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Post by itchin4answers on Oct 2, 2012 0:38:01 GMT -5
Hi Itchen So weird how many things we all have in common and then people around us have big old blinders on. At home it has been a bit frustrating lately. In Light Lynn/TorpedoLynn Hi Lynn, You just described Morgellons, it's a no win situation. In saying that, we have discussed on this forum in the past about mental illness. I think the word should be changed and/or deleted. Many people are mentally "deranged" for some reason or other. Born bad? .....I don't believe so. itchin
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 4, 2012 15:39:36 GMT -5
Hi all,
Another view of my live blood today, and a UVB session afterward.
Bloods looking really good. RBC's almost perfect, round, full and plump. WBC's absolutely huge and very healthy... I have a virus -first time I have been sick with anything like that since I got this illness, and it is heartening to see the WBC's so active and healthy. Looks like there is no more fat in the blood. Still some candida-like yeasts, with bacteria infiltrating them. Yeast is the most difficult aspect to deal with, and it takes a long time to clear yeasts from the blood. Still some bacteria, very active and the same type as seen in first images, but not a lot. No fibrin seen.
I continue with my diet of grains/carbs, veg, fruit, seaweeds, and coconut oil. Still not having any fats, oils or sugars in diet. I am tiring of such a bland diet, but getting used to it; cravings for the foods and food groups that I no longer eat have now gone. I was concerned about not having any meat, and being unable to eat nuts, seeds or or legumes because of my digestive issues, but read that a person only really needs 40 grams of protein a day, and likely I get that much from rice and pasta in my diet.
Interestingly, it seems that I have not been metabolizing fat(s), so that is why they ended up in my blood. I wonder if fats have anything to do with the organism that is bothering my scalp and skin?
I continue to have scalp issues of crawling and stinging and face/eye/nose involvement. This has calmed down in the past three days, though whether from the UVB and improvement of my blood and immune system, or just a part of the cycle that I have seen before, I cannot tell. I have been in the last part of the cycle for about two weeks (see my previous post regards the stages) and much, much longer than usual, but the last two days that has slowed considerably. It should be replaced with the first stage again, much sand-like particles from the scalp, but I have not seen this. Instead, I had a few 'whispies' yesterday; the whispies stage usually lasts two to three days. This is not following the cycle that I have seen so much of during this illness, but just why remains unclear.
I will update when I have more information. I will try and include another video when my blood analysis shows a huge difference. The goal is homeostasis --balance of the blood and components, with all healthy and working in harmony. My practitioner is optimistic that, at that point, all these troublesome symptoms will be dealt with by my body recognizing this 'infection' and it will be resolved.
I keep my fingers crossed for all of us!
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Ayla
Full Member
Posts: 117
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Post by Ayla on Oct 5, 2012 7:06:36 GMT -5
"I will update when I have more information. I will try and include another video when my blood analysis shows a huge difference. The goal is homeostasis --balance of the blood and components, with all healthy and working in harmony. My practitioner is optimistic that, at that point, all these troublesome symptoms will be dealt with by my body recognizing this 'infection' and it will be resolved."
From your mouth to God's ear! I hope this happens. Homeostasis. Such a beautiful word.
If it works, I'm coming to the U.K. for a few months of treatment. So, so happy for you.
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 5, 2012 11:11:15 GMT -5
Thanks, morgticia
Lots of stinging and itching symptoms today, and many tiny reddish-brown 'things' falling from scalp and hair onto skin and face and all around me. Many sensations of allergic reaction and tired from being kept awake much of night from it.
Still optimistic that bloods looking very much better and WBC's very big and round and trapping much bacteria. Fingers crossed while vacuuming everything!
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 13, 2012 15:43:17 GMT -5
Update on blood progress:
This week I got to see my live blood again.
There is further improvement.
The red blood cells look really healthy. I saw none with their cell walls breached by bacteria; the double lipid layer of each red blood cell looks very healthy, all are very big, round and plump -some so plump that they do not have much of a dimple.
The white blood cells look very healthy, too. They are the biggest that I have seen them yet. All of them were jam-packed with bacteria; they have been doing their job very well.
There is still bacteria in my blood, and all of it is very active. While watching them on the monitor, I did not see any that were actively attacking RBC's. I did not see as many bacteria as I have seen in previous viewings, but it is still there.
There are still some candida-like yeasts but not as many. Those that I did see were infiltrated with bacteria. I wonder if they are symbiotic?
No fibrin was seen.
After viewing my live blood I had another UVB session, this time with green light to strengthen the white blood cells.
I continue with my diet of grains, fresh veg and fruit, seaweed and coconut oil. I have also added some Quorn -which is an edible fungus-- for protein. I did not think that I would like this very much, but it is fine. Some of it resembles chicken, some resembles ground beef. It adds texture and a bit of flavor to dishes so that they are not quite so bland.
I have also begun talking Vit D, 1,000mg per day, Vit C 3,200mg per day.
Still have a virus, but it is waning.
My scalp issues continue to be very bothersome; still in the 'adult stage' and very plentiful, itchy and stinging.
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Post by Lynn on Oct 14, 2012 12:26:13 GMT -5
Hi Bluesky
Sure am excited about how this is all turning out for you and hope it will get you to be able to fight off what ever is lingering. Worries me though that issues on the scalp are not deterred yet at all. I wonder if a Infrared heating pad would start another source of healing on the head?
I saw that Walgreen's sales a infra heating pad for only 40 bucks. I wonder if it would actually do any good compared to all those expensive 200 and 300 dollars pads.
When my head issues started rearing up again the mustard treatment helped put it back to very low key. Any movement I get I can lean over a sink and gentle tousles my fair and black flecks rain down into the sink. Sometimes that stops the movement and most of the time I douse my head with TKO orange diluted in a spray bottle. One whole Cap of the TKO into a 24 oz spray bottle of filtered water. Stop movement right now.
In Light Lynn/TorpedoLynn
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Post by threader on Oct 15, 2012 23:47:18 GMT -5
I'm experiencing a similar "scalp and neck bloom", with all other symptoms improving, 2 weeks into Scab's horse wormer protocol. Why is it so hard to get the fiber bloom out of the scalp? I reckon it's because it is always exposed to the environment, and some life form that interacts with the condition. Do your fibers incite itching in others who are around you?
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Post by Baraka Obam on Oct 17, 2012 19:49:07 GMT -5
How long will you be on this scabdraggers protocal? ?
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 19, 2012 15:43:45 GMT -5
I am not sure why some people have a lot of fibers, I don't have fibers; not all people with this illness have them. So, I do not have itching from that. Mark Darrah used Raman Microspectroscopy to determine the constituents in fibers, specks, glitter and other artifacts from the skin of people with Morgellons. You can find his posts here: www.morgellons-disease-research.com/Morgellons-Message-Board/morgellons-disease-fiber-disease/7479-calcite-succinoglycans-tandem.htmlHe mentioned that he posted all of that info, and more completely, here on LB, but I cannot find his posts. Maybe Admin can find them? Sorry you are having a difficult time; hope it gets better. I'm experiencing a similar "scalp and neck bloom", with all other symptoms improving, 2 weeks into Scab's horse wormer protocol. Why is it so hard to get the fiber bloom out of the scalp? I reckon it's because it is always exposed to the environment, and some life form that interacts with the condition. Do your fibers incite itching in others who are around you?
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 19, 2012 16:07:50 GMT -5
Update on UVB therapy--
I did not have a session this week and will not have another one until the week after next.
I continue with my diet, and have a goodly amount of energy and cognitive function. I have omitted wheat entirely, as it felt as though I was not digesting it very well. In addition to having added Vits A and D, I have now also added good multivitamins and chelated minerals and pro-biotics today.
Curiously, I still have the 'adult stage' of whatever comes from my scalp, at least it looks like some sort of tiny reddish-brown mite-like thing, and it stings when it gets on my skin and has to be scrapped off to be removed. I am assuming that this is actually some sort of skin parasite, similar to a mite because if it stays on my skin for a minute and stops stinging, I can scrape them off and crush them and I can see blood in the debris.
This is by far the longest period of time that I have seen only this stage of thing, and not seen any larva-type or other types of apparent stages on my skin. Not sure what to make of this, but thought to note it once again.
My scalp issues continue, beginning very intensely at sunset and into the evening until around 11pm. They are not very bothersome when I wake in the morning, but do ramp up after I have been up for an hour. I am washing my hair with lavender soap, which seems to help somewhat.
In all, except for the scalp issues, I am feeling really good. Which is hugely better than my first time around with this mess.
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Post by Baraka Obam on Oct 19, 2012 16:53:23 GMT -5
I don't want to bust up your party but, I bet my life MARK DARRAH is wrong about his ASSUMPTION that fibers are sticking to the goo developed or delivered to the lesion sites from the OUTSIDE and delivered internally, who is this guy anyway?, in fact he alleges the fibers are not being developed by the body
Mark the yellow fluid will MANUFACTURE fibers, and I had a microscopic video showing the formations taking place on a slide with mostly only yellow fluid on the slide.
I know most of the people that have used a microscope have seen this happen a time or 10.
I would like a pile of your poo BLUESKY to rummage through, I will bet any money you would like to bet that you have fibrous material all up in you.
For some reason darkfield did not show fibers but regular microscopes do..
We had in Tampa about 10 or 12 people all at once do the darkfield, I did not see fibers there as I can remember.
I know there are components of other things in the fluid I can not see, but when they burst into action you can see what happens in terms of developing tubes.
This is not a maybe, it is not a guess, it is fact, I have also caught the black tubes assembling themselves together into one big blue tube in grid formation, this is a one time perfect situation view of the ways this adapts to make itself viable in many situations.
If you for a minute assume that we are gathering fibers from the environment I assure you, you are WRONG, we are fiber producing factories.
Its ok to have ideas Mark, I can prove what I say is true, I had plenty of product to play with, (YOU SEE I AM A FIBER FACTORY) and all the time in the world to play with my product.
This is sort of a copy of a post on MDR site it had vidio and all but that will not easily transfer and play here..
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Post by threader on Oct 19, 2012 18:34:05 GMT -5
@ B.O.- When I began the horse med protocol, I was following a post from Scab that suggested 6 weeks- 1 week Fenben, then 1 week Equimax/paramote, repeat 3 times. I liked this plan because I've felt for a long time I had something blooming in me monthly, during the full moon. Therefore I would be getting two full-moon blooms in 6 weeks. But a member on another site told me it took her 7 months on them for the skin crawlies to cease. My blood panels are coming back fine for kidney, liver, and all other function. I feel great except the damn scalp shedding/PATM. I'm still producing a fair amount of weird stuff in stool. So if it takes longer than 6 weeks, I may be open to a longer regimen. We'll see. Regarding the production of fibers from within or outside the body, I absolutely agree with B.O. that these are produced inside. When it gets real bad I have peed them! But there are a lot of these fibers just floating around in public places. The worst I've ever seen was an airport bar in Houston that had a bright spotlight that lit up a beam of "lint", like one might notice riding an elevator with me. But the air in that airport was so full of fibers it would have taken 50 of me to produce. bluesky- It means something that we are both having tremendous success reducing most M symptoms, using completely unrelated treatments, but we are unable to beat the scalp issues. I stopped growing funky, fake, morg hairs, my hair texture got normal again, stopped standing up, the goo is much reduced.... but the crawlies, fiber shed, and PATM that is released from the scalp continue, and they are worse than before I started the meds. To me, it seems whatever stage of the organism that is the most difficult to kill is interacting with the environment. I also feel the crawling on my lower back when I sit down with my shirt untucked. If I wear a hoodie most of the scalp issues stop. Is something I can't see feeding off of the Morg death?
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 20, 2012 11:29:49 GMT -5
Well, Baraka,
In his posts, Darrah did state that he thought that the fibers were being manufactured by the body. I think you will have to read his posts and discuss the issue of fibers and his findings with Mark Darrah who worked at Sunybrook. I was merely replying to threader regards his comment, tho it was off topic from UVB therapy and live blood images. As far as fibrous material and fibers, or lesions, I have stated previously, that I have none of those.
threader-
The symptoms that I have and that I associate with my illness which have been reduced are tiredness and lack of stamina, cognitive difficulty, joint and muscle pain, vision difficulty, insomnia. But the only scalp symptom that I have had (and continue to have) is something tiny reddish-brown that appears to bite and make me itch. I have never had any goo, fibers or fiber shedding, or fake hairs. I am unclear what you mean by PATM?
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Post by Baraka Obam on Oct 20, 2012 12:39:20 GMT -5
I am not sure why some people have a lot of fibers, I don't have fibers; not all people with this illness have them. [/quote] When I came back from service I had never SEEN fibers until one night in a blacklight bar a woman said you have little white things all over you. I went home and got out a old black light, and looked into a mirror, holy lint ball batman. I was covered with what I assumed was lint, because my mother kept towels untill they were just lint, I assumed again, it must be her bad habit of being a child from a family of 8, born in the depression. I started to wash my own cloths alone, no white nothing, I changed the filter in the drier, nothing, then I hung them out to dry and only used new linen towels to dry off, I then used a hair drier, Nothing changed my lint condition. It was then that I knew this was a condition of the HIDEN CAUSE itching disease. I took a closer look in the black light and saw these are strands, they are about 1/8 inch long most, 1000s are white, a couple are orange, one or two were green, this now was under a black light. There was nothing I could do, they would not go away so I decided to stop the daily huge amount of drinking, this abated the problem somewhat finally the issue went away, I should check to see once again just to make sure that it has stayed away. I think the daily abuse of the liver and having this disease coupled with bashing the disease with a steady onslaught of toxic alcohol gave me the ability to see part of my invaders symptoms. I am a fiber factory. Check yourself with a black light, I just did, nothing but the white plaque on both sides of the nose and above the mustash on both sides. People imagine they do not have fibers, to say so without checking you give off false readings on the disease. THIS IS A FIBER DISEASE, graulomus material and amoloids we also enjoy, this material is cause by , it destroys our organs ability to do their work properly and in the long run damages them. WE FACE A HUGE AMOUNT OF FIBROUS UNKNOWN CAUSE DISEASE. The symptom list is ungoing. I will bet a airplane ticket any of you that say you have NO FIBERS can have me fly to your city and examine your urine blood and excrement, if you have no fibers I will pay for the ticket if you have fibers you will pay for my ticket. Thats fair, if you believe so strongly that your husbands and you show no signs of fiber material in your bodys that you will post this falacy you should be willing to PUNISH me for being so all knowing. Yaaa Yaaa, I think so, I would LOVE to see me eat crow, it hardley EVER happens and that is why I am willing to stop B/S right at its insepttion and will bet my money to prove it. You on the other hand risk nothing if correct about your fiber status.. I usually don't speak for fun, and I do not like to eat crow sooooo, here is a big chance to make me know I am a big mouth fool. If your not willing to make me spenp a weekend proving myself wrong at my own cost please keep the I HAVE NO FIBERS idea to yourself, or go and invest a tiny little bit of money in a common microscope, you may not have them coming out your skin, you may not have lesions yet but you got them all up inside you. I have had this disease 40 years now, I got the lesions about 8 years ago, the lesions came after doctors used 5 years of steroids, and antibiotics on me, I feel possibly these drugs lowered my immune responce to the pathogen just enough to speed up the development of the hidden lesion/TUMOR material. My opinion is I may have never had a large enough amount of material inside for my immune system to attack the involvment and out them unto the surface of my skin. That is a opinion. The opinion was not developed while taking the simplistic doctor bull handed to me on a plate. Disease is not caused by nerves, nerves are destroyed by hidden pathogens, allergys are not the evil, iterference or aggravation of the invader by these materials is more like it, anti immune, a crock of beans, the body is trying to out the material that has been developing slowly in the body in every organ and every cell. When the body attacks its own organ the immune system is doing what it should only it can not win, at this point we are totally invaded. What will be our next fight, will it be big or small, will it be this or that, will you imagine all your ungoing disease as started by one entity, or as a snowball affect, or will you think every think that happens to you, a mass of disease unrelated to the other because your upset, because your sad, because you have anti immune disease. PLEASE spare me, I have no fibers, this itching disease is a fibrous unknown cause disease, all the disease on the rise has this material even diabeties that the children ARE BEING BORN WITH. God did not come down and hand this to me on a plate, I just googled it, its there, all of the information is there, ALL OF IT EXCEPT WHAT CAUSES THE FIBROUS MATERIAL in all these diseases
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Post by threader on Oct 20, 2012 18:34:21 GMT -5
PATM= People Allergic To Me They are a whole forum community that probably has Morgellons and don't realize it. What they consider a disease, I consider one of my symptoms. I'm trying to use the acronym lots in the M forums so the minority of us with this symptom have a common language to describe it.
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Ayla
Full Member
Posts: 117
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Post by Ayla on Oct 20, 2012 18:35:29 GMT -5
Bluesky, have you examined your skin with a microscope on a daily basis over a period of time, that you know you don't have fibers?
I have only seen fibers about 4 times in 3 years on myself with the naked eye and that's only because I look so carefully. However, my scope tells me quite a different story. The fibers are microscopic in my case and could easily go unnoticed.
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 21, 2012 11:44:12 GMT -5
I will say this one more time but not again after this. I do not have any fibers. Samples from my skin have been looked at repeatedly since I have had this tiny thing bothering my skin. The microscope that was used magnified things as small as 400 microns. No fibers -other than a single shirt fiber-- have ever been seen. Ever.
Now, if you have any comments about live blood analysis or UVB therapy I would like to read them.
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Post by Baraka Obam on Oct 21, 2012 13:39:54 GMT -5
When you say you have no fibers in this thread you open yourself up to others commenting on it.
I must say, if you do not have fibers in your blood, urine and saliva, you my dear have another disease.
I will still take my chances with losing my money AND proving you wrong.
Say it again, LOL.
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Oct 22, 2012 14:35:37 GMT -5
You have had your comment. I have replied. Discussion about fibers ended. Please return to the thread topic, if you have any discourse about that.
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Post by Baraka Obam on Oct 22, 2012 17:53:45 GMT -5
Madam, you can not just dismiss the grand and illustrious Baraka Obam, its ludicrous, how dare you.
I have important debate, the other side of the coin, opinion, commentary, yes controversy must be given considerable attention, other wise, information with merit will be lacking
Many thousands of hours of work could be destroyed by the words of anyone, with the desire to say anything.. I already said, it once I do not need to say it again, if you have this disease you have fibers in your fecal matter and your blood, darkfield and phase contrast do not show fibers for some odd reason.
A regular microscope will shop the fibers.
If you do not have fibers I would actually have to wonder what disease you are facing as most all of the disease that is on the rise is connected to fibrous material, not 1, not 21 but near all disease has fibrous UNKNOWN CAUSE material connected to the malady.
I do not just go on possibility I go on facts and probability.
I am NOW done speaking about this, if I will be allowed.
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