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Post by toni on May 4, 2007 12:28:58 GMT -5
Niels,
I sure can appreciate all that you've posted...it's all a giant circle to me. In that yes, we display "all sorts" of symptoms, but as Cindy said, "what is Morgellons"?
I feel whatever Morgellons is, is the crux of course, and doctors need to not look at the symptoms as much as what is the cause of what is making all these symptoms occur instead of what "has" occured.
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greg
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Post by greg on May 5, 2007 3:05:41 GMT -5
I had the Acrodermatitis Chronica Atrophicans for years, mostly on my lower legs and ankles, but lightly on my hands. Once I was poking in a spot on my forearm, and within 15 minutes, my hand was bright purple. I went to my old Lyme Doctor at the time because my primary was out of town. She said that it was Acrodermatitis Chronica Atrophicans from Lyme Disease.
When you put a blacklight on those places, they really show up very peculiar under the blacklight. After several years, if the spots fade, the blacklight will make them show up still. They glow a blackish purple with the light.
I remember when I first saw the symptom in somebody else at the Lyme Clinic that I went to for a year and a half. I had it but didn't know what it was. Then I saw this man that I was acquainted with, who was wearing flip flops, and I saw these markings on his ankles. I said, "What is that"?
He said, Oh, that's a symptom from the Lyme Disease. I said, well I'll be, "That's the same thing with my ankles"
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greg
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Post by greg on May 5, 2007 3:35:55 GMT -5
Niels,
This is a lot of good information, especially striking is the Senate Bill 772
But I'm going to have to come back and copy these links and study them. I went round and round with a San Diego Doctor last year on the Medical Board, and he knew to treat me with delicate kid gloves, he was very leary of me, and knew not to violate my knowledge of the Lyme epidemiology, especially after he told me that he'd take my positive Igenix Lab results and throw them into the trash.
When dealing with Morgellons, he agread to run 4 tests on me (which all came back negative) but he never wanted to see me again.
Now we've got laws to shove down these people's throats, and also our Insurance.
In 2005 and 2006 I filed two greivances with my Insurance company because a Dermatologist who read the CDC Letter to the Senator, (which I brought him to read) after reading it he said, I don't deal with the CDC to send biopsies, "You need to see a Lyme Disease Specialist"
My Primary Doctor relayed the same message in the report, and my Insurance (Sharp Healthcare) NEVER SENT ME TO ONE).
Now, I'll be able to force them into submission, since I've been going to my Lyme Doctor and paying cash for her visits AND for ALL MEDICINES which she prescribes to me...
Trust me, when I learn these Laws, I'll force them into submission.
Also, anybody applying for SDI permanent Disability Income?, enough of this denying them 2 or 3 times,
I'd imagine there's going to be some very serious Lawsuits on the horizon also.
Thanks Niels
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Post by Niels on May 28, 2007 2:57:04 GMT -5
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Post by Niels on May 28, 2007 3:38:14 GMT -5
I guess brown recluse spider bites could be mistaken for morgs as well: images.google.com/images?q=brown+recluse+spider+bitePerhaps that's the way to get around the "delusional" misdiagnosis -- lie to the dermatologist, tell them you got bit by a herd of brown recluse spiders, then bring the above articles suggesting that perhaps brown recluse spider bites are being misdiagnosed as Lyme disease. If you test positive for Lyme, get Lyme treatment. Only once the patient-doctor relationship has been established... gently introduce Morgellons. In other words, "hook" your doctors by gently ramping them up to Morgellons. By introducing morgellons right away, they automatically assume you're a cokehead, tweaker or delusional and will show you the door ....
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Post by Jill on May 28, 2007 11:45:36 GMT -5
Funny you should mention Brown recluse spider bites-
I had an oil change the other day, and the 2 workers were talking about a brown recluse that they found in the basement of the building- where the oil was stored. They said that last year, about this time, they found one- and knew it was a Brown recluse due to an article they had recently read. They mentioned that the oil cases are shipped up north from Louisiana- from homebase Texas (where else?).
I told them about my son in law. He was working on a car and a spider bit him. He thought it was a BR but wasn't sure.
He didn't go to the doctor right away. In fact it was weeks before the symptoms prompted him (along with my daughter insisting) to see the doctor.
The bite was under the arm. Of course it was red and swollen for a while but then it changed. My daughter said that from his armpit to his waist- he had what looked like leprosy.
The doctor treated him with Snake venom. A "Snake Kit" as he put it.... took a long time to heal.
Interesting, about the remedy? Snake venom?
Jill
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Post by Niels on May 28, 2007 23:10:47 GMT -5
Incase anybody's wondering what that Bastard Dr. Alan Barbour, responsible for weaponizing lyme, covering it up, the Lymerix fiasco, and what he's doing at UC Irvine now in his role as head of UC Irvine's "Regional Biodefense and Infectious Disease Research Center" ( www.ucihealth.com/News/Releases/06-05BiodefenseResearch.htm ) In other words, Dr. Barbour's misinformation has resulted in mainstream medicine not recognizing or treating lyme corectly, ensuring that patients don't get the antibiotics they need to get better. Why?? They're saving the antibiotics for the ticks!! Interestingly, they're working with STARI-producing ambyloma ticks (dog tick) as opposed to the usual Lyme ticks. I find this odd, but at the same time STARI may well be the form of Lyme Morgies have, responsible for a much more "rashy" version of Lyme than normal, one that actually produces lesions that are mistaken for brown recluse spider bites. Furthermore, these are exactly the kind of ticks they were working on as a bioweapon on Plum Island (see www.lyme-rage.info/bwsept06.html ) prior to the initial epidemic of Lyme disease in Lyme Connecticut... today.uci.edu/news/release_detail.asp?key=1607
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Post by Niels on May 29, 2007 14:23:48 GMT -5
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Post by Niels on May 29, 2007 14:29:41 GMT -5
Looks like Dave Emory reported on this as well ftrsummary.blogspot.com/2007/02/ftr-585-update-on-biological-warfare.html(feel free to call these conspiracy theories... however Dave Emory was dead on when he reported on conspiracies such as "Reagan October Surprise" "Iran/Contra" "Arms For Hostages" "CIA's cocaine smuggling to pay for latin american covert ops" etc. These were eventually shown to be "real" and not conspiracies... and even reported on in the mainsteam press. But of course... people are too busy wanking off on american idol, brittany spears' haircuts, and other bullshit to notice what's actually going on! And of course the criminals involved there (Oliver North) got presidential pardons and are now on FOX News providing republican/fascist spin on the "war on terror" to a public of imbeciles.)
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Post by Niels on Jun 26, 2007 1:25:26 GMT -5
Ticks not normally thought to carry "Lyme" seem to be causing Lyme in all sorts of places outside of the "endemic" region. 1: Braz J Med Biol Res. 2007 Apr;40(4):443-56. Description of Lyme disease-like syndrome in Brazil. Is it a new tick borne disease or Lyme disease variation? Mantovani E, Costa IP, Gauditano G, Bonoldi VL, Higuchi ML, Yoshinari NH. Disciplina de Reumatologia, Faculdade de Medicina, Universidade de São Paulo, Brasil. An emerging clinical entity that reproduces clinical manifestations similar to those observed in Lyme disease (LD) has been recently under discussion in Brazil. Due to etiological and laboratory particularities it is named LD-like syndrome or LD imitator syndrome. The condition is considered to be a zoonosis transmitted by ticks of the genus Amblyomma, possibly caused by interaction of multiple fastidious microorganisms originating a protean clinical picture, including neurological, osteoarticular and erythema migrans-like lesions. When peripheral blood of patients with LD-like syndrome is viewed under a dark-field microscope, mobile uncultivable spirochete-like bacteria are observed. PCR carried out with specific or conservative primers to recognize Borrelia burgdorferi sensu stricto or the genus Borrelia has been negative in ticks and in biological samples. Two different procedures, respectively involving hematoxylin and eosin staining of cerebrospinal fluid and electron microscopy analysis of blood, have revealed spirochetes not belonging to the genera Borrelia, Leptospira or Treponema. Surprisingly, co-infection with microorganisms resembling Mycoplasma and Chlamydia was observed on one occasion by electron microscopy analysis. We discuss here the possible existence of a new tick-borne disease in Brazil imitating LD, except for a higher frequency of recurrence episodes observed along prolonged clinical follow-up. Amblyomma ticks migrating via birds: 1: J Parasitol. 2005 Aug;91(4):780-90.Links Migratory songbirds disperse ticks across Canada, and first isolation of the Lyme disease spirochete, Borrelia burgdorferi, from the avian tick, Ixodes auritulus. Morshed MG, Scott JD, Fernando K, Beati L, Mazerolle DF, Geddes G, Durden LA. Laboratory Services, British Columbia Centre for Disease Control, Vancouver, British Columbia, Canada V5Z 4R4. mmorshed@interchange.ubc.ca During a 3-yr comprehensive study, 196 ixodid ticks (9 species) were collected from 89 passerine birds (32 species) from 25 localities across Canada to determine the distribution of avian-associated tick species and endogenous Lyme disease spirochetes, Borrelia burgdorferi Johnson, Schmid, Hyde, Steigerwalt, and Brenner. We report the following first records of tick parasitism on avian hosts: the rabbit-associated tick, Ixodes dentatus Marx, from Manitoba and Ontario; the mouse tick, Ixodes muris Bishopp and Smith, from British Columbia; and the blacklegged tick, Ixodes scapularis Say, from New Brunswick. Moreover, we provide the first record of the Neotropical tick, Amblyomma humerale Koch (1 nymph), in Canada and its parasitism of any bird. This tick was compared morphologically with nymphs of other Neotropical Amblyomma spp., and genetically, using a 344-bp fragment of the 12S rDNA sequence of 41 New World Amblyomma species. The first collections of the western blacklegged tick, Ixodes pacificus Cooley and Kohls, from passerine species in Alberta and British Columbia, are also reported. Notably, we further report the first isolation of B. burgdorferi from the bird tick, Ixodes auritulus Neumann, collected from an American robin, Turdus migratorius L., on Vancouver Island. Furthermore, B. burgdorferi-positive I. auritulus larvae were collected from a reservoir-competent fox sparrow, Passerella iliaca (Merrem). Our findings indicate that ground-dwelling passerines, in particular, are parasitized by certain ixodid ticks and play an important role across Canada in the wide dispersal of B. burgdorferi-infected ticks and increased risk of Lyme disease exposure. And amblyomma ticks spreading lyme disease: www.associatedcontent.com/article/43799/the_lone_star_tick_arrives_on_long.htmlThe Lone Star Tick Arrives on Long Island, NY An Increased Threat of Lyme Disease is Feared to Coincide with the Migration of the Lone Star Tick Across Long Island
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Post by Niels on Jun 26, 2007 1:29:45 GMT -5
And please note in the brazilian lyme-like disease article: Surprisingly, co-infection with microorganisms resembling Mycoplasma and Chlamydia was observed on one occasion by electron microscopy analysis. So far, I am + for LD, + for Chlamidia Pneumoniae and I keep getting the feeling that Morgellons is just an oddball variant of Lyme with coinfections of Chlamidia Pneumonia and other lyme-coinfections, as per www.morgellonstreatmentsteps.com/Morgellons_Medical_informat.html
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Post by bugsy on Jun 26, 2007 6:20:56 GMT -5
Here is something I bookmarked a few weeks back noting that the CDC did discover that ticks other than the ones once suspected, were carrying Lyme Disease. Its is just ridiculous to think that ONLY one type of tick or INSECT can carry Lyme....ridiculous, stupid and dangerous. After all would it matter which brand of hypodermic needle you used while injecting your insulin?
This was written on March 8, 2003
~Bugsy
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Post by bugsy on Jun 26, 2007 6:42:37 GMT -5
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Post by Niels on Jul 3, 2007 15:04:46 GMT -5
It's amazing how they can put out standards guidelines on lyme saying "one month of abx cures" and "test for it this specific way or they don't have lyme".... and at the same time there's new research papers coming in showing there's lots of different kinds of borrelia, and lots of different kinds of tick vectors, all occurring in areas where they're claiming "lyme is exactly this" and "vectored by exactly this". And yet nobody comments on the apparent scientific contradiction. Nor do they open their minds to the fact that Morgellons could be yet another variant of Borrelia that is more "rashy" than standard US lyme. For example in the mediterranean, they have "boutonneuse fever" -- lymebusters.proboards39.com/index.cgi?action=display&board=rash&thread=1181273243Bunikis J, Barbour AG. Third Borrelia species in white-footed mice [letter]. Emerg Infect Dis [serial on the Internet]. 2005 Jul [date cited]. Available from www.cdc.gov/ncidod/EID/vol11no07/04-1355.htm
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Post by bugsy on Jul 3, 2007 15:32:25 GMT -5
Called Barnes & Noble today to order some Lyme books.
"Healing Lyme: Natural Healing and prevention of Lyme Borreliosis and its co-infection" by Stephen Harrod Buhner
& "Everything you need to know about Lyme Disease & other tick borne disorders" by Karen Vanderhoof
Then............I became impatient for some reading materials so I drove over to the bookstore... my order could take days...argh.
ONE STINKIN BOOK is all that they had.....The clerk even asked me how to spell LYME...is that Li or LY? omg.
"Coping with Lyme Disease" by Denise Lang is what they had...good start...will see.
Then called the Public library...
She had a copy of 2007 (CMDT) or Current Medical Diagnosis & Treatment which had a Lyme section. Interesting read if your library has this... to see which way the current medical community is pointing towards this.
Then there was "Bullseye, Unraveling the medical mystery of Lyme Disease" by Jonathan Edlow
Wasn't aware of a Michigan Lyme Disease Association as well.......woo hooo...
Even found some Lyme doc's in the area. Things is lookin up.
Sorry for the unrelated post Niels but the reference to the white footed mouse is in the "Coping with Lyme" book which kind of surprised me due to it being reprinted in 2004, originally 1993.
~Bugsy
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nadie
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Post by nadie on Jul 5, 2007 19:26:31 GMT -5
Hi, Some might find this paper... Lyme is a Biowarfare Issue by Elena Cook interesting. It shows what we are up against with Morgellons. lyme-rage.info/bwsept06.htmlnadie
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Post by Niels on Jul 6, 2007 3:14:49 GMT -5
Hi, Some might find this paper... Lyme is a Biowarfare Issue by Elena Cook interesting. It shows what we are up against with Morgellons. lyme-rage.info/bwsept06.htmlnadie Yep... and consider that the recent "attack article" on Morgellons was written by Edward McSweegan, who is mentioned thusly in the aforementioned article: "By the late 1980’s it was realised that Lyme disease was rapidly spreading out of control. Cases were reported across America, Europe and Asia. Federal health agencies launched a major propaganda effort to limit diagnosis and so artificially “contain” the epidemic. The National Institute of Health (NIH) appointed biowarfare expert Edward McSweegan as Lyme Program officer. [xxv] Under his leadership the diagnostic criteria was skewed to exclude most sufferers, especially those with chronic neurological illness. McSweegan’s successor at NIH, Dr Phil Baker, is an anthrax expert [xxvi], and has continued his policies." And "they" finally won... given that the american academy of neurology has issued new lyme guidelines which limit treatment to one month of antibiotics and any symptoms after that are "post lyme syndrome" which is basically "all in the head" and for which antidepressants are prescribed. Let's just hope the Blumenthal action against IDSA actually rolls some heads and tumbles their house of cards, built on lies.
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Post by Niels on Jul 6, 2007 3:23:19 GMT -5
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Post by Niels on Jul 7, 2007 13:57:39 GMT -5
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Post by bugsy on Jul 7, 2007 16:39:19 GMT -5
Thanks Niels. Interesting about the iron. Good to know. Also interesting about the use of cortosteroids not being either beneficial or harmful with Lyme (specifiacally bb) . Phew. Good to know. One drug which I did not see as listed is Bactrim. But Doxycyline and Amoxicillin seem to be prevelant and easy to get for the average Joe. Just got my hands on some Augmentin. YES. The thing is ya don't know what stage you are in at any given time and you have to do it by trial and error. Took one pill and I could see better immediately. Can you imagine??!!! This stuff is obviously attacking my vision. Am going to try to pulse my treatments if the head on approach doesn't work. Hee hee coax the bastards out...c'mon spiro...come out and play it's safe..the waters fine.....then BOOM....lol.
~Bugsy
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