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Post by bannanny on May 3, 2015 11:09:59 GMT -5
Well, it's been awhile, but I still think about you all every day and keep you right here in my heart! Just wanted to pop in and tell you that... and to say me and my baby are doin great! It's been 5 yrs now since our dear Suebe gave Tom to me... and we just keep gettin better and falling in love more and more every day! Life is beautiful... and I'm even doin well regarding morgs. I so pray and hope that each and every one of you are too! It was the day I decided to stop all picking and pulling and looking that I started to get better. I figure it's becuz the day I did stop was the day morgs had no cause to continue to replicate anymore. Yep, still feel it... but the sensations are sooooooo weak that I don't even think about it anymore. So I wanted to not only share that bit of info with you, but to tell you I do very much still have you in my thoughts and prayers always and that Tom and me are still goin strong (and always and forever will!) I want you all to have a golden day... and I'm giving you the BIGGEST of BIG HUGS ever!! I love you sooooooooooooooooo much!! s551.photobucket.com/user/bannanny/media/UL14d_zpskuhnvtrr.jpg.htmls551.photobucket.com/user/bannanny/media/20140227_083055_zpsj7trro62.jpg.html
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Post by Baraka Obam on May 4, 2015 1:22:43 GMT -5
Guess its just me here glad for you to have the good life, not everyone is, if your looking for the masses I think they started a bug and breakfast club. Hopefully they are all doing better, somehow I doubt all are. Just a few die hards left here.
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Post by itchin4answers on May 4, 2015 5:54:43 GMT -5
You look great so happy for you both. I'm not doing so great. Hairy face, I keep losing them big fibers, I don't pick or pull. My skin does it's own thing. My insides are what concerns me particularly my brain. When I started this antibiotic I got a little paranoid. Gosh if I get psychosis I'll be accused of taking drugs. Sorry it's a maddening world finding the right treatment and honest people who are not taking money from the dying whilst grinning, it stinks. I turned 47 years old today, did nothing special, my son never wished me happy birthday because his Lyme is so bad. Morgellons is killing us. www.youtube.com/watch?v=1rGlqV79xFA
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Post by toni on May 4, 2015 11:08:49 GMT -5
Well, it's been awhile, but I still think about you all every day and keep you right here in my heart! Just wanted to pop in and tell you that... and to say me and my baby are doin great! It's been 5 yrs now since our dear Suebe gave Tom to me... and we just keep gettin better and falling in love more and more every day! Life is beautiful... and I'm even doin well regarding morgs. I so pray and hope that each and every one of you are too! It was the day I decided to stop all picking and pulling and looking that I started to get better. I figure it's becuz the day I did stop was the day morgs had no cause to continue to replicate anymore. Yep, still feel it... but the sensations are sooooooo weak that I don't even think about it anymore. So I wanted to not only share that bit of info with you, but to tell you I do very much still have you in my thoughts and prayers always and that Tom and me are still goin strong (and always and forever will!) I want you all to have a golden day... and I'm giving you the BIGGEST of BIG HUGS ever!! I love you sooooooooooooooooo much!! s551.photobucket.com/user/bannanny/media/UL14d_zpskuhnvtrr.jpg.htmls551.photobucket.com/user/bannanny/media/20140227_083055_zpsj7trro62.jpg.htmlHello there Bannanny!!! It's great to see you again and Tom. I'm SO glad you're both doing well, I know you're not better, but you're living again. You both look fantastic, (one would never know anything was going on) and I'm just so glad you've posted and so happy too that you both are so happy. Good to see you Bannanny. Lots of love, Toni
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Post by itchin4answers on May 4, 2015 17:17:42 GMT -5
Well, it's been awhile, but I still think about you all every day and keep you right here in my heart! Just wanted to pop in and tell you that... and to say me and my baby are doin great! It's been 5 yrs now since our dear Suebe gave Tom to me... and we just keep gettin better and falling in love more and more every day! Life is beautiful... and I'm even doin well regarding morgs. I so pray and hope that each and every one of you are too! It was the day I decided to stop all picking and pulling and looking that I started to get better. I figure it's becuz the day I did stop was the day morgs had no cause to continue to replicate anymore. Yep, still feel it... but the sensations are sooooooo weak that I don't even think about it anymore. So I wanted to not only share that bit of info with you, but to tell you I do very much still have you in my thoughts and prayers always and that Tom and me are still goin strong (and always and forever will!) I want you all to have a golden day... and I'm giving you the BIGGEST of BIG HUGS ever!! I love you sooooooooooooooooo much!! s551.photobucket.com/user/bannanny/media/UL14d_zpskuhnvtrr.jpg.htmls551.photobucket.com/user/bannanny/media/20140227_083055_zpsj7trro62.jpg.html s1128.photobucket.com/user/itchin4answers/media/DSCN1250_zpskxd1xbdx.jpg.htmlHi there lovely lady, this is a funny picture of me taken a month ago. I put on birthday party for my sons 8th birthday and of course mamma always joins in with the kids! so I had my party hat on. I don't walk around with my eyes shut as a rule LOL! it is my eye condition, flashing on certain cameras make my eyes close since I have 2 laser holes in each eye.....no it doesn't give super vision unfortunately!!! Much love to Tom, he's a hunk! and you're a babe! love you mate
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Post by bannanny on May 5, 2015 9:46:26 GMT -5
Yep... seems there's only a few of you guys I see here now where once it was many! I'm just hoping it's becuz alot of us are better... altho I do know Bobby that alot still aren't which breaks my heart apart. But I'm still so happy to see you all again! Toni, you've got it right my old friend! I AM living again... but yes, I still feel it. I was posting alot on the morg facebook pages until I had to stop again for awhile. Seems that when I start talking about it every day and looking at pics and posting old ones of mine that I start feeling it way more than what I do when I don't discuss it every single day. Weird eh? But I was having flares that I didn't have for a good 2-3 yrs so Tom suggested I stop and see what might happen. Turns out, when I do stop getting on the morg boards, my symptoms subside again. That makes it very tough for me since all I want to do is let people know there IS hope. But unfortunately, I just have to get away from it for awhile to keep myself settled morg wise. And you my sweet Sarah look so ahhhhhhhhhhhhhhsome!!! You look better than ever... but I'm so sad about your boy having to endure everything he's enduring. Is he still being treated for the Lyme? I have him, along with all of you in my prayers every single night. Anyhoo, I'll be popping in from time to time again... unless my symptoms reappear. I know you understand tho... and I know I'm also feeling so much love being back here. This place was my lifeline for so many years... and I've missed you guys so much, even tho I've kept in touch with You Bobby and you Sarah on FB! But toni my sweets... you know how much I love you too, so like I said... I'm feelin alot of emotions being back here right now. GOOD ones!! I love ya's!!
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Post by toni on May 5, 2015 12:36:08 GMT -5
Yep... seems there's only a few of you guys I see here now where once it was many! I'm just hoping it's becuz alot of us are better... altho I do know Bobby that alot still aren't which breaks my heart apart. But I'm still so happy to see you all again! Toni, you've got it right my old friend! I AM living again... but yes, I still feel it. I was posting alot on the morg facebook pages until I had to stop again for awhile. Seems that when I start talking about it every day and looking at pics and posting old ones of mine that I start feeling it way more than what I do when I don't discuss it every single day. Weird eh? But I was having flares that I didn't have for a good 2-3 yrs so Tom suggested I stop and see what might happen. Turns out, when I do stop getting on the morg boards, my symptoms subside again. That makes it very tough for me since all I want to do is let people know there IS hope. But unfortunately, I just have to get away from it for awhile to keep myself settled morg wise. And you my sweet Sarah look so ahhhhhhhhhhhhhhsome!!! You look better than ever... but I'm so sad about your boy having to endure everything he's enduring. Is he still being treated for the Lyme? I have him, along with all of you in my prayers every single night. Anyhoo, I'll be popping in from time to time again... unless my symptoms reappear. I know you understand tho... and I know I'm also feeling so much love being back here. This place was my lifeline for so many years... and I've missed you guys so much, even tho I've kept in touch with You Bobby and you Sarah on FB! But toni my sweets... you know how much I love you too, so like I said... I'm feelin alot of emotions being back here right now. GOOD ones!! I love ya's!! Bannanny I totally agree with you (in how the symptoms seem to almost stop) when we're (not picking and prodding our skin) and all wrapped up with it. Not that "leaving it alone makes it go away" but, ohhhh do I ever know just what you mean. My thoughts on that are....(and I only say this because I too seem like I'm getting over it) but.....IF any MAJOR stress comes my way, then it's like "the gate opened up". I think about how "Cortisol" affects us, when we're experiencing stress. I mean there's millions of things that affect us, but, this is just as an example (a good one imho). When we get stressed the cortisol (steroid hormone gets going full throttle)....and then ( the immune system becomes suppressed). And then when the immune is suppressed, (all hell breaks loose again with Morgs) which is why I believe what you're saying is absolutely right on, and what I too have experienced many many times. www.todaysdietitian.com/newarchives/111609p38.shtml --- see Immune Suppression (from Cortisol in our body) which is from stress.
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Post by itchin4answers on May 5, 2015 15:51:09 GMT -5
Yep... seems there's only a few of you guys I see here now where once it was many! I'm just hoping it's becuz alot of us are better... altho I do know Bobby that alot still aren't which breaks my heart apart. But I'm still so happy to see you all again! Toni, you've got it right my old friend! I AM living again... but yes, I still feel it. I was posting alot on the morg facebook pages until I had to stop again for awhile. Seems that when I start talking about it every day and looking at pics and posting old ones of mine that I start feeling it way more than what I do when I don't discuss it every single day. Weird eh? But I was having flares that I didn't have for a good 2-3 yrs so Tom suggested I stop and see what might happen. Turns out, when I do stop getting on the morg boards, my symptoms subside again. That makes it very tough for me since all I want to do is let people know there IS hope. But unfortunately, I just have to get away from it for awhile to keep myself settled morg wise. And you my sweet Sarah look so ahhhhhhhhhhhhhhsome!!! You look better than ever... but I'm so sad about your boy having to endure everything he's enduring. Is he still being treated for the Lyme? I have him, along with all of you in my prayers every single night. Anyhoo, I'll be popping in from time to time again... unless my symptoms reappear. I know you understand tho... and I know I'm also feeling so much love being back here. This place was my lifeline for so many years... and I've missed you guys so much, even tho I've kept in touch with You Bobby and you Sarah on FB! But toni my sweets... you know how much I love you too, so like I said... I'm feelin alot of emotions being back here right now. GOOD ones!! I love ya's!! Ahh sheesh you're bringing tears to my eyes! good ones though. Yes I know you took a break from it all and I did miss you being around. I was staying off the internet for a while, not entirely, I would average say 20 minutes in the morning, check email, check Facebook same old same old and it was ALL getting me down. I have tried to talk in private groups but sadly the trolls are there and you don't know who is who unless you know the people yourself, like you and I and Bobby and so many others. We have to be SO mindful of who we speak to because they want to destroy us and they will not! Give attention to Morgs and it'll put on it's best show for you. When I knew a couple of weeks ago I wasn't feeling too well I felt so yuk one morning. I was rubbing my face trying to wake up having my cuppa. Then I had balls of stuff rolling out of my face. I could feel the pulling in my right cheek. I know it sounds awful, but I grabbed with thumb and first finger to un roll a couple of little balls, free those poor lymph vessels. Stupid idea! I immediately feel dizzy and sick, it's too quick response for my immune system (IMO) a cascade of something takes place. I kinda slapped myself on the face and said well girl stop that, get in the shower and scrub. So that's what I did. At times I am grateful for failing eye sight even when I have put on my magnifiers, I can not see a pimple or lump in the mirror so well these days. That too is deterrent to feed to beast. Unless of course you have a massive blind pimple on your chin which is growing into something awful that when ready needs to be expressed. That I do not like and I had one of those the other week. I left it completely alone and at the right time gave a little press, it was awful I hate to do it, but I can still feel it under there. So there it stays. One can touch their face and feel it in some other part of their body, same for any body part with this disease, it is way too bizarre and numbness which comes and goes, not being able to feel your own skin by touch, and that is frightening. Thank you for your concerns about my son, yes I am very worried. The treatment for Lyme? ooh this is so hard to talk about. I fear whatever I say could some how upset someone but I am just telling the truth. His treatment is half hearted and in IMHO putting my son's life at risk. I wish doctors could be honest but I feel, I could be incorrect, that their agenda is maybe of good intention but the treatment doesn't suit the cause because they don't want to look for the cause, they what to use something that some other narrow minded doctors are ok with and will make them a living. I once made a living too, but I did not make a living by telling half truths and taking from unfortunate people, knowing very well they could die, and their financial resources was based solely on what the government is handing out in the form of a disability support payment. Our struggles are not over, but I do not see all of this as the end I see it all as a new beginning. As a patient I do not see the point in treating a mother and a child for an infectious disease and not treat the man of the house hold. This is what upsets me about the doctors, their attitude toward myself and so many of my Lyme and Morgellons friends. They know we are intelligent and "they" put words in our mouths. I never wanted the Lyme wars in Australia, but IMO the war on Lyme and Morgellons will not stop unless the people who are our advocates, the DOCTORS get honest with themselves and their boss the government and the AMA that we have a disease in AUSTRALIA which is as a "tick bourne disease" - the word Lyme in Australia seems to be an issue, a little too late to change the name. Doctors are not allowed to treat Lyme in Australia and those who really do try are investigated by the government so what do we do? The patient is too sick to fight the government, I wrote to them for years and it got me no where. Doctors of Lyme patients are even holding back on putting a signature to a documet to enable a patient to collect a permanent disability payout even with a lawyer up their clacker, now what does that tell you? It's so darn unfair. I think I've waffled enough! ask me a question and it's like turning on a tap LOL. Having to keep quiet about the politics to protect our doctors is soooo hard when we are all suffering. The public and compassionate concerned journalists should please keep this in mind. What is really taking place we can not say in the open. WE all want to live our lives, and would prefer to be spending our money on a trip to tropical Queensland rather than on phone calls and Skype appointments. Honestly people, that IS not real medical care. I wish you love, peace, joy and everything the world can offer you and your beautiful family. Please stay in touch my friend.
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Post by bannanny on May 12, 2015 11:37:30 GMT -5
Yeah... I just know it to be true toni. The day I stopped all picking and pulling and even looking and discussing morgs was the day my symptoms began to lessen. You guys all know how bad I was (just as you are and were.) So for me to eventually regain control of the situation was immense. I never ever thought I would even make it thru those nightmare days. But I did... and all I want to do now is to try and help others see that the less we pick and pull, the less we give morgellons cause to replicate. I have to believe it's true becuz it worked. Was it easy in the beginning? Nope... but I simply refused to "pull my hair out" and dig into my skin anymore. I stopped scoping too... I'd seen enough anyway. It makes my heart feel so complete sometimes that what I say these days has actually helped some of us. So if even one morgie has weaker symptoms due to trying what I've suggested, then I feel I've accomplished something good. Course, it still breaks my heart apart when I read someone's words that are so close to what my nightmare days were like. It's then that I jump in with what helped me... but some people find it crazy that I can be here trying to tell them to stop. It's so hard to do that they think I'm insensitive to what they're going thru, when I'm so not. But like I said... if I can help a few then it's worth it all.
Anyhoo... Sarah, you are so very amazing and one incredible momma. I very much understand everything you're saying about the medical field and how it works today. I think we all understand that... that also breaks my heart apart, knowing that medicine today is pretty much all about the money anymore and not about the human condition. I will continue to keep all of you in my prayers... and some special ones for your boy hon. I'm always around too... you and Bobby know my facebook page. If you use facebook toni, you can ALWAYS find me at Robin Allanson Laws! Course you have my email too, duh! Ok guys... stay strong and know how very much I love you and that you are in my heart forever and a day!
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Post by justhanginin on May 14, 2015 13:25:48 GMT -5
Don't get here very much, but every time I do I think about you and wonder how you are doing. Glad to hear that you are feeling so good and living a happy life.
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