Is anyone else experiencing weird breathing problems? Certain movements bring on a breathing crisis. If I get out of a car and start walking too fast I get hit with this thing, feel like I am going to pass out (and very nearly have passed out, averted only by laying down on the ground), suddenly I am gasping for breath, it is so bad that I can not even speak when this is happening as I feel like every speck of energy I can muster must be focused on trying to get my breath back. Sometimes it is set off by getting up out of the bath tub.
I know I need to see the doctor about this. Because of the Lyme I have developed a heart block, maybe this is causing it. Or maybe my lungs are infected. I read that Chlamydia Pneumonia had been found in some Lyme/Morgellons sufferers.
Has anyone been diagnosed with Chlamydia Pneumonia?
To date the approach towards Morgellons has been much like Lyme. But there's a docs working on this who thinks that C. pneumonia is the underlying infectious agent causing many of our immuno-deficiencies.
The impaired immunity then allows a variety of infectious agents to cause problems. It also enables the reactivation of a number of other viral agents, especially the herpes groups.
It seems reactivation of herpes viruses may be a big player in causing some symptoms especially fatigue and pain. And so the logic is that the pain in many patients with chronic Lyme, Morgellons, Fibromyalgia, etc., is that the Varicella/Zoster virus is the culprit. Instead of causing only a single dermatome to become inflamed, there is generalized inflammation up and down the spinal column causing more generalized neuropathic pain.
So, the thought is, treat C. pneumonia, and a bunch of these other symptoms ought to go away.
The treatment is generally antibiotics and antifungals.
You probably know about "Bubba's" site www.morgellonstreatmentsteps.com The link to the following page from this site discusses the potential co-factering effects in Morgellons patients of 1: Chlamydia Pneunonia in patients with 2; Lyme vectored Borreliosis (Borrelia Burgdorferi) and 3; Clinical Babesiosis. This page also covered the authors (a morgellons patient) diagnostic and treatment history re Morgellons. It goes on the discuss the details of the treatment (from a LLMD) that got her well (along with the diagnostic tests he used to diagnose her various conditions and then to measure the effect of the treatment). www.morgellonstreatmentsteps.com/Morgellons_Medical_informat.html
I think there are many good, clear, practical and potentially effective treatment recommendations here. Kudos Bubba!
I had a chlamydia problem along with herpes (mouth type) high Epstein Barr , toxioplasmosis after my bulls eye rash. I always thought my ex gave me chlamydia . I have recently read on the net chlamydia is also vectored in by insects. Just do a wiki search, chlamydia. I became careful who I told this to after my nephew thought I had said ,I got high at Epstein Barr and caught herpes. Had to laugh, lil sissy
I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs.
Has anyone with these breathing problems been significantly helped by anything? (medications, herbal remedies, etc.)
I used to have a lot of lung/breathing/coughing problems until I started taking Olive Leaf Extract. It can be expensive, but I found a really good brand, relatively inexpensive, at Swanson's vitamins. It costs about $12 per bottle, 120 capsules (a really good deal).
The brand is Swansons Superior Herbs, Olive Leaf Extract, standardized to 15% oleuropein, 500 mg capsules. (no, I do not sell it nor am I affiliated with the company). The dosage I started at was 5 capsules, three times a day for two weeks. Then I went on a maintanace dose of two caps, two times a day. This helps keep the lung thing under control.
You may need to experiment with maintenance dosage. But when starting out you want to hit it hard with 15 caps a day total. I did not have any side effects. Olive leaf is basically a food, just concentrated. It really helps in the standardized extract. Do a google search to find out the benefits. I keep OLE in my house at all times. I will not be without it, ever!!! Let me know if you have any questions.
Is there an alternative to taking Doxy? Perhaps this is exasberating your other conditions if you are sensitive to it.
SIDE EFFECTS: This medication may cause stomach upset, diarrhea, nausea, headache or vomiting. If these symptoms persist or worsen, notify your doctor. Very unlikely but report: stomach pain, yellowing of the eyes or skin, vision changes, mental changes. Doxycycline increases sensitivity to sunlight. In the unlikely event you have an allergic reaction to this drug, seek immediate medical attention. Symptoms of an allergic reaction include: rash, itching, swelling, dizziness, trouble breathing. If you notice other effects not listed above, contact your doctor or pharmacist.
"I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs."
After further thought, I should not have brought up the medicine. It is unlikely that medicine you have been on would cause these problems, when it is much more likely to be a parasite. I have had an increase in shortness of breath just recently and have not been taking Doxy, or Albendazole for atleast two weeks. One thing we have in common is the blood pressure medicine. Another commonality is I know I have a parasitic infection in my lungs and head. Sometimes feel long strands in throat that cause a choking reaction. So you do not have a productive cough? Mine is definetly tinted lime green.
When I experience the most difficulty it feels like, not a problem with lungs, but a lack of oxygen to the brain. If that makes any sense. Just this morning while gargling with peroxide, all of a sudden I could not breath, had to spit out the rinse and gasp for breath. Isn't it equally possible that parasites are blocking air channels in the head?
Anyway, you are right to speak with your doctor about this, and I would take the report mentioned above with you to see what your doc has to say. If I had the funds and had a doc, CPN is the path I would follow more than any other I have read about. It does look quite expensive though.
Take care Glenn
It would go as a silent plague into the DNA of every living creature on this planet to reveal its true face in the generations to come. Dr. H. Staninger
Post by abbienormal on Aug 15, 2007 18:15:30 GMT -5
The Mister and I are now, almost on a daily basis, loosing our breath (as if a mechanism of some kind clicks and shuts off the air passage). Sometimes it only lasts a couple of seconds and sometimes it is excruciatingly long and I fight to get air.
Also more and more choking on food.
We are going to start (god willing) the C. Pneumoniae protcol next week. We are going through a battery of tests, one of which is for the C. Pneumoniae and hope to attack the lyme and morgellons with the CPn protocol.
I was surprised to hear that some are experiencing the breathing problems just out of the blue, or triggered by something like gargling peroxide.
My breathing problem is almost always set off by doing something physical. The most common cause is getting out of a seated position in a car and starting to walk. A couple of times it hit me so hard that I had to lay down on the ground in public to keep from passing out. Sometimes getting out of the bath tub too fast sets it off.
I am not sure exactly what is happening physically with the shortness of breath...I'm wondering if my heart temporarily stops beating or if my lungs are having a spasm.
It is scary because when it happens it takes every bit of energy and concentration I have to just focus on trying to get my breath back. Occasionally when it has happened in the presence of others they will ask me if I am ok over and over not realizing that I am completely unable to speak while I am gasping for air.
I have a left heart block. Maybe this is connected?
Post by notime2work on Aug 16, 2007 19:57:21 GMT -5
Babesia can also cause breathing problems and air hunger. It hits me 2-3 times a year, and sometimes lasts for a month or two. I have done abx and alternative treatments, and can't seem to get rid of it.
I am am being teated for high blood pressure. I do have insulin resistance and hypoglycemia (caused by this disease most liikely). I have never noticed if the attacks were related to bouts of low blood sugar.
My primary suspicion is that an organism (chylamedia or a parasite) has invaded my lungs and that may be what is causing the problem.
Another possibility is a reaction or sensitivity that has developed because of all the irritating chemtrail particles in the air.
The first time I noticed this breathing problem was approximately 10 years ago right when the chemtrail spraying started to be noticed.
I have another type of breathing problem that happens periodically, especially when I am working in my downstairs office. I get a choking cough, feel like I am breathing some kind of toxic fumes. This choking cough lasts from 30 seconds or so up to five or ten minutes and happens most frequently in the after noon and evening.
Chemtrails are also associated with EDB. I wonder if this toxic gas isn't settling out of the chemtrails, seeking out the lowest level. Since my office is in my garage perhaps this is an explanation for the coughing fits.
Post by specuelatin on Aug 19, 2007 7:11:20 GMT -5
interesting information, josej
Lyrica is a medication now FDA approved for fibromyalgia.
It helps relieve nerve pain of various sorts.
In the first week, it helped allow my ribcage to expand where it was restricted for many years. Now, I don't struggle as much for breath as I'm not fighting that restriction. It may not solve your breathing problems, but it could help some of you, especially those experiencing nerve pain or fibro symptoms... ps some researchers believe lyme and fibromyalgia to be strongly correlated..
I am certain the macrophages are deep in the nervous system. I am sure of this because of the responses i feel along the nerve pathways each time I herx on the marshallprotocol.com and the bacteria is dying hooray.
The first several months I had herxing occur in the lining of the lungs, coughing and the feeling of ice crystals on the lining. This is typical response of clearing of the lining in the lung tissue on the MP during initial herxing.
I'm now in the modified phase 2 and preparing to enter the actual phase 2 anytime now. I have felt much nerve tingling in modified phase 2 and clearing on the brain fog while in the modified phase 2... typical of modified phase 2 results.
phase 2 antibacterial/antibiotic scripts focus on getting the meds deeper into the tissues where the beasts reside... so though the herxing will be tough, I am looking forward to it! I crave the herx now. Every 48 hours. They ask you take a day off now and then, go a full 72 hours between the two doses, this to estimate better your herx reactions.
When I do the craving really sets in, I can't wait to take the low dose antibiotic and set the wheels in motion once again. First comes a burst as the level begins to rise, then a lull, then the major herx as the level begins to fall, then a deep fatigue, and the relief of sleep. While all this occurs, I know the garbage is dying.
I began the LYRICA several weeks ago after seeing a pain management doctor for back/hip/joint problems and she informed me that she has been using lyrica for fibromyalgia for quite sometime and recently was FDA approved, it will also help the brain fog issues and help you think more clearly. duh. I am now at 225 mg per day, the maximum is 450 mg and they titrate you up a little at a time. At months end, I go up to 300 mg.
he hee he
Got to Go as I still can't handle too much light from the computer screen etc/ as always, Yours truly, spec
"The mind is not a vessel to be filled but a fire to be kindled." -Plutarch
If Lyrica works for some that is wonderful. However I have read numerous negative reports about serious side effects.
Considering the FDA"s inclination to release new drugs without proper trials to determine if the new drug is truly safe (Vioxx ended up killing over 100,000 people before it was taken off the market, there have been serious problems with a new diabetis drug, statin drugs are causing problems...etc etc) I have decided the wisest course is not to take any new medications until they have been on the market for at least a few years without killing people.
Still, that is no guarantee of safety. Flouride has been on the market, added to our water, to tooth paste, mouth wash and some medications for decades in spite of there being no reliable research that shows flouride actually prevents cavities. However, there is plenty of research showing that in communities with floruidated water children have lower IQ's. There are also elevated rates of heart disease, neurology problems, bone disease and cancer in communities with flouridated water. Small amounts of Flouride taken over time cause permanent changes in the brain and personality.
Our prescription happy medical community writes way too many prescriptions for drugs that may or may not be safe to just treat symptoms without treating the underlying problem. Properly taken prescription medications are the number four cause of death in this country killing more people annually than aids, suicides and homicides combined.
I have personal experience with this as the lives of BOTH my parents were cut short because of reactions to prescription medications.
My father died from the side effects of taking Coumadine ( a blood thinner). My mother became psychotic from the side effects of taking medication for Parkinson's disease (this side effect was listed in the medications literature as a possible complication). The stressful visions and delusions she was having sent her blood pressure through the roof, a vein popped causing a massive and fatal brain hemmorage.
Alexia: I could post a link here that explains a lot of the strange stuff going on, but then I'd be accused of trying to "push my agenda" on people. While I don't know the exact cause, a lot of the aspects aren't as crazy as they sound when explained.
Mar 27, 2015 11:50:27 GMT -5
Alexia: This site is now just what YOU think. But you go ahead and keep on thinking that you're doing some kind of grand service to morgellons sufferers. All I've seen is mocking, being rude, and being obsessed with STDs. Take care everyone and try to stay healthy
Mar 27, 2015 11:55:09 GMT -5
Fibroid Mary: geez.. it seems due to the size of this shout box that I missed out on all the fun of BO's mocking of someone and discussion of his wife's itchy crotch... hmm.. maybe it's a GOOD thing that the shout box is so small..
Mar 27, 2015 15:37:41 GMT -5
Jim Dandy: Welcome to todays (One Flew Over The Coo Coos Nest) It seems like two Coo Coo, more than one KOOK, anyway let the bats and ghosts out of the belfry and lets hunker down for some GREAT BIG HELPING OF NON RIDICULUS brain storming with Norman
Mar 27, 2015 16:28:10 GMT -5
Jim Dandy: I am known as Jim Dandy to many a lass and have been often (ONTHE OTHER SIDE and on the bottom but never on the wild side, nope too old fashioned for that, A REAL MAN, no Twinkie ballerina round here,
Mar 27, 2015 16:31:45 GMT -5
Jim Dandy: Did ya ever notice, STRANGE PEOPLE always notice the strangest things, they may be oblivious to us other normal like people but them strange ones can feel a thing 40 miles away and know what that thing is doing, no sheet, its exactly correct, they know B-
Mar 27, 2015 16:35:10 GMT -5
Jim Dandy: You know, one of you girls that is the same girl also, Mary and Alexia, can you both come out of that one head together, just wondering, you both need to be clad in something, a garb of some sort, nakid ghosts even scare me
Mar 27, 2015 16:38:39 GMT -5
Jim Dandy: Well, Jim Dandy signing off, can't let no moss grow under my Morgellons, who is this fella got a wife with a itchy groin, if I know who she is I would stay away from that groin, same as if I find out where I am gonna die I will stay away from there too.
Mar 27, 2015 16:42:51 GMT -5
Jim Dandy: I really hope them two girls locked in one ain't some kinda tranny or somtin like this, you ain't that Genner fella are ya. Hope not, ya know he got in a accident, no cell phone use, so I imagine he was a lookin down at his new cooter
Mar 27, 2015 16:46:19 GMT -5
Fibroid Mary: Hi Jim.. you sound like you have a great sense of humor.. but your perception is a bit off... as Alexa and I are not the same individual.. and I don't think I'm schitzo.. but I'm not certain.. my other personality might be.. but I'm not Alexa
Mar 27, 2015 19:13:10 GMT -5
Fibroid Mary: would a schitzo even know that they were schitzo? hmm sigh.. 1 more wonder 2 add 2 my ever growing list of wonders 2 solve before I leave here.so much 2 learn & not enough time, well maybe there is, longevity runs in family if indeed they are my family :-
Mar 27, 2015 19:22:09 GMT -5
Jim Dandy: Well little filly, I guess your a filly you didn't say anything about the tranny thing, you go and look in the mirror now, smile big and see if that smile looks scary, if it is hard to smile or hurts your crazy, long and short of it.
Mar 27, 2015 22:48:32 GMT -5
Fibroid Mary: nope not a tranny, nor a scary smiler.. but scary is in the eye of the beholder so I'm not sure how that determines sanity.. also at this point of my life, I feel more like an old grey mare than a filly.. I just ain't what I used to be.. giggles..
Mar 28, 2015 7:04:43 GMT -5
Alexia: I'd tell you to go f*ck yourself, but I wouldn't want you to catch another STD Anyway, keep researching everyone and find out what works best for you. And Mary, hang in there
Mar 28, 2015 9:09:33 GMT -5
Fibroid Mary: Thanks Alexia.. and my apologies for misspelling your name in my previous post.. Have a great weekend everyone!!
Mar 28, 2015 11:27:26 GMT -5
Jim Dandy: How rough you are Alexia like you have never cradled it up inside you on that lonely night from the stranger guy in the bar, who knows it may have been me. Remember me, who's your daddy? That would totally explain how you got the STD, LOL.
Mar 28, 2015 12:26:56 GMT -5
Jim Dandy: Jim Dandy to the recue, Jim Dandy to the rescue, Jim Dandy to the recue, go Jim Dandy, go Jim Dandy. First thing I am going to teach our little virgin, Alexia, Mary, is how to express herself without cursing
Mar 28, 2015 12:38:56 GMT -5
Jim Dandy: Oh and Alexia, Mary, the both of you have to learn if you want to SEEM pure and good, like your vestal virgins, lay off the F U's they give away your trailer upbringing, and Walmartian reality.
Mar 28, 2015 12:42:59 GMT -5
oneder: morgellons makes your minds mush...
Mar 28, 2015 15:32:46 GMT -5
Jim Dandy: Well oneder you got that right, then I do not know if your relenting to the two in one troll or Jim Dandy himself being reflective of the pot calling the kettle black.
Mar 28, 2015 16:02:14 GMT -5