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Post by ANTHILL on Nov 24, 2010 23:34:04 GMT -5
It is frightening for me to have all my personal information made public. Fact is that I just changed my name from ChicagoBonnie to Zabrubon because if i google my nickname, ChicagoBonnie, the Lymebuster shows up for all of humanity to read. All my stories and personal comments are made public. Not a good thing. I say if you don't want the world to know your state of origin, don't post it here. Moderator, how do i delete all my personal comments or keep them away from public? I tried to modify my account but my personal comments still show up to the public. Thanks Go to your profile and there is a search engine for your posts you can go through your post and delete the ones you want by clicking on the delete button of any particular post
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Post by ANTHILL on Nov 25, 2010 8:22:43 GMT -5
I feel I need to clarify something Lymebusters never ever gives out personal information ie' email addresses unless ask to by the owner to give it to another member
Rule of thumb on this forum if you don't want it all over the Internet don't post it's not a good idea to post email Addy's or phone or street addresses ever --However If you want to give your contact information to another member the private message function on the board is a secure way to Do it never give your information out on an open forum
There are mainly three forms of security that Admin has a choice of using on this forum to control the outside Internet
!. open reading and posting We tried this when the forum was first started and it amounts to being bare naked on the Internet there is no control over spammers and trolls and evil bots if someone causes trouble it is impossible to moderate them
2. You have to be a member to post and read This level of security is the highest not even the search engine bots can get on the forum They provide quarry's for their searches One of the missions of this forum is to create awareness without the assistance of the search engine's that mission would be a disaster
3.Open reading but have to be a member and logged in to post This is the mode we are using now one of our other missions is support With this mode of security folks that are suffering that are abit overwhelmed and shy to post are at least able to read And I as admin have control over who gets on the board and over trolls and spammers in this mode the search engine bots are able to get in and gather their quarry's which is a major tool that we hope to use for creating awareness without the search engines I'm pretty sure the morgellons movement would be nowhere So remember iF you don't want it to be on the Internet don't post it
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Post by bannanny on Nov 25, 2010 10:24:17 GMT -5
You yourself can delete anything you've ever written on here CB... just hit delete or modify or whatever you wish to do with your posts!
I for one don't give a crapola who sees my info. In fact I welcome it... especially when it comes to morgs. I want the world to read what I have to say and look at the pics for themselves. I also don't care if someone wants to call me on it... and why I've openly posted my phone numbers before. Course I also know that if someone in government wants my info, they can get it in a flat second. What do I say about that? Bring it on!!!!
love ya's ~~ bannanny
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Post by pdidit on Nov 25, 2010 11:04:59 GMT -5
Hooray bannanny! That's the spunk we need!!!
xx Pdidit
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Post by ANTHILL on Nov 25, 2010 11:47:56 GMT -5
You yourself can delete anything you've ever written on here CB... just hit delete or modify or whatever you wish to do with your posts! I for one don't give a crapola who sees my info. In fact I welcome it... especially when it comes to morgs. I want the world to read what I have to say and look at the pics for themselves. I also don't care if someone wants to call me on it... and why I've openly posted my phone numbers before. Course I also know that if someone in government wants my info, they can get it in a flat second. What do I say about that? Bring it on!!!! love ya's ~~ bannanny I have to say this in the language of sheep--- bannanny your a B-a-a-a-a-a-a-a-a-a-d girl ;D
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Post by zabrubon on Nov 26, 2010 4:10:35 GMT -5
Pdidit, yes, i think it wise to put as much on the table as possible. I do use my nickname on my facebook. Hence friends and famly could google chicagobonnie and come up with a significant amount of info. Scary! I am English and very quite about my personal information. Except here, seems like I felt safe. Well, that is until i realized my comments were now able to be read world wide. Yuck! I will let you know if I find the secret to deleting all my CB statements.
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Post by dkushner on Nov 26, 2010 6:11:46 GMT -5
It's my opinion that the medical community, at least the doctors, already knows that this disease is real. I'm not sure why they do not want to help us. I know that they cannot simply say, well, these particular people, we will not help, that would be unethical and inhuman. There has to be some political or legal reason for it. The double bind of the DOP diagnosis allows them to get away with this and still sleep at night. - Daniel
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Post by bannanny on Nov 26, 2010 10:47:26 GMT -5
Yep... I'm a baaaaaaad girl ant! Actually, my friends and family refer to it as my being an open book. .. which is fine by me. As I told pdidit... I got nothin to hide!!!
love ya's ~~ bannannas
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Post by pdidit on Nov 26, 2010 11:45:55 GMT -5
Hi Daniel,
Thanks for your comment but I noticed that you didn't state where you were from. Like I said, let's 'air' our thoughts, but not lose sight of what this thread is about: stating where you are from and if not, stating reasons why you do not want to give out this information. So are you essentially saying that you are opposed to this movement because you feel it won't do any good since it is too political?
To reply to your opinion on this being political-- I totally agree that there is a political reason in not wanting information disclosed about the cause of this disease. IMO, if the truth was disclosed with at least one of the origins that I suspect, then it could take down the economy of the textile industry since I have read that the GMO technology was sold to the textile industry --a technology producing blue jeans using GMO e-coli as a manufacturing plant producing BLUE fibers. Yep, right there in my microbiology book [an edition which I would bet on, is now no longer in production]. So many other variables too, such as aerial fungal sprays / Agent Green need to be blown out of the water. I know that we are already in a bad economic state, but come on..we can't sweep this under the rug anymore. What ever happened to this 'transparent' disclosure policy that Obama was talking about?
I think this could be one of the subjects addressed down the road when writing letters...disclosure on GMO practices and aerial spraying. Why isn't anyone, especially the media, addressing all the questions arising from all over the country concerning chemtrail spraying? And for all we know, because this was a subject brought up as a possibility on local news not too long ago, there could even be some bio- terrorism going on with insects being the vector...or food, which we now have access to from all over the world. All this going on without more agencies to inspect our imports is more than irresponsible--it's outrageous. This information, as well as disclosure about Monsanto's practices that are affecting our food production with farmers using their patented GMO seeds, is somewhat of a controversy as it is. Top that with people coming forward saying they have a disease from the aftermath of this under researched technology would naturally ignite more fires.
These industries are big, but we can't let this stop us from continuing to pressure the FDA, EPA, CDC and in general the medical community to come forward with at least some help for the ones who are already sick with this now and come up with some answers in how to stop the damage already done as well as preventing more damage in the future--especially since their are more people that this disease will continue to afflict. This must be made public as their are lives at stake here!
Thanks for your input and hope to hear back from you soon, xx Pdidit
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Post by zabrubon on Nov 26, 2010 13:40:29 GMT -5
Ant, this is CB.....thank your for the information on how to delete my statements, most appreciated.
I don't apologize for my way of thinking or way of life. I am what I am and darn proud of it. For those who want to remain private, I say, kudos to you. The less people know about you, the better off you will be. To put it all out there invites problems. If someone would have told me that the world could read my thoughts here on board, I would have been careful with my words and I definetly would have chosen a different name to post under. Hence my heed of caution.
Now back to the gist of this thread.
Best, CB
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Post by Administration on Nov 26, 2010 22:31:41 GMT -5
Ant, this is CB.....thank your for the information on how to delete my statements, most appreciated. I don't apologize for my way of thinking or way of life. I am what I am and darn proud of it. For those who want to remain private, I say, kudos to you. The less people know about you, the better off you will be. To put it all out there invites problems. If someone would have told me that the world could read my thoughts here on board, I would have been careful with my words and I definetly would have chosen a different name to post under. Hence my heed of caution. Now back to the gist of this thread. Best, CB Your welcome
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Post by bessie on Nov 27, 2010 20:39:32 GMT -5
Thirty minutes from Tampa, FL. Northampton would be a great place to gather for a picket-party. I grew up a few miles from there, and I think it's a great town with many academics and bright people. Even Rachel Maddow lives just outside Northampton. It would be great if she could learn about this; she's a powerful voice in the news.
Bessie
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Post by ibzahp on Nov 27, 2010 21:43:57 GMT -5
Bessie, I like your idea of approaching Rachel Maddow w/this.
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Post by jeany on Nov 28, 2010 8:29:05 GMT -5
Bessie, I like your idea of approaching Rachel Maddow w/this. Me too. She's one of 'those' who says it like it is. I think it would be great if we could catch her interest. Should we write her an email and check her out? Who's good in writing?,...lol.. I'm not. Jeany
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Post by teacherkl on Nov 28, 2010 23:52:12 GMT -5
I am actually not to familiar with Rachel Maddow other than hearing her name a few times in this area, but I am certainly willing to write to her, or to even try and speak with her face to face. I live in Northampton, and I agree that it is a great place to picket/get information out. People are a lot more open minded around here, and I'm sure many people would become enraged to hear how we're being treated. There are also many natural stores, homeopathic-type places to go to, so it is a great place for anyone with Morgellons to visit!
I'll see if I can get her contact information this week. Is anyone else located in driving distance to Northampton, MA? This WOULD be much more convenient than the city, where we'd probably get drowned out anyway. If we could even get 5 or 6 people to group together in this one area, we might be able to make this work.
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Post by pdidit on Nov 29, 2010 7:21:50 GMT -5
Hi Bessie, teacherkl and Jeany, This sounds like a great idea and seems like there are quite a few in Mass, which is surprising to me, since it is colder up there...brr...experienced this first hand since I too, lived up in Bedford outside of Concord and the Medford for about 10 years. Loved the people, smart and open minded--but NOT the weather Not a cold weather person and would rather be in Tampa right now! Anyway, getting someone in the media on our side is in my opinion, the way to go and so keep us posted on your progress with this! Way to go to keep the momentum going!!! Love pdidit
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Post by alivebutnotliving on Nov 30, 2010 8:59:23 GMT -5
Concord, NC (outside charlotte)
Give me a task or a group. I am ready to jump in! Power in numbers!
I grew up not far from Northhampton and agree that it is a good place to make some noise. I guess a lot of us were hit with this from MA.
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Post by toni on Nov 30, 2010 9:42:34 GMT -5
I'm smack dab in Las Vegas NV.
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Post by mms7679 on Nov 30, 2010 10:28:34 GMT -5
Delaware
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tom
New Member
Posts: 48
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Post by tom on Nov 30, 2010 11:29:40 GMT -5
Tom, Gaithersburg Maryland, I do not have morgellons but my Son and Wife Did and they are now gone, my fiance has morgellons, if I can be of help I will be right here, thanks
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