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Post by in tokyo on Nov 1, 2011 1:29:57 GMT -5
Thanks Toni! Yes, it's such a strange condition. I agree that it must be some kind of spore. ...
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Post by in tokyo on Nov 1, 2011 1:26:19 GMT -5
Hi Skizit, As for suppliers, I'm not sure where you would get this in the States- it's just an ointment that combines a steroid and an antibiotic, so it should be pretty simple. I have never said anything to my doctors about what this is, but they picked up just by looking on the first office visit that it wasn't regular acne, and one of them eventually prescribed this. As for general opinion on man-made diseases, I can't really guess what people think in the countries where I'm living. But considering that Japan was happy to turn a blind eye to very-likely-radiation-contamination, I would assume that scouting out more obscure risks would be unlikely. On the other hand however, "Sick House Syndrome" has been big in the news for a few years in Japan, and describes like what we have, itchy skin, lesions, fatigue and all. Local government sites generally have an information page posted about this. They advise cleaning, opening the windows, and not spending a lot of time at home.
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Post by in tokyo on Oct 27, 2011 10:13:33 GMT -5
Hi Lynn, Thanks for your reply! Just to simplify my post for everyone- what I am emphasizing here, is to try a Hydrocortisone-Terramycin (Oxytetracycline) ointment. It really works great!
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Post by in tokyo on Oct 27, 2011 10:09:52 GMT -5
Japanese housedust would seem to have little importance for those of us not living in Japan. However, for the record, sharing my info. I first got Morgellons while living in an old, incredibly moldy Japanese house. (Tiny mushrooms would sprout in my shoes overnight, my photos molded together, etc). When I got sick, suddenly this apartment was absolutely full of long fibers, as was my skin. I had to dust every 2 hours- but then more would be there. This apartment also had the complication of biting tatami spider mites. Mold and mites are common in Japan. This was in Tokyo. Recently, I returned to Japan, this time in a very rural, southern island. I was quite healthy and had the Morgellons nearly under control. Entering my apartment, I could see that once again, the corners and cracks were full of fiber dust. Sure enough, within 2 weeks the Morgellons was back. I was once again pulling tangled cocoons of fiber balls from my skin. Why is this relevant? Because it suggests the scenario that our fibers could be as simple as some kind of normal, ambient fungus dust that has perhaps made its way from Asia. I found comfort in that.
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Post by in tokyo on Oct 27, 2011 9:39:49 GMT -5
Hello, I've had morgellons for 6 years now. It is finally at a managable point, where there are even some days that I can go without makeup, and the house isn't full of fibers anymore. What works for me: 1) I went on a very strict elimination diet at the beginning, which was called the 'King Diet', by a man named Richard. I don't know if this can still be found online. 2) I totally cut out all sugar for ~1 year- including fruits and juice. This was a huge help, and finally got me over the hump of the illness. 3) I followed the advice of BlueSkiesJohn on this board, regarding herbal supplements. 4) I did a 4 month round of Accutane. This eliminated the morgellons' ability to grow on my neck, arms, back, and stomach. 5) I have done many rounds of antibiotics of various sorts. What seemed to have the biggest effect was Dicillin, though success is limited and short-lived. 6) I followed Richard's advice via the King Diet, and also advice from others on this board (thank you!) regarding how to clean the house and do laundry. Swiffers and Borax are great. 7) Finally- and this is a BIG ONE!!! I found a perscription ointment that really knocks these spots out. It is a Hydrocortisone-Terramycin (Oxytetracycline) mix. I don't know if this is sold in the States. It is sold in Europe, and it is so common in Asia that there are several (European) brands available, for walk-in purchase. My dermotologist has me use this ointment on the spots 2 times a day for 10 days. After 1 day, the redness is gone, after 2 days, the spots are inactive. And after 10 days, my skin is clear. Furthermore, they are less likely to come back! I am careful not to overuse this, because I don't want to develop resistance, and also because steroids on face skin are not a good idea. Anyway. That has been my ticket to (nearly)freedom. I greatly wish you all equal success. This is a horrible sickness and we are totally left to our own devices to solve it.
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Post by in tokyo on Jun 18, 2010 10:49:28 GMT -5
I don't come online everyday, so have just noticed Lilsissy's absence. I hope that she comes back. I always really enjoyed seeing the diverse stuff she was able to find. Her hard work in scavenging for interesting things to talk about really gives something to many of the rest of us, certainly I've enjoyed reading her posts.
For those of us who aren't interested in something another person brings up, what's great about a message board is that we don't have to read that message. That's why messages have convenient subject headings. I find it sad when mean comments and arguing are unnecessarily introduced.
I hope that we won't let her slip away. That would mean that the strategy of making critical comments wins, and a safe sense of community loses. And that's a loss for all of us.
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Post by in tokyo on Jun 18, 2010 10:32:45 GMT -5
I experienced the same yellow dust on 2 occasions. One led to 2.5 years and counting of vicious scalp infection. The other time I experienced it, I headed to the carwash to take the stickiness off of my dark car. While polishing it, I saw a spider on its strand of silk drift through the air, and land down across the car, right in front of me. The silk strand baked onto the warm surface of the car and stayed. It stayed there for 6 months in fact- and was the thickness of a fiberoptics fiber. I was able to chip some of it off with my fingernail, but other parts of it stayed through weekly washings and highway driving. The fact that a single strand of spider silk would be that thick says something sad.
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Post by in tokyo on May 11, 2010 10:37:56 GMT -5
Thank you for being so active and so smart! I am not pulling my fair load here. One day this thing is going to be solved by you guys who are here, exploring, searching, and putting together these small bits of information.
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Post by in tokyo on Apr 29, 2010 6:49:31 GMT -5
Thank you for recommending those movies, and the website. It's led to hours of entertainment while doing stuff around the house. How sad the stories of the farmers were. Essentially, I guess they're in the same boat as us- with things going unexpectedly wrong. I hate to see it happening to anyone. Especially these older farmers who have worked their whole life on the land providing for us. And I don't know if many of them would come online to discover a community like this and find others in the same situation. I'm grateful to the documentary makers, and you guys, and anyone who can keep spreading the right story.
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Post by in tokyo on Apr 29, 2010 6:43:54 GMT -5
Thanks Bonnie, I really enjoyed watching those videos! It's uplifting to see something so simple that works and makes a huge difference. Maybe solutions to a lot of sicknesses can be like that if there are just people out there who are able to find the answer. What an inspiring medical effort they're involved in. I've passed it along to friends.
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Post by in tokyo on Apr 29, 2010 6:36:23 GMT -5
CARPET BEETLES. I hate them. I have very limited exposure to carpet, but when I do, they come right for me and burrow into my skin with bites. I've had them burrow into my back and my ankle. Then later, from those same raised spots, a very tightly woven cocoon, about 1/4 inch long, will come out. I saved some of these cocoons. One morning, I woke up with an itchy feeling and found one on my arm, moving its mouth suckers as if it was feeding on something on my skin. Later that day I was on a long metro ride, and my nose itched. When I finally got home and was able to do something, I pulled out an inch long white chain of cocoons from the nostril! How horrible.
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Post by in tokyo on Apr 26, 2010 13:40:11 GMT -5
Hey, that's interesting! That makes several of us just in this thread that have experienced more insect-things in the beginning of our sickness. I used to be able to watch those black specks emerge out of my palms after washing dishes in hot water. I could sit and pick them off one by one in the sunlight. I counted 60 one time. Under the microscope they were a twisted mass of stiff black fiber thorns. Another terrifying thing was checking the dryer lint after washing laundry on hot with ammonia: I'd get these crusty black roach-leg things on the lint screen, 1 to 1.5 inches long. I don't have many of the crispy black insect things anymore, just the fibers. When I first got sick I was being actively bitten by mites, that normally live in the gardens and fields here. Now, I take a lot of effort to avoid coming into contact with insects, because as we know, they head right for us. Maybe less exposure to insects has allowed the black things to stop?
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Post by in tokyo on Apr 26, 2010 4:50:44 GMT -5
Hello, I just posted this thread in the 'What you can do' section. But I'm not sure if we all visit that section regularly, so thought I'd put a mention in here too. I know there are some good artists on this board, and here's an easy, quick, free opportunity to send in a couple prints about Morgellons! Also those of us with microscope and skin pictures: Take your photos, put a tag on it about morgellons, and send it off. It's easy, free, and we've got a great topic to add to the exhibit. "Postcards To the G8" -- A Call for Entry A Visual Arts Show open to Artists around the globe set to coincide with the 2010 G8 Summit Organization: Muskoka Arts & Crafts Show Dates: June 5th - June 30th 2010 In response to the 2010 G8 Summit being held in the Muskoka region of Ontario, Canada, Muskoka Arts & Crafts is inviting artists worldwide to submit postcard sized pieces of original artwork, dealing with issues of political concern, to a show called, 'Postcards To the G8.' While the leaders of the world will be bringing their own agendas with them, the idea behind this show is to ask the people, 'What issues are important to you?' The installation will be on display in public places throughout the region and will run concurrently with the summit. Each submission to 'Postcards' must be an original, unframed work on paper exactly 4X6 inches in size. The works may be carried out in any medium. There is no restriction on the number of entries allowed, and there is no entry fee for this show. Mail: Muskoka Arts & Crafts P.O. Box 376, Bracebridge ON, Canada, P1L 1T7 email: postcardstotheg8@gmail.com web: bit.ly/postcardstotheg8 twitter.com/PostcardstoG8 E-mail: postcardstotheg8@gmail.com Website: bit.ly/postcardstotheg8
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Post by in tokyo on Apr 26, 2010 4:44:48 GMT -5
I'm guessing there are some good artists on here, judging from the always entertaining images included on messages. And also for those of us with just a microscope: here's a nice opportunity to make some 4 by 6 inch prints of morgellons and send them off to be viewed at an exhibition: "Postcards To the G8" -- A Call for Entry A Visual Arts Show open to Artists around the globe set to coincide with the 2010 G8 Summit Organization: Muskoka Arts & Crafts Show Dates: June 5th - June 30th, 2010 In response to the 2010 G8 Summit being held in the Muskoka region of Ontario, Canada, Muskoka Arts & Crafts is inviting artists worldwide to submit postcard sized pieces of original artwork, dealing with issues of political concern, to a show called, 'Postcards To the G8.' While the leaders of the world will be bringing their own agendas with them, the idea behind this show is to ask the people, 'What issues are important to you?' The installation will be on display in public places throughout the region and will run concurrently with the summit. Each submission to 'Postcards' must be an original, unframed work on paper exactly 4X6 inches in size. The works may be carried out in any medium. There is no restriction on the number of entries allowed, and there is no entry fee for this show. Mail: Muskoka Arts & Crafts P.O. Box 376, Bracebridge ON, Canada, P1L 1T7 email: postcardstotheg8@gmail.com web: bit.ly/postcardstotheg8 twitter.com/PostcardstoG8 E-mail: postcardstotheg8@gmail.com Website: bit.ly/postcardstotheg8
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Post by in tokyo on Apr 8, 2010 16:40:30 GMT -5
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Post by in tokyo on Apr 8, 2010 16:37:30 GMT -5
"new" equals "good".
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Post by in tokyo on Apr 8, 2010 16:30:37 GMT -5
Hey, if it's New, it MUST be Good!
I want More New Stuff!
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Post by in tokyo on Apr 8, 2010 16:17:44 GMT -5
That makes sense with how they actually opened this article. Most of the article is about him searching for new organisms, but then for some reason they preface it with this paragraph: Title: "Voyages of Discovery" Paragraph 1: “Research on sharing the same virtual space from multiple locations -- also called tele-immersion -- began in the late 1980s,” explains Prof. Tanaka. “However, past 3-D objects have been surface imitations, with participants able to change only the color and direction the object was facing. We’ve been aiming for an interactive object packed with internal content.” Then they go on to talk about microorganisms, without actually explaining what they mean by "internal," "sharing," or "interactive". Keep in mind this is on the intro page for a major university, so this is information being presented officially to the public.
If we're the new breed of science creatures, they could at least give us some cool silver vinyl suit to wear instead of a face full of bleeding lesions.
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Post by in tokyo on Apr 8, 2010 2:27:00 GMT -5
I think it would be a great, really successful idea, and would probably be a full cafe. That said, I think I would be nervous to go as well until we have answers about what it is that we're picking up, and how. But not everyone reacts with the same nervousness, and after a while with this sickness maybe you just have to say enough's enough and take some risks. You could serve strong chai brews and olive leaf tea.
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Post by in tokyo on Apr 8, 2010 2:22:18 GMT -5
(I modified the title to make it more appropriate). Anyway, the photo with this article looks exactly like our fibers. It's important that he says it's a totally new type!
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