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Post by violet on Apr 12, 2011 8:37:06 GMT -5
Kammy, I forgot to answer your question about sickle cell anemia. I don't believe it is at all related to PV. One thing that I read in one of the the sites you sent about PV is that there was a cluster of people who got PV in the Eastern Part of Pennsylvania. I do wonder therefore if there is a toxic/environmental component to PV and if PV in any way could be a part of our condition.
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Post by toni on Apr 12, 2011 8:44:47 GMT -5
Oh gosh Violet, I'm so sorry you're going through this. I sure didn't know you had all this going on. I just read about the Erythropoietin, and it's the hormone that regulates red blood cell production. Don't know too much else about it, but it's very interesting. Here's more on that: Primary role in red cell blood line Erythropoietin has its primary effect on red blood cells by promoting red blood cell survival through protecting these cells from apoptosis. *apoptosis* is cell death. So that part part sounds like it does a good thing.
But, I'm sure if it's producing too much, there's a reason for that, and that might be a problem for thickening. As I understand it, it's a glycoprotein...maybe I better read some more on this. It also cooperates with various growth factors involved in the development of precursor red cells. Specifically, the colony forming unit-erythroid (CFU-E) is completely dependent on erythropoietin. The burst forming unit-erythroid (BFU-E) is also responsive to erythropoietin. Under hypoxic conditions, the kidney will produce and secrete erythropoietin to increase the production of red blood cells by targeting CFU-E, pro-erythroblast and basophilic erythroblast subsets in the differentiation. en.wikipedia.org/wiki/Erythropoietin
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Post by violet on Apr 12, 2011 8:44:58 GMT -5
Kammy, I forgot to answer your question about sickle cell anemia. I don't believe it is at all related to PV. One thing that I read in one of the the sites you sent about PV is that there was a cluster of people who got PV in the Eastern Part of Pennsylvania. I do wonder therefore if there is a toxic/environmental component to PV and if PV in any way could be a part of our condition. For anyone interested in contacting an environmental medicine doctor, here is a great web site with names of doctors in each state: www.aaemonline.org/Referable_Physicians.html
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Post by toni on Apr 12, 2011 8:55:07 GMT -5
Here's a good explanation on this : Glycoprotein hormones play a significant role in regulating the physiological activities of humans. Erythropoietin, also known as hemopoietin or hematopoietin, is one of the important glycoprotein hormones. This hormone serves as a cytokine for red blood cell generators in the bone marrow. Synthesized in the kidney, Erythropoietin governs the production of red blood cells. This article attempts to provide an in-depth insight into the synthesis and role of Erythropoietin. There's more in the article: www.pregnancyxl.com/pregnancy/pregnancy-hormones/erythropoietin/
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Post by violet on Apr 12, 2011 12:22:03 GMT -5
Oh gosh Violet, I'm so sorry you're going through this. I sure didn't know you had all this going on. I just read about the Erythropoietin, and it's the hormone that regulates red blood cell production. Don't know too much else about it, but it's very interesting. Here's more on that: Primary role in red cell blood line Erythropoietin has its primary effect on red blood cells by promoting red blood cell survival through protecting these cells from apoptosis. *apoptosis* is cell death. So that part part sounds like it does a good thing.
But, I'm sure if it's producing too much, there's a reason for that, and that might be a problem for thickening. As I understand it, it's a glycoprotein...maybe I better read some more on this. It also cooperates with various growth factors involved in the development of precursor red cells. Specifically, the colony forming unit-erythroid (CFU-E) is completely dependent on erythropoietin. The burst forming unit-erythroid (BFU-E) is also responsive to erythropoietin. Under hypoxic conditions, the kidney will produce and secrete erythropoietin to increase the production of red blood cells by targeting CFU-E, pro-erythroblast and basophilic erythroblast subsets in the differentiation.http://en.wikipedia.org/wiki/Erythropoietin Hi, Toni. Thanks for both posts of information on erythropoietin. I've actually never read up on it, so it's interesting.
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Post by Lynn on Apr 12, 2011 13:10:15 GMT -5
Violet
Me too. I am very sorry you are going through this. I hope somehow you can get that balance out, but what a guessing game that would be. Maybe Cyenne tincture long term would slow it down or correct it.
In Light Lynn
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Post by kammy on Apr 12, 2011 17:07:50 GMT -5
Is there anyone who's got iron overload? From people I've heard from, they've got iron deficiency. And I myself even take iron pills 2-3 X a week because I can tell I'm iron deficient, even though I eat plenty of foods that contain iron. My nails (some of my toenails) did that "sign of iron deficiency" and that was several months back - so I began taking iron supplements for the last 4-5 months now, and my nails are going back to normal. Do what? You and others are iron deficient? Well, maybe our organisms are eating it as Carnicom says - they feed on it. If the magnet only attracts to 4 metals and one is iron and the other 3 are obscure and unlikely?... and with the iron metal filings in all iron fortified / reduced iron foods - ?? I need to look at Carnicom's info again... interesting. Something we need to get tested for, for sure. Carnicom Latest Paper, Comments: We are being made "ANEMIC"[Iron Eating Micro-organism ] globalskywatch.com/chemtrails/ubbthreads.php?ubb=showflat&Number=39281. The role that iron appears to play in the growth of the underlying organism. www.carnicom.com/bio2011-4.htmI thought at one point he said we were on 'iron overload'... my mistake. It's apparently robbing our iron... thanks for pointing this out, Toni.
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Post by kammy on Apr 12, 2011 17:30:40 GMT -5
Epsom Salts - Magnesium sulfate For some reason I am responding well to epsom salts. Bathing in, making poultices with paper towels, and drinking a small amount internally from time to time. For those of you who haven't tried it: en.wikipedia.org/wiki/Epsom_salts"Solutions of sulfate salts such as Epsom salt may be given as first aid for barium chloride poisoning." hmmm, barium is in chemtrails. Transdermal Magnesium Therapy www.worldwidehealthcenter.net/articles-358.html
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Post by intertidalwoman on Apr 14, 2011 19:51:29 GMT -5
Ozonated Oils: The ozonated oils (olive, hemp, etc.) developed by N. Tesla are great for ears, nose, lips and mouths areas. Tonnes of black specks and hair like artifacts come out, and the stickiness helps to keep it on. It breaks down into hydrogen peroxide over 8-12 hours, so long lasting effect. It will open things up, and bring them out.
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Post by bannanny on Apr 16, 2011 13:33:51 GMT -5
Hi kamsters... sorry I haven't been around to answer your question back on page 13! But I'm back and will try to do the best I can!
I'm not ready to start a new thread about the spore thing and my hair right now. Been in an extreme nightmare cycle (starting to pass finally) and I'm still fighting to get my mind as positive as I can... so to discuss it every single day just isn't somethig I can do right now. Sorry honey... but I'm sure you understand. I will say tho, that the brown seeds popping outta my scalp was happening in my first year of this mess, whereas now it's hundreds of sparkling particles being released from within the strands that live inside the hair shaft. I also have alot of crystals in my scalp and (as usual) a ton of electrical sensations. Anyhoo, that's the best way I can ty to explain it all right now sweetie. Just want to add tho that I was wrong when I said every 3 weeks... it's every 2-3 months that I've been cycling again. The cycles LAST for up to 3 weeks is what I meant... this particular (and very intense) nightmare is finally starting to ease up tho after 2 good weeks of hell.
As for herxing... I've come to the conclusion we DON'T get a herx with morgs. I've tried sooooo many things, none of which have helped, some of which I thought were causing a herx. But what I thought might be an actual morg herx is the exact same thing that happens when I cycle real bad... and nothing stops it from happening when it does. I agree with you snoozie that most things we try only cause even more of a flare-up. So like I've been saying... nowadays I fight this mess with my mind. I eat right, get alot of sleep, excercise, and stay as positive and happy as I can. It's what helps me, whereas taking tons of things only seems to give morgs even more fuel... however I do believe in vitamins, minerals, and colon cleanses from time to time! But as we know, we're all different and deal with this mess in different ways.
That was very interesting to me what you said about BO toni... the same thing happens to me. In fact during this very bad cycle, I noticed it was time to start using deodorant again. Normally I don't even need it, but from time to time it comes back. Course I was looking at that in a whole different way than you do. Remember that thread I did about a year ago called "normal body functions returning"? I suddenly had BO for the first time in all my years of morgs and thought since it IS a normal body function that it was a good sign that I had it again. Course, I have no idea what to think now! All I do know is I'm back to using deodorant again for the first time in quite awhile!
I also know that overload thing you were talkin about sheredelight... I'm there again myself already today, so I'll talk atcha all later!
love ya's ~~ bannanny
P.S. One question... if morgs is eating our iron, then taking more of it would give it even more to go on, right? Wonder where the happy medium is for that one!
P.S.S. Still got you in my prayers vi!!
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Post by violet on Apr 16, 2011 13:56:31 GMT -5
Hi kamsters... sorry I haven't been around to answer your question back on page 13! But I'm back and will try to do the best I can! I'm not ready to start a new thread about the spore thing and my hair right now. Been in an extreme nightmare cycle (starting to pass finally) and I'm still fighting to get my mind as positive as I can... so to discuss it every single day just isn't somethig I can do right now. Sorry honey... but I'm sure you understand. I will say tho, that the brown seeds popping outta my scalp was happening in my first year of this mess, whereas now it's hundreds of sparkling particles being released from within the strands that live inside the hair shaft. I also have alot of crystals in my scalp and (as usual) a ton of electrical sensations. Anyhoo, that's the best way I can ty to explain it all right now sweetie. Just want to add tho that I was wrong when I said every 3 weeks... it's every 2-3 months that I've been cycling again. The cycles LAST for up to 3 weeks is what I meant... this particular (and very intense) nightmare is finally starting to ease up tho after 2 good weeks of hell. As for herxing... I've come to the conclusion we DON'T get a herx with morgs. I've tried sooooo many things, none of which have helped, some of which I thought were causing a herx. But what I thought might be an actual morg herx is the exact same thing that happens when I cycle real bad... and nothing stops it from happening when it does. I agree with you snoozie that most things we try only cause even more of a flare-up. So like I've been saying... nowadays I fight this mess with my mind. I eat right, get alot of sleep, excercise, and stay as positive and happy as I can. It's what helps me, whereas taking tons of things only seems to give morgs even more fuel... however I do believe in vitamins, minerals, and colon cleanses from time to time! But as we know, we're all different and deal with this mess in different ways. That was very interesting to me what you said about BO toni... the same thing happens to me. In fact during this very bad cycle, I noticed it was time to start using deodorant again. Normally I don't even need it, but from time to time it comes back. Course I was looking at that in a whole different way than you do. Remember that thread I did about a year ago called "normal body functions returning"? I suddenly had BO for the first time in all my years of morgs and thought since it IS a normal body function that it was a good sign that I had it again. Course, I have no idea what to think now! All I do know is I'm back to using deodorant again for the first time in quite awhile! I also know that overload thing you were talkin about sheredelight... I'm there again myself already today, so I'll talk atcha all later! love ya's ~~ bannanny P.S. One question... if morgs is eating our iron, then taking more of it would give it even more to go on, right? Wonder where the happy medium is for that one! P.S.S. Still got you in my prayers vi!! Thanks for your prayers, Bannanny. I envision you and Tom having had a good time riding around on your new toy. Glad you aren't out on it today, though! Everything should be even more beautiful once this rain ends tomorrow--it will make the new spring grass and leaves magnificently greener than green. Should be a beautiful sight. My cycle is bad now, too--much more spreading by tunnels from the main lesion on my neck, and more sprouting of the fibers. Every spring this happens. In that respect, I wonder if it's mainly plant based and "coming to bloom" like everything else this time of year. I think your tactic of handling your symtoms mentally is a great way to go, Nans. Rest, getting out, not obsessing on the symptoms, and living life do indeed help.
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Post by bannanny on Apr 17, 2011 13:49:02 GMT -5
You're very welcome vi! I think the same way you do tho about spring and these bad morg cycles. It's as if it's in blooming mode too huh? So many of us are having such a hard time right now... so it must have SOMETHING to do with things sprouting. It might also have to do with all the intense weather we've been having across the world. Tornados, earthquakes, tsunami's and of course, radiation too. Anyhoo, I hope you start feeling better sweetie... and yeah, thinkin about goin for a ride real soon here!!!
love you ~~ bannanny
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Post by snoozieblues on Apr 20, 2011 15:20:45 GMT -5
does anyone have experience with ginger? I had a rather large amount today and instantly felt better and worse...I got a head rush and got a bit dizzy but felt like something was being killed off. I felt more alert.
I know it has antiflammatory and antifungal properties. I think inflammation is a big part of how Morgs affects organs, and the fungal aspect is compelling too.
what are your experiences with ginger and other antiflammatory or antifungal herbs?
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Post by sheredelight on Apr 21, 2011 19:10:17 GMT -5
I found this while looking up Babesia, and it makes sense to me, as I've always thought worms play a huge part in this mess, so have a read. I've started on this, and i believe it will work.
Insects, arachnids, and ticks carry many different types of bacteria, viruses, nematodes, and nematomorphs. We have found many strange things, which we have tried to explain. We must say we are not medical professionals.
We were just desperate people looking to get better. We have lost all faith in the medical profession. We were tired of having doors closed in our faces. We researched, contemplated, and came up with an idea. Research the late, great Linus Pauling. He took at least 18,000 mg of vitamin C every day. We tried to read everything we could about Lyme disease.
Supposedly cows somehow beat Lyme disease. We considered, why cows,why not other animals? Cows love salt. Humans consume less salt today than they ever have. Early Americans consumed approximately 20 grams a day. The consumption has been drastically decreasing with each decade. Could it be that the decrease in salt consumption has allowed these new illness, such as Lyme, Chronic Fatique Syndrome,Fibromyalgia, Alzheimer's Disease, and Gulf War Syndrome to flourish.
Now just lately, the whole salt scare has reversed and the researchers admit that they were wrong. So go ahead and shake that salt! As far as treatment goes, the results were forthcoming with the taking of 8 grams or more. We have actually increased to as much as 24 grams, but find that no one really wants to take that many pills in one day.
Remember it is a one-two punch: the treatment is both salt and vitamin C. After years of suffering, finally life is back to normal. We still do not know if organisms lie dormant in our body; therefore, the treatment continues, simply as maintenance. The extreme pain no longer exists. The knot on the side of the neck is gone. We are at peace.
The infestation of another new creature surfaced after about one year into the treatment. We were shocked by its existence. We believe we have found a mite, which we shall call the Horseshoe Lyme Mite. This mite is a parasitiform. Mites go through a diverse life cycle, from egg to larva, nymph and adult.
A Harvard man identified the photo of our nymph mite as a wool carpet mite; we beg to disagree. The mites survived the outside world longer than any other creature, living 45 minutes before dying of desiccation. Due to the size (though still microscopic) and their constant movement, they were extremely bothersome.
The hexapod larva stage left a pimple-like exit wound which heals quite quickly. The octopod nymphal stage survived even longer than the larva. Many Lyme sufferers claim they feel as though they have bugs in their bodies. We believe it is the mites that cause that feeling.
Our bodies serve as a habitat for many organisms, unwanted visitors making themselves at home. Our goal is to make their environment uninhabitable. We believe we are doing this with the sodium chloride tablets and the vitamin C. We do not advise using any other products such as antihelminthes, colloidal silver, wormwood, or any of the parasite cleansing products on the market.
Construction workers and athletes (particularly runners) use the same salt tablets we recommend. Years ago, before the so-called salt scare, PhysEd teachers handed out salt tablets like they were candy. Our bodies need the salt, especially to combat some types of parasites.
Keep you posted, cheers kas
.
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Post by bannanny on Apr 22, 2011 14:18:49 GMT -5
I've done the NAC taken with 1000 mg of Vit C sheredelight... and I know it's helped many a morgie. But it didn't do much for me... then again, nothing I've ever tried has. But we're all different, and it may very well help to at least lessen your symptoms. Good luck!!
big hugs ~~ bannanny
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Post by kammy on Apr 24, 2011 12:44:23 GMT -5
Epsom Salt & Zinc Cream I was having "run-away" lesions - they were just popping out over night, kept getting larger and larger... Here's the top of my wrist on 2-10-2011 Here's the same area today, I see lots of improvement and the bright red color that it would turn is not happening, I see flesh color again - I need some zinc cream for the flaking - this is right out of the shower:
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Post by kammy on Apr 24, 2011 21:07:07 GMT -5
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Post by kammy on Apr 29, 2011 18:10:15 GMT -5
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Post by sheredelight on Apr 30, 2011 7:14:49 GMT -5
Far Infrared Heating Pad,
Has anyone bought Dr H. Staninger's heating pad, and how well did it work,? as the out lay is $380.00.
I have tried most things, and i wont give up, till i hit on some relief.
cheers all
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Post by bannanny on May 2, 2011 11:08:19 GMT -5
I used an infrared pad that I slept on every night and day... it helped for awhile.
Sorry about your wrist kam... it looks so painful. I sure hope it just disappears one day sweetie.
As for the radiation, I can't help but think it's the reason I've been in nightmare mode again for the past 3 weeks. We're leaving for California day after tomorrow tho, so I hope the environmental change will cause this mess to ease up a little since it's usually worked pretty well for me when I do change locations.
love ya's ~~ bannanny
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