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Post by jeany on Apr 8, 2011 18:49:17 GMT -5
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Post by snoozieblues on Apr 8, 2011 20:12:55 GMT -5
Anybody tried Kombucha? I drank some ginger Kombucha today (the ginger is supposed to be helpful too) and it seemed to clear me a little bit.
How about Vitamin D? It's supposed to cut down inflammation, I believe...
L-Carnitine is useful in brain function, I believe. I've taken it for awhile and don't know if it's a placebo effect but it seems to help with sharpness.
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Post by violet on Apr 8, 2011 22:38:41 GMT -5
What a great idea to consider using sesame seed oil for cooking! It tastes so much better than olive oil, doesn't it. I think I'll try it, too. |
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Post by violet on Apr 8, 2011 22:50:43 GMT -5
Anybody tried Kombucha? I drank some ginger Kombucha today (the ginger is supposed to be helpful too) and it seemed to clear me a little bit. How about Vitamin D? It's supposed to cut down inflammation, I believe... L-Carnitine is useful in brain function, I believe. I've taken it for awhile and don't know if it's a placebo effect but it seems to help with sharpness. Snooze, I have not tried L-Carnitine, but I have been taking Vitamin D3 for awhile now, mainly to help with depression and to keep bones healthy. Don't especially notice anything but am counting on it silently doing its job. I've read that it's important that the D you take is the D3, just FYI. Good to know it's supposed to help cut down on inflammation--thanks for the tip. I haven't tried Kombucha (is that an herb, or a type of tea...?), but I do eat pickled ginger as a snack during the day--just a forkful or so a couple of times a day. And also have started hummus with garlic, olive oil, and sesame seed oil, eating a teaspoonful once or twice a day as a snack. Also take a good quality flaxseed oil capsule once a day since the essential acids are hard to find in a lot of the foods we eat. Take L-Lysine to help keep cankers inside mouth from forming. Do you experience the itching symptoms? Allegra helps a lot. I don't know what I'd do without it. Also have been trying AmLactin lotion/creme for itching. That is also supposed to allay lesions from forming on the skin, though I don't know that it's worked so well for me in that respect. For the lesions I have found that using bacitracin ointment, then Neutrogena's "On the Spot" (containts benzol peroxide), and then a salicylic acid product by Neutrogena, all put on top of each other after each one has been on the skin for a few minutes really helps. Have also found that just vaseline on top the lesions does wonders as to helping with inflammation. Some people have found that Vicks Vapo-rub works well for this, too. Nice to have you with us, and I hope you find everyone's suggestions to be of help in some way. Each of us responds differently to different things. |
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Post by snoozieblues on Apr 9, 2011 1:34:51 GMT -5
Kombucha is a vinegary type of Asian tea. It has loads of probiotics, which are supposed to kill off bacteria and fungi. But be careful! Although I initially felt GREAT after drinking it, I think it provoked a Herx - probably trying to kill off all of that nasty crap wasn't such a great idea. I'm now going to rescind my suggestion to try probiotics, I think they're like mild antibiotics, and antibiotics + Morgs = VERY BAD. unfortunately the bacteria really doesn't want to be antagonized, and can't be. any minimal killing of neurotoxins only leads to a worsening of symptoms...
hummus is delicious, i'm eating some right now. i find that oils in general are beneficial, as well as lots of PROTEIN. protein is one food ingredient that doesn't seem to interact too badly with Morgs...i've had to really experiment with my diet. vitamin c seems to encourage an immune response, salt appears to help but leads to issues with high sodium, and fruits and veggies are great but exacerbate the digestive issues i've had of late. caffeine and alcohol are pretty much a no-no considering how hypersensitive i've become. anything with vinegar - including kombucha - is not a good idea, for some very strange reasons. it seems that morgs doesn't like vinegar, and basically anything that antagonizes it is a very bad idea because you get these awful herxs.
so, yeah. avoid probiotics - you do NOT want to kill morg bacteria (or fungus) until some scientist figures out a way to do so without wreaking havoc on your brain. til then, right?
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Post by awareseattle on Apr 9, 2011 4:17:35 GMT -5
Kombucha is a vinegary type of Asian tea. It has loads of probiotics, which are supposed to kill off bacteria and fungi. But be careful! Although I initially felt GREAT after drinking it, I think it provoked a Herx - probably trying to kill off all of that nasty crap wasn't such a great idea. I'm now going to rescind my suggestion to try probiotics, I think they're like mild antibiotics, and antibiotics + Morgs = VERY BAD. unfortunately the bacteria really doesn't want to be antagonized, and can't be. any minimal killing of neurotoxins only leads to a worsening of symptoms... hummus is delicious, i'm eating some right now. i find that oils in general are beneficial, as well as lots of PROTEIN. protein is one food ingredient that doesn't seem to interact too badly with Morgs...i've had to really experiment with my diet. vitamin c seems to encourage an immune response, salt appears to help but leads to issues with high sodium, and fruits and veggies are great but exacerbate the digestive issues i've had of late. caffeine and alcohol are pretty much a no-no considering how hypersensitive i've become. anything with vinegar - including kombucha - is not a good idea, for some very strange reasons. it seems that morgs doesn't like vinegar, and basically anything that antagonizes it is a very bad idea because you get these awful herxs. so, yeah. avoid probiotics - you do NOT want to kill morg bacteria (or fungus) until some scientist figures out a way to do so without wreaking havoc on your brain. til then, right? hello snoozieblues, Why are antibiotics very bad for Morgellons? What negative effects does killing the bacteria have on your brain? Thanks |
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Post by toni on Apr 9, 2011 8:52:19 GMT -5
Wow, we sure do vary in what seems to help.
I eat cold pressed Olive oil anytime of the day, even a spoon
full because of all it's antioxidant properties, *I just look at it
like a spoon of medicine* because it's very healthy, as well as
drinking 1/8 cup of apple cider vinegar with a bit of honey.
Imho...antioxidants (are critical) because any invasion of
pathogens causes what's called "free radicals in the body".
To stop free radicals from becoming cancerous, one must
protect their cells with "anti-oxidants"...because once the
"toxins/free radicals" attach to good healthy cells, they
not only penetrate a good healthy cell, but they then can
and do multiply.
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Post by violet on Apr 9, 2011 10:47:03 GMT -5
Wow, we sure do vary in what seems to help. I eat cold pressed Olive oil anytime of the day, even a spoon full because of all it's antioxidant properties, *I just look at it like a spoon of medicine* because it's very healthy, as well as drinking 1/8 cup of apple cider vinegar with a bit of honey. Imho...antioxidants (are critical) because any invasion of pathogens causes what's called "free radicals in the body". To stop free radicals from becoming cancerous, one must protect their cells with "anti-oxidants"...because once the "toxins/free radicals" attach to good healthy cells, they not only penetrate a good healthy cell, but they then can and do multiply. Good information, Toni. Snooze, you might consider trying the pickled ginger (you can get organic), as the ginger may help your digestive problems. Also, kefir (at most major grocery store chains) is an excellent thing to take for probiotics. I'm just wondering if your strong symptoms after taking things that normally are of help to other morgies is because your body is herxing, which though uncomfortable, is a good thing. It means what you are taking may be affecting the toxins in your body big time. Have you tried herxing for a few days to see if it eventually dies down? I know it must scare you, but what is so odd is that the things you say you cannot take are things that many morgies use to help their symptoms. |
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Post by kammy on Apr 9, 2011 11:54:45 GMT -5
Here's the latest paper by Carnicom; April 2011, let's see how his information might help us: carnicom.com/bio2011-4.htmIMO, the verdict is out on using hydrogen peroxide, in which some of us are using to help maintain their lesions and some claim it helps or is beneficial. I believe Carnicom has shown that the introduction of hydrogen peroxide helps our organism(s) flourish and grow and if you are using it - to use caution or not use it until we know more: "It has now been discovered that prolific growth can occur in a medium of only water, iron sulfate and hydrogen peroxide." |
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Post by snoozieblues on Apr 9, 2011 12:56:21 GMT -5
In my experience, antibacterials exacerbate the mental effects of Morgellons by releasing toxins through killing the bacteria. It would be akin to using a very short round of the wrong antibiotics to treat Lyme - only detrimental and not enough to actually conquer the pathogen.
Now, if one were to find an antibiotic that could successfully eradicate Morgellons in it's entirety, the herx would be worth it. For me, it only causes a flare-up and no remission.
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Post by toni on Apr 9, 2011 13:45:22 GMT -5
You know, this is very interesting what you said Snoozie.
That does make sense I believe in certain situations, and
I guess I say that because when I was taking antibiotics
daily (every single day for months on end) I could FEEL
the effects 'polluting me'.
I wasn't as "boucy in my step'...if you know what I mean.
I really began to feel the sluggish awful feelings that were
over coming my system, and I felt (inside) that it was
another type of either toxic overload, from the chemicals
that meds are made of...or what you've just said too has
lots of logic to it.
I only know that continued antibiotics were not a good thing
for me to do.
I do though (take a round of them only for 10 days in a row)
about every 3 months I do this for "what I call maintenance"
and I'm back to my perky self, and I feel fine.
To me, that way they're not getting the best of my immune
either, and that 10 run with them, (every 3 months) I feel
knocks out whatever was trying to take hold.
I can tell when I get a "bacterial overload".
Embarrassing to say, but I will, because this might help
someone else.
My 'underarms' no matter how active I am, and I am around
the house, vacumming, painting, grouting, cleaning, all the
things I do to keep myself very busy....I'll work up a sweat.
Even from my exercising. Well...I NEVER get BO. ugh.
But.....about every 3 months I'll just vacuum, and whamo
BO'itis.
That then tells me - Toni....that is bacteria.
So...I do a 10 days straight only of Bactrim...and then
I'm good to go for 3 more months, sweating and all..
and nothing.
So then I know, whatever bacteria was 'trying to grab hold"
well - I knocked it to kingdom come.
Our body..."talks to us" in different ways, and if something
isn't normal, even smells, or textures or feelings...imho:
ALL those are the signs we need to heed to and give our
body what it needs to correct the problems the best we can.
Because I'll sure say, when I took antibiotics daily and felt that
lagged out dragged out feeling, I KNEW it was too much junk
in my body. I know had I continued, I'd be bedridden by now
practically. They'd have done me more harm than good.
PS....I'm sure not saying they're a bad thing for everyone,
but...the body (each of ours, knows best), when we listen to it...because it does give us signals - imho.
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Post by violet on Apr 9, 2011 13:54:53 GMT -5
In my experience, antibacterials exacerbate the mental effects of Morgellons by releasing toxins through killing the bacteria. It would be akin to using a very short round of the wrong antibiotics to treat Lyme - only detrimental and not enough to actually conquer the pathogen. Now, if one were to find an antibiotic that could successfully eradicate Morgellons in it's entirety, the herx would be worth it. For me, it only causes a flare-up and no remission. That makes a lot of sense! I see what you mean. |
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Post by kammy on Apr 10, 2011 12:18:05 GMT -5
Ok, we're seeing that we have some of the same symptoms as the folks in the Gulf and Dr. Ricki Ott is saying that these chemicals are moving further inland than is thought. This is her latest video, see near the end where she recommends "Occupational and Environmental Medicine Doctors" who are trained to deal with chemical illness, the symptoms, diagnosis and the treatment. We have been struggling with what specialist we should see in order to be recognized; I would highly recommend searching out such a specialist as I believe they might be the closest to helping us, with most or some of our issues. See video at: www.youtube.com/user/WhoDat351?feature=mhum#p/a/u/0/TRTocFwvGeI |
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Post by toni on Apr 10, 2011 14:44:59 GMT -5
I sure liked what she had to say in that video Kammy.
She said people are being treated for headaches and
food poisoning, and everything that it's not, because it's
chemical poisoning.
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Post by kammy on Apr 11, 2011 9:54:48 GMT -5
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Post by kammy on Apr 11, 2011 11:08:50 GMT -5
Dr. Deagle says that we should get a geiger counter and run it over our food before we eat it. Well... I don't think that's a bad idea. Once again, we're having to go outside of what's considered 'normal' but, as Dylan says...'these times - they are a'changin''... I'm looking at the radioactive part of our disease, which is naturally in all foods, our water, our air, etc. see 'background radiation' on wiki: en.wikipedia.org/wiki/Background_radiationWe're finding a correlation between how radioactivity is measured by using bananas (See - Banana Equivalent Dose mentioned at the bottom of the above - Background Radiation) and what looks very similar to our 'carbon ball' sphere inside the banana. What this sphere in the banana is - is still unknown and is being researched at this time, starting at Post 561: www.morgboard.proboards.com/index.cgi?board=general&action=display&thread=824&page=19 |
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Post by kammy on Apr 11, 2011 11:34:56 GMT -5
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Post by toni on Apr 11, 2011 12:05:02 GMT -5
Is there anyone who's got iron overload? From people I've heard from, they've got iron deficiency. And I myself even take iron pills 2-3 X a week because I can tell I'm iron deficient, even though I eat plenty of foods that contain iron. My nails (some of my toenails) did that "sign of iron deficiency" and that was several months back - so I began taking iron supplements for the last 4-5 months now, and my nails are going back to normal. |
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Post by sheredelight on Apr 11, 2011 21:26:54 GMT -5
" Corporatism " by Geffrey Grupp, has anybody read this book, he talks about chemtrails , and there is a law that legally lets them spray us. And also Morgellons thought out this book and one chapter as well, all very in lightening, and Dr Bill Deagle, MD states " This book is one of the groundbreaking books that'll give you a clear solid wall of evidence to show that this is not a conspiracy theory about corporatism and the global cabal taking over. A remarkable amount of information. It covers everything from the fact that the USA has turned into a communist and a corporatist nation". unquote. Remember dont shoot the messenger,  that's me. Makes for very interesting reading, too much info for me I'm on overload always..  cheers all |
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Post by violet on Apr 12, 2011 7:48:26 GMT -5
Hi, Kammy. PV is a disease of the bone marrow. It's a genetic problem in one of the JAK genes. It means that my marrow produces too much blood--too many red and white cells, and too many platelets. That can happen for me without any iron in my body, because for some reason my blood can grow from erythropoetin (sp). To manage the disease, I get blood drawn off every 6 weeks or so to keep my total hematocrit (blood thickness) down to try to prevent strokes and to enable oxygen to flow through my blood better. Therefore, I am kept in an anemic state. We are not sure if this condition will shorten my life or not. The problem is that eventually the drawing off of blood causes the insides of the veins and arteries to scar, thus causing problems with circulation. The condition also sometimes (rarely, I understand) eventually can cause leukemia. I am very grateful that I'm under the care of a hematologist who is studying this disease. It's not a common-enough condition that many physicians know much about it. I had contacted Dr. Citovsky a few years ago about it, and he stated that it is not associated with morgellons. However, I question that. How could he possibly make that statement without people knowing what morgellons is? Strange. |
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that's me.
