Is anyone else experiencing weird breathing problems? Certain movements bring on a breathing crisis. If I get out of a car and start walking too fast I get hit with this thing, feel like I am going to pass out (and very nearly have passed out, averted only by laying down on the ground), suddenly I am gasping for breath, it is so bad that I can not even speak when this is happening as I feel like every speck of energy I can muster must be focused on trying to get my breath back. Sometimes it is set off by getting up out of the bath tub.
I know I need to see the doctor about this. Because of the Lyme I have developed a heart block, maybe this is causing it. Or maybe my lungs are infected. I read that Chlamydia Pneumonia had been found in some Lyme/Morgellons sufferers.
Has anyone been diagnosed with Chlamydia Pneumonia?
To date the approach towards Morgellons has been much like Lyme. But there's a docs working on this who thinks that C. pneumonia is the underlying infectious agent causing many of our immuno-deficiencies.
The impaired immunity then allows a variety of infectious agents to cause problems. It also enables the reactivation of a number of other viral agents, especially the herpes groups.
It seems reactivation of herpes viruses may be a big player in causing some symptoms especially fatigue and pain. And so the logic is that the pain in many patients with chronic Lyme, Morgellons, Fibromyalgia, etc., is that the Varicella/Zoster virus is the culprit. Instead of causing only a single dermatome to become inflamed, there is generalized inflammation up and down the spinal column causing more generalized neuropathic pain.
So, the thought is, treat C. pneumonia, and a bunch of these other symptoms ought to go away.
The treatment is generally antibiotics and antifungals.
You probably know about "Bubba's" site www.morgellonstreatmentsteps.com The link to the following page from this site discusses the potential co-factering effects in Morgellons patients of 1: Chlamydia Pneunonia in patients with 2; Lyme vectored Borreliosis (Borrelia Burgdorferi) and 3; Clinical Babesiosis. This page also covered the authors (a morgellons patient) diagnostic and treatment history re Morgellons. It goes on the discuss the details of the treatment (from a LLMD) that got her well (along with the diagnostic tests he used to diagnose her various conditions and then to measure the effect of the treatment). www.morgellonstreatmentsteps.com/Morgellons_Medical_informat.html
I think there are many good, clear, practical and potentially effective treatment recommendations here. Kudos Bubba!
I had a chlamydia problem along with herpes (mouth type) high Epstein Barr , toxioplasmosis after my bulls eye rash. I always thought my ex gave me chlamydia . I have recently read on the net chlamydia is also vectored in by insects. Just do a wiki search, chlamydia. I became careful who I told this to after my nephew thought I had said ,I got high at Epstein Barr and caught herpes. Had to laugh, lil sissy
I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs.
Has anyone with these breathing problems been significantly helped by anything? (medications, herbal remedies, etc.)
I used to have a lot of lung/breathing/coughing problems until I started taking Olive Leaf Extract. It can be expensive, but I found a really good brand, relatively inexpensive, at Swanson's vitamins. It costs about $12 per bottle, 120 capsules (a really good deal).
The brand is Swansons Superior Herbs, Olive Leaf Extract, standardized to 15% oleuropein, 500 mg capsules. (no, I do not sell it nor am I affiliated with the company). The dosage I started at was 5 capsules, three times a day for two weeks. Then I went on a maintanace dose of two caps, two times a day. This helps keep the lung thing under control.
You may need to experiment with maintenance dosage. But when starting out you want to hit it hard with 15 caps a day total. I did not have any side effects. Olive leaf is basically a food, just concentrated. It really helps in the standardized extract. Do a google search to find out the benefits. I keep OLE in my house at all times. I will not be without it, ever!!! Let me know if you have any questions.
Is there an alternative to taking Doxy? Perhaps this is exasberating your other conditions if you are sensitive to it.
SIDE EFFECTS: This medication may cause stomach upset, diarrhea, nausea, headache or vomiting. If these symptoms persist or worsen, notify your doctor. Very unlikely but report: stomach pain, yellowing of the eyes or skin, vision changes, mental changes. Doxycycline increases sensitivity to sunlight. In the unlikely event you have an allergic reaction to this drug, seek immediate medical attention. Symptoms of an allergic reaction include: rash, itching, swelling, dizziness, trouble breathing. If you notice other effects not listed above, contact your doctor or pharmacist.
"I am currently taking doxycycline, sulfa meth, albendazole, thyroid (armor), and Diovan for blood pressure.
I think doxy may affect breathing. But I have been having this problem before I started taking the Doxy.
Sometimes it feels like things are popping in my saliva in the back of my throat, always suspected that this was the very small eggs from some kind of parasite hatching out of my throat tissue, wondered if I have a parasitic infection of some kind in my lungs."
After further thought, I should not have brought up the medicine. It is unlikely that medicine you have been on would cause these problems, when it is much more likely to be a parasite. I have had an increase in shortness of breath just recently and have not been taking Doxy, or Albendazole for atleast two weeks. One thing we have in common is the blood pressure medicine. Another commonality is I know I have a parasitic infection in my lungs and head. Sometimes feel long strands in throat that cause a choking reaction. So you do not have a productive cough? Mine is definetly tinted lime green.
When I experience the most difficulty it feels like, not a problem with lungs, but a lack of oxygen to the brain. If that makes any sense. Just this morning while gargling with peroxide, all of a sudden I could not breath, had to spit out the rinse and gasp for breath. Isn't it equally possible that parasites are blocking air channels in the head?
Anyway, you are right to speak with your doctor about this, and I would take the report mentioned above with you to see what your doc has to say. If I had the funds and had a doc, CPN is the path I would follow more than any other I have read about. It does look quite expensive though.
Take care Glenn
It would go as a silent plague into the DNA of every living creature on this planet to reveal its true face in the generations to come. Dr. H. Staninger
Post by abbienormal on Aug 15, 2007 18:15:30 GMT -5
The Mister and I are now, almost on a daily basis, loosing our breath (as if a mechanism of some kind clicks and shuts off the air passage). Sometimes it only lasts a couple of seconds and sometimes it is excruciatingly long and I fight to get air.
Also more and more choking on food.
We are going to start (god willing) the C. Pneumoniae protcol next week. We are going through a battery of tests, one of which is for the C. Pneumoniae and hope to attack the lyme and morgellons with the CPn protocol.
I was surprised to hear that some are experiencing the breathing problems just out of the blue, or triggered by something like gargling peroxide.
My breathing problem is almost always set off by doing something physical. The most common cause is getting out of a seated position in a car and starting to walk. A couple of times it hit me so hard that I had to lay down on the ground in public to keep from passing out. Sometimes getting out of the bath tub too fast sets it off.
I am not sure exactly what is happening physically with the shortness of breath...I'm wondering if my heart temporarily stops beating or if my lungs are having a spasm.
It is scary because when it happens it takes every bit of energy and concentration I have to just focus on trying to get my breath back. Occasionally when it has happened in the presence of others they will ask me if I am ok over and over not realizing that I am completely unable to speak while I am gasping for air.
I have a left heart block. Maybe this is connected?
Post by notime2work on Aug 16, 2007 19:57:21 GMT -5
Babesia can also cause breathing problems and air hunger. It hits me 2-3 times a year, and sometimes lasts for a month or two. I have done abx and alternative treatments, and can't seem to get rid of it.
I am am being teated for high blood pressure. I do have insulin resistance and hypoglycemia (caused by this disease most liikely). I have never noticed if the attacks were related to bouts of low blood sugar.
My primary suspicion is that an organism (chylamedia or a parasite) has invaded my lungs and that may be what is causing the problem.
Another possibility is a reaction or sensitivity that has developed because of all the irritating chemtrail particles in the air.
The first time I noticed this breathing problem was approximately 10 years ago right when the chemtrail spraying started to be noticed.
I have another type of breathing problem that happens periodically, especially when I am working in my downstairs office. I get a choking cough, feel like I am breathing some kind of toxic fumes. This choking cough lasts from 30 seconds or so up to five or ten minutes and happens most frequently in the after noon and evening.
Chemtrails are also associated with EDB. I wonder if this toxic gas isn't settling out of the chemtrails, seeking out the lowest level. Since my office is in my garage perhaps this is an explanation for the coughing fits.
Post by specuelatin on Aug 19, 2007 7:11:20 GMT -5
interesting information, josej
Lyrica is a medication now FDA approved for fibromyalgia.
It helps relieve nerve pain of various sorts.
In the first week, it helped allow my ribcage to expand where it was restricted for many years. Now, I don't struggle as much for breath as I'm not fighting that restriction. It may not solve your breathing problems, but it could help some of you, especially those experiencing nerve pain or fibro symptoms... ps some researchers believe lyme and fibromyalgia to be strongly correlated..
I am certain the macrophages are deep in the nervous system. I am sure of this because of the responses i feel along the nerve pathways each time I herx on the marshallprotocol.com and the bacteria is dying hooray.
The first several months I had herxing occur in the lining of the lungs, coughing and the feeling of ice crystals on the lining. This is typical response of clearing of the lining in the lung tissue on the MP during initial herxing.
I'm now in the modified phase 2 and preparing to enter the actual phase 2 anytime now. I have felt much nerve tingling in modified phase 2 and clearing on the brain fog while in the modified phase 2... typical of modified phase 2 results.
phase 2 antibacterial/antibiotic scripts focus on getting the meds deeper into the tissues where the beasts reside... so though the herxing will be tough, I am looking forward to it! I crave the herx now. Every 48 hours. They ask you take a day off now and then, go a full 72 hours between the two doses, this to estimate better your herx reactions.
When I do the craving really sets in, I can't wait to take the low dose antibiotic and set the wheels in motion once again. First comes a burst as the level begins to rise, then a lull, then the major herx as the level begins to fall, then a deep fatigue, and the relief of sleep. While all this occurs, I know the garbage is dying.
I began the LYRICA several weeks ago after seeing a pain management doctor for back/hip/joint problems and she informed me that she has been using lyrica for fibromyalgia for quite sometime and recently was FDA approved, it will also help the brain fog issues and help you think more clearly. duh. I am now at 225 mg per day, the maximum is 450 mg and they titrate you up a little at a time. At months end, I go up to 300 mg.
he hee he
Got to Go as I still can't handle too much light from the computer screen etc/ as always, Yours truly, spec
"The mind is not a vessel to be filled but a fire to be kindled." -Plutarch
If Lyrica works for some that is wonderful. However I have read numerous negative reports about serious side effects.
Considering the FDA"s inclination to release new drugs without proper trials to determine if the new drug is truly safe (Vioxx ended up killing over 100,000 people before it was taken off the market, there have been serious problems with a new diabetis drug, statin drugs are causing problems...etc etc) I have decided the wisest course is not to take any new medications until they have been on the market for at least a few years without killing people.
Still, that is no guarantee of safety. Flouride has been on the market, added to our water, to tooth paste, mouth wash and some medications for decades in spite of there being no reliable research that shows flouride actually prevents cavities. However, there is plenty of research showing that in communities with floruidated water children have lower IQ's. There are also elevated rates of heart disease, neurology problems, bone disease and cancer in communities with flouridated water. Small amounts of Flouride taken over time cause permanent changes in the brain and personality.
Our prescription happy medical community writes way too many prescriptions for drugs that may or may not be safe to just treat symptoms without treating the underlying problem. Properly taken prescription medications are the number four cause of death in this country killing more people annually than aids, suicides and homicides combined.
I have personal experience with this as the lives of BOTH my parents were cut short because of reactions to prescription medications.
My father died from the side effects of taking Coumadine ( a blood thinner). My mother became psychotic from the side effects of taking medication for Parkinson's disease (this side effect was listed in the medications literature as a possible complication). The stressful visions and delusions she was having sent her blood pressure through the roof, a vein popped causing a massive and fatal brain hemmorage.
hownow browncow : Don't be frustrated, get some fertile chicken eggs, grind a hole in them and put a drop of blood in the embryo, I guaranty results, I think you will find that this monster can live in any warm blooded animal. Its simple, incubator, fertile chicken eggs.
Jul 27, 2014 0:30:28 GMT -5
hownow browncow : I know too busy shooing the bugs away. I had a Jehovah Witness come to the door today she had a few little tiny flys after her, she kept swatting at them, I asked her please do me a favor, stop bothering my flys they were trying to get something to eat,
Jul 27, 2014 0:34:58 GMT -5
hownow browncow : I know your in pain and disgusted, the bug idea is getting us NO WHERE except to the bug house, the funny farm, the loony bin, the rubber room, the bug factory, nut house, mad house. Credibility is nil when you say bug
Jul 27, 2014 0:46:29 GMT -5
hownow browncow : Hope you will fell better soon.
Jul 27, 2014 0:47:08 GMT -5
Kitty2014: WhatsamattaU, why do you have to resort to sarcasm to ones' who are in the same rocky boat as you? I thought you were a troll! I can understand that after 42 yrs, you're probably real pi$$ed, but really, it doesn't help our cause! Don't get me wrong,
Jul 28, 2014 0:36:44 GMT -5
Kitty2014: humour is the most precious thing we have left, I s'pose and as futile as you think it is, I will always challenge anyone who thinks we are not speakin' the truth! I don't even understand why they come on here, as this is a Morgie community, is it not!?
Jul 28, 2014 0:44:50 GMT -5
Kitty2014: Anyway, I kinda like your style, now I know you're a sufferer! I'm sorry life and the to$$ers' who ridicule us have reduced you to your almost hostile sarcasm! By the way, I don't presume I'm special, with my own disease, just defensive of what I've got!
Jul 28, 2014 0:50:16 GMT -5
Kitty2014: Lol!!! Incidentally, got some interesting pics, but none of the little 8astard fibres or whatever they are! I've seen a couple poke out of my pores, but rather than get my camera out, I just panic and try to get 'em to go back in! Lol not!
Jul 28, 2014 0:53:17 GMT -5
Kitty2014: FrustratedGuest, I feel your pain! If you want somethin' that may be of help, with an alternative answer, look at: http://livingwithmorgellons.wordpress.com/2013/05/30/what-morgellons-does-to-a-life/ I've found it helpful, see Binky's posts esp!
Jul 28, 2014 0:58:54 GMT -5
Kitty2014: WhatsamattaU, I must apologise, it was Hownow browncow being almost hostile and accusing one of feelin' special! I am truly sorry!!! It's this box, gets confusin'! Wish we had a full page! Lol!
Jul 28, 2014 1:10:06 GMT -5
Kitty2014: Hownow browncow, hope you're feelin' much better yourself! Don't forget, we're the good guys!!! Peace and mental confusion! Lol!
Jul 28, 2014 1:12:39 GMT -5
Bozo krown : I see what your saying anyone that has a ulterior opinion would be a troll, or angry, or just not part of the group. Through the eons it has been people with alternate ideas that have solved the quiz of reality.
Jul 28, 2014 10:26:40 GMT -5
Bozo krown : To question at times was a way to your death, right now in Pakistan they are murdering other Muslims because they do not see eye to eye who the savior is, that idea here would have all the Christians dead.
Jul 28, 2014 10:29:32 GMT -5
Kitty2014: Bozo, I get what you're sayin' and you are correct! However, a lot on here just come to take the pee! I wasn't aware of trolls until the other day, when another pointed it out!!! Life is very sad, we should respect each other, regardless to faith!
Jul 29, 2014 11:13:33 GMT -5
Kitty2014: By the way, I didn't put "pee" .... editor's are on the ball here! Lol! ;(
Jul 29, 2014 11:15:18 GMT -5
Baraka Obam: the site does the word cleanup just like spell check, so your word was worse than pee, LOL. What a savage.
Jul 29, 2014 22:54:05 GMT -5