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Post by itchin4answers on Nov 28, 2012 18:52:24 GMT -5
OMG they move like they're trapeze'ing through the hair. I know (trapeze'ing) isn't a word, but....that's the best way I can describe how they move from hair to hair No, I think trapeezing is a very apt description. It seems I'm the only one who sees independent fiber movement in my vid. I feel I see the fiber pull a wrap move, completely encircling a hair follicle, at one point. On multiple occasions it goes into "hook mode" to avoid being freed of the hair. I think I see the fiber pulling hair follicles together with either it's power or the goo action. I see the fiber enter and exit a goo coated hair follicle right in the middle of the follicle. I see it partially penetrate other follicles. I can't decide if I'm watching goo production happening in real time or not, but I think I am. But I may be oh, so DOP. Did you guys watch it on a big monitor? I think they trapeeze around my mop, in and out and between hair follicles, with purpose in their process. Anyways, thanks for the honest feedback, I like to present this type of thing to others in an effort to keep my feet on the ground when my M observations and theories get too out there. Threader, Just wanted to say that I haven't watched the entire video. I think best not for me right now, you know trying to stay calm about it all. Thanks itchin
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Post by itchin4answers on Nov 28, 2012 18:24:29 GMT -5
Hi Threader, Jealous of your scope! I saw that thing move too, first at around 26secs, look at the bottom tip and you will see it moving ever so slightly from side to side.. Trapeezing is so TRUE! I read an article on head lice a couple of years back and head lice are known to trapeeze from hair to hair and that is how they jump around little kids heads. Ouch something is biting my leg right now! serious. Whenever I go out in public things are at me. Yesterday afternoon my son and I had an appointment, we were in the building an hour and William came out with 2 bites and I couldn't stop fiddling with the lump on my right knee the entire time.
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Post by itchin4answers on Nov 28, 2012 18:14:18 GMT -5
Hi Itchen I watched the video earlier today and then had to run and wanted to try and finish it but want to thank you for posting this. Hope it gets more recruits or positive action with the medical community. In Light Lynn/TorpedoLynn Hi Lynn, When I posted the video I'd only watched the first 5 minutes and had to run to an appointment. I watched it all in full last night, came down to the Library after tea. I had to hold my tears back. The video is excellent, the cold hard truth and when I get a moment I will try to find out who the heck the CDA or whatever they call themselves are. I reckon the Government are making up new "bodies" of so called people to keep fobbing us off. Dr Ladhams, what an absolute gentleman, my friends Lyme doctor and he is getting her well! I so wish other doctors Australia wide jump on board, please doctors you have too because I would hate to see this happen to your child. Thanks itchin
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Post by itchin4answers on Nov 27, 2012 22:32:38 GMT -5
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Post by itchin4answers on Nov 27, 2012 22:09:56 GMT -5
You guys! Thank you for all the support and appreciation. It's nice to see. I woke up feeling low today and seeing this rally for my work has made me teary-eyed. I've still got some more paintings in me and I plan on hammering the point further in the future. Much love to all. —Ayla Hi Ayla, I have been pressed for time lately, which you know is a good thing! I look forward to having a little more time to read the entire link with your paintings. I have posted on my Facebook page and asked for people to please share far and wide. I am Sarah Connor in Melbourne Australia on Facebook. Again, thank you. Love itchin
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Post by itchin4answers on Nov 27, 2012 17:23:18 GMT -5
Here it is!!! the video from the Lyme Disease Protest Brisbane.
QLD's FIRST LYME DISEASE PROTEST - NOV 2012- BRISBANE- BEC MILLS
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Post by itchin4answers on Nov 25, 2012 20:16:20 GMT -5
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Post by itchin4answers on Nov 25, 2012 20:12:21 GMT -5
Hello Itchin, what treatment are you doing? Be very careful of treatments by doctors that send your readings through the roof, some times, many times they cause more harm than good. I am personally dealing with just such a case right now, a lifelong friend did the new treatment for hep C. His platelets took a hike, twice now His stomach swelled to a huge size and now he has a baseball size growth and growing on his liver. The doctors will tell you the good, they seldom tell you the risks. This fellow was doing just fine before this, now he can barley walk and moans all day and all night. The doctors suggest all this stupidity to a person operating at 80% and now he does not operate at all, its sleeping, blood transfusions and hospital stays for him. I am not trying to scare anyone, it was just such thoughtless thing to do, the risks not worth the reward, this man would continue taking treatment untill he died on the doctors mouthing what he assumes. Be careful, we are no more then test subjects to these white coat killers. Hi Baraka, Thank you for sharing about your friend, that is truly terrible to hear and I can only imagine how you must feel to witness this happening. You make a VERY valid point. I will first say I am grateful to have a Lyme doctor (even if he is interstate) that BELIEVES me. In saying that, yes I totally agree with you that at times the treatment can kill. I experienced that in 2006 having IV treatment and the doctor back then admitted I was dying, so perhaps we stop the IV!! Ok, my current treatment for BARTONELLA HENSELAE is Rifampicin 600mg a day. Doxycycline 4 tablets a day (I think they are 100mg tablets) and I know that the 4 tablets a day is the highest dose. Also Plaquenil 1/2 a tablet twice a day. A friend of mine is about 7 weeks ahead of me with treatment, he weighs 105kg and he struggled. I am around 56kg - so I'm almost taking an elephant dose. Things have got rather confusing and I did say on another thread about menopause. Well I borrowed a book from the Library and bingo I have been perimenopausal for years. The white coat killers chose ANTIPSYCHOTIC injections via a court order for me. Didn't believe in LYME and they sure DID NOT BELIEVE IN MY HORMONES. These ding bats all suffer from "the world is flat syndrome". I mean, how would it be to pull a big fat pay cheque every week and all you've done is confuse the public (patients) and contributed to destroying peoples lives!! That is how I see it, because that is exactly what has happened to me. So, yeah as I was saying perimenopausal for years, and I was passed off as a nut case, AS WELL as having Lyme and our good friend Morgellons!!!! So I'm here - change of life, and boy I'm HOT and not as in sexy...LOL and my sleep well I'm thumping myself with Endep (antidepressant) for sleep issues, but then I wake 4 hours later walking the house all hot and bothered popping Valium in a desperate attempt for more sleep. One becomes obsessed with sleep (naturally) when sleep is very disturbed. I will endeavour to find a clinic that deals with Women's health as my GP was less than sympathetic and said "you're lacking Oestrogen, basically no big deal"...huh?... Thanks for listening. itchin
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Post by itchin4answers on Nov 25, 2012 19:55:02 GMT -5
Hi Acacian... The paintings are all done by me, from scratch, with oil paints. The lesions are painted on. The only piece of artwork in which the lesions are photoshopped in is the awareness poster at the very bottom of the page at this link. morgellonsdiseaseawareness.com/awareness_posterAfter creating the poster (it is the one with a lot of text), I felt the images would be more effective if recreated in entirety with expressions modified and background elements included. —Ayla Dear Ayla, OH WOW! you have amazing talent (understatement) how gifted you are. The 3 dimensional effect is absolute brilliance! Thank you Love itchin
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Post by itchin4answers on Nov 24, 2012 22:52:39 GMT -5
Hi folks, Me again, have to make this quick only 10 min internet at the library today. I have NO news to report on the rally, sorry. Apparently, this is via an sms from sheredelight, there was NO TV media at the rally. What a surprise As for how I'm doing - my liver function tests were through the roof. I may have to slow my treatment down, still waiting word from the doctor. Helllooooo doctor I'm a waiting.... Anyway, must fly, miss my internet soo much coz I get lonely. Love you all itchin
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Post by itchin4answers on Nov 23, 2012 0:27:01 GMT -5
Hi Folks,
There is a Lyme Protest happening right NOW as I type in Brisbane Queensland. My friend, sheredelight is there and I know she will give it all she's got, go girl friend!!!
I will be back with any further updates.
Thank you itchin
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Post by itchin4answers on Nov 20, 2012 21:01:00 GMT -5
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Post by itchin4answers on Nov 18, 2012 23:14:18 GMT -5
Violet, As I stood up to walk out the library I suddenly realised my PAIN! so I came back to write you quick. I have the worse pain in my gluteus max, my butt! yep a horse has kicked me for sure. The pain makes me cry out when I want to roll over in bed, yes knees too, all my joints. My neck talks too. I'm not heavy at all, trust me, I've lost a heap of weight, I'm all bone, but eat like a horse. ;D itchin Our pain may be caused by all the inflammation going on inside us from morgs. Do you have high markers for inflammation shown in your blood tests? Mine have shown major inflammation from extremely high white blood cell and platelet counts. Anyone else have these? No high markers Violet, not that the doctor has looked I don't think. I had bloods today, the nausea is profound so checking my liver function. This is no way to live. Sorry this is on the compass thread. Thanks itchin
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Post by itchin4answers on Nov 16, 2012 21:40:24 GMT -5
Itch, I had a thought that might help you with your nausea. Have you ever tried ginger in any form? You can make ginger tea, for instance, to help calm your stomach. I like to keep pickled ginger on hand in the refrigerator to eat if I get nausea. It is just delicious as a snack. It also has of course vinegar in it which is good for our condition. You might try it, but if you get it BE SURE to get organic so it doesn't have a lot of additives. I think people eat this kind of ginger with sushi (is the right, sushi lovers?). Bananas are another thing that helps nausea. I think oatmeal is another thing that can help. And of course, eating something before taking the meds helps immensely. Hi Violet, Yes, the horse paste is Ivermectin. I just had to get past the thought of an internal horse wormer on my face. I applied the paste at night and left it on. Actually, this information came via my girl friend via her Lyme doctor. The treatment does work and I could do with applying everynight, but as I said it is working up to all these things as they are so taxing on me, mentally, emotionally and physically. Your internist and haematologist are thinking in a good direction! to have people interested is exactly what we all need. My Mum only said this morning that if I didn't chase doctors locally (which I don't) they'd forget about me and I'd be long dead. What I mean is with this nausea, I know when I need to visit a doctor and perhaps I may need liver function tests. My GP who is now a lady since my other GP is ill, she said she knows nothing about Lyme and well I'm kinda fed up to the back teeth of hearing that stupid exhause, even though it is the truth. Thank you for the Ginger tip! yep I've aleady been onto that. I got to the stage I couldn't swollen another Ginger tablets. Then a Lyme friend yesterday suggested Ginger beer. I was drinking Ginger Ale with lots of ice last night and Ginger beer in the night. Still taking the anti nausea too. I do manage to eat as I'm taking 2 different types of probiotic and diet is healthy and sugar is kinda history now. Though I lie, I had a Tim Tam biscuit last night ;D I crave things too which is weird, like garlic dip yogurt. I'm rather brain thumped, so I hope I made sense in this post! I hope things improve for you Violet, if you try the horse paste let me/us know how it goes. There is no need for this suffering, I'm sure there are meds for this, all up it's torture either way, but we got to keep laughing and smiling inbetween the tears. Hope you have a lovely weekend itchin Violet, As I stood up to walk out the library I suddenly realised my PAIN! so I came back to write you quick. I have the worse pain in my gluteus max, my butt! yep a horse has kicked me for sure. The pain makes me cry out when I want to roll over in bed, yes knees too, all my joints. My neck talks too. I'm not heavy at all, trust me, I've lost a heap of weight, I'm all bone, but eat like a horse. ;D itchin
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Post by itchin4answers on Nov 16, 2012 21:37:14 GMT -5
Beautiful song ginna, thank you I shared on my FB page.
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Post by itchin4answers on Nov 16, 2012 21:19:07 GMT -5
Hi violet, Sorry to hear of your troubles and YES I am having the same symptoms. Have been on Doxy I think 3 weeks and Plaquenil 2 and with the Rifampicin honest I don't know if I'm Arthur or Martha. The nausea turned to vomiting, and pardon me, but I don't think I could eat tomato again - for some reason the tomatoe wasn't breaking down that I'd eaten 2 days prior. This vomiting felt like it came from my toes. I got to the stage of dry wreching and hoping the Earth would swallow me up. I took the advice of a girl friend and tried Horse wormer paste on my face, it does work to break down the matrix in the skin. I've had quite a bit come out of my face, a lot of the small black fibers and black specks. The hardest part is facing this every day, and every day the symptoms change and every day I have to deal with it. I feel completely off my face and hope I can navigate myself out of the public library where I'm using the internet. I had to get some anti nausea pills from the chemist and they've made me a little drowsy. I cry easier too, and I hope to have a better idea next, though I think something major is happening with my hormones, it could be menopause. Dear God, please don't throw any more at me...lol Love itchin Itch, I had a thought that might help you with your nausea. Have you ever tried ginger in any form? You can make ginger tea, for instance, to help calm your stomach. I like to keep pickled ginger on hand in the refrigerator to eat if I get nausea. It is just delicious as a snack. It also has of course vinegar in it which is good for our condition. You might try it, but if you get it BE SURE to get organic so it doesn't have a lot of additives. I think people eat this kind of ginger with sushi (is the right, sushi lovers?). Bananas are another thing that helps nausea. I think oatmeal is another thing that can help. And of course, eating something before taking the meds helps immensely. Hi Violet, Yes, the horse paste is Ivermectin. I just had to get past the thought of an internal horse wormer on my face. I applied the paste at night and left it on. Actually, this information came via my girl friend via her Lyme doctor. The treatment does work and I could do with applying everynight, but as I said it is working up to all these things as they are so taxing on me, mentally, emotionally and physically. Your internist and haematologist are thinking in a good direction! to have people interested is exactly what we all need. My Mum only said this morning that if I didn't chase doctors locally (which I don't) they'd forget about me and I'd be long dead. What I mean is with this nausea, I know when I need to visit a doctor and perhaps I may need liver function tests. My GP who is now a lady since my other GP is ill, she said she knows nothing about Lyme and well I'm kinda fed up to the back teeth of hearing that stupid exhause, even though it is the truth. Thank you for the Ginger tip! yep I've aleady been onto that. I got to the stage I couldn't swollen another Ginger tablets. Then a Lyme friend yesterday suggested Ginger beer. I was drinking Ginger Ale with lots of ice last night and Ginger beer in the night. Still taking the anti nausea too. I do manage to eat as I'm taking 2 different types of probiotic and diet is healthy and sugar is kinda history now. Though I lie, I had a Tim Tam biscuit last night ;D I crave things too which is weird, like garlic dip yogurt. I'm rather brain thumped, so I hope I made sense in this post! I hope things improve for you Violet, if you try the horse paste let me/us know how it goes. There is no need for this suffering, I'm sure there are meds for this, all up it's torture either way, but we got to keep laughing and smiling inbetween the tears. Hope you have a lovely weekend itchin
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Post by itchin4answers on Nov 15, 2012 22:19:48 GMT -5
Hi Morghunter, And thank you for helping. Yeah...I'm just real curious because that one I had was either broken, or well, hahah I thought it was me at first throwing the directions off "possibly". Heck, I "throw" my Ohm/volt meter into numbers that shouldn't be on the volt meter, so....that too is why I am curious about the compass. Appreciate your help. Hi, Toni Lou. I was going to go look for a little stick-on compass for my car tomorrow, so I'll try to remember to test it out when holding it close to me. Also just want to mention to the group that I saw for the first time this morning black specks and little straight, black lines about 1/4" long come out of my hair when I shampooed it and when I combed it afterwards. I don't recall this ever happening before, though I have known for a long time that I surely have morgs on my head because of the itching. Just haven't seen such things come off it before--only fibers. Fibers EVERYWHERE for a number of years, now!!!!!! Many are exactly the same length and bend in exactly the same places. Identically. Soooooo weird. I'm noticing black fibers that I think come in from outside that land on the a/c intake grill and the microwave intake grill, too. Also just on furniture here and there (my furniture is white, so it really shows. Also in the corner of my kitty's eyes. This is the first year I've seen that. I have been on doxy for 3 weeks (for possible Lyme-related symptoms in my knees and hips and elbows). Just asked for another 3 weeks' prescription. Not at all sure if it's Lyme, but my internist thinks it's a possibility since so many are presenting with it this year, and the knees are one of the main places it can affect people. My knees were so bad that I could hardly walk because of the pain. Have also been "weepy" easily, as well as very shaky and not able to think straight or focus on or get some things done that I really need to do. Anyone else with these symptoms? I dread when I end the doxy because of how the morgs lesions will flare up worse than before I took the medicine. Gosh, I am really groveling tonight! Sorry. I guess I'm just trying to pass on what is happening here. Also, in some other posts people were mentioning how stringy morgs get in our intestines. I had a terrible, terrible pain in my intestines about three years ago, and then bleeding. I had a colonoscopy done, and the doctor found an area that looked stringy, with mucous. I never got any sort of inkling as to what it could be, because he just didn't know (and showed absolutely no concern). He was very distracted. Okaaaaaay, now. Enough of the down side. Is everyone enjoying a pretty fall? The days are just beautiful when the sun shines through those gorgeous fall colors here in Maryland. Hi violet, Sorry to hear of your troubles and YES I am having the same symptoms. Have been on Doxy I think 3 weeks and Plaquenil 2 and with the Rifampicin honest I don't know if I'm Arthur or Martha. The nausea turned to vomiting, and pardon me, but I don't think I could eat tomato again - for some reason the tomatoe wasn't breaking down that I'd eaten 2 days prior. This vomiting felt like it came from my toes. I got to the stage of dry wreching and hoping the Earth would swallow me up. I took the advice of a girl friend and tried Horse wormer paste on my face, it does work to break down the matrix in the skin. I've had quite a bit come out of my face, a lot of the small black fibers and black specks. The hardest part is facing this every day, and every day the symptoms change and every day I have to deal with it. I feel completely off my face and hope I can navigate myself out of the public library where I'm using the internet. I had to get some anti nausea pills from the chemist and they've made me a little drowsy. I cry easier too, and I hope to have a better idea next, though I think something major is happening with my hormones, it could be menopause. Dear God, please don't throw any more at me...lol Love itchin
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Post by itchin4answers on Nov 15, 2012 22:11:26 GMT -5
In the beginning I also developed what looked in everyway like hepatitus, I was yellow as a butter cup, they tested and I was supposed to be hepatitus free. My skin tone changed over time. My daughter was actually asked by a teacher if she had a Asia parent because of her skin tone. I am totally a white man and her mother was white as snow blond with freckels. At the same time, there was bumps all over me but they went away in a day. I saw this same issue develope on my daughters boyfriend. I also have a picture of a friend of mine that became a sailor and he also was covered with the bumps after being deployed to Asia. This is for the most part hidden away in the masses, we are the warning and they ignore it at the cost of even their childrens well being. I had the same experience, I went bright yellow, my abdomen swelled. I had a doctor tell me my liver was swollen and I was a very sick girl. The following day I had the CAT Scan and my liver was back to normal. My parents said they would have sworn I had hepatitis because that is how I looked to them. Just like all the horror symptoms, this one passed too. As much as I hate the brain fog, at times it can be a saviour because the harsh reality and trying to fathom what has happened to me is enough to make me fall down and never stand up again.
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Post by itchin4answers on Nov 15, 2012 22:06:37 GMT -5
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Post by itchin4answers on Nov 15, 2012 3:23:58 GMT -5
Itchin', You just needed to add a comma: " We're DYING, A Holes!!! " There is nothing wrong with us being angry about our situation. Thanks bb.
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