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Post by itchin4answers on Oct 28, 2013 16:15:41 GMT -5
Hey itchin-thank you for the thank you! It's nice not to be called an obsessive delusional, which is what I get from other sites I've shared on. I'm isolated and lonely with this, too, no one comes around and I'm sick of going out and trying to explain. At least I don't have to care for a child as well. I feel for you. Take care please. Talk with you later. Hay They've called you names on other sites? what is it with people. They get off on calling people names when they haven't any proof about anything. I wish I didn't have to go out. Yesterday I took my son school on the bus and I saw my sons school teacher and she asked what happened to my face. I said I had an allergic reaction. She said she felt sorry for me "you poor thing" she said. I couldn't wait to get home. Under my eyes was so red, looked like sunburn. The products for the poison ivy, the cleanser and the scrub are really good. It does shift the muck, though I got a touch over zealous - the cleanser has to be rubbed into the skin for 2 minutes - now that's a long time to rub! then you wash & redo. This morning I look like I'm sunburnt all over my face and my eyes are puffy and red!! The worse part is that I have to catch a train into town this morning to see my eye specialist. I'd cancel if it were not important I go. My eyes have deteriorated very quickly in the last 12 months. I feel an idiot that I have to go out looking like a lobster. I'm sure my eye specialist will comment (who wouldn't) on my face. He knows I have Lyme, though last year he was under the impression that Lyme was only from a particularly part of the USA. Imagine me trying to explain that I have a fiber networks in my face and black crap! Ok well I just have to take it in my stride. I'm tired, fed up and over trying to treat my skin, as my skin reacts whenever I try to get this stuff out. I want to go on strike as a mother! I'd love maybe 3 - 5 days to myself just doing nothing or things I enjoy. I'm over catching public transport and am not looking forward to the festive season as it almost drives me over the edge these days. I'm looking for a brick to throw through the TV and perhaps I look for a big brown bag for my head whilst I'm at it. I am always hopeful for better days...ha...yeah am I kidding myself, I just don't know...
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Post by violet on Oct 28, 2013 16:26:14 GMT -5
Hey itchin-thank you for the thank you! It's nice not to be called an obsessive delusional, which is what I get from other sites I've shared on. I'm isolated and lonely with this, too, no one comes around and I'm sick of going out and trying to explain. At least I don't have to care for a child as well. I feel for you. Take care please. Talk with you later. Hay They've called you names on other sites? what is it with people. They get off on calling people names when they haven't any proof about anything. I wish I didn't have to go out. Yesterday I took my son school on the bus and I saw my sons school teacher and she asked what happened to my face. I said I had an allergic reaction. She said she felt sorry for me "you poor thing" she said. I couldn't wait to get home. Under my eyes was so red, looked like sunburn. The products for the poison ivy, the cleanser and the scrub are really good. It does shift the muck, though I got a touch over zealous - the cleanser has to be rubbed into the skin for 2 minutes - now that's a long time to rub! then you wash & redo. This morning I look like I'm sunburnt all over my face and my eyes are puffy and red!! The worse part is that I have to catch a train into town this morning to see my eye specialist. I'd cancel if it were not important I go. My eyes have deteriorated very quickly in the last 12 months. I feel an idiot that I have to go out looking like a lobster. I'm sure my eye specialist will comment (who wouldn't) on my face. He knows I have Lyme, though last year he was under the impression that Lyme was only from a particularly part of the USA. Imagine me trying to explain that I have a fiber networks in my face and black crap! Ok well I just have to take it in my stride. I'm tired, fed up and over trying to treat my skin, as my skin reacts whenever I try to get this stuff out. I want to go on strike as a mother! I'd love maybe 3 - 5 days to myself just doing nothing or things I enjoy. I'm over catching public transport and am not looking forward to the festive season as it almost drives me over the edge these days. I'm looking for a brick to throw through the TV and perhaps I look for a big brown bag for my head whilst I'm at it. I am always hopeful for better days...ha...yeah am I kidding myself, I just don't know... Gosh, Itch. I'm so sorry for all you have been going through, and continue to go through. I can relate to so much of what you say (the brick, the bag, the embarrassing facial skin, isolation and loneliness (even with being in touch by e-mail/phone with friends), finding the holidays hard... Am so sorry you are feeling low. I hear ypi. The holiday part of what we are feeling is not unusual. Just know that (unfortunately) we have a lot of company. There are always such high expectations of happiness and festivity around this time of year, and it can really be hard. And hey, Hay. So sorry to hear you were called names on another Board. Ut's hard not to be taken seriously.
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Post by itchin4answers on Oct 29, 2013 3:31:54 GMT -5
Hay, I thought today about those people calling you names. They sure don't have this disease, because anyone who has this knows those "claws" & "hooks". That's why I said I felt faint, because it's real just on a smaller scale. I would like to think the name callers are paid disinformation specialists, then again there are a lot of hateful cruel people and they get off on it.
Thank you for understanding Violent.
I re read my post from this morning, and I wasn't too harsh on myself - if that's the most negative I'm going to get, well I did ok. My day turned out a little better than I thought - the law of attraction is attainable even with a red face. I'm in constant check of my mind most days because mood swings can be frequent, getting low is terrible - trying to find common ground is the goal. It has been a difficult year to say the least. I am surprised at my resilience and then I can loath myself - this disease makes me feel inferior and out of place. I know that's my mind playing tricks.
My face improved through the day, I had a case of "felt worse than it looked" and what bothered me the most was because I couldn't see properly. I have this film over my eyes - my friend interstate posted me some MSM and colloidal zinc eye drops and they arrived yesterday, what a blessing.
My eye specialist never commented and the nurse who did the eye examine hadn't noticed when I apologised for my red swollen eyes. I did mention to her I had advanced Lyme disease now in my skin & brain, she said that I looked as though I was doing well.
My eye specialist is a really nice doctor. He asked me how life was, I said terrible, and that the Lyme was advanced now. Well he heard my frustration and said "that's the trouble with these diseases, you have to learn to live with them". He's happy for me to keep taking Plaquenil, and said it will help with arthritic symptoms. I'm having pin hole laser to both eyes Thursday morning. I have the same condition as my Mum - narrow angle lense glaucoma.. This procedure is to prevent an acute attack. Thankfully this type of glaucoma is treatable and we see the top eye specialist in Melbourne. I need glasses too.
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Post by absurdlyhaywired on Oct 31, 2013 17:16:58 GMT -5
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Post by itchin4answers on Nov 3, 2013 18:32:24 GMT -5
Hey there Hay, I was thinking that perhaps if you add captions to your videos. I'm not sure what I'm looking at with that video. Perhaps if you could mention magnification and what the specimen is. Hope you don't mind me suggested this.
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Post by absurdlyhaywired on Nov 3, 2013 20:52:44 GMT -5
Hey there Hay, I was thinking that perhaps if you add captions to your videos. I'm not sure what I'm looking at with that video. Perhaps if you could mention magnification and what the specimen is. Hope you don't mind me suggested this. Hi-I didn't expect anyone would know what that picture I posted was. I don't know what's in my videos either, therefore, no captions, I don't know what to say in any captions and I'm too sick and lazy anyway. You see, I don't consider them as specimens of different tissue, as they're all the same regardless of where they were obtained. Itchin -I don't mind your suggestion at all. Truth is you're not the first to have made such a suggestion..........Baraka! I hope you'll both accept my excuses. I do have some descriptions on youtube for some of the videos. That last one was an excerpt from a different video called Maydays. It was a big gel blob that came OUT OF my face. I had it under the scope and when I looked and saw the activity I rushed to set up to record. There was no need for the rush though-it went on for a long time. 400X magnification I really think a lot of it is some kind of slime mold protist thing. And whatever it is, it's the worst of my symptoms or co-infections. I say that because of the skin issue. It is hideous and too painful. Especially on the face. Your description of your face sounds much like what I'm suffering. Seems the only way I can prevent it from getting as bad as before is by mechanically removing what I can. It's still hideous and it still hurts and it just won't quit! So, what is it? Talk with you later- - - - - Hay - - - --
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Post by itchin4answers on Nov 3, 2013 21:43:03 GMT -5
Hey there Hay, I was thinking that perhaps if you add captions to your videos. I'm not sure what I'm looking at with that video. Perhaps if you could mention magnification and what the specimen is. Hope you don't mind me suggested this. Hi-I didn't expect anyone would know what that picture I posted was. I don't know what's in my videos either, therefore, no captions, I don't know what to say in any captions and I'm too sick and lazy anyway. You see, I don't consider them as specimens of different tissue, as they're all the same regardless of where they were obtained. Itchin -I don't mind your suggestion at all. Truth is you're not the first to have made such a suggestion..........Baraka! I hope you'll both accept my excuses. I do have some descriptions on youtube for some of the videos. That last one was an excerpt from a different video called Maydays. It was a big gel blob that came OUT OF my face. I had it under the scope and when I looked and saw the activity I rushed to set up to record. There was no need for the rush though-it went on for a long time. 400X magnification I really think a lot of it is some kind of slime mold protist thing. And whatever it is, it's the worst of my symptoms or co-infections. I say that because of the skin issue. It is hideous and too painful. Especially on the face. Your description of your face sounds much like what I'm suffering. Seems the only way I can prevent it from getting as bad as before is by mechanically removing what I can. It's still hideous and it still hurts and it just won't quit! So, what is it? Talk with you later- - - - - Hay - - - -- Of course I accept your excuses!! which are extremely valid. When you explained things the way you did I can so relate. Your microscope is very good - and the hook picture you posted 100X is just so gross because that is how it feels. Mechanically seems the only way and it makes me feel ill & exhausted. When I see what comes out of my face & neck I say no wonder I feel like I'm dragging myself around. It does hurt and that's no lie, it just seems to go on and on. After I treat my skin it looks tight and shiny and feels bloody awful!!
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Post by absurdlyhaywired on Nov 4, 2013 18:18:16 GMT -5
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Post by itchin4answers on Nov 12, 2013 19:17:32 GMT -5
I sure see what you're saying, yep non the wiser!
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Post by absurdlyhaywired on Nov 25, 2013 2:57:01 GMT -5
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Post by absurdlyhaywired on Dec 11, 2013 4:30:10 GMT -5
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Post by absurdlyhaywired on Jan 8, 2014 17:37:36 GMT -5
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Post by absurdlyhaywired on Jan 13, 2014 8:02:15 GMT -5
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Post by absurdlyhaywired on Jan 14, 2014 3:38:24 GMT -5
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Post by Baraka Obam on Jan 14, 2014 15:53:49 GMT -5
If you want to look at your video you will see the spirial, look at the singlre broke down spiral in the pictures you will see it is not close it is exact right down to the way it turns. How does it get to a spot on the skin unless it is growing in the body this spiral vine like growth system is what I think makes the deep lines in the skin present upon waking. Its like art, LOL, very good presentation, I saw something in this one that I have not seen before. I have not seen it before from where your taking it from, I assume this stuff was from lesion?? Anyway, there is a few pictures that show clearly ONE spirial now you may find this in feces, that is only when it has broken down will you find one strand. Up untill the yellow bundle breaks down and dissolves they are in a big thick bundle like a cars wireing, inside the bundle are probably 40 seperatley wrapped spirals, the system of them are like a vine as it grows branches will come off the vine, this is very easy to see. It is as a doctor would say, NORMAL, LOL. Have I mewntioned I despise most all doctors, they are all DWR. (Doctors Without Realize)
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Post by absurdlyhaywired on Jan 14, 2014 17:41:47 GMT -5
Wow Baraka- those are some great pictures you posted. I'm going to post a few spirals here. Do you think you could get some of your good doctor friends to have a look and help us out? LOL I've worked closely with lots of doctors and I found that they're pretty competent at stuff when they're at their vacation boat houses . ............................in their boats, or flying their planes, or on their snow/water ski's or on the greens........................and at the games or the races or the theater, etc.............. Any doctors reading? That was a complement! Look at these spirals uncoiling. Click and view in full screen. Attachments:
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Post by Baraka Obam on Jan 14, 2014 19:14:00 GMT -5
This is EXACTLY the picture I was talking about, NOW, where did this fluid and material come from, I have never caught a view of it from the lesions, only in urine every once in a great while and always in the colon.
Others have gotten this from themselves and their grand babies poop.
In fact it was another member that brought it forth, it was kritters from MDR.
Thank you Kritters where ever you are.
PLEASE tell me where you got it from, I believe these people that view spirals think this is LYME spirochetes and it is NOT, way too big.
The issue, if they view them with a electron microscope are they just early forms of this entity.
Not everything that spirials is Spirochetes.
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Post by itchin4answers on Oct 31, 2014 19:48:48 GMT -5
Hey itchin-thank you for the thank you! It's nice not to be called an obsessive delusional, which is what I get from other sites I've shared on. I'm isolated and lonely with this, too, no one comes around and I'm sick of going out and trying to explain. At least I don't have to care for a child as well. I feel for you. Take care please. Talk with you later. Hay Hay there
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Post by itchin4answers on Oct 31, 2014 19:53:17 GMT -5
They've called you names on other sites? what is it with people. They get off on calling people names when they haven't any proof about anything. I wish I didn't have to go out. Yesterday I took my son school on the bus and I saw my sons school teacher and she asked what happened to my face. I said I had an allergic reaction. She said she felt sorry for me "you poor thing" she said. I couldn't wait to get home. Under my eyes was so red, looked like sunburn. The products for the poison ivy, the cleanser and the scrub are really good. It does shift the muck, though I got a touch over zealous - the cleanser has to be rubbed into the skin for 2 minutes - now that's a long time to rub! then you wash & redo. This morning I look like I'm sunburnt all over my face and my eyes are puffy and red!! The worse part is that I have to catch a train into town this morning to see my eye specialist. I'd cancel if it were not important I go. My eyes have deteriorated very quickly in the last 12 months. I feel an idiot that I have to go out looking like a lobster. I'm sure my eye specialist will comment (who wouldn't) on my face. He knows I have Lyme, though last year he was under the impression that Lyme was only from a particularly part of the USA. Imagine me trying to explain that I have a fiber networks in my face and black crap! Ok well I just have to take it in my stride. I'm tired, fed up and over trying to treat my skin, as my skin reacts whenever I try to get this stuff out. I want to go on strike as a mother! I'd love maybe 3 - 5 days to myself just doing nothing or things I enjoy. I'm over catching public transport and am not looking forward to the festive season as it almost drives me over the edge these days. I'm looking for a brick to throw through the TV and perhaps I look for a big brown bag for my head whilst I'm at it. I am always hopeful for better days...ha...yeah am I kidding myself, I just don't know... Gosh, Itch. I'm so sorry for all you have been going through, and continue to go through. I can relate to so much of what you say (the brick, the bag, the embarrassing facial skin, isolation and loneliness (even with being in touch by e-mail/phone with friends), finding the holidays hard... Am so sorry you are feeling low. I hear ypi. The holiday part of what we are feeling is not unusual. Just know that (unfortunately) we have a lot of company. There are always such high expectations of happiness and festivity around this time of year, and it can really be hard. And hey, Hay. So sorry to hear you were called names on another Board. Ut's hard not to be taken seriously.
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Post by itchin4answers on Nov 7, 2014 12:53:10 GMT -5
Hay, I thought today about those people calling you names. They sure don't have this disease, because anyone who has this knows those "claws" & "hooks". That's why I said I felt faint, because it's real just on a smaller scale. I would like to think the name callers are paid disinformation specialists, then again there are a lot of hateful cruel people and they get off on it. Thank you for understanding Violent. I re read my post from this morning, and I wasn't too harsh on myself - if that's the most negative I'm going to get, well I did ok. My day turned out a little better than I thought - the law of attraction is attainable even with a red face. I'm in constant check of my mind most days because mood swings can be frequent, getting low is terrible - trying to find common ground is the goal. It has been a difficult year to say the least. I am surprised at my resilience and then I can loath myself - this disease makes me feel inferior and out of place. I know that's my mind playing tricks. My face improved through the day, I had a case of "felt worse than it looked" and what bothered me the most was because I couldn't see properly. I have this film over my eyes - my friend interstate posted me some MSM and colloidal zinc eye drops and they arrived yesterday, what a blessing. My eye specialist never commented and the nurse who did the eye examine hadn't noticed when I apologised for my red swollen eyes. I did mention to her I had advanced Lyme disease now in my skin & brain, she said that I looked as though I was doing well. My eye specialist is a really nice doctor. He asked me how life was, I said terrible, and that the Lyme was advanced now. Well he heard my frustration and said "that's the trouble with these diseases, you have to learn to live with them". He's happy for me to keep taking Plaquenil, and said it will help with arthritic symptoms. I'm having pin hole laser to both eyes Thursday morning. I have the same condition as my Mum - narrow angle lense glaucoma.. This procedure is to prevent an acute attack. Thankfully this type of glaucoma is treatable and we see the top eye specialist in Melbourne. I need glasses too.
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