|
Post by fritolay66 on Feb 9, 2010 1:03:44 GMT -5
Ah no, not enitrely, it was just due to lack of responses really Sid. I just so want to be of help to those whom this may apply to, and I am really trying to make it so it isn't over the head thing.
How many of us here have more than ten symptoms we can elaborate on? Anymore than this, and one needs to consider the HLA genotype and biotoxin responses.
I mentioned earlier I had thrity to fourty symptoms at one time. With each new one I experienced over time, I knew this wasn't normal, and no doc's I had been to were able to figure out what was going on. The thing about the HLA genotype is that autoimmune diseases stemming from unidentified triggers such as gluten, more specifically gliadin, and the chronicity or irretractable Lyme and associates, as well as mold sensitivites and the failure of these genotypes to detox the biotoxins are all within this particular genotype.
Looking back at the research of some into Morgellons, for many, we all seem to have mold sensitivities or exposures, sewage exposures which result in horrific cases of mold and bacteria, food sensitivities, or Lyme and some of its associates. HLA genotype testing is hugely important in those researching Morgellon's. Why hasn't this been done?
Frito
|
|
|
Post by fritolay66 on Feb 9, 2010 1:32:52 GMT -5
I would like to go back to the MARCoNS subject. I had mentioned when I got the flu however long ago that was, I started to do nasal lavage by syringe instead of the Neti pot. After the flu, I stopped doing it, and what I noticed is, is that my headaches were not occuring as often, my thrush on my tongue was finally clearing, and boy, the black specks I hadn't had in awhile coming out of my nose, started coming out my nose with the lavage.
I began to wonder if the re-appearance of those black specks may have anything to do with my headaches. You all are familar with the petri's I have done, in which one of those was a sample of those specks from my nose and grew out mold. So I began to wonder if my headaches were because of the spores. And then I found that information about resistent gram positive bacteria in which are correlated incidently with mold exposure cases, and I remember so long ago, when they thought I might have some bacteria in my nose due to those lesions I spoke of earlier.
I restarted doing the nasal lavage shortley after I stopped and have been doing it since then. The amount of black particles and what look like branches has slowed considerably when blowing my nose. My sense of smell has returned. The lesion above my frontal sinus is now healing in a manner in which has not occured since I first got it. That lesion I have had always would recap itself with that dreaded callus.
A couple of weeks ago, I was talking to a friend whom was aware of what I was doing, and I told here about this blob thing, way back in the back of my sinuses, I could feel it, anyways, it came loose one night while I was working. Considering I work with the public, I couldn't spit it out there and examine it, so I had to swallow it. Ugh. But it was a ball of something. And since then, the water from the syringe, doesn't seem to meet such a block like it did when I first started this.
Well, the only place I know of close to me, is whole foods in which sells dedicated syringes for lavage purposes, but they are anywhere from upwards of twenty dollars. My feeling was I did not want to spend this kind of money every time I wanted to switch out that syringe. I didn't want to keep using the same one, in case of the resistent bacteria exposure, and I don't know of any way to sterilize these syringes without exposing my hands and such. My intent was to replace them weekly. Won't do that for twenty clams a pop.
So in the diabetic section of the WalMmart grocery store, they have diabetic syringes with a cone head attatchment that work perfectly for lavage and cost 1.39 each. They are pretty much the same as the fancy smancy expensive ones at whole foods.
They ae called:
Ezy Dose Oral Syringe with dasage -Korc and mini medicine spoon. The cardboard backing is from a sky blue color to white, to light blue. I just throw the medicine cup away and rip off the flap attached to the graduated tip and use that and the syringe for my lavage purposes.
I use a mix of salt, couple of drops of gentian violet, and two tsps. of colloidal silver to about a cup or cup and a half of water. I thought and have run across recommendations of using essential oils for lavage, but I passed on those, because I didn't want to have to go all day smelling whatever it is I used. I couldn't gauge my sense of smell properly with those.
The salt should be pure sodium chloride, table salt will not help at all and will actually hurt. But one uses salt in the mix to make a saline solution. This type of solution is less likely to cause pain or is more likely to add some comfort level to the lavage. Our noses are sensitive, and if you have ever had a noseful of chlorine water at the pool, one will remember the feeling. The salt helps with this.
I have gotten to the point where I can use cold water, but if considering this, warm water also helps with that swimming pool feeling.
Hope this helps.
Frito
|
|
|
Post by fritolay66 on Feb 9, 2010 2:03:04 GMT -5
Hmmm, I just thought of one more thing I would like to share before I say good night.
How many of us have different colored specks. The black ones and the white ones. I have found in sources the reference of white grains to actinobacteria and black grains associated with fungal spores or mycoses. Just something to consider. I have both colors present.
Frito
|
|
|
Post by patricia1 on Feb 9, 2010 15:08:08 GMT -5
Hi Frito!
This is extremely important information! I for one can relate to everything mentioned here.
I have not been back to see the doctor yet since the last time I posted those test results here, awhile back, but hopefully will be going soon. I'm going print and take this to next dr. appt. It will be so helpful!
Thank you so much for your time and effort into this. It truly helps alot!!
Take care, Patti2 ps - Everything here on this board is important and helpful! Thank you all!
|
|
|
Post by fritolay66 on Feb 9, 2010 22:46:23 GMT -5
Thank you Patti!!!
Let us know how this appointment goes!!
Frito
|
|
|
Post by Sidney on Feb 10, 2010 1:25:12 GMT -5
Frito, thank you so much for sharing information that should prove to be very helpful. I appreciate the recipe to use on my face and the information and recipe for the nasal lavage.
You've devoted much time and effort. Thank you.
Everyone who offers anything that has helped make their life more bearable is appreciated. Many thanks.
|
|
|
Post by jj on Feb 10, 2010 2:03:09 GMT -5
Frito
Thank you, this is all very important and useful. All your work and compilations are greatly appreciated. I myself need to go back over some of this. I know I have sinus issues. Hearing now seems to be affected too. I believe there is much to learn in this area.
May very well be more than many realize. Thanks again JJ
|
|
|
Post by fritolay66 on Feb 19, 2010 15:19:50 GMT -5
I was talking with another poster over at MDR, TCM. They gave me a link in which they had found to MARCoNS and Lyme and it mentions several herbs in which are capable of breaking down biofilms created by these organisms. Hope you find them helpful. You will also find a mention of Coptis if any are familar with jwf's posts. Frito You've seen the movie trailers that begin with, "Alien Invaders Take Over Unsuspecting People." You probably thought this only happened in the world of science fiction. But it could be happening right now, literally right under your nose.
A weakened immune system can't prevent the MARCONS from coming in right under your nose
The alien I'm talking about is a new super staph bacteria called MARCONS which stands for "Multiply Antibiotic Resistant Coagulase Negative Staph." In his book, Mold Warriors, Dr. Ritchie Shoemaker finds these bacteria in the noses of his Lyme patients that have severely weakened immune systems. What makes the immune system of people with Lyme disease so susceptible to these invading staph bacteria?
Lyme disease toxins weaken your immune system
Lyme disease can produce lots of toxins which make people feel fatigued, anxious, or downright miserable. These toxins also attack and weaken the immune system. If the immune system is weakened enough, you can't defend yourself against getting these super staph bacteria. Once they get in, these staph bacteria can mutate quickly which helps them to evade your immune system and to become resistant to many drugs.
Super staph bacteria have developed immunity against many antibiotics
In his Lyme patients, Dr. Shoemaker found these staph bacteria were resistant to antibiotics from several different classes. He saw this multi-drug resistance especially in his patients that had been on several different kinds of antibiotics. Not only do they develop immunity, staph can also shield itself from attack.
Staph can make a protective shield for Lyme to hide under
Staph bacteria can produce a protective shield called a biofilm. Unfortunately, your immune system and most antibiotics can't breakthrough this shield. Other species of bacteria, including Lyme, can hide under this biofilm. Under this shield, they can swap things like drug resistant genes. This can lead to dangerous new strains of drug resistant Lyme disease, Staph, and other super germs. If your immune system and drugs have difficulty penetrating the biofilm shield, what else can help you to stop these staph bacteria?
Special herbs help you to cut through biofilm shields
In a laboratory experiment, an herb called Terminalia Chebula cuts through the biofilm and kills the Pseudonomas bacteria that created it. Other experiments show that berberine extracts from an herb called Coptidis Rhizome are able to cut through the staph biofilm and kill it. People with Lyme disease report being symptom-free for longer periods of time when taking Terminalia Chebula and Coptidis Rhizome along with other medicinal herbs.
Herbs in your spice cabinet prevent bacteria from working together to make biofilms
These staph bacteria use chemical signals to communicate that there is a "quorum" which means there are sufficient numbers of bacteria to make a biofilm. Herbs like garlic, oregano, basil, rosemary, thyme, turmeric, ginger can interfere with the chemical messages that these bacteria send to each other. These herbs are called quorum sensing inhibition (QSI) herbs. Extracts of these herbs have stopped staph from performing quorum actions like producing a biofilm. Taking a combination of these herbs can help you to fight off these nasty staph bacteria.
Herbal teas can help you to cut through biofilms and kill the bacteria underneath
Taking a combination of anti-biofilm herbs in a tea and adding QSI herbs to your diet can help your body to penetrate and stop biofilms from reforming. These herbs can also be used in a nasal wash to breakup biofilms in your nose. Some herbs can be powdered and inhaled directly into the nasal passage. Once the herbs have cut through existing biofilms, then your medications, antimicrobial herbs and your immune system can kill the underlying Lyme and staph bacteria more effectively.
Herbs can strengthen your defenses against a MARCONS invasion
To beat back the invasion of the super MARCON staph bacteria, a targeted program of herbal tea, nasal washes, and dietary changes can help you to cut though biofilm shields, weaken the bacteria, and help your medicines and immune system fight back. Not only can these herbs help you to kill these super bacteria, they can be taken as a preventive program to keep you healthy especially if you haven't been invaded yet. Consult with a trained herbalist to find the right combination for your situation.
Stopping a staph bacteria invasion helps you fight a Lyme infection more effectively.Two Frogs Healing Center. All Rights Reserved. Wouldn't you love to stumble upon a secret library of powerful healing tools and ideas? Find simple, yet electrifying ideas on self-healing, powerful herbs, spiritual healing, and acupuncture for resolving difficult illnesses. Head down to www.TwoFrogsCenter.com today and judge for yourself. Article Source: EzineArticles.com/?expert=Greg_Lee Coptis library.thinkquest.org/25983/2.%20Coptis%20rhizome.htmwww.zhion.com/Cardiac/Cholesterol_herbs.htmlBerberine www.itmonline.org/arts/berberine.htmen.wikipedia.org/wiki/BerberineIf you are familar with burbur from the Cowen protocol, then berberine may also be familiar. Burbur www.newswithviews.com/Howenstine/james44.htm
|
|
|
Post by Sidney on Feb 20, 2010 0:55:41 GMT -5
Frito, thank you again. Once again you've provided valuable information. Although you're not getting much response please don't feel your efforts go unnoticed.
There's just so much to think about that my head reels and swims with information yet I seem unable to pull it all together the way you have.
I think many of us feel so discouraged and overwhelmed by this disease that we're often simply decompensated, so mired in misery we hardly know which way to turn, what to do next, but you have provided more ammo for our arsenal and we do appreciate you and what you provide and share.
Many thanks.
|
|
|
Post by fritolay66 on Feb 21, 2010 23:23:09 GMT -5
Another reference to MARCoNS. You will also find info on Lyme, HLA, etc. Chitosan is mentioned. Kammy and I had discussed this at one time. No mention of Apple pectin fibers. Rifampin is mentioned. Incidently, I have taken this with others for three months and it helped incredibly. Lots of good stuff. Notice the date of 2006. So this info isn't new. From S. Forsgren, "The Better Health Guy" ACAM2006.pdf, can be found on his home web page under conferences. Scroll down. Direct link to pdf file as follows. betterhealthguy.com/joomla/images/stories/PDF/acam_2006.pdfDr. Shoemaker was originally interested in rural medicine. That changed in 1997 when fish started dying in the Pocomoke River. People that worked with the fish also started having illnesses. Fatigue, muscle aches, respiratory infections, light sensitivity, memory issues, etc. The cause was determined to be Pfiesteria.
He had a sick lady with significant diarrhea for which he prescribed Cholestyramine (CSM) since it often causes constipation. He found that the cough, headache, memory issues that the lady had experienced all improved. He gave CSM to several Pfiesteria patients and they all got well. There were at the time no markers for the disease. No tests. How does a drug that is not absorbed by the body resolve these conditions?
Then, similar patients with mold exposure were treated with CSM and also got better. He found a marker called VCS, Visual Contrast Sensitivity which could be used in testing for biotoxin-mediated illnesses.
Dr. Sam Donta found evidence of a neurotoxin being created from Lyme disease. Dr. Shoemaker gave CSM to people with Lyme. A few got better but many got worse. Why?
Approach to treatment must be to identify what is wrong with the host response. Using methods of intervention without correcting innate immune responses is illogical. There is a commonality of inflammatory events initiated by biological toxins.
Neurotoxins gain entry and make some people sick and other people do not sick. 3 get sick. 7 don't. What is the difference? The difference appears to be HLA (genetics).
Dr. Shoemaker has HLA records on 3500 patients and can look at these and see what a patient will be susceptible to. Fungal, dinoflagellate, and Lyme toxin susceptibility can be correlated. Rare/dreaded genotypes are found in about 4% of the population.
People get much worse with second or third exposure to these substances. He finds a rise in IL-10 with second and third exposure.
Integrative Approaches to Lyme Disease, Stealth Infections, and Inflammation May 5-7, 2006 36.
Lyme and co-infected Babesia patients have different types of cytokine responses than mold patients.
If a patient does not respond to antibiotics, you have to ask, “Are there living Lyme organisms or not?” Some clinicians say after three weeks, you have Fibromyalgia. Others argue that more antibiotics are needed. Others say that other infections may be to blame.
Why do we need to know this? The target is chronic illness after treatment with antibiotics. Problems of sero-negative Lyme could be a lack of adaptive immune response. Immune mechanisms are often enhanced innate mechanisms, not suppressed. New approaches to treatment are the bottom line after the antibiotics are done. It is not only about antibiotics. There are new concepts that need to be learned.
First, we need to look at what else could be going on. Need to learn about C4a. C3a, C4a, C5a are activation products. C4a helps determine if you actually have living Lyme organisms or not. These compounds rise within 4 hours after exposure from fungal origin or 12 hours after Lyme infection.
VIP (vasoactive intestinal polypeptide) and VEGF (vascular endothelial growth factor) show the source of pulmonary illness.
VEGF enhances oxygen delivery. Clotting abnormalities are clear.
Autoimmunity is becoming clear. Need to look at antibodies to gliadin and cardiolipin Know the genetics! Know the response to EPO (erythropoietin).
Myelin based protein antibodies are present in 30% of mold patients and 4% of Lyme patients.
In looking at Lyme, you won’t get better until the toxins are gone. Symptoms of chronic Lyme are no different than chronic mold. Diagnosis of Lyme by symptoms is not considering potential differential diagnosis. Do not assume that persistent symptoms mean ongoing Lyme.
Dr. Shoemaker shared his “Biotoxin Pathway” which shows the cascade of events that starts a biotoxin illness in those who are HLA-susceptible, it leads to increased leptin, increased cytokines, increased MMP-9 (MMP-9 is a global measure of cytokine activity in the body), reduced VEGF, and reduced MSH (alpha-melanocyte stimulating hormone). Reduced MSH leads to reduced ADH (antidiuretic hormone), reduced sex hormones, changes in cortisol and ACTH (adrenocorticotropic hormone), prolonged illness, resistant staphylococci infections, gastrointestinal problems, chronic pain, and sleep disturbances. All of these are downstream effects of a biotoxin in an HLA-susceptible individual. You really have to see the Biotoxin Pathway diagram to understand the impact that this may have. It is available in his book “Mold Warriors” which I highly recommend.
Another conference summary that I found also talks about this. It can be found here.
MARCONS is Multiply Antibiotic Resistant Coagulase Negative Staphylococci. This is another one of the tests that Dr. Shoemaker performs as the staph infection itself can heavily burden the body with more toxins. One needs to use several antibiotics at once to avoid resistance. Deep aerobic nasal culture is needed.
There are some medications available to help address high C4a.
Also will have medications to address VIP such as Aviptadil. Currently not FDA approved.
Integrative Approaches to Lyme Disease, Stealth Infections, and Inflammation May 5-7, 2006, 37.
Lyme disease often unveils HLA susceptibility. What began the illness years ago becomes less important. It does not matter how the process started, but how the process ends.
Biotoxins turn on cytokines which cross the blood-brain-barrier and bind to hypothalamus where MSH is produced. MSH regulates hormone production. Leptin resistance is often a factor in obesity/weight gain. We can work to enhance production of VIP since MSH is not legally available at present. MSH availability could be a major future breakthrough.
Some of the symptoms of biotoxin illnesses include: • Fatigue • Headache • Light sensitivity • Memory and concentration difficulties • Joint pains, AM stiffness • Skin sensations and tingling • Shortness of breath • Cough • Confusion • Blurred vision • Sweats • Ice-pick pains • Abdominal pain • Diarrhea • Metallic taste • Static shocks • Vertigo
25% of patients with Lyme had “post-Lyme”. Not everyone gets better with antibiotics. Allen Steere published a paper recently about HLA genotypes. (I know – we don’t like him! ☺)
VCS (visual contrast sensitivity) test is a non-invasive measure of contrast. It eliminates near, far, color, static, motion, or peripheral vision issues. Visual acuity must be better than 20/50 and the test must be taken under controlled light of > 70 foot lamberts.
The HLA genotype 4-3-53 is one where if you get Lyme, you will not get better with antibiotics alone. Less than 5% have this genetic combination. Those patients MUST have toxin binding protocols. All the antibiotics in the world will not help them. Dr. Shoemaker also found that wingspan (measure when both arms are stretched out in opposite directions) and height has a correlation to illness. If wingspan is greater than height, these people are usually more affected by biotoxins.
Integrative Approaches to Lyme Disease, Stealth Infections, and Inflammation May 5-7, 2006, 38.
HLA - Genetics HLA is a very complicated area that I am personally still working on understanding. Interpretation of the tests can be difficult and I find that even doctors that may order the test may not fully understand the interpretation.
HLA – 2 copies of DRB1, everyone gets 2 copies of DQ. Everyone gets a total of 2 copies from three other alleles DRB3, DRB4, DRB5. The testing language will change over time for interpretation of these tests. 52A and 52B and 52C for DRB3. Use 53 for DRB4 and 51 for DRB5 (old language).
All of the HLA tests are expressed as n-n-n and represent DRB1 – DQ – DRBn.
The HLA-DR combinations that seem to be the most problematic for Lyme infected patients are as follows:
• 15-6-51 (20%) – Lyme susceptible • 16-5-51 (1%) • 4-3-53 (3%) – this is the most difficult combination. Called the “dreaded” or multi-susceptible genotype which has difficulty with both Lyme and molds • 11/12-3-52B (1%) – also one of the multi-susceptible genotypes • 14-5-52B (.5%) – another multi-susceptible genotype 4-3-53 and 11-3-52B are the two most significant. They are correlated with low VEGF, high C4a. These patients need to be over-treated. Some of less desirable combinations with mold illness are: • 7-2-53 • 13-6-52A • 17-2-52A
Complement – C3a, C4a, C5a Dr. Shoemaker found that C3a and C4a can be used to detect cases of Lyme. They rise quickly and stay elevated. C4a appears with acute Lyme disease, this may become a more accepted indicator for diagnosing the presence of Lyme disease. C4a will rise 12 hours after a tick bite in those with Lyme but not in those without Lyme.
How to use C4a in chronic Lyme? In all people with Lyme and antibiotics that were still ill, C4a was high. With Actos and CSM, the C4a drops dramatically. Chronic Lyme patients that have Lyme organisms that are active/living should see a rise in C4a after CSM / Actos protocol is stopped. This may indicate the ongoing presence of active infection.
Elevated levels of C3a and C4a are rarely seen in controls. Levels generally rise within 4 hours after exposure to toxin-producing fungi. C3a and C4a are important new markers for diagnosis of hyperacute Lyme disease.
With acute Lyme, C4a will rise rapidly to about 6000. With chronic Lyme, it will be about 10,000. Antibiotic treatment often creases a further rise to 11,000. After Actos and CSM treatment, the average is down to 3,800. Control levels are around 2600. When re-exposed to a biotoxin, the average is 18,000.
History, Diagnosis, and Symptoms
Dr. Shoemaker takes a biotoxin history – are you tired? Fatigue, weakness, muscle aches, cramps, unusual pains (MSH deficiency impacted by pain – sharp stabbing like an ice pick, lightening bolt pain), headaches, light sensitivity, red eyes, blurred vision, tearing or dryness, respiratory symptoms, sinus congestion, cough not related to smoking, and shortness of breath
In shortness of breath, VEGF might be the only reason. It is important for opening capillary beds which are needed when engaging in exercise. If a patient has some good days and then pays the next day and is exhausted, usually VEGF deficiency has gone beyond ability to deliver oxygen and the patient is doing things anaerobically. Reduced glycogen in cells. VEGF deficiency. VIP is a neuropeptide made in hypothalamus and regulates cytokine effect. First found in the intestine. Can give someone VIP – Aviptadil. It has FDA designation but not approval. Not available yet. VIP deficiency will acquire a rise in pulmonary artery pressure with exercise (backwards). VIP in the lungs vasodilates.
This is still in early stages of being understood. It may be of interest for those that are tired and short of breath.
Symptoms may include: abdominal pain which often results in a patient being told they have IBD, diarrhea (elevated C4a often), joint problems, cognitive issues dominate the illness (in children, math skills are less common to drop first where in teens and adults, math skills drop).
Recent memory is often shot, long-term memory is in tact, confusion, concentration problems (some folks are still working like they are superman or superwoman – these are incredible people). Word finding difficulty, decreased assimilation of new knowledge, lost in familiar places. Note that many people with these symptoms would be put on Ritalin.
Mood swings, appetite swings, sweats at night, difficulty controlling body temperature, hypothalamic symptoms. ADH levels are at least 2.5 lower than what it should be which leads to need for lots of water. In the face of developing dehydration, patients continue to pee. 40% will be thirsty, pee a lot, and get static shocks. One patient continued to break Palm Pilots because of the static shocks. Patients become a conductor. Car doors, door knobs, drinking fountains, and even other people may all cause static shocks. Discoloration from jewelry.
Numbness, tingling (changes day to day). Neurontin is often used when it is actually a mold issue (wrong approach). Sensitivity of skin to light touch, crawling sensations. Sensation comes from formic acid which is also found in the mandibles of ants. This is called formication. Tremors. Hold a piece of paper on top of the hand and it magnifies this symptom like crazy. 70% of mold patients have tremors – often diagnosed as Parkinson’s.
Dr. Shoemaker talked about his visit to New Orleans after Katrina. He said the only safe place in New Orleans was one boat. They observed 250,000 colonies per square inch. Found 2.1 million spores of stachybotrys in St. Bernard’s parish. The TV stations were told not to run the piece and all the other doctors were taken away. A whole generation of people in New Orleans will likely have issues related to mold. The average number of symptoms was 16.2 for people that had “Katrina Cough”. More information can be found here.
Integrative Approaches to Lyme Disease, Stealth Infections, and Inflammation May 5-7, 2006, 40.
Treatment
If you have Lyme, then you likely need antibiotics. He sees some people with Lyme that were not given antibiotics long enough. Often sees people that have been treated with too much antibiotic treatment. C4a may be a clue. It looks good today. Dr. Shoemaker generally uses three weeks of oral doxycycline. If people don’t do well, look at genotypes. HLA-DR testing is done by LabCorp. Don't accept Quest.
Need all 10 alleles to understand the genotype. A Lyme patient that is a 4-3-53 will not get better with antibiotics alone. Patients have “neurotoxic Lyme”. The entire protocol is on his web site mentioned at the end of this section. Protocol is Actos for 5 days with a no amylase diet. On Day 6, Actos and CSM are used together. Actos blocks fat cell production of TNF and MMP-9.
Each of the alleles is associated with a change in amino acid structure of HLA-DR cleft. Antigen of a given shape or size needs to fit in cleft. This turns on sequence of events.
After there is a toxin, it binds to receptors on fat cells which turns on inflammatory cytokine responses, lowers leptin, turns on MMP-9, reduces blood flow in capillary beds (get sludging in capillary bed). This creates oxygen deficits on the other side. HIF (hypoxia-inducible factor) turns on VEGF.
You can measure changes in a patient when putting them back into moldy building after improving – measure each day. Within 12 hours – IL1B (interleukin 1 beta – good friend for mold determination) going up if mold. With Lyme, more TNF. Can have normal IL1B and still be exposed. Within 24 hours, cytokines are going up.
When you go into a building with mold on the floor, it may not make you sick but the toxins are carried on spores and fragments, not the fungus itself. Illness is not a fungal infection at all. It is not colonization, not an infectious disease. Can get sinus colonization with other presentation but they are not toxin formers. The toxins are what get inside you and cause all of the symptoms, not the fungal organisms themselves.
CSM has an electrostatic mechanism from the CSM to the toxin itself. Binds everything. PCBs, etc. Can you flush toxins out with fats and oils? He has tried everything and Omega-3 and Omega-6 help like Actos, but other approaches did not work.
Blue-green algae products? Spirulina used to be made in Washington. There was a big bloom of microcystis at the source and the source is no longer pure. Do not get blue green algae from Klamath lake.
Welchol has a role for people that cannot take CSM. 5% drop out of CSM due to constipation. Some people cannot tolerate the other substances in CSM. Welchol works about 20% as well and may be ideal for prevention of exposure. 2 tabs 4 times a day.
Chitosan – does not work. Bentonite and charcoal have not been used. Chlorella does not work. Patricia Kane uses IV phospholipids but Dr. Shoemaker had no data on effectiveness.
HBOT and IV Peroxide patients are often still ill. May have helped but did not resolve the problem.
If you have MARCONS, he uses multiple antibiotics. He does a culture called API-Staph. If present, the patient will not get better until that is removed. Topical Bactroban. Not FDA approved.
Integrative Approaches to Lyme Disease, Stealth Infections, and Inflammation May 5-7, 2006.
Rifampin penetrates the biofilm, but doxycycline does not. May need to use 3 antibiotics at a time or you may not eradicate the infection. The culture is a deep nasal culture. May require Rifampin, Bactroban, Bactrim (often gives rashes) or Macrolide, Quinolone, or Cephalosporin.
MARCONS is a major player in Lyme patients with antibiotics. The toxins from candida and the gut are not as significant as that from MARCONS.
When Actos and CSM are not useful, it is likely that there is living Lyme or ongoing fungal exposure.
MSH levels do not change rapidly as people get better. Over months and months they will change. MSH does not go down with age.
VCS is the best test to diagnose herx. VCS will fall on row E and row D and rise of MMP-9 and TNF will be observed. Onkly 8% of patients with biotoxins illnesses have a normal VCS test.
Look for antigladins and cardolipins. If you find high MMP-9, think molds. False positive ANAs are common.
Looks at: • VCS • MSH Deficiency • MMP-9 elevation • HLA • ACTH/cortisol • ADH/osmo
When you have three of the six factors, it is likely that you have a biotoxin illness.
75% of mold patients have elevated Interferon-alpha.
MMP-9 is the best marker of activation of cytokines from fat cells.
Lyme organisms hate blood and want to get out of the blood. The will remodel the extracellular matrix.
For more information on Dr. Shoemaker’s work, visit www.chronicneurotoxins.com and www.moldwarriors.com.
|
|
|
Post by fritolay66 on Feb 22, 2010 1:46:40 GMT -5
Another something interesting I found having to do with mold exposure. What I found really interesting is its refernce and descriptions to penicillium and actinomyctes. A particular combination I seem to have. There is reference to aspergillus and chaetomium as well as others. I keep finding the same ones over and over again in relation to indoor mold. I also found Botyris in others. I think Freaky's results had that? Anywho, the informational aspect of this article is maily from the environmental lab report of this individual. hope you find it as interesting as I did. In good health.....Frito www.wellsphere.com/lyme-disease-article/mold-report/507421Mold ReportPosted Nov 21 2008 4:25pm I got the mold report today. There are several species of toxic mold found in the wall. One of the molds is often found the the well know toxic black mold called stachybotrus. A couple of the molds plus the bacteria found in the wall are consistant with very bad water damage. I think this is only the tip of the moldy iceberg. My guess is that stachy is also in the walls. The plan is to move. Here is a copy of the report: Microscope: Chaetomium murorum Penicillium sp./Aspergillus sp. Cultured Aspergillus ustus Chaetomium murorum Penicillium aurantiogriseum Penicillium brevicompactum Penicillium sp. Rhizopus stolonifer Actinomycetes General Comments and Health Effects Our analysis of the above tapelift sample found evidence of mold infestation in the bedroom sampled in this unit. All molds require at least an elevated level of relative humidity to germinate and grow indoors and these are no exception. From the chain of custody I can see that you have identified one source of moisture, a water intrusion under the window. It is crucial for the success of long-term mold eradication that the source of the moisture supporting these colonies is promptly and permanently fixed. Without first addressing the underlying moisture issues in this unit, the molds will simply keep coming back each time the moisture returns. Due to the presence of several molds that may pose a health risk (see below) I'd strongly urge you to contact a professional to investigate and possibly remediate this site. Cleaning it up yourself may further expose you to these potentially harmful fungi. Many of the molds found in your bedroom have the potential to adversely affect your health. In particular, the four species of Penicillium and Aspergillus found in this sample can produce huge numbers of dry spores which are easily lofted into the air and are slow to settle. Spores from any species of Aspergillus/Penicillium should therefore be presumed allergenic. In addition, Penicillium aurantiogriseum makes the mycotoxin auranthine which is reported to be a kidney toxin; I find little in the literature on this, but it could conceivably be important. The mold also makes several other compounds which may be of concern but which are little studied. Whatever its toxicity, this mold and close relatives all produce dreadful odors in culture, essence of dumpster and garbage. Lastly, the Actinomycetes found in this unit are not molds at all, but filamentous bacteria. They produce huge numbers of really minute dry spores which are probably allergenic, since their small size would allow them to penetrate respiratory passages efficiently. Actinomycetes typically grow in wet sites and are part of the wet wall syndrome. These bacteria are typically ignored in mold reports - but they should not be. Workers in Finland have reported that some Actinomycete spores, unlike most toxic mold spores, may actually trigger inflammatory responses in the lungs. _______________________________ Given that my body can't process mold toxins in general, the presence of toxic mold is great cause for alarm. I'm glad to have this report and extremely grateful for the person who sent me the kit to get the mold analyzed. I just wish my doctor had listened to me back in April when I first brought this up. I may have irreversible neurogical and immune system damage.
|
|
|
Post by fritolay66 on Feb 22, 2010 1:51:56 GMT -5
Thanks Sidney, I am discouraged at the lack of response, but I am so sure that the information of the cytokienes and the inflammatory response have everything to do with Morgellons, that I will keep posting away anyways.
About the nasal lavage I have been doing. I absolutely hate doing it. Feels like I am drowning in a swimming pool twice a day. But the relief is unexplainable, and the results have been incredibly encouraging. Really encouraging. Instead of just holding my own, I now seem to be making progress again.
Again, thank you Sidney.
Thank you JJ. I really do think more of us should consider this.
XX
Frito
|
|
|
Post by bannanny on Feb 25, 2010 19:53:15 GMT -5
I just want you to know frito that I've been copying and pasting everything you've said in this thread to bring to a doctor... still looking for one tho. Ruth had left doctors names who treat mold infections in one of her threads and I contacted the only one close to me (which is 75 miles away)... but they don't accept my HMO. That's my big problem actually... finding a doctor on my stupid HMO. I get the real duds if you know what I mean. I wish YOU were my doctor... or I could find one with your knowledge anyway! Just wanted to thank you again tho for all your hard work and caring ways.
love ya ~~ bannanny
|
|
|
Post by jj on Feb 25, 2010 21:18:00 GMT -5
Me too Bannanny
Good valuable info many can apply.
Here is a little tip to help keep threads of interest easy to find (especially if some are short on time).
Up on the top of a thread in the yellow tool-bar (on the left after the page numbers) it says "bookmark".
Click on that and you should have that thread in your own bookmarks saved in your own profile. After you have done this you can always find them in profile.
Thanks all
JJ
|
|
|
Post by Sidney on Feb 25, 2010 22:54:48 GMT -5
Thank you, JJ. I had never noticed that and so often when I'm searching for something I can't even remember the subject, so this will be veery helpful.
Frito, like Bannanny, I copy and paste when you post information about tests and anything relevant to the research you're doing.
It's very helpful and very much appreciated, so please don't give up on us.
|
|
|
Post by bannanny on Feb 26, 2010 21:26:52 GMT -5
Well isn't that cool JJ! If I wanna save a thread I've always just added it to "My Favorites" (a thing aol has.) But if we can save it to our profile here, that's even better... especially being I'm a saver of things and I have sooooo many saved now that I can't even find 'em when I need 'em! Might not be so bad if I could save them in alphabetical order, but you can't do that! So thanks for the tip... that should make my life a little easier anyway!
hugs ~~ bannanny
|
|
|
Post by lydski on Feb 26, 2010 22:26:05 GMT -5
Frito, Thank you for all the info you share here. No doubt this could be pertaining to me!
I took my grand daughter to the Dr. a while ago because she was having a lot of breathing problems through her nose. The Dr. recommended using the Neti pot with a sinus rense. It's 8oz, warm water, 3/8 tsp. salt and a pinch of baking soda. I've used it and it helps me quite a bit., Just thought I'd share that.
|
|
|
Post by fritolay66 on Feb 27, 2010 20:03:56 GMT -5
Thank you Lydski. I have an update for everyone, and so I hope you will take the possibility of this occuring into consideration. i also wonder, how long have you been doing it? I am going on about a month, and just the other night, I broke through something and let hell loose. After doing the netti for awhile, did you happen to get a upper respiratory infection, cough, sore throat thing? Ughh.. Funny, I was considering going for my MD at one time in my life, but I just can't stand the prospect of going through the rigor with them. Achkkk. ;D It was a really nice thing for you to say though. Thank you Bananny, you made me giggle and smile. And your welcome. Thank youfor the tip JJ!! I had no idea we could do that!! What a great way to find what I am looking for and lessen the frustration. Sidney, Testing? OMG, is there others you need that I can be of help with? Lyme?? Frito
|
|
|
Post by fritolay66 on Feb 27, 2010 20:16:50 GMT -5
Has anyone heard from patty? I was interested in her appointment?
Frito
|
|
|
Post by fritolay66 on Feb 27, 2010 20:38:19 GMT -5
My lavage update. I had mentioned in a previous post that I had been doing this for about a month. I guess time flies, because I have been doing this since I got the flu, so it is really about two months. I upped the ante on my nasal solution and instead of just 2 tsp. of colloidal silver, I am now adding four. That was last week. A couple of days ago, I did my lavage before going to bed, and brushed my teeth. I haven't had the issue of water still continuously coming out of my nose after doing the lavage until this particular night, in which this is what happened. It was a god awful water. tasted absolutely nasty, and by my own experience with infections, it was definitely infectious. ackkk. I was lying down when this dam burst and so in trying to get up quickly, I did swallow some of it before I could get to the bathroom and blow my nose and spit it out. I took my fiber combo to try and bind what I had swallowed and double dosed my cats claw and sarsaparilla. In just two days time, I now have a weird feeling throat and cough. Feels like an upper respiratory thing. I really do believe it is what I am getting at deep in my sinuses. Today, after doing the lavage, that same yucky taste is there, but it isn't continuing to run out like it did the other night. Today, right behind my eyes where the sphenoid sinuses are, actually, were sore. And the base of my ears, caught on fire for a couple of minutes. Gone now, no pain, no dull ache. So the syringe may just be getting at those hard to reach sinuses. The base of my ears surprised me some, as that was the initial location of one of my first symptoms. And the drainage seems to be coming from a space right behind and superior to my palate. If you roll your tongue to the back of your throat and press as high as you can get with your tongue, you will feel your hard palate. Behind this space is where the water is draining from. Also, for the last couple of weeks, my actual cheek bones have been feeling kinda funny. They kinda......have a numb like sensation. I don't know how to describe it, because they aren't actually numb. Its not painful, nor is it bothersome, just noticeable. I sure hope I have some healing going on here. Since doing lavage, I have only had one headache. Prior to this, I would get debilitating headaches, in which a gun to my head seemed a kinder experience than going through these headaches. Obviously I chose not to find one, good I don't keep one in the house. ;D Oh, I also believe part of the reason for my diarhea may have been a secretory thing from the sinuses. I am now quite constipated, and have never been so for as long as I can remember. I will be adding magnesium again. So it would seem that after two months, I have broken through a second type of barrier in my sinuses. Lydski, Anything similar? Did your grand-daughter after starting lavage, seem to get a cold or respiratory tract infection? Cough, congested throat thing? Thank you guys. Frito
|
|