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Post by violet on Nov 10, 2011 14:34:44 GMT -5
Hi there absurdlyhaywired, While I am sorry you are in this predicament, I will be happy to add you to our states list, especially since I have been sitting here all by myself in Virginia...!!! I too live in Northern Virginia and just knew there had to be others just by what I see flying off the shelves around here...please send me a Private Message if you care to talk!!! Take a look at the compiled states list at this link: lymebusters.proboards.com/index.cgi?action=display&board=contact&thread=14501&page=1Hi, honey-bunny! You could add Violet and Suebee (deceased) to Maryland. I think Sammy is also from Maryland. And probably others. :-) Thanks for doing this list.
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Post by ginnym on Nov 20, 2011 11:31:37 GMT -5
I am in Northeastern New York
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Post by pdidit on Nov 20, 2011 13:29:44 GMT -5
Hi Violet!! Sorry it took me so long to get back to you--of course I will add you and think it is a great idea to add Suebee too...darn this disease and wish she was still with us! Well, know she is in spirit..
And thanks to ginnym for joining too--strength is in numbers ! I hope you find some comfort and help here on this site...
Love pdidit
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Post by pdidit on Nov 20, 2011 13:38:59 GMT -5
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Post by dkushner on Dec 25, 2011 13:03:03 GMT -5
Hi mercury, I got mine in San Francisco, CA too! - daniel
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carm
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Post by carm on Jan 10, 2012 7:55:52 GMT -5
I live in Florida.
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carm
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Post by carm on Jan 12, 2012 16:02:06 GMT -5
What did you do to get better? Are you in Florida. Is there a dr who believes you?
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Post by dianna5 on Feb 7, 2012 22:28:16 GMT -5
Hi All,
I am newly registered here, a first time poster, but feel like I kind of 'know' some of you already from reading throughout the last year. I live in Maryland... Pdidit did I read you went to an appointment at Hopkins somewhere in the threads? I have a lead on a husband and wife team in dermatology affiliated with Hopkins who may be open to listening a bit more than most docs do... If you are in the area near Baltimore, I would love to know a real live person who could relate to the strangeness that has become my world... Sending love to everyone here,
dianna5
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Post by violet on Feb 8, 2012 18:04:25 GMT -5
Hi All, I am newly registered here, a first time poster, but feel like I kind of 'know' some of you already from reading throughout the last year. I live in Maryland... Pdidit did I read you went to an appointment at Hopkins somewhere in the threads? I have a lead on a husband and wife team in dermatology affiliated with Hopkins who may be open to listening a bit more than most docs do... If you are in the area near Baltimore, I would love to know a real live person who could relate to the strangeness that has become my world... Sending love to everyone here, dianna5 Hello, Dianna. I'm from Maryland also, and I know exactly the couple you are speaking of! They have an excellent reputation. One thing you might need to know is that they have been for some years now focusing on cosmetic surgery rather than medical dermatological issues, unfortunately. But I definitely think it would be worth your while to see if you could talk with them about morgellons. Perhaps they would do that as a courtesy.
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Post by dianna5 on Feb 10, 2012 6:20:20 GMT -5
Hi Torpedo Lynne and Violet,
Thanks for responding! I don't know as I can say when exactly it all began.... Where is the beginning of the thread that started the great unraveling?? Lots of pain, loss of mobility, then a diagonisis of rheumatoid arthritis and fibromyalgia... Knowing something is still wrong and then seeing the sking textural changes. I started the great search we all engage in and then a cheap Celestron microscope documents the awful truth... Isolation is gradual and you find yourself truly alone, and in my case closer to God... The only one who is willing to hear anythng more on the subject. My brother said the other day, "Enough already with the plastic, it;s not like you're dieing of cancer!" My husband has retreated as far as one can while still residing in a physical body. My daughter remarks on how I have changed suggests a treatment path similar to the CDC's. Whatever....I remember reading posts here and there from Crystal River who said she was at a fair or something and thinks it started there. It was odd, because when I worked alot of fairs and festivals and had massive contact with people, I always think back to one particular wine festival and link it somehow to to part of the process. I was a people person to the nth degree and have lost that aspect as just a small slice of what was my life. Sometimes I think of this thing as death by a thousand cuts.... sorry to be so cheery there! I don't think a complete thought as to what this is doing to the inside... Some of my pics show the up and down movement of the fibers through the skin itself, like the old children's sewing cards. I think it shows the nano concept of 'folding' in action as it self replicates. The other pics are the usual startling collection of amazing colors of clear, black, red, blue, teal, violet, lilac, and occasionally orange and yellow fibers and masses of fiber balls as they bust out of the confines of their various 'seed pod' types. The hexagons and other metalic, hologram surfaced artifacts are a mystery as the different colored films that seem to show signs of peeling.... Incredible colors again, but at only 150x it's hard to see more... Jan Smith's work was an amazing help to me in the beginning. Some of the pics seem to show tiny leaves or blossoms...green matter. Please tell me is the next stage that when the bugs come to search of the plant matter? I will freak then, I think. I can handle the tech stuff better I think than than the other, especially after some close up shots. Oh sorry, I forgot all the above is in my head. I keep thinking alot of the above material came from my shin. Silly nilly, hormonal me! I hope you are both feeling okay today and got some sleep with the big old moon. A lot of material emerged over the last two weeks and the last two nights have been really tough. I would say the activity pics up when the moon is full, but that would sound like a LUNA-tic was speaking... but never the less, it is true. Best to all,
Dianna
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Post by pdidit on Feb 11, 2012 14:45:01 GMT -5
hi guys-- as lynn knows have been 'offline' --welcome Dianna5 --wish it was under different circumstances. I would love to meet you maybe halfway? I live 1 hour away. If not, we could talk...will send you a PM. Warning: symptoms so debilitating right now that it often leaves me unable to function... Hi Violet! And lynn...have to agree with you there on all accounts. A commercial would need financial backers though...open to any ideas. I was thinking about this news reporter who is so compassionate about our situation and has been for years. Whether she would stick her neck out is another story...look at these videos of her reporting this disease: Current News—a more compassionate report- abcnews.go.com/GMA/video/morgellons-mystery-syptoms-mind-psychosomatic-15446446here is a short compilation of news reports from a few years ago [ignore animations at the end--unnecessary], including the same reporter above who is very aware that this is real--might want to contact her to see if she would interview me? Humiliating but someone needs to step up and stop being afraid of being exposed. www.youtube.com/watch?v=dyjrzgHsASo&NR=1another rense interview--current www.youtube.com/watch?v=iJt5qW8dZew
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Post by pdidit on Feb 11, 2012 14:58:16 GMT -5
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Post by pdidit on Feb 12, 2012 8:43:36 GMT -5
Hi Lynn--wow, that is quite a vision and a good one! I like it!!! There is this artist too--wonder if you have seen his website? He did the brain illustration with fibers all over it...I forget and will have to find it for you . He has done some unbelievable illustrations for morgellons [and other causes] so if people weren't willing to step up and show their faces, maybe he could do something creative along those lines...like how the world flattens out with points of light and m people making comments. He is doing his illustrations for a nominal fee, if any, because I think he is sympathetic to our plight as well as others.
I will try to find the link of his and then maybe we should take this discussion elsewhere in order to keep this 'states' thread less cluttered with discussions...these are important ones though!!!
thanks for your encouragement xxoo Pdidit
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Post by pdidit on Feb 12, 2012 10:42:54 GMT -5
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Post by dianna5 on Feb 13, 2012 3:14:54 GMT -5
Pdidit... yes, sure send a message, we can talk, brainstorm, rant and rave. I already checked out pricing for billboards and even ads on the sides of tour buses, since I see so many of those on the highways outside of DC... The Morgies go to Washington. Who wants to make banners!? My ad idea is a pretty girl with a gorgeous smile and then a close up shot of a morg mustache made out of every vile and shocking kind of artifact and specimens with a big, colorful caption under it that reads... GOT MORGELLONS? Also checked out a site that makes bumper stickers... maybe a fundraiser by selling them... IT'S NOT IN MY HEAD, IT'S IN MY LEG, and then a nice colorful fiber bundle gracing either side of the text. Pardon me, but I might make one for myself in bright neon colors for the back of my little car that simply reads in stark black text... CDC SUX
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Post by dianna5 on Feb 16, 2012 3:10:39 GMT -5
thank you girl!
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Bgone
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Post by Bgone on Feb 25, 2012 12:08:01 GMT -5
Massachusetts.
Concord MA , close to Boston.
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Bgone
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Post by Bgone on Feb 25, 2012 21:42:16 GMT -5
Hi torpedo lynn, I have had this 2 years in June. It sucks. How about you?
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Post by pdidit on Feb 26, 2012 15:08:01 GMT -5
Hi Bgone--hey, I used to live in Bedford, right next to ya!!! My husband worked as a teacher in Concord...I sent you a PM reply but also here is the link to all of the compiled states to which you are added: lymebusters.proboards.com/index.cgi?action=display&board=contact&thread=14501&page=1As I said in the Pm, welcome but sorry you are going through this... Hi lynn--my goals always seem thwarted because of obstacles and health--my computer crashed big time and had to get a new laptop that was a lemon...then got another which I am having trouble with too--AND the co. I bought it from. I go for yet another test at john hopkins on Tuesday...another diversion from getting on board with the awareness campaign. Need to get this alien out of my intestines so this test is for a 'push' endoscopy where they want to do lots of biopsies [bit disappointed--wanted the camera capsule to video the location and then zap it out!!! Guess I was dreaming...think biopsies might be a waste of time $$$$] So bear with me being in and out of posting!!! xxoo pdidit
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Post by dianna5 on Feb 27, 2012 18:44:44 GMT -5
Hi there begone! I hope you find as much support, encouragement and info as I have in the last couple weeks since I joined here. It helps so much to not feel alone or so isolated in this quest for answwers...I used to live in MA a long time ago... but in the lovely Berkshires of western Massachusetts that I loved so much.
Lynn... How are you girl? I hope you feel strong today. I really think the gmo food issue holds alot to the key that will unlock the mystery. Me too... !gmo wrecked havoc on the body and immune system. Why else would I grow little plants from my pores? Citovky has great info on that topic...We should get a booth at the county fair and just sit in a black light and glow while a powerpoint presentation flips colorful pics behind us! Income producing Polymorphic Plant Woman on the runway! Hugss to you Lynn.
Pdidit... If you have energy, time etc, PM if you want to grab a cup of tea or five minutes of sun after Hopkins... I live about a half hour away. If not, maybe another time with more advance planning and good timing re the health etc... and brainstorm on awareness campaign ideas. I will go to Washington and present anything in persson... Rest up and feel well for tomorrw...
love to all,
Dianna
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