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Post by itchin4answers on Sept 24, 2012 19:48:12 GMT -5
I am taking a chance and a risk with what I am about to say. Though after all these years of suffering I believe people need to know.
As you are aware I flew interstate to see a Lyme doctor in February this year. I am taking Ciprol at present to treat Mycoplasma Fermentans. My Lyme doctor said some months back that he would be interested to know how my skin goes whilst on the Ciprol.
Yesterday I sent a horrific photo of my face after the hair coming out which is attached to my head. I also forwarded a photo of my right cheek which had started with a cluster of blisters and pain to go with it.
I did get a reply from my Lyme doctor; I was told he can not be involved in my day to day or monthly care and that this is the responsibility of my GP.
My GP is not Lyme Literate. My GP made it very clear to me months ago that if I were positive for Lyme he will not treat me.
I believe you all know the Lyme doctor I am speaking of and in a nut shell this person is a money grabbing git and an arrogant SOB.
Please do not judge me on what I have just told you. I am telling the truth and what is a person meant to do. As far as I am aware there are NO Lyme doctors in Melbourne.
I am still taking the Ciprol which is an extremely toxic drug and I really don't have anyone to monitor me.
My GP is working half hours now as he is very sick himself and wears a mask during consults.
I am not a happy girl and jumping off a bridge really would be a lot easier, though I will NOT give this useless medically system and cause to say I am crazy. I am upset and I have every right to be.
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Post by Baraka Obam on Sept 25, 2012 8:31:27 GMT -5
the doctors are slime balls, they have no care for patients, they are greedy selfcentered parasites.
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Post by itchin4answers on Sept 25, 2012 17:37:38 GMT -5
the doctors are slime balls, they have no care for patients, they are greedy selfcentered parasites. Hey Baraka, Thanks mate. You know this doctor must be getting me confused with someone else because I got a reply yesterday saying; "Advise she is misinterpreting my reply and I have always said she needs Lyme treatment, but she keeps trying to decide her own treatments." Huh? - honest to God I am so over these jerks. The doctor told me he is not treating the Lyme because I have had Lyme 20yrs plus. It's the Mycoplasma and the Bartonella that needs treating. Blah blah blah..... Hope you feeling a little better Baraka, enjoy the rest of your holiday. itchin.
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Post by ruthintoronto on Sept 25, 2012 18:33:29 GMT -5
Itchin, I am so sorry you are going through this. It is such a shame when we can't trust the Dr.'s and get the run around. This disease seems to be something we need to figure out ourselves. As if we have the experience. It pisses me off to know end. You can't get treatment in Canada cause they use lousy tests for lymes. So you have to go alternative which costs a bomb. I guess if your not rich you don't get well. That's not true because I entent to get well and follow the trail of prior morgie's who have beat this. Hugs, Itchin.
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Post by itchin4answers on Sept 25, 2012 18:48:51 GMT -5
Itchin, I am so sorry you are going through this. It is such a shame when we can't trust the Dr.'s and get the run around. This disease seems to be something we need to figure out ourselves. As if we have the experience. It pisses me off to know end. You can't get treatment in Canada cause they use lousy tests for lymes. So you have to go alternative which costs a bomb. I guess if your not rich you don't get well. That's not true because I entent to get well and follow the trail of prior morgie's who have beat this. Hugs, Itchin. Hi Ruth, I'm with ya, so teed off it ain't funny. Well you know I have sooo much determination and I do believe that keeping my mind in a good place can certainly help. When I look at the big picture of this, wow, things are such a mess. Walk away from the internet and I do feel ever so alone. To have forums such as this is a blessing. We are still fighting for the recognition of Lyme in Australia. I think this country is so stupid, I love the country but the people are backward (sorry). I am English born and became an Australian Citizen when I was 9yrs. Sadly, the refugees are oozing out of the local suburbs and they take over the local doctors surgery. I have nothing against these people, it's just that Aussie citizens are in a worse situation than ever before. I wish I could find myself a really really big box. Coz I would stand on it and shout my heart out!!! Wishing you well ruth and me too itchin
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Post by itchin4answers on Sept 25, 2012 21:46:40 GMT -5
Okie dokie here we go, I do like a happy ending you know.
I am wondering if the message I sent to a trusted person made this happen, if so Thank YOU.
My Lyme doctor phoned me and apparently I was to take Ciprol for 2 months, whoops - I've had more Ciprol than you can poke a stick at. Sooo the remaining Ciprol is going in the bin! Yippee.
I did say to the doctor there is no point writing this information to my GP, you need to tell me! gosh the way my brain is I need written instructions and that is what my Lyme doctor sent me, which is great.
Soooo I am to commence Rifampicin and then introduce Doxy (oh no...lol) and then Plaquenil. So in 3 months I could be jumping through hoops!
No wonder my anger has been through the roof, the Bartonella was not being treated and the Ciprol was and has sent me loopy.
Things are looking up and I am not going to hit myself over the head for what I said earlier because there is a serious breakdown in communication amongst doctors and patients. Looking at the sky today I am not surprised!
Thanks guys. itchin
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Post by itchin4answers on Sept 26, 2012 1:58:15 GMT -5
My last whinge for the day... I am posting this link on RIFAMPICIN for others in Australia that maybe prescribed this drug. www.australianprescriber.com/magazine/33/5/145/6My chemist has to order this drug in for me, the only catch is Rifampicin is not on PBS and costs $71 as opposed to $5.80. To receive on PBS one must have a serious staphylococcal infection. (see above link) Bureaucratic bull, they pip us at every post.
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Post by itchin4answers on Sept 30, 2012 18:46:07 GMT -5
Sorry folks for the delay in posting the recent news on Lyme, here tis; Victims demand Lyme disease recognitionUpdated Tue Sep 18, 2012 3:32pm AEST tinyurl.com/9n3fbau Meeting RecordRepresentatives of NSW Health met with Lyme disease advocacy group representatives at the NSW Health head office at 73 Miller Street, North Sydney on 13 September 2012. tinyurl.com/8dntpbo This interview (below) was from 2010, however in light of the findings from the 5,000 year old mummy, I felt it was relevant; Call for improved Lyme disease testing July 20, 2010 tinyurl.com/2djeb5z--------------------------------------------------------------------- MS Cure?www.abc.net.au/catalyst/stories/3572695.htm
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Post by itchin4answers on Oct 1, 2012 16:15:49 GMT -5
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Post by itchin4answers on Oct 2, 2012 17:23:51 GMT -5
Research Article Proof That Chronic Lyme Disease ExistsDaniel J. CameronDepartment of Medicine, Northern Westchester Hospital, Mt. Kisco, NY 10549, USAReceived 11 December 2009; Accepted 26 March 2010 www.hindawi.com/journals/ipid/2010/876450/
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Post by itchin4answers on Oct 8, 2012 2:51:36 GMT -5
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Post by Baraka Obam on Oct 9, 2012 4:00:08 GMT -5
Our numbers are hidden by the fact that the results are long term, stealthy and hidden in a mass of symptom disease.
I have gone through this process for 40 years now, I have G/F with, some slight, some intense, seemingly unconnected issues and a daughter that was born with issues as a baby but now is showing more promenent symptoms.
Our numbers are in the billions, our numbers are not depicted by just skin problems, the skin problems are secondary to the internal destruction of the body proper.
The huge rise in all promenent disease birth and long term unending issues stems from this vector.
I caught it 40 years ago and knew instantly that my life had changed.
I do not wonder the capabilitys of this malady anymore, it is capable of furthuring any issue humans on this planet face.
It can easily be identified by the finding of UNKNOWN CAUSE MANUFACTURING IN THE BODY OF FIBROUSE MATERIAL.
If you use the words FIBROUS MATERIAL with most any disease on the rise, even somthing so mundane as diabeties, you will find that diabeties is connected to this development.
Diabeties is not the only disease with this marker, it is all disease that is on the rise, if you have trouble finding the connection, I will find it for you, its there, you just have to look.
What is the largest shame, the scientists know about it, either they are fools, or they do not care to identify the connection.
UNKNOWN CAUSE DISEASE = FIBROUS MATERIAL, AMOLOIDS AND GRANULOMUS MATERIAL
AND ITS KILLING SCORES OF PEOPLE.
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Post by itchin4answers on Oct 9, 2012 16:48:56 GMT -5
Our numbers are hidden by the fact that the results are long term, stealthy and hidden in a mass of symptom disease. I have gone through this process for 40 years now, I have G/F with, some slight, some intense, seemingly unconnected issues and a daughter that was born with issues as a baby but now is showing more promenent symptoms. Our numbers are in the billions, our numbers are not depicted by just skin problems, the skin problems are secondary to the internal destruction of the body proper. The huge rise in all promenent disease birth and long term unending issues stems from this vector. I caught it 40 years ago and knew instantly that my life had changed. I do not wonder the capabilitys of this malady anymore, it is capable of furthuring any issue humans on this planet face. It can easily be identified by the finding of UNKNOWN CAUSE MANUFACTURING IN THE BODY OF FIBROUSE MATERIAL. If you use the words FIBROUS MATERIAL with most any disease on the rise, even somthing so mundane as diabeties, you will find that diabeties is connected to this development. Diabeties is not the only disease with this marker, it is all disease that is on the rise, if you have trouble finding the connection, I will find it for you, its there, you just have to look. What is the largest shame, the scientists know about it, either they are fools, or they do not care to identify the connection. UNKNOWN CAUSE DISEASE = FIBROUS MATERIAL, AMOLOIDS AND GRANULOMUS MATERIAL AND ITS KILLING SCORES OF PEOPLE. When the skin gets sick that is the bodies outward sign to say that something is seriously wrong in the body. When I was first faced with seeing doctors about my skin, that they refused to look or touch and telling me that healthy skin is happy skin. What on Earth did they teach them in medical school. No, not all doctors are the same and we ALL have different belief structures. However, when it comes to the human body I would have thought humanity could go down the same path, not to be. Yes Baraka, killing scores of people is the cold hard truth. I had a Lyme friend tell me her medication has gone up 600% and her medication is now $350. This is INSANITY. Making money on the dying, ignoring the reality of a real disease and real suffering. I would not wish this nightmare on my worst enemy, though some days I say to myself that a high profile politician needs to get this disease before anyone is even going to entertain us walking wounded.
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Post by Baraka Obam on Oct 9, 2012 17:31:24 GMT -5
They have had this, first off Clinton has it, he does not have to manifest lesions, or itching, he has the throat and other issues, take one look at him and you may understand he is not a well man, he is also probably on a bucket of drugs, some of them being steroids hiding the skin issues. Just one of my problems early on www.dailymail.co.uk/health/article-1339518/Bill-Clinton-Prince-Charles-Its-rosacea-stupid--red-facial-flushes-caused-debilitating-skin-condition.htmlwww.medicinenet.com/script/main/art.asp?articlekey=113255This is a rundown on Clintons health, he is worse off than I am, read this, he has severe sinus and eye problems and a ton of other issues. As most of us know our hair falls out many have their eyebrows disapere, CLINTONS MOTHER HAD NO EYEBROWS. Just read. www.doctorzebra.com/prez/g42.htmThis disease is in ANYONE with huge symptom list and many more with SEEMINGLY NO SYMPTOM LIST.
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Post by itchin4answers on Oct 9, 2012 18:09:36 GMT -5
They have had this, first off Clinton has it, he does not have to manifest lesions, or itching, he has the throat and other issues, take one look at him and you may understand he is not a well man, he is also probably on a bucket of drugs, some of them being steroids hiding the skin issues. Just one of my problems early on www.dailymail.co.uk/health/article-1339518/Bill-Clinton-Prince-Charles-Its-rosacea-stupid--red-facial-flushes-caused-debilitating-skin-condition.htmlwww.medicinenet.com/script/main/art.asp?articlekey=113255This is a rundown on Clintons health, he is worse off than I am, read this, he has severe sinus and eye problems and a ton of other issues. As most of us know our hair falls out many have their eyebrows disapere, CLINTONS MOTHER HAD NO EYEBROWS. Just read. www.doctorzebra.com/prez/g42.htmThis disease is in ANYONE with huge symptom list and many more with SEEMINGLY NO SYMPTOM LIST. I'd forgotten about Mr Clinton, of course, he was on that late night show, the name escapes me. I recall pdidit posted the link. I was referring to our Politicians (in hope). However, The Department of Health & Aging and The Office of Health Protection have taken the CDC report on as gospel truth (I am guessing). Saying "the CDC study was comprehensive". I see Mr Clinton had a tonsillectomy at 6yrs. I had mine at 24yrs, though the doctors let mine get to the stage of looking like I had Ebola Virus. The holes where that big in my tonsils that one night eating chicken I got a chicken bone lodged in my tonsil. I was working at a big hospital at the time so the next morning I had to go to the staff clinic. Sure enough, a chicken bone in my tonsil and the Doctor pulled it out. I was told in 1999 I had rosacea and again in 2004 though never was any treatment offered to me. I was told "we do not know what causes rosacea". My allergies were also very similar to Mr Clinton. The times I can remember being so congested with allergies and a cold at the same time. The last real job I had in 2000 was in the Radiology Practice, some days I would work on the front desk with the public and high profile people that would come in. I remember the day so well with my nose running non stop, I felt so embarrassed. I couldn't talk properly. I don't recall I got a lot of sympathy from the public because in their eyes "I looked good". My supervisor could have sent me home, she didn't. She was very jealous of me and ordered that I tie my hair back and not have it loose. She said all the Radiologists had complained. Understandably I was so upset and I couldn't believe her. I was right I asked about 3 of the Radiologists, one owned the practice! all 3 said "no" and one of the Radiologists who owned the MRI would always say to me "I love your hair, it's so groovy". Yeah the other ladies were aloud to wear the hair down but not me. This is a snippet about Mr Clinton's allergies; Before his election, at least, Clinton was taking Hismanal (astemizole) for "environmental allergies." Consequences of his allergic rhinitis included: "sinus congestion, nasal drainage, and occasional swelling of the temporal area." A sinus window was surgically constructed in 1979 [3b]. An allergist evaluated him in autumn 1991 and reported [3f]: He [Clinton] has a history of nasal congestion, swelling of his eyes, and difficulty breathing through his nose. His nasal congestion was so severe in the spring of 1991 that he had difficulty running. There is no history of wheezing, asthma, or severe allergic reaction. His signs and symptoms are worse in the fall. He is noted to be a nonsmoker. Skin testing showed moderate reactions to house dust, mold spores, cat dander, weed pollen, grass pollen, beef, and milk. Allergy injections were prescribed, and he tolerated them well. By 1992 "he was on the usual maintenance dose and was taking his injections every two weeks, depending on symptoms" [3b]. Clinton continued to have allergy symptoms while President.
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Post by itchin4answers on Oct 9, 2012 18:38:20 GMT -5
They have had this, first off Clinton has it, he does not have to manifest lesions, or itching, he has the throat and other issues, take one look at him and you may understand he is not a well man, he is also probably on a bucket of drugs, some of them being steroids hiding the skin issues. Just one of my problems early on www.dailymail.co.uk/health/article-1339518/Bill-Clinton-Prince-Charles-Its-rosacea-stupid--red-facial-flushes-caused-debilitating-skin-condition.htmlwww.medicinenet.com/script/main/art.asp?articlekey=113255This is a rundown on Clintons health, he is worse off than I am, read this, he has severe sinus and eye problems and a ton of other issues. As most of us know our hair falls out many have their eyebrows disapere, CLINTONS MOTHER HAD NO EYEBROWS. Just read. www.doctorzebra.com/prez/g42.htmThis disease is in ANYONE with huge symptom list and many more with SEEMINGLY NO SYMPTOM LIST. I'd forgotten about Mr Clinton, of course, he was on that late night show, the name escapes me. I recall pdidit posted the link. I was referring to our Politicians (in hope). However, The Department of Health & Aging and The Office of Health Protection have taken the CDC report on as gospel truth (I am guessing). Saying "the CDC study was comprehensive". I see Mr Clinton had a tonsillectomy at 6yrs. I had mine at 24yrs, though the doctors let mine get to the stage of looking like I had Ebola Virus. The holes where that big in my tonsils that one night eating chicken I got a chicken bone lodged in my tonsil. I was working at a big hospital at the time so the next morning I had to go to the staff clinic. Sure enough, a chicken bone in my tonsil and the Doctor pulled it out. I was told in 1999 I had rosacea and again in 2004 though never was any treatment offered to me. I was told "we do not know what causes rosacea". My allergies were also very similar to Mr Clinton. The times I can remember being so congested with allergies and a cold at the same time. The last real job I had in 2000 was in the Radiology Practice, some days I would work on the front desk with the public and high profile people that would come in. I remember the day so well with my nose running non stop, I felt so embarrassed. I couldn't talk properly. I don't recall I got a lot of sympathy from the public because in their eyes "I looked good". My supervisor could have sent me home, she didn't. She was very jealous of me and ordered that I tie my hair back and not have it loose. She said all the Radiologists had complained. Understandably I was so upset and I couldn't believe her. I was right I asked about 3 of the Radiologists, one owned the practice! all 3 said "no" and one of the Radiologists who owned the MRI would always say to me "I love your hair, it's so groovy". Yeah the other ladies were aloud to wear the hair down but not me. This is a snippet about Mr Clinton's allergies; Before his election, at least, Clinton was taking Hismanal (astemizole) for "environmental allergies." Consequences of his allergic rhinitis included: "sinus congestion, nasal drainage, and occasional swelling of the temporal area." A sinus window was surgically constructed in 1979 [3b]. An allergist evaluated him in autumn 1991 and reported [3f]: He [Clinton] has a history of nasal congestion, swelling of his eyes, and difficulty breathing through his nose. His nasal congestion was so severe in the spring of 1991 that he had difficulty running. There is no history of wheezing, asthma, or severe allergic reaction. His signs and symptoms are worse in the fall. He is noted to be a nonsmoker. Skin testing showed moderate reactions to house dust, mold spores, cat dander, weed pollen, grass pollen, beef, and milk. Allergy injections were prescribed, and he tolerated them well. By 1992 "he was on the usual maintenance dose and was taking his injections every two weeks, depending on symptoms" [3b]. Clinton continued to have allergy symptoms while President. As a sufferer of Lyme and Morgellons this is where I got very confused and thank you Baraka for bringing up Mr Clinton as the penny dropped a moment ago. This video interview of 30mins is well worth watching. The author of "Lab257". Homeland Security are not on our side and for a sufferer it becomes very hard to grasp the politics, greed, lies, control and corruption.
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Post by itchin4answers on Oct 11, 2012 21:41:36 GMT -5
Tennille's Lyme Disease story on Today Tonight Adelaidewww.todaytonightadelaide.com.au/Lyme Disease Protest (NSW Health)www.karlmcmanusfoundation.org.au/The Karl McManus Foundation will be hosting a public forum in Lyme Disease at the Effective Learning Centre in Wayville. The speakers will be Dr Mualla McManus, Dr Ann Mitrovic, and Ms Ann Cincotta. Date & Time: 7:30pm October 12th, 2012 Address: 26 King William Road, Wayville Cost: $15 (Full), or $10 (Friends of ELC) tinyurl.com/9kc9hzw
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Post by itchin4answers on Oct 12, 2012 16:11:59 GMT -5
An update on Rifampicin. I thought I had said earlier on this thread about this drug NOT being available in tablet form in Australia. My Chemist checked his computer and said they were not available in tablet form. Checking on the net they are and my Lyme doctor said they were available in tablet form. Sooo long story short we have a problem with disinformation (no surprise) and/or not having certain drugs available for people like me!! I commenced the Rifampicin on the full dose of 300mg because I couldn't half the capsule. No wonder I wanted to die this time last week. I have leveled out rather well on this drug now with regards to the herx. A little rough the other day when the local council were pruning trees in the my road and their chain saw triggered a seizure in me. No damage done (to the eye). I'm still here and that's the main thing. Not rushing to add the Doxy as I have a 2 hour to this Wedding a week today and I don't want to be sick. RIFAMPICIN For additional information see Rifamycins For drug interactions see Rifamycins, Rifampicin Mode of action Mode of action from Rifamycins Rifampicin (derivative of rifamycin B) and rifabutin (derivative of rifamycin S) inhibit bacterial RNA polymerase. They are bactericidal against rapidly dividing M. tuberculosis and active against those which are semi-dormant (intracellular organisms). Indications TB with other drugs Leprosy Other mycobacterial infections, eg M. ulcerans MRSA infection, with other agents Selected serious or prosthesis-associated infection with other anti-staphylococcal agents Prophylaxis for close contacts of people with meningococcal disease, H. influenzae type b disease Indications from Rifamycins tinyurl.com/8kf2s2a
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Post by Baraka Obam on Oct 12, 2012 19:27:22 GMT -5
This sounds interesting, hope it works out for you, I have always had a idea that this issue may be related in some way to leprosy. Why, because of the systemic lesions, I posted once a picture of a woman from the dark ages with leprosy, she had the lesions placed where I got them, that was kinda shocking. I went to be checked for leprosy, it was one of the main testing facilitys in the USA, now imagine this, leprosy is quite prevelent in Mexico and in many countrys of south America, we have ALOT of these poor people here, poor people are usually the ones with leprocy, WHY COULD I NOT GET TESTED FOR LEPROSY, it was a horrible situation at best, the woman at the desk was yelling out what is hansens disease, LEPROSY, oh my god, she calls my name out, I could have rushed up there and stuck a football in her mouth. She did this two or three times. This is why i really became interested in leprosy. www.youtube.com/watch?v=u42ueyKDq4Qwww.youtube.com/watch?v=3nexwbL4xMYAnyway why could I not get a leprosy test, hmmmmmmmmmm. healthcare.utah.edu/healthlibrary/related/doc.php?type=6&id=658005
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Post by itchin4answers on Oct 12, 2012 22:30:33 GMT -5
This sounds interesting, hope it works out for you, I have always had a idea that this issue may be related in some way to leprosy. Why, because of the systemic lesions, I posted once a picture of a woman from the dark ages with leprosy, she had the lesions placed where I got them, that was kinda shocking. I went to be checked for leprosy, it was one of the main testing facilitys in the USA, now imagine this, leprosy is quite prevelent in Mexico and in many countrys of south America, we have ALOT of these poor people here, poor people are usually the ones with leprocy, WHY COULD I NOT GET TESTED FOR LEPROSY, it was a horrible situation at best, the woman at the desk was yelling out what is hansens disease, LEPROSY, oh my god, she calls my name out, I could have rushed up there and stuck a football in her mouth. She did this two or three times. This is why i really became interested in leprosy. www.youtube.com/watch?v=u42ueyKDq4Qwww.youtube.com/watch?v=3nexwbL4xMYAnyway why could I not get a leprosy test, hmmmmmmmmmm. healthcare.utah.edu/healthlibrary/related/doc.php?type=6&id=658005Thank you Baraka. Morgellons is known to cause far worse nerve damage than Hansen's disease. I gave money to a beggar in Thailand, he had Hansen's disease, this was in 2002. I also picked up a kitty who had lesions and goodness knows what else, on my Thailand trip. I put this Kitty on my bed! and I bought it cat food. You see, I was never neurotic about things. As long as I washed my hands and body. Some how things have changed. The chemtrails (IMO) are causing reactions that those that planned this didn't know what would happen, or maybe they (thought) they did. Either way, one heck of a mess. History lesson on Hansen's Disease. Posting some links which are short, though interesting and please see the very bottom link to read accounts from sufferers; Leprosy is one of the oldest maladies and is well recognized in the oldest civilization of China, Egypt and India as a contagious, mutilating and incurable disease. The humans feared it because it resulted in disfigurement and physical disabilities, which are irreversible. Leprosy is also associated with a lot of stigma and in ancient times the community shunned people affected with leprosy into separate leper colonies Leprosy is believed to have existed in Egypt as long ago as 4000 BC and in India and Japan earlier than 1000 BC. It is also called as the infectious disease of the East. It later spread to Europe and British Isles and by 13th centaury it reached epidemic proportions. Read more: Leprosy / Hansen's Disease - History | Medindia www.medindia.net/patients/patientinfo/Leprosy.htmHow is leprosy transmitted?Researchers suggest that M. leprae are spread person to person by nasal secretions or droplets. However, the disease is not highly contagious like the flu. They speculate that infected droplets reach other peoples' nasal passages and begin the infection there. Some investigators suggest the infected droplets can infect others by entering breaks in the skin. M. leprae apparently cannot infect intact skin. Rarely, humans get leprosy from the few animal species mentioned above. Occurrence in animals makes it difficult to eradicate leprosy from endemic sources. Routes of transmission are still being researched for leprosy. Recent genetic studies have demonstrated that several genes (about seven) are associated with an increased susceptibility to leprosy; some researchers now conclude that susceptibility to leprosy may be partially inheritable. www.medicinenet.com/leprosy/page5.htm Hansen's Disease Patients at Kalawao and KalaupapaIt is the year 1920. You have been diagnosed with leprosy. What goes through your mind as you realize you will be taken from your home, job, parents, wife or husband, children, friends, and sent away, perhaps forever? How do you comprehend your fate—that of separation, sickness, and eventual death? www.nps.gov/kala/historyculture/patients.htm In Their Own Words[/b] In the past, both patients and visitors to Kalawao and Kalaupapa wrote about their impressions and experiences. First-hand accounts reveal how people felt about being sent to this remote place, and of the conditions they faced. The following quotes offer some insight into patient life as seen from the standpoint of the patients themselves. “One of the worst things about this illness is what was done to me as a young boy. First, I was sent away from my family. That was hard. I was so sad to go to Kalaupapa. They told me right out that I would die here; that I would never see my family again. I heard them say this phrase, something I will never forget. They said, ‘This is your last place. This is where you are going to stay, and die.’ That’s what they told me. I was a thirteen-year-old kid.” - Male, part-Hawaiian, c. 1977-78www.nps.gov/kala/historyculture/words.htm
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