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Post by itchin4answers on Feb 16, 2012 0:49:31 GMT -5
Mystery disease cover-up?Authorities say that Lyme disease, which is spread by ticks, officially doesn't exist in Australia, and because of this doctors don't look for it. Thousands suffer from it, and the symptoms are devastating, and often fatal. It can be easily treated if caught early, but Australia's brightest scientific and medical minds have been at loggerheads for almost two decades over whether or not it's here. The existence of Lyme disease is medically recognised around the world, and although millions suffer, they can get immediate treatment. Video link: tinyurl.com/7axrcx4Lyme disease victims ignoredIt's a terrible illness that authorities insist doesn't exist here, but there are dozen of victims who say they want answers and proper treatment. It's fair to say that until last night most Australians didn't know about Lyme disease, but there are clearly plenty who've suffered from it. Our report triggered a massive response and now more victims are coming forward. Video link: tinyurl.com/89lnza3
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Post by itchin4answers on Feb 21, 2012 17:13:02 GMT -5
Lyme disease compensationDespite the official line that Lyme disease doesn't exist in Australia, one sufferer has fought for recognition and compensation, and won. His cause was helped by one doctor, who ignored the official line that the disease isn't here. Now other sufferers are expected to take action. As a gardener at a Coffs Harbour Resort, Robert Sotur was bitten by ticks at least 500 times over ten years. Video link: tinyurl.com/6oqe6fy
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Post by itchin4answers on Mar 24, 2012 7:03:03 GMT -5
Lyme disease mystery deepensThe latest mystery disease victim is just sixteen-month-old, and his parents are so desperate for the answers they're not getting here, they're heading to the US. The young family is packing up to fly to America in a race to save their son Daniel. On the outside Daniel Fileccia’s little life is all about blowing kisses and giving cuddles. But inside his tiny frame there are thousands of these Lyme disease bacteria, multiplying minute-by-minute, scouring through his blood and taking hold. Video link: tinyurl.com/7mxjuq2
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Post by Lynn on Mar 24, 2012 10:04:19 GMT -5
Hi Itchen
This made me cry. Can you help me find contact info for this family? I would love to get them some encouragement and maybe give them a name of someone who may be able to help.
In Light Lynn/TorpedoLynn
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Post by itchin4answers on Mar 24, 2012 19:00:27 GMT -5
Hi Lynn, Me too and I can't stop thinking about it. If you follow this link; tinyurl.com/7pk6wpnand click on "Viewer Feedback" - in the hope that Today Tonight pass your message on. Clare Brady is one of the Reporters and perhaps you could address your email to her. Thank you for wanting to help itchin
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Post by itchin4answers on Mar 24, 2012 19:22:13 GMT -5
I wanted to post this link; www.karlmcmanusfoundation.org/index.phpFor those interested in watching the video "Australia's Silent Disease" - thank you to all involved in the participation and making of this video. itchin
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Post by itchin4answers on Mar 25, 2012 16:10:10 GMT -5
Lyme disease outbreakOff the eastern coast of the United States, there lies a small and mysterious island which may unlock the key as to why hundreds of thousands of people are falling ill. There is growing evidence an outbreak with massive consequences has escaped from here, and in this special Sunday Night investigation, we look at the illness that’s infecting more than 225,000 Americans every year, with thousands more in Australia. Yet the Australian government refuses to admit the outbreak has reached our shores. As we uncover, there is a secret US government research facility on this island – a facility where highly contagious and deadly viruses were used in experiments and stored away from the mainland. Many believe the outbreak of the world’s fastest growing infectious disease has its origins on the island, and it’s now spreading across the globe. Video link: tinyurl.com/7umhqr9This is the best segment I have seen on Australian TV regarding Lyme disease. I felt like I was standing outside of myself watching last night. I am still crying this morning, it shouldn't be this way. Thank you to all the good people working very very hard behind the scenes to expose the truth and LIES.
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Post by itchin4answers on Apr 1, 2012 3:21:15 GMT -5
Date: Sun, 1 Apr 2012 13:17:54 +1000 Hello folks How are you, hope you are feeling ok, I know many of you have Borrelia and I know how waxing and waning our health is with Borrelia, I am so sorry for those of you, who are just some of many who have been misdiagnosed for years here in Australia, exacerbating your illness, be assured we are changing this appalling mal/mistreatment, that us, you and hundreds of thousands of Australian and their children have been getting in this country and we have been working very hard at mending this diabolical situation in Australia. In the meantime we are trying to change the fact that only a handful of Doctors in Australia are worth their salt, as most diagnoses with what they refer to as having an unknown cause/idiopathic, is actually Borrelia and co-infections of Borrelia and all of the unknown cause illnesses are on the rise in Australia because the true logical and known cause is being ignored here, often purposely. We need to get as many Doctors in Australia useful and preventing suffering and saving lives again and make them Lyme Literate Medical Doctors (LLMDs) who have been trained by International Lyme and Associated Diseases Society (ILADS). Those Doctors who are not Literate in diagnosing and treating Vector-Borne diseases are often just someone we pay a lot of money to, to be sat in a waiting room, over long periods of time, for long periods of time, only to be continually misdiagnosed. We need Doctors who are educated, not antiquated and ignorant of what is making a larger part of the Australian population very sick, Borrelia infections. We need Doctors who are in it for the patients/sufferers wellbeing, not those that are in it for the buck and their ego. We need Doctors who can order relevant tests and competently interpret the results, it is terrifying how many of the Doctors in Australia cannot tell the difference between Viral and Bacterial, Eczema from Erythema Migrans rash, a parasite from a delusion and a physical debilitating illness from that of a mental illness or hypochondria. This is why many either refuse to give you copies of your tests or their reports to your referring Doctors or make it very hard for you to acquire them, if there is nothing to hide they would be sharing this information. Even Builders have to participate in Continual Profession Development updates and checks each year to remain employed, what are they allowing these people with licences to kill free reign for, with no accountability for ours or our children’s health, life and well being. Some of you may already have the Lyme Newsletter attachment, above, I print it off, put it in letterboxes and hand it out as often as I can, or leave it on seats, etc, especially on the train, shopping centres etc, many are relating to this newsletter and finally seek help in the right areas once they read it. All of these little things help so much and can save lives and help avoid unnecessary suffering. Also, there is another Lyme disease story on tonight, on channel 7 at 6.30pm, The Sunday show. The following links are from Sunday show and Today Tonight over the last few weeks, that they have done on the truth about Lyme disease in Australia, everybody who hasn't seen them already, should watch. Please do not hesitate to contact me for any further information, good luck and good health to you and your families. au.news.yahoo.com/sunday-night/video/watch/28719898au.news.yahoo.com/today-tonight/h....isease-cover-upau.news.yahoo.com/today-tonight/l....ictims-ignored/au.news.yahoo.com/today-tonight/h....ensation/#videoau.news.yahoo.com/today-tonight/health/article/-/13207421/tick-timebombau.news.yahoo.com/today-tonight/l....ystery-deepens/The following link is of a petition that is of great importance to all Australian's, please sign it and pass it onto as many as possible. www.thepetitionsite.com/59/please....lyme-denied-is/Please confirm receipt of this email and that the attachments all came through ok. Kind regards Jodie (printed with permission of author)
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Post by itchin4answers on Apr 1, 2012 18:13:07 GMT -5
Lyme Disease Outbreak UpdateThis segment aired last night in Australia. The segment features my dear friends Jodie & Brett Donnelly. Video Link: tinyurl.com/7wol8b3
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Post by itchin4answers on Apr 2, 2012 17:43:44 GMT -5
I need assistance please. I have written to the author of "Lab 257" and my email keeps bouncing back. This is the web link for Michael Christopher Carroll; www.michaelchristophercarroll.com/work1.htmDoes anyone know how I can contact him? OR If someone could please write to Michael and pass on this web link; tinyurl.com/87j78h8Thank you itchin
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Post by itchin4answers on Apr 11, 2012 18:42:30 GMT -5
Hi everyone,
I just had a phone call from Dr Peter Mayne this morning.
He said "have I got news for YOU!"....my Lyme results are negative and Dr Mayne said this is so because Lyme has gone quiet given I had antibiotic treatment some years back AND the fact that my body was producing antibodies for Lyme in 2005 -"DID YOU HEAR THAT MORONS?"
I am positive for Bartonella!!
So NO Doxycycline, bugger because I had the prescription made up, another $5.80 donation to the Government.
Also, and this is good news for all of us, Dr Mayne has sent his presentations at the recent Morgellons Conference to my friend Leah (the lady who is organising the Morgellons Documentary). So, I have emailed Leah to get the presentations sent to me and then I can post for you guys. Dr Mayne asked if we could disseminate his presentation over the Internet. We sure can!!
The x-ray of my right foot was normal, of course it would be an x-ray will only show a broken bone.
MRI of my lumbar spine, well I am seeing my GP this morning so he can translate. In my last real job I was a medical typist and I could literally type MRI reports with my eyes shut. When I studied to be a medical typist - which included medical terminology, human biology and physiology I got a distinction. These days non of the medical terms make sense to me, and that is sad.
This YouTube shows part of my Lumbar spine issues, though not all.
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Post by Lynn on Apr 12, 2012 9:03:51 GMT -5
Hi Itchen
Finally the train is moving in a good direction. Hope this helps in some way to accomplish the goal.
In Light Lynn/TorpedoLynn
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Post by itchin4answers on Apr 12, 2012 18:27:52 GMT -5
Hi Lynn, Yeah, my GP was happy for me yesterday, he said "this is progress, good good". I had prepared myself for my results not really changing other peoples attitude towards me and yep I was right. Hard for my family to understand and I almost flipped my lid last night. Mum called so I had to fill her in on my results. She doesn't really understand, and I got annoyed saying "well my sister could help you with that but she won't!!!" I still have a lot of repressed anger and I don't like it. I am trying to heal, others just won't allow me to heal. I've decided to refrain from hitting them on the head with a mallet, a little extreme I think ;D Thank you for your encouragement Lynn Love itchin
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jwf
New Member
Piedmont, North Carolina
Posts: 14
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Post by jwf on Aug 29, 2012 23:38:54 GMT -5
It's interesting how often small minds prevail in the medical fields. Not long ago you couldn't get Lyme disease in California, because it was too far from Lyme, Ct. Then you couldn't get Lyme disease in Canada, because the deer mice, deer, and/or ticks couldn't cross the border. Otzi, the relatively young man from the Italian Alps had Lyme disease 5,300 years ago. Obviously, Lyme disease didn't get its start in Lyme, Ct., in the 1970's when vigilant moms noticed something wasn't right with their children.
And now we're lead to believe that Lyme disease exists on every continent on this planet except Australia. It's always a struggle uphill against ignorance and of course those who have a vested interest in maintaining the status quo. tinyurl.com/7rwzvzd
news.sciencemag.org/sciencenow/2012/02/iceman-was-a-medical-mess.html Blue Skies............John
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Post by Lynn on Aug 30, 2012 0:21:09 GMT -5
Hi JWF
This was so interesting. Thank you for sharing the article.
In Light Lynn/TorpedoLynn
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Post by kazzhsv on Sept 10, 2012 23:05:54 GMT -5
I live in NSW and was diagnosed with Lyme Disease three months ago. I also have Babesia and possibly Bartonella.
I have been on Doxy for the past 7 weeks to determine if I have Bartonella. I do not seem to be getting anywhere with my LLMD and feel they are less than compassionate at times.
Instead, I am looking to self-treat for Lyme. I am a biologist and am very knowledgable when it comes to knowing how the body works.
Is there anyone else out there in Australia that is self-treating or using alternative therapies to obtain relief from this debilitating illness?
PM me if you like - I look forward to hearing from you and it would be great to have a Lyme buddy to frequently chat to, as I'm very alone in this.
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Post by itchin4answers on Sept 11, 2012 0:56:20 GMT -5
I live in NSW and was diagnosed with Lyme Disease three months ago. I also have Babesia and possibly Bartonella. I have been on Doxy for the past 7 weeks to determine if I have Bartonella. I do not seem to be getting anywhere with my LLMD and feel they are less than compassionate at times. Instead, I am looking to self-treat for Lyme. I am a biologist and am very knowledgable when it comes to knowing how the body works. Is there anyone else out there in Australia that is self-treating or using alternative therapies to obtain relief from this debilitating illness? PM me if you like - I look forward to hearing from you and it would be great to have a Lyme buddy to frequently chat to, as I'm very alone in this. Hello fellow Aussie!! and welcome, Excuse me but I've just dragged myself out of bed and such a beautiful sunny day, but that's life with this disease. I live in the Eastern Suburbs of Melbourne, and I only got diagnosed Lyme disease February 2012. I have Bartonella, Rickettsia and Mycoplasma Fermentans. My Lyme doctor is in NSW so I am really on my own. My GP is extremely compassionate these days, but heck what can he do. He's a nice guy and just listened to me this morning. I showed him the tracks on my face and spoke of the fibers coming out of back. He noted everything down. To have a biologist on board this is fantastic though I am so sorry that you are sick too. Another member on the board here "sheredelight" is my dear friend in Brisbane, she pops in at LB every now and then. There are many in NSW with Lyme. My dream, and oh yes I love to dream, is a class action against our disgusting Government. It would be great IF we could move mountains together. If you look at my profile here on LB you will find my email address or send me a PM. I would be interested to know who your Lyme doctor is. Great to meet you. Love itchin
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Post by itchin4answers on Sept 23, 2012 2:11:23 GMT -5
Lyme disease a ticking bombtinyurl.com/94utxefThere is a lot of heart breaking information on the above link. Also, this is a name NO one in AU should forget; " Jeremy McNulty is NSW Health director of communicable diseases .. Mr McNulty said that NSW Health will not assist Australian acquired Lyme Disease". Give me 5 minutes alone with this poor excuse of a human being and his life wouldn't be worth living!
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Post by simone on Sept 23, 2012 7:50:24 GMT -5
Itchin... Thanks for keeping us updated with what's going on in Australia... I start my antibiotics this week. 3+ yrs... Finally!!
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Post by itchin4answers on Sept 23, 2012 20:01:21 GMT -5
Itchin... Thanks for keeping us updated with what's going on in Australia... I start my antibiotics this week. 3+ yrs... Finally!! Hi Simone, you're very welcome. Gosh I was so angry yesterday after looking through that link. My Mum is bouncing off the walls too, she can not believe that idiot Jeremy McNulty. As Mum said "we can't all be delusional!". I really wish you well with your antibiotic treatment. We really do have the patience of angels huh. Love itchin
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