Violet, so sorry you have this horror, but welcome to Lymebusters. Everyone here seems to be afflicted with the same symptoms, so we do understand your suffering.
Bannanny, good going and thank you for sending images too.
I swear this has been one of my worst days in a long time. I guess it's just that some days are harder to bear than other days when we get a tiny bit of relief from our symptoms.
I've always known that there were tiny holes near my facial lesions, sometimes, as many as four to six.
As Suebe described the staple look I realized that's pretty much what I see to a lesser or greater degree. Today I noticed there was a hair sticking out of one of the holes near a lesion and I plucked it and felt movement in the lesion. End result, the tunnel that connected the in and out hole, breathing hole, whatever it is, contained two black cat hairs. Cat hairs are so easy to identify, especially from black cats and we have two.
Anyway, the lesion is horrible and at times my entire left jawbone hurts.
Feeling very discouraged today and news from a friend made me feel even worse. He asked the doctor he saw today to follow a simple protocol and do a skin scraping to be sent for examination and the doctor laughed at him. This man is in so much pain with his hands he's miserable and black specks come out of his hands-fingers constantly. I'd like to slap that doctor up side the head.
That's my rant for the moment. (I love you too, Bannanny...hang in there and if you don't feel like doing anything, just don't.)
Post by robertalouise26 on Jun 18, 2008 0:22:18 GMT -5
Dearest Sid I am sooo very very sorry that you are going through this rough patch, please remember that there are better days ahead I have Kyras hair coming out of my skin. What happens is that in any one place the itching hair come out of my skin usually three or four when they are all out the itching stops for the time being. I firmly believe that both Ayla and Kyra had or have a mite on their hairs and that they attack us and bury themselves under our skin and then for some reason they decided that they want to exit our skin and cause this terrible itching and lesions. Hope this bad day passess quickly Sid. Much much love and hugs. Robbie
I hope you feel better very very soon Sid....... you do so much work and are always helping the rest of us. I'll say x-tra prayers for you tonight along with the one I just said for you. Get some rest as I'm sure it's much needed, and you don't do anything either if you don't feel up to it. There's nothing you need to catch up on....... you're way ahead of the game already!
Big hugs ~~ bannanny
IF I COULD SIT ACROSS THE PORCH FROM GOD... I'D THANK HIM FOR GIVING ME YOU!
Remember Toni-Sue's ugly critter with all the wild hair-like things sticking out of it as well as the forked tail? Well, Hello! I swear I have an identical one that came from a facial lesion today after much work getting it and a snarl of black hair out. It's truly hideous, and I think it must not be fully developed although examination under Toni's scope will reveal the truth. I'm mailing it to her tomorrow for Kodak Moments.
Today was even worse than yesterday, but will spare you all the details. Suffice to say, Morgies have enough trouble thinking for themselves, but when they have to think for their spouse too, it's enough to make us run screaming. (or maybe run away from home.)
The mind is a precious thing. To watch a loved one slipping is sheer torture.
So, cherish the good times and try to maintain your sense of humor and patience if this happens in your family.
"I believe there is no source of deception in the investigation of nature which can compare with a fixed belief that certain kinds of phenomena are IMPOSSIBLE." -William James
Post by flyawayredbird on Jul 10, 2008 23:25:18 GMT -5
OH My....today is my first day to be here and post. And I want to say thank you! Thank you for whoever put this site up....thank you. I feel like I' am not alone now. I feel like there is hope.
On March the 8th 2008 I lost my life.....and I want it back.
We stayed at Yellowstone Park at a hotel in Gardnier. My life has not been the same sense that night. Around 2:00 am I felt a bite in the pubic area. I went to the bathroom and saw nothing.
My husband and I have not slept together sense Feb. so that night we were in separate beds. He was the blessed one. He has nothing, and I' am glad he doesn't. I don't think he could endure the pain very well.
I had contacted scabies in the past, so I felt that was the problem after the intense itching begin.
Then it began. Not a doctor one here in Montana, believe I had scabies. After begging, I finally received medicine. But nothing seem to work. Not even Lindane.
By this time, my husband is convinced this is all in my head. We have only been married for 4 and half years.
Because of March the 8th, I' am so sad to say, we are now going to get a divorce. He has not been supportive at all. In fact he has made things even worse. Telling the doctors I' am crazy and telling my kids, not to mention he tells me every single day this is all in my head.
Not only do I have to deal with the agony of the parasites, but now I have a divorce to go through now.
How much more can a person take? I said I would quit saying that because every time I say that.....it get's even worse.
The crawling, biting, stinging...and mostly at night when I try to rest. The pain at times has been so unbearable, I begin to think of ways to end my life. But this is not suppose to be the way my life ends. It just can't be this way. I want to live.
I have all the signs of Morgellons, but the only thing, I don't have black fibers, although I have tiny white cotton ball like fibers that appear on my skin for no reason. I have very little rash.
Every three to five days, I have what I call a break out. Then it is very intense. I have tried everything, and I mean everything. I have spent lots of money trying to find what ever I thought would help.
I just want to say thank you for being here, and I' am praying for all of us.
flyawayredbird - Welcome! I'm sorry you had to find us, but glad you did. It's a triple whammy - no help from doctors, hardly any support from family (if any at all), and the personal horror of the affliction. Not only no help, but actual harm from most doctors. But you are not alone...everyone here knows how you feel and will give you support and can make suggestions about ways to try to care for yourself so that you can be more comfortable. Relax if you can, and read the areas that are most relevant to you now - ex., the supplement area. Where do you live? Bessie
ChasSansc2: What does this all mean? I would suggest that anyone who has Morgellon to add 1 cup of LEMON JUICE to every load of laundry they do, start drinking lemon water and maybe even start taking baths with at least 2 cups of LEMON JUICE in it.
May 18, 2019 21:54:45 GMT -5
ChasSansc2: I used straight LEMON JUICE on my body, as well as Bragg's Apple Cider Vinegar. A word of caution, LEMON JUICE on the face can feel like Mace (it burns), so, you may want to dilute it before applying the LEMON JUICE soaked wash cloth.
May 18, 2019 21:57:23 GMT -5
ChasSansc2: Great - this won't let me scroll back up - STUPID.
May 18, 2019 22:00:11 GMT -5
poi.k,hjmv: I applied to this forum 2017 and still not approved why not tell them they are not approved??? you must enjoy seeing peoplesufferandleftfordead RUDE
Jun 25, 2019 22:03:42 GMT -5
prson who agrees w poi.k,hjmv:: LOL @ poi.k,hjmv. . . so far same here. but hopefully not for TOO long
Aug 12, 2019 3:35:04 GMT -5
thinkwithwomen: what are women have health & fitness issues:)- we understood the importance of women health and fitness.we will discuss and share fitness stories and success stories we taken care of women for the age like premature and mature during pregnancy
Nov 22, 2019 6:11:16 GMT -5
DAC: I have it, but it's not real bad for me yet. I do not have any sores on my body, but the stinging and moving under my skin is very bad. I had a friend who died from this. He got it from cutting down a tree by the airport. He
Dec 25, 2019 5:25:05 GMT -5
Aitche: Check out images and videos of trichinosis think you will be
Jan 22, 2020 7:29:49 GMT -5
does lymes make ur bones hurt : does lymes make ur bones hurt when u breath
Apr 6, 2020 18:47:27 GMT -5
guess who guess who: Hello to my old friends. I
Apr 19, 2020 12:00:34 GMT -5
guess who guess who: I run
Apr 19, 2020 12:01:00 GMT -5
guess who guess who: I sure didn't know if people were posting here in 2020.
Apr 19, 2020 12:03:17 GMT -5
Pipster: I've had success w/antifungal remedies...after trying others. The bugs might be fungus drawing them in? GMO's are made with a fungus that bonds the DNA of one species to another. Mild fungal & parasitic infections worsen w/EMF waves...weaken immune system.
May 2, 2020 1:01:44 GMT -5
Pipster: It is fungal related and many natural, antifungal remedies work best. It takes time but don't give up.
May 2, 2020 1:04:14 GMT -5
lydski: I sure miss learning from many of the old members like Toni, Sydney, Abbienormal, Bananny, .
May 20, 2020 0:17:45 GMT -5
carnesmt: Anyone still out there?
Jun 30, 2020 22:08:51 GMT -5