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Post by jody on Nov 16, 2005 12:13:38 GMT -5
TONYM, i was itching so bad on my scalp and shoulders and the crawling, i tryed alot of thing but i put on asprincream/arthricream rub.....it helped take away the crawling,i then went to sleep what a relief don't know how long it will work.
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Post by TonyM on Nov 16, 2005 15:13:10 GMT -5
Jody, Thanks for the info....I will try that soon. God Bless
TonyM
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Alex
Junior Member
Posts: 52
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Post by Alex on Nov 17, 2005 5:59:33 GMT -5
I hope anyone who has recovered or has reduced their symptoms as much as you described will contribute the details of their symptoms and remedy to the survey. If you put remedy information into the database, then more people will see it, try it and hopefully update their data in the database to verify the effectiveness. Today the total number is 130 people that have done the survey and none of those has recovered 80 % or better. I have lots of data on symptoms that is very consistant. I need more data from people that have recovered 80 to 100%. The new improved survey is going to be ready soon and people will be able to update their data and more details where it was lacking in the first (current) survey.
Alex
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Post by TonyM on Nov 18, 2005 20:26:51 GMT -5
Alex,
I have recovered about 85% I'd say. They are still with me, but not to the extent of being stuck in my home 24/7 now. No sores means better living I think. I put my remedy on here...see above post --> Re: Symptom, source & remedy database survey « Reply #79 on Nov 16, 2005, 7:16am » - So, now I'm working at a regular job now, and things are SOoooo much better for me. I figure....if I was gonna die as a result to having them on/in me...it would've happened already....I'll go when It's my time and not until then, dang it!!
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Post by Ms. Kitty ( kraz as a kat) on Nov 19, 2005 15:56:10 GMT -5
I need this survey for the presentations I am putting together, on the colored map, you have a chart ofr duration??? I need more explanation on that years, months??? I need to know ages, RACE, male ,female, education, income bracket, occuptation, how long they have had it, stae and city or county they live in, this is very important info can anyone help make this clearer and email info to me duckdoctor@peoplepc.com ladyCop10
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Post by flutterby on Nov 20, 2005 9:17:53 GMT -5
Good Morning, Great information from all of you, thank you. We are all aware that this creepy disease has a cause it's being swept under the rug, so to speak. Sometimes I feel so angry, especially if I am having a severe outbreak. To "Intuitive" I agree with the shameful truth contained in your post. It is a Wake Up Call for those responsible, to face the music and realize a lot of people have "Fudged" up in a big way and Morgellons is serious, infectious disease. What steams me up, is when I see "Multi-Billions" of Our American Dollars appropriated for every nation other than ours and at the same time FEMA goofed by overpaying some assistance in New Orleans, but some people still remain in a desperate situation, God Bless them and the Food Stamp Program will be slashing it's expenditures and "Literally Take Food From Our Children's Mouths," as they blow our deficit out of the water. Yes, our government has full knowledge of everything you mentioned in your post, Intuitive. I made my first contact with the Florida Health Department in January, 2005. I have been very sick form this "Mutated Mess" for just about 4 years. I did recieve a telephone call from the Health Department and he, at that time, knew I had Morgellons, as my symptoms presented, however, did not tell me "The Secret Weapon" that has been released on us, but told me to try to see my doctor during an outbreak and take photographs to give yourself credibility. At the time, I didn't realize that I needed credibility to substaniate the "bizarre symptoms" as we all told doctor after doctor a "Twilight Light Zone" story of Morgellons. Like all of us 95%'ers, who have been told we are "Delusional." My body continued to sicken and again I contacted the State Health Department on August 15th of this year. This time I was advised that "We know about Morgellons, but unfortunately, there has not been a lot of research into the disease." The letter then directed me to The Morgellons Research Foundation and it would be my best source of information and I'm sorry, I have nothing else to offer you." I took my photos to several doctors & when I asked their opinion of the wild dancing hairs sprouting fiercely thorough every pore and orafice in the human body, black specks, white specs, lesions, etc. the response I received from the couple of doctors who examined the photos, was, "Oh the photos were a little blurry, I really didn't see anything." Anyway, sorry, I know I ramble on, but, you all are a major part of my strength to fight this thing & try to make our Senators & Congressman aware of the absolute necessity that, "Hey, Guys, remember me?" I'm one of the good guys, we need money for research, treatment, cure, but most of all, The Truth. My husband & I began the silver, copper & many other minerals, as mentioned above. Also doing a Candida Cleanse and we are 'Juicing" fresh organic veggies, fruit, throw in a couple fresh raw cloves of garlic to your "Juice of Choice" at the moment. Taking calcium, selenium, etc. Tea Tree Baths. I do feel more alert & have more energy but my body still hurts and tonight I felt like Lon Chaney, as his terrified face watched his body mutate in front of his eyes, as I had a horrendous "Morgie Hair" outbreak. Out of the shower and I could feel my back beginning to get that buzzy, tingley feeling as the hair covered my back with long hairs, totally covered. I freaked. They were sprouting at an unspeakable speed & growing so quickly, I swear I could feel them blowing around my back as I walked through the house. Facial hair, the feeling of the hairs on your head feel like they are just popping & seperating into different directions of Morgie Growth & watch them twist all over my body. I just could hardly stand it. I cried hysterically, shook uncontrollably, nausea. A hairy chest................I'm a woman. Just out of control. Again, I apoligize if I am rambling. I believe I needed desperately to "vent" God Bless you all. Thank you for your support and understanding. Don't know how I could fight this "thing" without you all. Gotta Love You Guys, flutterby
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Alex
Junior Member
Posts: 52
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Post by Alex on Nov 23, 2005 3:19:17 GMT -5
WOW....flutterby.... Sometimes I get kinda numb to my symptoms...although I know it's not going away and may be doing damage to me where I can't see or feel it, I still act and react somewhat normally. I laugh about the news on TV. ...what stupid thing did "W" say today...I yell at my dogs for barking at me when I know they know it's me at the door. but your post reminded me of the horrible stuff we all walk around with everyday while appearing normal to most people and most doctors even. It hurts to be called a liar when you are not and when you ask for help and are told you don't need help. Today I took a close look at the corners of my eyes near the tear ducts because it was itchy and discovered the little gland there is packed full of the hard sharp white stuff and "hairs" sticking out of it and irritating my eyes and eyelids....on the INSIDE!! But it wasn't until now several hours later, while reading your post, I found that my tear ducts still work. Maybe it will help. Alex
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Post by flutterby on Nov 30, 2005 19:44:55 GMT -5
Dear Alex, Are the white objects in your eyes at all round. I have had inside and outside corners of both eyes, just full of what looks to me, as eggs. Round, white and many. My eyes have been infested with the eggs for amost a year. I also have them insider upper & lower eye lids. If I pull my lower lid out, they are lying in the crease of my lower lid and eyeball. Scary. Alex, God Bless, I hope it works, too. All My Best, God Bless us All, flutterby
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Post by Newby on Dec 2, 2005 12:34:49 GMT -5
November 30th was my birthday and it was the saddest one I've ever had. I had hoped that this would be about over. I was really praying that I could go out, walk and see like I did 2 years ago. Be able to have fun, etc. Instead, I have worms inside and out, lesions, bugs and God knows what else. The scariest times are when I can't breathe, have to make myself breathe. No being able to swallow anything for hours is no fun either. I just found out that my daughter is having another child. I hope that I will be around to see her. I lost two cats this year, one 15 and the other 20 and now my boys (cats) 5 and 6 have this too. I am, by the way, taking supplements and antibiotics and following suggestions from others as well as my own. I pray for us every day.
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Post by jody on Dec 2, 2005 17:18:22 GMT -5
newby i think my daughter has this now.she is having a very hard time.she just stoped working.she is having a hard time breathing,and she chokes.she is only 31yrs old didn't even get married yet or have any kids,she lives with me.i think this is the way they want it to go who every made this. knew it would make us so sick we could not work.and if we don't work our country wll be in a lot of trouble..in god we trust there is no other way im having a real bad time now my sugar is so high because i have a lot of infections, my scalp is so bad....ps happy birthday ;D
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Post by Newby on Dec 3, 2005 6:28:23 GMT -5
I'm sorry that you and your daughter are in trouble. If you are able, artemisinin, silver and sulfur should help. As you know, there are posts with really good regimens and tips. When unable to breathe, Benadryl (children's liquid) really helps, and for me a life saver. Your daughter could be suffering from an allergic reaction to this plague. I believe that is what happens to me. She should also drink a lot of water which will help flush toxins out of her body, as well as keeping the phlegm more liquid and easier to cough up and out. As for the scalp, it's totally unbelievable and using different products is like a crap shoot. Sometimes they work and sometimes they don't. As always, I hope that you, your daughter and the rest of us will be better soon. will keep you in my prayers. Love and health, Newby
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Post by Newby on Dec 3, 2005 6:30:53 GMT -5
Jody,
Thank you.
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Post by TonyM on Dec 3, 2005 12:09:25 GMT -5
In da chat now...where'z evy1???
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Post by flutterby on Dec 5, 2005 1:15:54 GMT -5
Hello Newby Guest in Cape Coral, Firstly, we're neighbors. I reside in the Southeast area of the Cape, just off Del Prado Avenue, near Walmart. I'm curious, if you would be so kind and fill me in about your onset of symptoms of Morgellons. I see by your Posts, that you joined our Discussion Group in August, 2005. I was informed that I was infected with Morgellons during that time, after more than 3 years of making the Delusional Doctor Circuit, being diagnosed, like our majority, as Delusional. I was advised by the Health Department that I carried the "Nasty Morgies." How long were you showing symptoms of this dreadful disease before you finally learned that you, also, were infected with Morgellons? Did you have any positive experiences with our local doctors or hospitals? I'm sorry your Birthday was not what you expected. I do understand how you must have felt. May I wish you a Happy 30th Birthday anyway? It is so difficult to deal with, not only the physical afflictions, but the emotional aspect is sometimes harder to accept. Keep the Faith, Newby Guest. We have many professionals and non-professionals, as well, who are researching and considering the number of Subjects and Posts on the Morg Discussion Board, the responsible people, companies, government agencies, military, Pharma, etc. know who they are and what they have done. I would like to wish for you and the rest of our friends here to be blessed with a Very Special Birthday gift, next time around, and we will have a protocol for treatment and shall reclaim our physical bodies from these invaders and slowly heal emotionally. I pray for us all. I see you and I have made about the same number of posts. What part of the Cape do you reside and how long have you made the Cape your home? May, 2006 will be 10 years I've lived here. Love the Cape, have met some very nice people here, but I could have done without meeting up with Morgellons. We all have our weak and discouraging times. We all understand. Try to keep your chin up & focus on all of the information here. I feel the poopey will shortly hit the fan and the truth shall be revealed. What they have done to us is unforgivable and we have been plagued by those without conscience. Karma, my dear, has a way of turning around and giving the individuals who pass around their negativity a good swift kick in the Jackass. These people have no respect or compassion for humanity. Their cold, empty hearts feel no guilt if our Nation, our World has been victimized by them. Remember, "It's all about the Money." They are a selfish bunch and don't really care if our population is wiped out and our planet destroyed, as long as they are able to "Make the Big Bucks" and live a lavish lifestyle for as long as our civilization can exist. Greedy, not nice people who will someday be held accountable, if not on this Earth, their wicked spirits will be judged in the hereafter. God Bless us, give us strength and courage to live through this tragic health threat and the wisdom for our researchers to sort it all out. We are a team. It will happen. Hang tough, Newby. A very wise man once told me, "Try not to focus on any disease by feeling you are dying from it , but rather, FOCUS ON LIVING WITH IT. If you feel good today, go out, do something and live every precious moment we can. I think I'm rambling again, sorry. It's been one of those foggy days with concentration. God Bless, flutterby
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Post by karen Lawhorn on Dec 6, 2005 7:21:26 GMT -5
I think it's a mutated version of scabies because it spins spider like webs, those white thread like things and then it uses fibers or our own hair to travel down to warm moist regions. Anyone else experience this? black specs in your stool. I think those are the eggs. then they hatch if they are in the groin area or other moist warm place where they feel they at home, if not due to our unrelenting scratching wind up in the hair on top of our head well then they have to use a piece of hair or fiber from clothing to travel to the desired area the more warm and moist the better. Anyone ever feel an intense itch on your back and what you find is a piece of hair but the place you scratced has a bump there? unlikely your own hair is biting you right? if you hold it in the middle of it's length you will see something is moving it and it's not your breath or draft of the room, something ties it up in knots if it can, to propell it down to the anal region and insert it in there or the vagina. I've found itchy hair in both places and from my head not my groin. How about the fact that they jump sometimes? I think the yellow crystals are a stage in their development like a cocoon and the white pieces of seemingly dead skin but you just scratched of cause it was itching you, sometimes shapped like a half moon? or the little fiber like black thread thing too? Could they just be two different sexes or two different species who have developed a mutually agreeably ecosystem inhabiting us ? (who are not so agreeable)!!! I've tried everything the only thing that has worked is an internal antibiotic an antihistimine tablet and dial anitbacterial soap ( they hate it ) I am not cured but I sure am relieved and so is my 12 yr old daughter who's had ezxema since second grade. I'm 31 and have been fatigued since 3rd grade with ADD symptoms and my daughter is diagnosed ADD and I've been diagnosed bi-polar since 99. I knew their was a connection for all this. We are so close to figuring this thing out for ourselves if we all bann together. Thanks for reading
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Post by karen Lawhorn on Dec 6, 2005 7:25:20 GMT -5
I think it's a mutated version of scabies because it spins spider like webs, those white thread like things and then it uses fibers or our own hair to travel down to warm moist regions. Anyone else experience this? black specs in your stool. I think those are the eggs. then they hatch if they are in the groin area or other moist warm place where they feel they at home, if not due to our unrelenting scratching wind up in the hair on top of our head well then they have to use a piece of hair or fiber from clothing to travel to the desired area the more warm and moist the better. Anyone ever feel an intense itch on your back and what you find is a piece of hair but the place you scratced has a bump there? unlikely your own hair is biting you right? if you hold it in the middle of it's length you will see something is moving it and it's not your breath or draft of the room, something ties it up in knots if it can, to propell it down to the anal region and insert it in there or the vagina. I've found itchy hair in both places and from my head not my groin. How about the fact that they jump sometimes? I think the yellow crystals are a stage in their development like a cocoon and the white pieces of seemingly dead skin but you just scratched of cause it was itching you, sometimes shapped like a half moon? or the little fiber like black thread thing too? Could they just be two different sexes or two different species who have developed a mutually agreeably ecosystem inhabiting us ? (who are not so agreeable)!!! I've tried everything the only thing that has worked is an internal antibiotic an antihistimine tablet and dial anitbacterial soap ( they hate it ) I am not cured but I sure am relieved and so is my 12 yr old daughter who's had ezxema since second grade. I'm 31 and have been fatigued since 3rd grade with ADD symptoms and my daughter is diagnosed ADD and I've been diagnosed bi-polar since 99. I knew their was a connection for all this. We are so close to figuring this thing out for ourselves if we all bann together. Thanks for reading
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Alex
Junior Member
Posts: 52
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Post by Alex on Dec 8, 2005 0:52:43 GMT -5
Just a reminder to anyone with symptoms and observations to share: Do the survey. Get everyone's various experiences collected together and see exactly what we all have in common. Also, MRF has released a preliminary draft of a Case Defintion. I got it by email but I am sure you can find it at MRF and you can see it on my site, home.comcast.net/~usp-db/CaseDefinition.htmAnother note about the survey: I am working on the new expanded survey and also making it possible for people to update or correct their information. I haven't been updating all of the survey results pages as frequently as I'd like to. Also, the database got scrambled somehow (may have been hacked, not sure) and I had to patch it back together and I created automated backups of everything. So the data is all safe, but the results pages, except for the first page, are not updated because they got scrambled. Alex
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Post by Travis on Dec 8, 2005 2:40:29 GMT -5
For what it's worth, whether you want to believe what I say or not, if you do, you will slowly be on your way to health and know how to defend yourself in the future. This is related to biological experiments on the population perptuating through vaccinations primarily and secondary co factors. It has been going on for a long time but not untill 2001 was the use of biological agents on US civilians Ok'd under the patriot act to be exptended to all federal agencies, not just the CIA and NSA as before, so the DEA has been using these agents in neutralizing alleged drug criminals etc, the FBI, violent criminals ie rapists, hostiles, the DHS, alleged terrorists, alleged percieved threats to national security, and more, and the ares are very grey. Worse yet, under the patriot act. with enough evidence, even trumped up, as in these "times of war" just saying the wrong thing in the presence of the wrong person can bring the use of biological agents against a person, WITHOUT a criminal trial or even appearance before a judge, so in 2001, post 9-11, the DOD extends the use of a biological fuungus to the federal agencies and puts the antibodies / gene therapy in the federal vaccines and flu vaccines, of which these vaccinated people become super spreaders for and indefinate period of time. The federal agents disperse the biologicals on the targets, and anyone whos immune system breaks down because of a vaccine, or who passes on the vaccine but is exposed to others that are vaccinated on a regular basis(Troops, health care, teachers etc) come doen with the deblilitating diseases the more and longer they are esposed. It serves the pharmaceutical industry well, the global health and populkation control agencies well, the federal agencies in "non-lethal" weapons testing and proliferation well and more,. You are a victims of gulf war illness/lyme disease/morgellons etc. It is all the same, for the most, a stelath pathogen with an incredible gene envelope, and exo/mycotoxin production for neurtoxicosis symptoms and all metabloic/biological dysfunction, as for treatment, because these stealth pathogens evade our defenses, detroy our immune systems, are contagious, attach to our DNA, disrupt mitochondrial function and intracellular functions, protuce waste toxins and destroy all bodily systems...the treatments are the same. Depending how much you have been exposed to, prolonged repeated and severity, your state of health at the time and a few predisposing gentic factors, wherever you are along the slope of destroyed, toxic and infected health, you need to address all with same. ALL will be drug resistant, so mega doeses of the choice drugs for Lyme or GWI will do, (Benicar for special effect) then your diet (PH, raw foods-no animal proteins they create acid by products, no sugars unless they are mono polysacharides, like mannose or galactose, fatty acids /3 and 6 especially flax seed oil, ionic minerlas and precurses to amino acids and imple proteins and sugar synthesis, Like Lysinem glutamine/Glutahione, DHLA, CO-Q10, alpha lipoic, and the sulpher based aminos and proteins, so MSM and DMSO are great, enzymes for digestion and fibrin and protein, and as well as the minerals like vanadium and magnesium, and we cant forget vitamin C and salt, and echinacea and cats claw(Toa free if you wish but not necessasry) If you think of this as a worst case scenario and treat it as such and aggressvely you will avoid the worst case scenarios, cancer , diabetes, ALS, AIDS, blindness, stroke or heart attack and even the simpler, skin cancer, acce;erated aging, brain fog and memory and sleeping disorders etc..... all related to the toxins...... A bacteria that is cotnagious like tularemia and plague, stealthy like mycoplasma, virulent like HIV and plemorphic and resilient like LYME ... are you starting to get the picture? HEAVY clindamycin and quinine....... try it. With MSM and Vit C and salt. Actually, something that is part virus, part mycoplasma, part bateria, part spirochete and part fungus repsonds to alot of different drugs, but the reading before describes what is necessary to get our body back to be able to manage the problem. ...Glyconutrients!!! Transfer factors! Anti Inflamatories! (MSM, Una Degato etc) Immune regulators ( Echinacea, Una Degato) Enzymes Water Minerals Vitamins (C, A, E) Mineral Salts (Sodium, phosp, potash, sulphur) THere is evil in the wprld, and it corrupts all, it is in our military and government too, they are trying hard to fight it, imagine that, a government and military that is fighting itself from the dark side of the force, from traitors and evil....... remind anyone of star wars, or alias, or 24, or T-2/termiantor, or the Matrix etc? You see, people ARE trying to help us, only one must not be a fool, and not choose the red pill...... It's all about money and "controlled chaos" as a market... The Intuitive...... You forgot to mention that also, under the Patriot Act, the government can go into any home and take things from it, or place things in it including wire taps, and they don't have to report it to the person. I came home to small black balls of infected morgellon fungus things, all over my house and in every room. I had not been a victim of a flood or anything else that would cause that kind of fungii or mold infestastion. What could of caused it? Let's see, the government classifies me as a terrorist, which is a hugely freaking broad term in the Patriot Act, and they respond by sending agents to "combat" me with bioweapons. The current bioweapon of choice? Morgellons. It is undetectable which leaves the victim as seeming crazy to the entire medical community, except for a very few that have decided to question it. It doesn't exist in any medical journals or on the CDC, just like Gulf-War Syndrome. It doesn't exist in them, because the government knows that if they did, then they would have to fess up that it was them who used the biological agent on their own people. The people in power are not going to let this thing get accepted into the medical community without a huge fight. They have the money and power to stop everything except a complete public knowledge that the disease exists, and even that may not be enough at least under George Bushes Regime. Uh oh, did that comment just make me a terrorist and a target for our government? Sorry government, for a second there I was thinking something wacky since i'm delusional. The wacky thing was the right to free speech, but now I recognize that I was just delusional and no such thing exists, at least not any more. Sorry for thinking that I had any rights to say what I want. Oh and thanks for introducing the initial Patriot Act to congress beforehand, which included no humungous breaches of our constitution and rights, and then doing a switcharoo on them in order to get them to pass the bill. What time did you print it again? Oh yah, 3:00 am in the morning. You printed the bill at 3am and expected them to vote on the new version which included complete dissolution of the constitution and citizen rights, on the same day in the morning. None of them had a chance to read the new version of the Patriot Act. And I guarantee all of them regret passing that bill. The executive branch of our government has become so powerful, that checks and balances between the other branches cannot happen. And also because of the bill being passed, the amount of Federal power that was given to our government makes all citizens of this society potential targets as terrorists, for practing free press, free speech, and excersizing all the other unalienable rights that are guaranteed to us. They are no longer guaranteed, or unalienable any more. They have become alienated by a single bill. I used to love America, but now I fuking hate it. It makes me sick. Our government can spy on all of our internet activity, all of our private life and all of life basically. And they don't have to have a reason. They can just say, "potential terrorist" and they have the right to find us guilty already and not even being able to go to court to defend accusations because they are kept in the dark in order to lurk undercover as to find out what they want about anybody. Their main targets? Dissidents. People who speak out against this corrupt government. People who are of a certain nationality. People who question the moral and ethical things that they have to deal with everyday because our government created them. America is in danger of becoming like Rome. Rome had such a huge military, that all of it's enemies could not compare to it's sheer force. Rome is gone now. The same thing will happen to America if it keeps on invading and making wars with countries for no reasons whatsoever. Oh, actually the Iraq war wasn't based on no reasons, it was based on FALSE PRETENSES... i'm sorry for that mixup. Say goodbye to America, it's soul is already dead and it's only a matter of time before it's physical body collapses too. And it's so sad
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kb
Full Member
Posts: 162
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Post by kb on Dec 10, 2005 14:45:21 GMT -5
Found this remedy on another post, it was not one I had seen before, so I am putting it out there.
You can get a contanier of Boric acid at the pharmacy over counter, Mix it into a solution as specified. put it in a spray bottle. spray it on in the itchy areas. leave it on for a few minuites or until some of the bugs come out. wash it off and put on some lotion with tree tea. The tree tea will bring out more and is not so harsh to your skin. I Buy it at the health food store. I have been doing this every 6 hours Especially the times when I itch the most for almost a month, and taking para-sweep orally and used rid lice treatment every 10 days. The rash is almost gone. I think I can finish it off with the scabies med the Dr. gave me.
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Post by junebook on Dec 12, 2005 21:45:44 GMT -5
I'd be happy to do the survey, but I've been unable to log on or reply for many weeks. Have no success re-registering, either, because my e-mail address and other personal data remain the same. If you know someone on Lymebusters or Morgellons who can help, please ask them to e-mail me at the address I first registered a few months ago. Thank you
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