Post by toni on Jan 28, 2016 14:32:57 GMT -5
I'd read your posts, and I'm sure hoping one of these docs will have heart enough to try and understand...which without Morgs or even Lyme in your area being recognized,
you do have nothing but an uphill battle. Just keep your body strong, that's the only thing we've each got going for us, without anything that's going to treat what we need treated.
And the post about Lyme, oh yes...every line is on target.
It's a harder life than we all hoped or thought normal life would be, even at it's most difficult because it's not normal- everything is as though our mouths are taped,
because we have so much to say, yet only a few listen, really listen, and nor do we get treated "normally" by those that don't understand.
I think we have to try and stand back a lot of times, and see how others see us, and then we can see how "truly blind" most people are to a lot of realities
that they could even imagine in their wildest nightmares or dreams. But it's with that always in mind, that we can possibly reach them, and really.... that's not for sure either,
because some people have an auto'block mind, where they just don't want to hear it, but, it helps us too trying to see their position. Frustrating to the max,
which is an understatement, and then sometimes, we just have to walk away to save ourselves, and that's hard too because when one is in need of something from someone like a doctor,
the truth is, if the doc is putting up his feathers, to only rub them more, can hurt us. We have to save ourselves first, and truly, eating right, drinking lots of water daily, vitamins, and
sunshine, (helps). Not the cure for Morgs or Lyme, but....it helps. I find that engulfing myself in something enjoyable, a hobby, a project, things like that, are very uplifting to the soul and mind,
and then the body. I got into "picture taking" of hummingbirds (put up feeders a few years ago) and I can tell you, I've never done anything like that in my life before. And it is funny how I never knew they
did what they do, and sometimes, I laugh so hard because of the things they do, and I later feel like wow ...that was fun! And in thoughts even later I'll chuckle to myself and think that was some good medicine.
I know you do lots to keep your "ship" afloat" as we all do, and it's sooooo much extra that our daily needs require, the vitamins, the this and that....always trying to make sure
we don't allow negativity to seep into our deepest parts, because the doctors and negative unbelieving people are (honestly) harmful to our health....if or *when* they don't at least try and understand.
And that is what it takes, the 'others' at least 'trying 1/100th' of what we ARE doing....which is simply trying to be understood, for starters. And if someone isn't willing at the very least to "try", all I can say to
that is, *imho* then it is "they" who are truly not worth it - *the draining of our immune* in our explaining until we're purple. It's almost like we have to take on a different attitude "whether we like it or not to be strong enough
to walk away from those that drag us down " and it's not only a dragging down of our health, but it hurts deeply, but once one can feel some sort of foundation within ourself, it is easier to stand up against all the odds, the negativity that gets attached to us and the ones that don't hear what's being said, the ones that won't even try to understand.
I know you're afraid of cancer, I am too. I am afraid because I have watched people I know die of cancer, and they all were what we'd call too young to die. I'm sure you have seen the same.
None of us want to die, and we are by nature geared to survive, and trying to survive around those we have cared and loved, and then to have them not understand, almost takes the guts right out of a
person, but, we can reach out to God when no "man believes or understands" , and not to preach, but... God is our best friend when all others don't understand, and then we can better understand
the fact that people are only people, and then it seriously does become easier for us to understand them.
That's the part too that 'seems backwards' yet...it is true. Here we are the ones that need HELP, and yet it is "us all" that are the ones not only living this horror and torture, but we're the ones reading
everything there is to read, buying all we can buy to "try" and fix this, and we are the ones doing it ALL, and all while the NON-understanders sit back and tell us there's nothing wrong. hahha
Oh...I have to laugh! It really helps make it tolerable (because it is just as difficult trying or attempting) to tell someone that doesn't understand the reality of this, and that seriously is just as bad as
living with this lyme/morgs/whatever it all is, inside of us. And, yes, we're the ones that almost have to carry 'them' as when we step back, we can see how it must be for them too, which is strengthening
to us, believe it or not.
I hope when you're feeling "alone"....that is when no one is understanding - that you can feel God's hand in yours, and then you'll know, you're not alone at all,....besides all us other Morgies here
that I know have feeling and understanding for all you're going through.