortness of breath...I'm wondering if my heart temporarily stops beating or if my lungs are having a spasm.
It is scary because when it happens it takes every bit of energy and concentration I have to just focus on trying to get my breath back. Occasionally when it has happened in the presence of others they will ask me if I am ok over and over not realizing that I am completely unable to speak while I am gasping for air.
I have a left heart block. Maybe this is connected?
Post by notime2work on Aug 16, 2007 19:57:21 GMT -5
Babesia can also cause breathing problems and air hunger. It hits me 2-3 times a year, and sometimes lasts for a month or two. I have done abx and alternative treatments, and can't seem to get rid of it.
I am am being teated for high blood pressure. I do have insulin resistance and hypoglycemia (caused by this disease most liikely). I have never noticed if the attacks were related to bouts of low blood sugar.
My primary suspicion is that an organism (chylamedia or a parasite) has invaded my lungs and that may be what is causing the problem.
Another possibility is a reaction or sensitivity that has developed because of all the irritating chemtrail particles in the air.
The first time I noticed this breathing problem was approximately 10 years ago right when the chemtrail spraying started to be noticed.
I have another type of breathing problem that happens periodically, especially when I am working in my downstairs office. I get a choking cough, feel like I am breathing some kind of toxic fumes. This choking cough lasts from 30 seconds or so up to five or ten minutes and happens most frequently in the after noon and evening.
Chemtrails are also associated with EDB. I wonder if this toxic gas isn't settling out of the chemtrails, seeking out the lowest level. Since my office is in my garage perhaps this is an explanation for the coughing fits.
Post by specuelatin on Aug 19, 2007 7:11:20 GMT -5
interesting information, josej
Lyrica is a medication now FDA approved for fibromyalgia.
It helps relieve nerve pain of various sorts.
In the first week, it helped allow my ribcage to expand where it was restricted for many years. Now, I don't struggle as much for breath as I'm not fighting that restriction. It may not solve your breathing problems, but it could help some of you, especially those experiencing nerve pain or fibro symptoms... ps some researchers believe lyme and fibromyalgia to be strongly correlated..
I am certain the macrophages are deep in the nervous system. I am sure of this because of the responses i feel along the nerve pathways each time I herx on the marshallprotocol.com and the bacteria is dying hooray.
The first several months I had herxing occur in the lining of the lungs, coughing and the feeling of ice crystals on the lining. This is typical response of clearing of the lining in the lung tissue on the MP during initial herxing.
I'm now in the modified phase 2 and preparing to enter the actual phase 2 anytime now. I have felt much nerve tingling in modified phase 2 and clearing on the brain fog while in the modified phase 2... typical of modified phase 2 results.
phase 2 antibacterial/antibiotic scripts focus on getting the meds deeper into the tissues where the beasts reside... so though the herxing will be tough, I am looking forward to it! I crave the herx now. Every 48 hours. They ask you take a day off now and then, go a full 72 hours between the two doses, this to estimate better your herx reactions.
When I do the craving really sets in, I can't wait to take the low dose antibiotic and set the wheels in motion once again. First comes a burst as the level begins to rise, then a lull, then the major herx as the level begins to fall, then a deep fatigue, and the relief of sleep. While all this occurs, I know the garbage is dying.
I began the LYRICA several weeks ago after seeing a pain management doctor for back/hip/joint problems and she informed me that she has been using lyrica for fibromyalgia for quite sometime and recently was FDA approved, it will also help the brain fog issues and help you think more clearly. duh. I am now at 225 mg per day, the maximum is 450 mg and they titrate you up a little at a time. At months end, I go up to 300 mg.
he hee he
Got to Go as I still can't handle too much light from the computer screen etc/ as always, Yours truly, spec
"The mind is not a vessel to be filled but a fire to be kindled." -Plutarch
If Lyrica works for some that is wonderful. However I have read numerous negative reports about serious side effects.
Considering the FDA"s inclination to release new drugs without proper trials to determine if the new drug is truly safe (Vioxx ended up killing over 100,000 people before it was taken off the market, there have been serious problems with a new diabetis drug, statin drugs are causing problems...etc etc) I have decided the wisest course is not to take any new medications until they have been on the market for at least a few years without killing people.
Still, that is no guarantee of safety. Flouride has been on the market, added to our water, to tooth paste, mouth wash and some medications for decades in spite of there being no reliable research that shows flouride actually prevents cavities. However, there is plenty of research showing that in communities with floruidated water children have lower IQ's. There are also elevated rates of heart disease, neurology problems, bone disease and cancer in communities with flouridated water. Small amounts of Flouride taken over time cause permanent changes in the brain and personality.
Our prescription happy medical community writes way too many prescriptions for drugs that may or may not be safe to just treat symptoms without treating the underlying problem. Properly taken prescription medications are the number four cause of death in this country killing more people annually than aids, suicides and homicides combined.
I have personal experience with this as the lives of BOTH my parents were cut short because of reactions to prescription medications.
My father died from the side effects of taking Coumadine ( a blood thinner). My mother became psychotic from the side effects of taking medication for Parkinson's disease (this side effect was listed in the medications literature as a possible complication). The stressful visions and delusions she was having sent her blood pressure through the roof, a vein popped causing a massive and fatal brain hemmorage.
Vika: Please contact me, I'm desperate, I lyme and filariasis, I am a young girl, I was only 26 years old ... and I'm already dying from diseases .... .... Help me, help advice: vikiart87 @ gmail.com
Feb 21, 2014 5:29:21 GMT -5
sunny: ahh.. yes.. the ol' 'it's too complicated' tactic.. I'm just bothered by the fact that U were trying 2 use my curiousity 2 get me 2 register with the site.. Gnostic Gospel of Thomas 39 touches on the 'keepers of knowledge' & hiding the keys from others
Feb 21, 2014 9:24:38 GMT -5
lostintime: No not a tactic. It's just not worth me pointing out a ton of info for six people that can't find there way out of a paper bag with both hands and a flashlight. Bottom line is Cindy blew a gasket and wanted out. Franky (moderater) was busted
Feb 21, 2014 17:26:11 GMT -5
lostintime: busted for munipulating the board. Look "the cure website" was all about spewing prapaganda for Cindy's foundation but it just proved to be more frustrating then it was worth to her. Truth hurts. It was only for lyme groupies anyway.
Feb 21, 2014 17:31:20 GMT -5
lostintime: This is not complicated for those who look. Please read the CDC and Eva Sapi in the lyme section and then tell me why it is important then will talk more. I have years of collecting files and would love to teach you some things young grasshopper.
Feb 21, 2014 17:51:02 GMT -5
threader: I feel that the Cure website had some good debates and rare information. I agree with BO that removing the board is a slap in the face of free speech. If the site will close then the archives should remain public.
Feb 23, 2014 11:47:51 GMT -5
threader: Cindey Casey responded to this allegation by email to me, and said that the CEHF had nothing to do with the Cure website shutting down. Where is the basis or proof in the allegation that the CEHF is responsible. Why hasn't Franky come forward to explain?
Feb 23, 2014 11:50:37 GMT -5
threader: And the explanation for the Morgellons Support Network site shutting down is that it was bought out by advertisers Ceablue? Seriously? Somebody wants the site's name for an advertising search term but without any of the site's content? Who's domain owner?
Feb 23, 2014 12:08:00 GMT -5
lostintime: Where are the allegation that the CEHF is responsible? I am just trying to point out what happened over the last 72 hrs on the board.
Feb 23, 2014 20:48:39 GMT -5
lostintime: There were multiple problems going on with the Cure website.. I thought it was better as MDR and went down hill rapidly after it’s change. These are private websites threader and can be shut down anytime.
Feb 23, 2014 20:55:24 GMT -5
lostintime: threader, you were on the cure shoutbox during some of the debates leading up to the shutting down of the board. Don't you remember any of that?
Feb 23, 2014 22:21:15 GMT -5
threader: No Lostinline, I was a reg there but hadn't logged in for nearly a week right before it shut down. I knew it got heated with discussions of Lyme and STDs, but TBH I'm a bit in the dark regarding the last days.
Feb 24, 2014 10:15:55 GMT -5
csidegalNH: I all, I was on the days before it shut down. I backed Fibroid Mary that threads had been deleted. Franky said threads get deleted for misbehavior, but was oblivious to the deletion. He said he was fed up with the pettiness.
Feb 24, 2014 11:28:38 GMT -5
csidegalNH: There was talk on shout box saying it would be sad if forum got shut down next thing I know it was gone. I kind of thought I was banned too. Morg Support site says domain expired Jan 28 2014 and seems it could get renewed by owner
Feb 24, 2014 11:31:49 GMT -5
absurdlyhaywired: HI-The Cure site is back up-I saw it yesterday. Glad to see you guys "out and about". I don't feel good-I'll talk with you later.
Feb 24, 2014 17:10:31 GMT -5
fibroid mary: Hi cside, I never got the chance to thank you for 'backing' me on the cure site. I only wanted folks to be aware of the censoring, propaganda & thought manipulation of ill people that was taking place on the site. Hope you are well..
Mar 2, 2014 11:29:34 GMT -5
guest55: Is The Cure site back up?
Mar 5, 2014 15:17:40 GMT -5
Morgel Kombat: http://www.flickr.com/photos/110756413@N07/ my photos and experiments
Mar 8, 2014 15:54:08 GMT -5
absurdlyhaywired: Morgel Kombat- Hello and thanks for the link to your photos and experiments.
Mar 10, 2014 17:39:12 GMT -5
Morgel Kombat: You're very welcome! Been lurking and waiting for account activation for awhile now. I have many many more photos I hope to one day finish sorting and uploading!
Mar 11, 2014 11:05:43 GMT -5