|
Post by grady on Dec 12, 2007 16:21:47 GMT -5
I'm sorry everyone, I'm in a bad way right now. I don't mean to be a cry-baby, but you know, sometimes I go to my car to cry, this is unreal ...
|
|
|
Post by jwf on Dec 12, 2007 17:16:11 GMT -5
If I ever feel the need to tune into a soap opera (not), it's better to just log on to LymeBusters and check the Morgellons board. ;D
reasonable--- not me on the parasite ID check. I knew about worm squirm way back when.
grady-- hang in there. Cat's Claw saved our skin and our insides too. Second most favorite supplement: Kyolic 103 formula-- looks tailormade to fight Morgellons.
ant & Carrie-- dogs are great, aren't they? Ours are fine. Their Vet didn't have a clue, but we did. They like their Cat's Claw, & occasional Olive Leaf Extract. Hope your whole family is faring well.
Dr. Harvey-- You saved our hides because (at one time) you pointed directly to Lyme disease. Thank you.
Ali-- Is that a come hither look?
Blue Skies.................John
|
|
|
Post by zabrubon on Dec 12, 2007 18:06:19 GMT -5
Grady, what is your situation at home? do you have health insurance? can you locate a doctor that will treat you with antibiotics? i found a lyme doctor three years ago and she put me on minocycline and tinidizole and it worked like a charm. i had no crawlies for three years. please try to find something like this to you and the kids. please it works. i don't know what this disease is, worms, fibers and i don't know why, food, water, air, aliens, and i have no idea if herbs work or not, i can only tell you from my heart what has worked for me. please i encourage you to try this medication and purchase a bottle of amilactin cream that can found in the pharmacy for around ten dollars, recommended by dr harvey in a post years ago. I hope this helps you and i pray for you, for me and for all of us here suffering. i pray dr harvey will hurry up and that what ever is stopping him is removed from an obstical in his course of action against this horrible disease. if we don't get helpfrom him soon, i say move on and find us another to help. Cause you are right, it should not take this long. They need to act now. Blessings to you and a hedge of protection around you and your little ones and the holy spirit to oversee your life. ChicagoBonnie
|
|
|
Post by grady on Dec 12, 2007 18:44:34 GMT -5
Yes, I have insurance, problem is I test negative for lyme, I got it real bad in Connecticut about 15 years ago, tests come back negative, there is no way I'm going to get any medication from a doctor, no anti-biotics no nothing, I have been very jealous of those that can get medications, and I've damn near killed myself by taking too much dewormer before, so, here I am ...
|
|
adill
Junior Member
Posts: 70
|
Post by adill on Dec 12, 2007 18:49:43 GMT -5
You know what- you are just mean!
So Sorry to of wasted your time!
Just one thing, I dont like to complain, I am crying so hard as I write this because I can no longer walk because of this stuff and I am really embaressed that i wasted my time complaining on this board. These stories need to be told over and over till someone hears and wants to make a difference. I am at the point where I cant do anything else and still want to save my family.
Your hints were well taken and I promise not to waste anyones time anymore- I also would not say anything unless I knew for sure what I was saying, So many promises have been broken/
Signing off,
Anne Dill
|
|
|
Post by Carrie♥ on Dec 12, 2007 19:08:41 GMT -5
Anne Dill...please don't respond like that. The only person you are hurting is yourself. Take what you want and leave the rest.
|
|
adill
Junior Member
Posts: 70
|
Post by adill on Dec 12, 2007 19:22:51 GMT -5
Why would I want to hurt anyone? All I have ever wanted was to help everyone- but I was right when I said I am sorry that I wasted anyones time. Maybe I am way to sensitive for I am close to going over the edge.
All most of us reallly need is to vent and know someone is listening, at least that is what i thought. I am sure I am not the only one who has said how they really feel and then someone comes back at them like they dont have the right to complain once and a while.
I am just tired. So very tired.
|
|
|
Post by godog on Dec 12, 2007 19:51:18 GMT -5
Look, Adill, you're not the only one sick and not the only one who is sensative. When you said, and it seemed a little smartazz, "Anymore questions?" What do you expect? I treat people how they act. No one here has any answers, as far as cures or why we have been abandoned. You need to pull yourself together if you have kids. They are looking to you and if you fall apart, then all the much harder for them. Some people post here and have a chip on their shoulders. We are not the enemy and we are only regular people that also are very sick and we are at the end of our ropes also.
|
|
|
Post by robertalouise26 on Dec 12, 2007 20:09:35 GMT -5
Dearest Adhill I am very very sorry that you are going through a rough patch I have had one also this week. We are hear for each other and all of us feel very down at times. This thing does wear you out. I alos have been very very tired this week and grumpy. I even yelled at my daughter on the phone WHICH IS MOST UNLIKE ME. But I am getting back to my old self tho I am still tired. It must be doubely hard for you with children. It is a major issue just taking car of yourself. Do you have family near by? if you are feeling down at any time please email me robbie26@xtra.co.nz. I am always here. I can empathise with you and maybe a chat or just to vent just let it all out. Take care dear friend. Love and best wishes. oberta.
|
|
adill
Junior Member
Posts: 70
|
Post by adill on Dec 12, 2007 20:38:20 GMT -5
Well Mr. GODOG,
Maybe you bring the smartazz out in people. I simply (for your sake) replied that I have done the media thing- traveled the country for research- offered my husband for autopsy.
When you come at someone like that how would expect us to reply? I have been on this board for 3+ years- Shared photos, stories, and ideas. Frankly, I have trouble understanding why more arnt screaming for their rights! Maybe it makes me feel like i am still alive.....
kindly keep your opinion to yourself on my parenting skills unless you know how I have keep it together thru all this. I know how sick others are and most of the time i read their stories and close my computer for my heart aches for them.
Anne
|
|
|
Post by godog on Dec 12, 2007 21:00:47 GMT -5
I just had some suggestions. You're mad. People who are mad, sometimes it's good for them to direct their anger in a positive way. If that brings out the smartazz in you, oh well. That's on you. Read you second post on the second page and you will see that I only had positive suggestions. You will also see that you were a tad bit snippy.
|
|
|
Post by reasonable on Dec 12, 2007 22:33:07 GMT -5
sorry, I got this waaaaay before I took anything herbal or remotely herbal. I'm 31. but..... I agree with you on boiling the herbs.....wholeheartedly in fact! well.....most herbs.... do you think if I grow my own it's a good idea to boil them? Prolly....won't hurt, huh? Even thought I'm a nutjob when it comes to the green house, nasty spores and critters can be microscopic.... Ali, thank you for your good wishes. You're right, unprocessed herbs are only one possible source of infection, even though for people who take a lot of them, they become the major source. And no, if I grew my own herbs, I'd bravely eat them raw, if that was the best way to take them. It just so happens that extracts are the best for most.
|
|
|
Post by ppy18 on Dec 13, 2007 3:13:00 GMT -5
waaaaaay outta line godog. anne has every right to be frustrated. in spite of their courageous efforts to bring awareness to this disease and the devastating toll it has taken on their family, the dill family continues to be ignored by our gov't and abused by the medical profession. protesting, sign waving,letter writing, and media endeavors have gotten them exactly......nowhere. and yes, i agree that we are all in the same boat, but we have not all suffered the heartache of losing a spouse to this illness. if i'm not mistaken anne has also lost her father or father in law to morgellons.thats a lot to deal with. watching her children struggle with symptoms, as her own health slowly declines, must be so painful and seem so hopeless to her. imagine begging for years to get lifesaving medical attention for your loved ones, and being forced to watch them slowly die because drs refuse to treat their symptoms. if anyone has a right to be angry, anne and her family certainly do. now i'm not yelling or anything, but i don't see anything at all insulting about annes response to your suggestion that all "angry people" go protest, picket etc.... basically she stated " been there, done that,got anymore ideas?" it may have been a bit snippy, but your comments read like a passive aggressive criticism of annes initial post. to suggest that her anger is only going to make her situation worse is laughable. it looks pretty damn bleak as it stands, dontcha think. anger can be a positive emotion if it helps motivate you to get up and fight everyday. the dill family has done their share of fighting, now they need us to join the battle. its time to start playing hard and dirty. we can't afford to sit back and wait. one last thing godog,little doubt that anne has shed many tears in the last few years, rest assured she is no crybaby. few on this board, you and i included, would have the guts and courage anne has displayed during her ordeal. pray you never need them
|
|
|
Post by godog on Dec 13, 2007 9:23:15 GMT -5
I really don't think so pp, she wants to be snippy with me, then I get to be snippy back. What do you mean 'pray I never need them', you don't know my situation so please refrain from the patronizing, insincere prayer crap. I am not going to get into a who's the sickest contest.
|
|
|
Post by godog on Dec 13, 2007 9:42:00 GMT -5
There are people on this board who think because they don't feel good that they can be rude, I think that is wrong. Anyone who talks rude to me or snippy or whatever, will get it right back at them.
|
|
|
Post by ppy18 on Dec 13, 2007 9:43:10 GMT -5
not trying to have a pissin contest here godog, but if you know annes history i believe you will agree she has had a brutal journey. i don't know your health situation and was not trying to minimize your suffering in any way. the pray comment was alluding to the deaths she has suffered because of morgellons. i don't know of anyone else who has been forced to watch their loved one slip away and be so powerless to help. can you imagine how hopeless it must feel to realize, that despite these traumatic events, she is still waiting for help, as the gov't agency created to handle this type situation continues to drag their feet? i know you are waiting too godog, we all are, but annes comments were pretty tame, all things considered. don't be mad at me girl, you still my dog ;D
|
|
|
Post by godog on Dec 13, 2007 10:02:27 GMT -5
Hey, my mom died of terminal cancer. I quit my job and stayed home with her for 7 months and took care of her till she died in our family home. I know exactly what that is like. I watched her waste away in a hospital bed in our family room. I remember her last day and how she struggled to sit up, but couldn't to give me one last smile and then she died a few hours later. Still hurts my heart to t hink of that. But I am very proud she died at home surrounded by family. Does that give me the right to be rude? No!!
|
|
|
Post by verdad on Dec 13, 2007 10:35:43 GMT -5
We are all suffering here. Many of us have extremely sick children. Many of us can't get out of bed and are scared to death every waking moment of hellish existence. None of this is a good enough reason to be mean to our own group. Attacking Dr Harvey makes no sense. This is a retired doctor who even said he does not have the answers and that more scientific tests need to be done. There is no money so of course this goes slow for him and everyone else. He is trying his best. I wouldn't blame him if he walked away. If you want to attack anyone, or blame anyone for your suffering, blame the CDC or the doctors who misdiagnosed you, not the people here and not the people who try their very best. I guess we all have a right to be angry, but it's how you direct that anger that matters. Attack the people without resources who are TRYING to help, or attack the people with resources who refuse to help. This mean talk just makes things worse. If suffering is a good enough reason to act mean, that we should ALL act mean. But we don't. Verdad
|
|
|
Post by ppy18 on Dec 13, 2007 12:01:07 GMT -5
i understand your point godag but would suggest that at least the doctors tried to save your mom. from an emotional stand point i could not imagine watching my spouse die before my eyes while doctors refused lifesaving treatment. to me thats a critical difference. if he had at least been treated then it wouldn't be such a horrible tragedy. we are all gonna die someday, but to have your time cut short by an illness thats very likely treatable due to doctor indifference is unimaginably cruel and heartless. thats all i'm sayin y'all. can't we all jus get along lets just try to empathize with one another and support each other like always. peace out
|
|
|
Post by grady on Dec 13, 2007 13:36:09 GMT -5
ppy18, that was the point of my original rant, they do know how to treat us right now, Dr. Harvey and the MRF know how to get 90% of the people 90% better, and even the terribly sick ones, they even stated that. So now they are doing nothing. They just took their little evidence and ran off to write big important papers for big important journals, maybe they'll be ledgends in their own time.
So, when you say ...
but to have your time cut short by an illness thats very likely treatable due to doctor indifference is unimaginably cruel and heartless
The reality is you are talking about Dr. Harvey here, I have the evidence, it's public knowledge, they can bring 90% of the people to 90% or better recovery, but just disappeared. So I wholeheartedly include Dr. Harvey in this group whether the rest of the members on this forum agree or not, it is the plain and simple truth, no matter what the reasons for him doing so may be.
Meanwhile, families are being destroyed, divorce is occuring, people are dying from Morgellons (they are dying), children are being taken from homes, and so on. I know where the blame lies at this point.
|
|