linda
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Post by linda on Jul 7, 2005 12:52:07 GMT -5
Hey guys,
We absolutely have to do something besides sit here and die or watch people like "Nameless" fade into statistics of DOP suicide-related statistics that nobody is keeping track of. We need to create a media freenzy that would get us noticed. I suggested the overburdoning of channels of communication for those who do nothing or refuse to listen. We would bombard their email/voicemail/snailmail, etc. This is just one idea--I'm open to others. We just can't continue to wait to die. I think more polite letters requesting recognition and assistance ain't gonna do it. We have to get pushy, now.
Any ideas?
Linda
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Post by Pen on Aug 17, 2005 9:45:05 GMT -5
Good luck, sweetie. I have written to everybody. No one listens because they are sworn to secrecy.
These agencies that we are contacting are told that it is being taken care of. "This can be cured over time, with the products that are flooding the market now."
And it CAN be cured if you treat it aggressively, like all of us are doing. So they are just sitting back and waiting till we get well and stop calling them.
When are they going to realize that WE are the lucky ones that feel it in our skin. The ones that don't feel it will not treat for it aggressively and become just another casuality, with another disease LABEL.
I just lost my MOM because of this, I know it, without a doubt.
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Post by skytroll on Aug 17, 2005 12:24:16 GMT -5
How's this? MORGELLONS IS STRIKING THE US AND OTHER COUNTRIES AT A RAPID PACE. WHEN WILL IT AFFECT YOU? ![???](//storage.proboards.com/forum/images/smiley/huh.png) ![???](//storage.proboards.com/forum/images/smiley/huh.png) ![???](//storage.proboards.com/forum/images/smiley/huh.png) ?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! If you are a Doctor, Nurse, Scientist, Pathologist, Psychologist, Biologist, Biochemist, Chemist, Pharmacist, Parasitologist, Endomologist, Environmentalist, National lab worker, Academic lab worker, Hospital worker, Local Health dept head, Hospital administrator, Mollicute (mycoplasma expert), Protist(protit) scientist, Biomedical expert, Epidemiologist, Dermatologist, Allergist, Microbiologist, Physicist, Neurologist, Rheumatologist, please go to: www.morgellons.org on the Internet and read the Morgellon board the LymeBusters Board. Please Educate yourselves. We need you! You can help us out here. Be brave and live up to your duties as professionals and help us. We are being neglected, abused and ignored by the medical profession in America. It is not only a disgrace, it is a crime. Please do not be part of the destruction. People are dying out here in the Heartland. You have it in your power to educate yourselves on this matter. This includes everyone. Read up on things. WAKE UP AMERICA! AS GOD IS OUR WITNESS, WE WILL NOT BACK DOWN. Skytroll
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Post by TonyM on Aug 17, 2005 14:04:43 GMT -5
Amen to that!!!
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Post by skytroll on Aug 17, 2005 19:37:41 GMT -5
Just select, print and post where in the heck you can. I put some pieces of paper with www.morgellons.org on them in a county building. Haha. All kinds of reports were coming out in the paper on mycocystins. That is what the meeting was about I attended. Plus, they went into detail about the skin problems, and lung problems it can cause. Elisa test are used. You might be surprised about what can happen. People get curious. skytroll
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Post by jeff on Aug 17, 2005 21:50:22 GMT -5
soory my opion is that the morgellons website cover is out of date...and not very impressive...I know it takes money but it can be done..I am in advertising sales..I design ad for businesses and my impression of the website is that It has the smell of being homemade..No offense I know poeple have done the morgellons out of the goodness of their heart..but if you think a doctor is going to log on and be impressed think again..It doesnt even mention that a doctor is submitting studys and articles for publication in the journal and is currently being reviewed and that the cdc has opened up an initial investigaion into this appartently new contagious disease....not unknown bug...but a disease..and that A book has been written with a link...comon
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Post by victoreah on Aug 17, 2005 22:00:46 GMT -5
I agree that we need to collectively bombard either indivuals or media outlets. I have been hammering the Oprah show - so far to no avail - but I just sent the following message and we will see if I get any results with this one. Perhaps others can follow my submission: How much longer are you guys going to ignore the plea of those suffering with what is being called "Morgellons Disease?" Do you have any idea the number of people who are being affected by this unidentified disease in this country and how many people have sunk to levels of desperation that include committing suicide, because doctors tell them they are delusional and this disease is all in their heads? I was one of those people - but thank God I found a doctor that would listen and treat and I am in recovery. Many, many people out there are NOT SO FORTUNATE! I have already written your show many,many times during the worst part of my illness. NO RESPONSE!!!! I KNOW others out there are writing and have written to the Oprah show as well. They just want a chance to be heard and a chance to get well. WILL YOU GIVE THEM THAT CHANCE by airing a show about what is going on to create awareness so that those suffering can begin to find an end to this madness? ? I BEG of you to do that. Please find it in your heart to at least give us a voice. Thank you.
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Post by Spunky on Aug 17, 2005 22:46:47 GMT -5
Interesting line I read from an article entitled "Pharma's buying spree" Mergers and Acquisitions: Emergent Genetics / Monsanto(MON) 2/05 4/05 $300M (cash) Completes Monsanto's strategic cotton germplasm and traits platform And then the website: www.emergentgenetics.com/news_media/2002_07_01.htmlwww.emergentgenetics.com/news_media/index.html"Cotton Germplasm" ![???](//storage.proboards.com/forum/images/smiley/huh.png) ? (aka Mycoplasm? ![???](//storage.proboards.com/forum/images/smiley/huh.png) )......Bt (highly resistant bacteria) / nematode resistant genetically engineered cotton..........remember Cliff Mickelson and Diary of Mr. X??? Very interesting, except; when are we ever going to learn--don't mess with mother nature; ramifications could be extreme. Spunky
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Post by skytroll on Aug 18, 2005 10:47:23 GMT -5
Spunky,
I do wonder if there is a way back. I think there is, but, we need to be persistent.
jeff,
Then why don't you freely give them a new front (ad). Approach the contact people at Morgellons. The CDC will not acknowledge this, the NIH won't because, you see, they may be part of the problem. We are activists here, we want answers from the govt. We need to pressure those in power, who seem quite healthy, have you noticed? Jumping from planes etc while others are dying. There is more to this than you imagine.
What journal are you talking about? Of course it won't be in the journals because it is not allowed to even be discussed or investigated. Academia has us by the throat, the govt does, The WHO, the CDC, NIH are covering their arses.
It is not as compact as you think. It is not about image, and if you can help with a new cover, then by all means do so. This is all we have right now. Help us get to the facts.
There are many articles out there of which our propaganda news will not report. They cannot think outside the box. I remember when objectivity was a norm. Not today. The media is just a mouthpiece. There are no investigative journalists willing to put thier neck on the line because they are big chickens.
I am peoooooooooooooooooooooooooooooooooooood.........I'll cool down in a minute.
We need to goback to goforward. Back one step, in this case 20 forward one.
skytroll
We know. We suffer.
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Post by JEFF on Aug 18, 2005 22:40:59 GMT -5
I SELL YELLOW PAGES ADVERTISING NOT ASSOCIATED WITH WEB PAGE DESIGN,,I UNDERSTAND IT NOT ALWAYS POSSIBLE TO EVERYTHING MONEY CONSIDERED., BUT WEB SITE SHOULD BE PRIORITY. I MEAN ITS NOT BAD FOR THE PUBLIC..BUT WERE TRYING TO SELL GOVERNMENT AGENCYS AND DOCTORS ON OUR DISEASE,,,THIS THING NEEDS TO LOOK MORE OFFICIAL.....JUST AN OPINION...I WOULD LOVE TO INPUT IDEAS...BUT AS TO HOW TO TRANSLATE THOSE IDEAS INTO 010001001000100010010 I HAVE NO IDEA..
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Post by JEFF on Aug 18, 2005 22:53:21 GMT -5
I JUST TOOK A LOOK AT THE HOME PAGE REAL QUICK AND A FEW THOUGHTS FIRST AT THE TOP THE MORGELLONS FOUNDATION NAME NEEDS TO HAVE SOME SORT OF PSUEDO LOOKING MEDICAL SYMBOL, THE FIRST WORDS SHOULD NOT BE MIMIC LICE OR SCABIES...THEY THINK WERE DOP WE SHOULD LEAVE THAT STUFF FOR THE BOTTOM OF THE PAGE...THE WORDS DONATIONS AND REGESTRATION SHOULD BE MOVED TO THE BOTTOM OF THE PAGE...( YOU DONT WANT THEM TO THINK IT IS A POSSIBLE SCAM FIRST WORD OF SALES NEVER ASK FOR MONEY TOO EARLY IN THE SALE) THE NAMES OF THE DOCTORS SHOULD BE LARGER AND MORE OFFICIAL LOOKING WITH THEIR FULL CREDENTALS LISTED...LIKE MD..DPM..PHD...ASM..ALL YOU CAN THROW UP THERE..POLITICAL ACTION SHOULD BE TAKEN TO A MEMBERS PAGE...YOU DONT WANT THEM THINKING YOUR GOING TO RAGE ON THE GOVERNMENT...I COULD GO ON AND ON BUT MY SCREEN IS OVERHEATING AND CUTTING OFF.....I REALLY HAVE AN EYE FOR THIS STUFF AND WOULD LIKE TO HELP....
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Post by adapted on Aug 19, 2005 1:54:39 GMT -5
It does sort of seem as though it may be high time to do something constructive as a whole. Maybe a sense of direction is all that is required?
I'm sure not in any need of any help for morgellons myself, but I would most definitely be a participant of "email flooding" on a set day, or several consecutive days. I agree with Linda, wholeheartedly. Let's get plan started right now. ONE PLAN, as-a-whole, at a time.
Somebody start a thread, voluntarily posting the FIRST address of WHERE they want them all to go, WHEN they want them all to go there, and heck yeah, we can ALL go for it. We're all just a bunch of wusses if we can't do something that simple and profound.
Unless someone steps up and takes it upon themselves to put draft copy of a letter for all to copy and send, I think someone that "really" means business about it should think about obtaining this "expressed written consent" to reproduce the home page and it could serve everyone to be sent off to places.
Letters by the onesies & twosies don't appear to be cuttin' it, and I truly, truly feel for all the persons that are putting forth so many exhaustive efforts.
I commend the makers of the flyers as well. When I read Tony's post about that the other day, I was very impressed. Yours is very impressive as well, Skytroll.
But if you want to reach the media, let's get organazized like we really mean something NOW.
Newpapers, magazines, radio and television. Where do we begin? Oprah? Then someone put up a draft letter, announce our intentions and set a date.
Just as a test to see if we can get people here to participate in this, I'm starting a thread to see if people have the initiative to sign up for this undertaking. If they don't sign up in large numbers, then we'll know it can never come to fruition, so we can hang it all up and throw in the towel.
(I'm really sorry to be talking like this, but really people, what does it take to kick it into gear.)
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Post by adapted on Aug 19, 2005 5:43:59 GMT -5
Pen, I am so saddened and sorry to see that you've lost your mother. God Bless You.
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Post by Pen on Aug 19, 2005 8:10:33 GMT -5
Thank you Adapted, I vow that my Mom's death will NOT go in vain. I will fight this disease with a vengeance now. Things are starting to happen, we are getting too close to the truth. They can't call us Delusional for too much longer, more of us are coming forward. God is directing us to the truth, and how to treat this, and he will give us the strength we need.
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Post by Reality check on Aug 19, 2005 19:07:43 GMT -5
Lets talk about The Morgellons Research Foundation and efficacy. Point one: Despite having been listed with MRF for over 12 months I have not seen anything constructive come out of this group. Lots of talk - but then talk is cheap! take for example the email sent out most recently to registrants. In that email it states: "Just a brief update to let you all know that our scientific research continues. Although progress is much slower than any of us would like, we are making headway in the laboratory." and what headway would that be? Does anyone else get the feeling that this group is secretive? Point 2: In the 12 months I have been listed with the MRF, NUSPA and the NPA study have been consistently been derided by MRF or its representatives. (I'm not in the US so I get an 'ordained' contact person). In fact until one month ago anyone claiming the involvement of Collembola was derided as a fool. Similarly anyone suggesting Scwartz and the involvement of S. Maltophilia was similarly treated. I have also been told by MRF contact, despite having many of the precise symptoms ascribed to this condition, that I may have syphillus. Nice one! Then in the context of this treatment, I get told, yet sworn to secrecy, that the current (3 months ago) research is centred around cyanobacteria. When I asked why this information has to remain secret, i was told that " we dont want those b@stards (medical profession) to find out!" Sorry but I actually do want those b@stards to find out, cos they are the ones most likely to cure me. Point 3: By 'naming' this condition 'Morgellons' the MRF has effectively marginalised themselves and those they claim to represent from the medical community. Imagine if you were a memeber of the International Guild of Car Repairers and people who had never worked on cars started emailing you stating that the every time they went around a corner something strange happened to the steering and in their considered amateur opinion it was caused by flangatangos in the petrol. First you'd ask whats a flangatango? When they replied that flangatangos were particles you had found in petrol which had never previously been described by mechanics, but from your observations had a profound effect on the steering. What reaction would you expect? Point 4: The MRF seems to function as a conduit for donations - thats what research foundations do. But where are their published reports showing what funds have come in and where have they been spent. It seems to me that for all its talking loud the MRF is saying nothing! Thanks to the NUSPA people for publicising the only scientific evidence to date, the NPA/Oklahoma Dept of Health paper. How sad that the NUSPA site is being spammed to death. What motive could possibly inspire such activity?
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Post by skytroll on Aug 19, 2005 19:44:43 GMT -5
reality check, If they are looking a cyanobacteria, there is a lot involved here, a lot govt. agencies, not just medical, the EPA, the DOE who is genoming everything to life. There probably is secrecy to protect microbiologists and other who have been suicided. 88 microbiologists and scientists are dead. There may be more at stake here. We do not know. But, a reckoning with the NIH is needed. They need to come clean about mycoplasmas. Don't attack Morgellons. There is a reason Mary looked back at this. They are there, yes, but if we want to get this out to media, then, let's follow Adapted's suggestion. NOW! A group is much larger heh? Adapted? I agree with you. This way we can weed out the wussies too, heh? The reason I thought the flyers might be good because people would look up morgellons. Maybe we ought to put some other webs out there on little pieces of paper. And someone will tell someone who will tell someone etc..etc....etc. A form of grassssssssrootsssssssspower. ;D ![:D](//storage.proboards.com/forum/images/smiley/grin.png) ;D Skytroll
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Post by ANTHILL on Aug 19, 2005 20:29:32 GMT -5
Reality check this is a morgellons board and we have more doctors on board than we did five years ago when I first registered and morgellons behind most of the media calling attention to our plight look in the Links To Relevant Websites thread and most politician's now know the name morgellons because of MRF you know I thought I had won 3-Million on an Internet lotto the other day and I was going to give half of it to MRF for research but darn the bad luck it was just a scam
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Post by bugsalive2 on Aug 20, 2005 2:13:54 GMT -5
Skytroll,
I was listening to Republic Broadcasting Network on my media player, which I do on a daily basis, and I heard that the microbiologists were killed as a result of the identity of a CIA agent being compromised. It's being investigated by a grand jury at the present time. The agent's name was Plame.
Bugs Alive
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Post by Lisa on Aug 21, 2005 20:26:17 GMT -5
I mentioned cyanobacteria before when I was reading the book "And The Waters Turned To Blood". It talks about Dr. JoAnn Burkholder and her quest to educate the effects of Pfiesteria piscicida. People were turning up with a mysterious ailment. I'm pretty sure I emailed her. Here's some info I'm typing from the book: -Toxic exposures could be through ingestion, dermal contact, cut skin or by inhaling it's aerosol. -Chemical compounds are stored in fatty tissues and there can be a delayed onset of toxicity -It's an animal and not a plant and has many transformations. *****WOW! Does this sound familiar? Instead of manifesting itself in an easily identifiable "signature" illness, the Pfiesteria syndrome was going to be an idiosyncratic pattern of health problems that masked the true cause or mimicked more well-known diseases. But the question still remains.....what about those fibers? I never finished the last 4-5 chapters, but after glancing through the rest, I'm definitely going to finish it. There are quotes from people suffering the same symptoms as us. In the news recently there have been reports of dead fish washing up and when I was at the beach recently I saw them too. Hmmmm. Also, I think it was in Oklahoma a couple of weeks ago, two boys died or got very sick from lake water. At my son's boy scout camp, two of the workers were told by their docs to stay out of the water, as they were close to going deaf because of it. good sites FREE-LIVING PROTOZOA AND HUMAN DISEASE www.tulane.edu/~wiser/protozoology/notes/free.html scroll down www.medscape.com/viewarticle/418438 The process of identifying the specific nature of Pfiesteria's toxic secretions has been slow. Dr. Burkholder states that the delays are largely due to political forces that have sought to deny the existence of a Pfiesteria epidemic. online.sfsu.edu/~rone/Environ/ Cell%20From%20Hell%20pfiesteria.htm Its ability to morph into wildly different forms makes it difficult to detect. When no prey is present, the creature can encase itself in a pod, or "cyst," and lie dormant in river sediment. It also can become a blob-like amoeba that feeds on microscopic algae. Sometimes it can even appear to become an alga, thanks to its ability to "steal" the chlorophyl-producing chloroplasts from its algae prey and use photosynthesis to supplement its nutrient supply.
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Post by skytroll on Aug 21, 2005 20:51:54 GMT -5
Oh Lisa, I think we are getting closer. I just read something about dead fish in the Gulf. There is a dead zone there. www.chemtrailcentral.com on the Ecology thread. Aug 21, A Florida gulf Coast Dead. I cried too after reading this. People we have to reach high and we have to have open minds and we have to help everyone who is affected by this. We do need to see how far the rabbit hole goes. Check this out: www.chemtrailcentral.com TREASONGATE BIG TIME.........Please read. skytroll
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