rhorn I meant 3 people from your lovely State. One including your Doc. OMG you are killin me over here (yonder way) but you can still put on your Sunday go to meeten duds and show up iffen you have a hard time stayin awake we'll just nudge you a bit with a cattle prod...teehee
Life isn't about waiting for the storm to pass. It's about learning to dance in the rain, or rioting in the rain, if justice, truth, & the cure for Morgellons does not prevail. Remember the Boston Tea Party.We remember the reformation of the 16th century religgious movement that resulted in establishing the protestant churches. We're already dancing in the midsts of the morgellons reform movmt
Post by browncircles on Apr 10, 2009 23:28:46 GMT -5
Message from the Director Second Annual Conference on Morgellons April 4, 2009
On behalf of The New Morgellons Order/Charles E. Holman Foundation, I would like to welcome you to Austin, Texas for the Second Annual Medical Research Conference on Morgellons Disease. We appreciate the tremendous support afforded to us over the past year. Thanks to the efforts of our dedicated volunteers, our patients, and our allies in the battle against Morgellons Disease, during the past twelve months we have continued to make significant progress toward the goals established in our mission statement. I would like to review some of the highlights.
Volunteer patient organized fundraising events have been successful in raising funds for research. Thanks are extended to Laur Galvez and the City of Ogden, Utah for promotion of the first annual “Rolling Like Thunder”, a fundraising motorcycle rally. We are grateful to Kelly Pickens, of Atlanta, Georgia for organizing a gospel singing fundraiser in her community. Since our last conference here in Austin, our organization has provided $7000 to Morgellons Research at Oklahoma State University, Center for Health Sciences, and Center for Investigation of Morgellons Disease. With future fundraising events in the planning, our goal is to double this amount for 2009. We appreciate the gifts of money, time, and resources from a number of individual donors. We want to applaud Bessie Glavas, Florida Morgellons patient for her generous donation of $12,000 to the OSU-CIMD for specific research projects. Thank you so much Bessie! Thanks to anyone who may be planning a fundraising event in your own community. These events raise money and awareness at the same time.
Many thanks are extended to Dr. Randy Wymore, Dr. Rhonda Casey and the team at OSU-CIMD for their continuous commitment and endless hours devoted to finding answers to this medical mystery.
We are grateful for the Investigation of Morgellons Disease instituted by the Centers for Disease Control in partnership with Kaiser Permanente. We sure do hope for an update on this investigation soon!
Public Awareness and Medical Education:
We are grateful to Dr. Randy Wymore and Dr. Ginger Savely for the numerous presentations on Morgellons given to a variety of audiences in the medical community. They will be presenting Morgellons at a national physician’s conference in October, 2009. Realizing the challenges of treating a condition about which so little is known, we thank the many physicians who have taken the time to reach out on behalf of their patients to obtain information about Morgellons.
I would like to take this opportunity to welcome Amelia M. Withington to our Medical Advisory Board. Dr. Withington joins our team with enthusiasm and dedication to medical education, recognition and research of Morgellons.
We are extremely grateful to each of our guest speakers present today, who have volunteered to provide this audience information on every known aspect of Morgellons. Gratitude is extended to Joy English and the WestOak Woods Baptist Church for providing this venue for today’s conference.
Thank you Discovery Health Channel, Inside Edition, Doctor Phil, Self Magazine, Public Health Alert, multiple radio broadcasts, and others for providing in-depth coverage of Morgellons. The “Mystery ER” segment on Morgellons has aired more than 8 times on a variety of networks.
Due to your support of our DVD project from last year’s conference, we were able to distribute over 100 complimentary sets of DVDs and brochures as educational tools to medical professionals across the U.S.
Thank you to volunteers, Deborah Corrigan, Cliff Mickelson, Terry Cornelius, Daryl Crocket, and Laur Galvez whose volunteer time has made it possible to set up Morgellons educational booths at medical conferences and public events.
We are thankful to Katie Corkren and Gwen Simmons for lending your artistic talents to our printed materials and to Chris and Robert Beasley for your help with the website and the program booklets.
We are grateful for the patient support provided by our nursing advisory panel. I would like to extend a warm welcome to Lynn Seybold, RN, MSN to our nursing panel. Many thanks are extended to Cherie Larimore and to each of you who have reached out to new patients providing support and encouragement. We applaud Dr. Cheryl Reed, Karen Winter-Christy, RN, and Bessie Glavas for the success of the support group in the Tampa Bay region of Florida. We are thankful for all support groups that have formed across the nation as well as posting boards that are being provided for Morgellons discussions.
We appreciate the allies we have formed with other organizations and the support they have facilitated to Morgellons patients and to the endeavors of this foundation.
I would also like to thank the Board of Directors and Officers of the Charles E. Holman Foundation as well as my wonderful friends and family for your tremendous support. I will be forever grateful to my dear husband, Charles E. Holman, for initially authoring “Cindy’s Diary” and for giving me the love, confidence, and courage to continue his mission to get Morgellons Disease the recognition and research it deserves.
Finally, I would like to thank all of those who were not mentioned in this letter.
We have an exciting meeting agenda that covers everything from research updates to coping with this illness from a patient perspective. Our goal is to educate healthcare providers as well as patients about every known aspect of Morgellons and to provide information and support to those who suffer from this potentially devastating illness.
We hope that all of you will come away from this conference with new information about Morgellons Disease that will help to enlighten your colleagues and bring hope to the suffering patients around the world.
The Charles E. Holman Foundation is grateful to all of you for taking the time to attend and participate in today’s event.
Enjoy the conference!
Cindy Casey, RN, Director The New Morgellons Order/ The Charles E. Holman Foundation www.thenmo.org
“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” ~Margaret Mead~
The DVDs of the 2009 Morgellons Conference are now available. If you are interested in obtaining the 2 DVD set of the entire conference, please send an email to email@example.com
Public Health Alert is a great Lyme publication that is found in the office of LLMDs across the nation. I subscribe to it and find a lot of interesting information each month. The June issue is available on line and features 2 Morgellons articles. Check it out It also includes an excellent article by Dr. Savely on C3a and C4a.
The front page features Joseph Jemsek Scroll all the way down and you will find both informative articles on Morgellons and lots of other interesting articles on Lyme and chronic illness. publichealthalert.org/pdf/2009_06.pdf
poi.k,hjmv: I applied to this forum 2017 and still not approved why not tell them they are not approved??? you must enjoy seeing peoplesufferandleftfordead RUDE
Jun 25, 2019 22:03:42 GMT -5
prson who agrees w poi.k,hjmv:: LOL @ poi.k,hjmv. . . so far same here. but hopefully not for TOO long
Aug 12, 2019 3:35:04 GMT -5
thinkwithwomen: what are women have health & fitness issues:)- we understood the importance of women health and fitness.we will discuss and share fitness stories and success stories we taken care of women for the age like premature and mature during pregnancy
Nov 22, 2019 6:11:16 GMT -5
DAC: I have it, but it's not real bad for me yet. I do not have any sores on my body, but the stinging and moving under my skin is very bad. I had a friend who died from this. He got it from cutting down a tree by the airport. He
Dec 25, 2019 5:25:05 GMT -5
Aitche: Check out images and videos of trichinosis think you will be
Jan 22, 2020 7:29:49 GMT -5
does lymes make ur bones hurt : does lymes make ur bones hurt when u breath
Apr 6, 2020 18:47:27 GMT -5
guess who guess who: Hello to my old friends. I
Apr 19, 2020 12:00:34 GMT -5
guess who guess who: I run
Apr 19, 2020 12:01:00 GMT -5
guess who guess who: I sure didn't know if people were posting here in 2020.
Apr 19, 2020 12:03:17 GMT -5
Pipster: I've had success w/antifungal remedies...after trying others. The bugs might be fungus drawing them in? GMO's are made with a fungus that bonds the DNA of one species to another. Mild fungal & parasitic infections worsen w/EMF waves...weaken immune system.
May 2, 2020 1:01:44 GMT -5
Pipster: It is fungal related and many natural, antifungal remedies work best. It takes time but don't give up.
May 2, 2020 1:04:14 GMT -5
lydski: I sure miss learning from many of the old members like Toni, Sydney, Abbienormal, Bananny, .
May 20, 2020 0:17:45 GMT -5
carnesmt: Anyone still out there?
Jun 30, 2020 22:08:51 GMT -5
carla MDR: Any of my old friends from Morgellons Disease Research Forum still about ?
Sept 25, 2020 16:28:11 GMT -5
carla MDR: Any of the trolls? Barak .Where are you ?
Sept 25, 2020 16:29:10 GMT -5
carla: if anyone can log in it looks like the personal messages still work x
Sept 25, 2020 17:42:46 GMT -5