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Post by freaky on Oct 12, 2005 4:02:11 GMT -5
I hate to say this, but it's just you guys that are the light of my life. I'm starting to enjoy you all most in my life, no matter what you have to say. All my other time is spent picking my face, then trying to read all this stuff searching for how do you get those stuck places unstuck, aside from moving from cell to cell, undoing it, and hoping maybe tomorrow it will all turn to mush, & I won't have to do this anymore. Really, I'm totally freaked out my dr. will quit giving me my antibiotics, but I try not to go there. Not positive thinking. I be wondering, because I've been told it's a scam getting scrips over the Internet. Is that true, or is there a reliable place one could order some drugs. If I knew the answer to this question, I could get a grip, & conquer the FEAR. You all are a treasure. freaky
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Post by KBasguest on Oct 12, 2005 8:22:50 GMT -5
Freak, Do a search on this board for pharmacies. I think there are some recommendations in old posts. You have to go international, like Mexico or France I think.
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Post by Crab keeper on Oct 12, 2005 9:32:38 GMT -5
I hate to say this, but it's just you guys that are the light of my life. I'm starting to enjoy you all most in my life, no matter what you have to say. All my other time is spent picking my face, then trying to read all this stuff searching for how do you get those stuck places unstuck, aside from moving from cell to cell, undoing it, and hoping maybe tomorrow it will all turn to mush, & I won't have to do this anymore. Really, I'm totally freaked out my dr. will quit giving me my antibiotics, but I try not to go there. Not positive thinking. I be wondering, because I've been told it's a scam getting scrips over the Internet. Is that true, or is there a reliable place one could order some drugs. If I knew the answer to this question, I could get a grip, & conquer the FEAR. You all are a treasure. freaky I order from World Remedium.com and freedom pharmacy. They are real drugs I get
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Post by Anony Annie on Oct 12, 2005 10:11:50 GMT -5
As long as you keep riding the same dead horses you will go nowhere reguardless of how long you beat them.............Confuseus "Confucius." Specifics do lend credibility. That's why my brain rather shuts off when people talk about "the government." Who in the government? Karl Rove, singlehandedly? The judicial system? The Dept. of Defense, CIA? I'm not a fan of conspiracy theories and not afraid to say so!
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Post by freaky on Oct 13, 2005 0:41:37 GMT -5
KBasguest, thanks for your reply. By the way, it's freaky, not Freak. A freak is an infectious disease specialist, a member of the KKK, a physician who practices pointing his finger rather than medicine. It's just a matter of linguistics. I know you didn't mean any-thing by it. I became freaky when I became associated with the medical establishment, and thus I am. freaky
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Post by freaky on Oct 13, 2005 0:50:00 GMT -5
Crab Keeper, thanks sooo much. I will be forever grateful for your answer to my question re: buying drugs on Internet. I will be forever grateful. I honestly feel as though half of the baggage I've been hauling around has just blown away? Anyway, thanks. ;D
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Post by junebook1 on Oct 25, 2005 16:21:20 GMT -5
whether "it" is called morgellons, s. maltophilia, or anything else, it is amazing to find a medicine that the good Dr. took time to do sensitivity testing to KNOW what works instead of guessing i believe schwartz, and I DON'T CARE WHAT IT IS CALLED. ----------------------------------------------------------
Ruth, I am so happy for you, and I am of the opinion that you are more than satisfied with the medicines and treatments Dr. Schwartz suggested. I think it's time I took a step in that direction because I feel so bad most of the time, I can't concentrate on my job. Would you please tell me what things he has suggested (I'm allergic to so many Rx's) and would you please tell me how to contact him. God bless you, Ruth. I pray you get better and better with each passing day.
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Post by ruth on Oct 27, 2005 14:57:21 GMT -5
hello,
i'm not so sure anymore. i have been very active all of oct. in spite of all the meds i am taking.
i have incredible pressure in my head, fatigue, have no motivation for life and my memory is toast.
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kb
Full Member
Posts: 162
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Post by kb on Oct 27, 2005 15:11:06 GMT -5
Freak-Y, Sorry about that, I tend to shorten everything to nicknames, Lisa becomes Lis, you get the picture. Didn't mean to offend. Maybe I should start calling myself Munch--short for suspected Munchhausen which is what I get from the medical system because I am sick and happen to not be working at the moment. What person gets joy from spending thousands of $ telling doctors things they don't believe? Next time I will bring my fiber collection for show and tell... Ruth, have you done salt and c? I don't know if you can mix with abx but alone it gave me relief with cats claw and olive leaf from time to time.
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Post by rf on Feb 5, 2006 5:40:11 GMT -5
If you're cured and you believe that what you had was not what people here are complaining about, then why do you come here and read the things people write?
How many doctors did you go to before someone helped you? The people here are looking for help and you telling them that they aren't seeing and feeling what they see and feel is not helping them cope. You're very lucky if you found someone to help you and some medication that helped you. Maybe YOU were crazy, but that doesn't mean that because you were delusional that everyone here is delusional!
I've never mentioned "morgellon's" to ANY doctor or emergency room. I go and tell them what my complaints are they do a cbc and say there's nothing wrong with me. Then eventually one doctor figures out, that I have severe neurological problems, then my ana is abnormal. Then a biopsy of my skin is done, inflammation and scarring are found without a cause. Doctors can see the sores, and the hair loss I have never mentioned bugs, or crawling, or taken baggies to any doctor's office. This is either environmental or passed on in the way things like scabies or lice is passed on. My water has been tested! My house has been tested!
Could the crawling sensation possible be nerve damage? Aren't people with nerve damage treated with baths, massage, topical skin treatment?
Oh, and can you please tell me where I can find a job that I can lose consciousness at, at least five times a week and not get fired? ...I have taken care of myself my entire life and I did not go and get on government assistance until, my entire savings was gone! The hardest thing I ever had to do was go and get financial help! And any one who has ever been on public assistance knows that you have to be near dead to qualify, unless you have kids. I DON'T have kids, so I guess I'm very healthy and the government made a mistake by approving me. I guess they don't continue to check on my health behind my back to make sure that I'm really sick, I guess I'm imaging that too.
I've got an idea. If you're well enough to have a normal life, then get off the internet, and go live! And leave the people who are suffering the !@#$ alone. You could have said what you said and I'm referring to more than one of you, without being rude and treating people, the way I'm sure some doctor treated you at some point (or you would have never found this board right)? I mean I sure did have to do a lot of searching before I found this place. This is exactly the third time I've visited this site and if I had read what you wrote the first time, I would have lost all hope of anyone ever believing me.
Now I'm going to go and eat some very unhealthy food. I'm so glad you're cured! Too bad there is not yet a cure for "A$$!@#$" ...I guess will have to continue to suffer with what ever this thing is and you!
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Post by Ohio Psychologist on Feb 20, 2006 13:20:13 GMT -5
I am a clinical psychologist interested in conducting a study with people who have received psychiatric diagnoses since seeking medical help for Morgellons, Lyme, or similarly misunderstood, misdiagnosed disease. Advantages to participating in this study are you may remain anonymous and gain more information. The two phase design consists of a phase one survey and possible opportunity for a complete battery of psychological tests without charge in phase two.
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guest
New Member
Posts: 0
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Post by guest on Feb 20, 2006 14:23:22 GMT -5
And? When is this taking place? Do we have to live in Ohio? Where can we read about this study? What are your proposed dates for Phase One and Phase Two? Any other info might get more responses. Thanks.
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Post by ruth on Feb 20, 2006 14:27:36 GMT -5
infested july 1997, dx of psychosis nos. from sept.
1997, hospitalized against my will. dop from seattle
derm 2000.
myiasis dx. 2002, dr. omar amin, lyme dx, bowens 1:64, 2003.
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Post by psychologist on Feb 21, 2006 9:55:21 GMT -5
There appears to be great need for the kind of study I am expressing interest in conducting. Thanks to Ruth and Guest who replied. I have no funding and at this point am simply attempting to find out if people such as Ruth are interested in participating.
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Post by ruth on Feb 21, 2006 12:14:47 GMT -5
psychologist,
to tell the truth i am tired and burnt out. i've searched for 8+years........to disprove the dop myth, to regain any credibility i can scrape up.
i don't even have my letter to Michael moore written yet.
i so wish i really was delusional.
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Post by ANTHILL on Feb 21, 2006 20:22:37 GMT -5
Hello psychologist, I feel a allot like the emperor in that fable the emperors new cloths where the tailors try to convince the emperor the he is wearing something when in fact he is not Deep in his heart he knows better but he is afraid what people will think if he states the truth --anyway you know the story
Now put us the so called delusional in the story replacing the emperor and put the medical community in the story as the tailors who tried to convince the emperor that he was wearing something when he wasn't and I think you get the picture we are getting the delusional diagnosis shoved down our throat by doctors
I have Had to live the last six years of my Life in hell because of a out dated psychiatric cross reference that was written about 1938 Ekbom's syndrome I believe it is called that explains away any explanation that we as patients can come up with with phyco jargon
I call it between a rock and a hard place syndrome
Sorry to say in 1938 the the psychiatric and the medical community for that matter ---were down right medieval in there thinking Their policy of eugenics where they did unspeakable things to those dubed feeble minded against their will is poof of their mind set back then
It's just a step away from hysterical house wife syndrome if that rings a bell? The acorn isn't falling far from the eugenics tree That term was probably thought up about the same time frame
I am sorry about the history lesson but it is needed to make my point and that point is It is vary probable that some idiot got it wrong some were along the way and because of that there is great suffering going on by many
Theres a storm gathering we arn't going to take it any more thank god for the information age
I have always been in charge of my facilities although I almost lost it when knowing this was real medical condition I could not get doctors to take me seriously because they thought I was a nut I didn't just wake up one day and say oh' boy wouldn't it be neato to be phobic of parasites on my skin and sacrifice everything I have worked for all my life ---when life was so good
I question your motives you can tell me what your hypothesis is and I will consider participation in your study
Sorry that I am gun shy but I feel like a dog that somebody mistreated and had the hell beat out of
I don't think there is anyone that comes to this web site that is off their rocker Although I must admit it can drive you insane with the sensations of parasites having their way with your body and knowing there is no medical help only phycotropic drugs deaden the sences for this vary real medical condition
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Post by psychologist on Feb 22, 2006 9:29:41 GMT -5
Dear Anthill,
It took a small child who did not have the mindset put in place by charlatans to state a simple truth. The suggestion that fools and morons could not see the fine cloth, threads of silver and gold, ensured that those considered most intelligent, prestigious, highly educated, etc by the townsfolk and by themselves even moreso would rave about the splendor of the emperor's garb. As those held in highest regard, duly amplified by the vulgar and crude opined as to the poor disrobed emperor's fine clothes the child gazed with clear eyes and exclaimed, "The emperor has no clothes!" The critical variables in bringing this study to fruition are intellectual honesty and cooperation. It is the client, patient, participant, etc and not the therapist, doctor, researcher, etc who is the holder of the privilege. This yields all power over confidentiality to study participants. No aspect of confidentiality can be breached without explicit permission from these indiviuals. In Friendship I Salute You. Sincerely, Psychologist
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Post by Mari on Feb 22, 2006 18:34:50 GMT -5
Where in Ohio are you as I live in Ohio also. I am having such a bad week with this disease. I feel these things biting in my chest and head, they are everywhere in my body despite taking Bactrim and Cipro. My son has this also and like Ruth, I would love a real diagnosis of DOP. I want to wake up and have this Hell over. I don't think I'll be alive much longer anyway I have little energy. How does someone feel this sick and still be able to keep living, if that's what you want to call it. Sometimes I think I must have died and gone to hell and don't know it. Unfortunately, I am not crazy. If you are for real, then I would participate, if your just playing around, please just don't, we all have been dissapointed enough.
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Post by clinical4psych on Feb 22, 2006 19:39:01 GMT -5
Dear Marie, You can send me an email privately if you like. Your assertion that you "would love" a DOP diagnosis is puzzling. I am interested in finding people to help me with the hard work of this study because undiagnosed and misdiagnosed disease is the source of unspeakable human suffering, loss of ability, even death. Incidentally how do you know that I am not at least as sick as you are: without benefit of antibiotics and barely clinging to what is left of my life in an effort to accomplish this work? In Friendship I Salute You
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Post by Mari on Feb 25, 2006 15:35:31 GMT -5
Hi, I guess what we mean by wanting a DOP diagnosis is because then this suffering wouldn't really be real and there would be a chance of getting better. When I first started seeing what I saw, I used to go up the street an sit all day in the parking lot of an extention hospital we have near, that is how crazy I felt, I wanted to be someplace where there would be help if I lost it. I don't know what kind of study you want to do, I'm not a medical person and if you have this disease, then you know the suffering no diagnosis causes on top of the disease itself. I sent a letter to Michael Moore even though he's not one of my favorite people, but trying to do my part. I do not know how to send you a private message. I don't come here much because it's to mentally hard on me to think about this disease all the time. I tend to come here when I'm feeling really hopeless, hoping to see some good news, but there never really is, just more guessing. Now not saying that is bad, you need to toss around ideas and I am grateful to those who have the knowledge to study this, it's them I have to depend on to find a cure, but that is what I want to see, a cure. It won't be me who finds it. If you want an indepth study, not sure what that is or if I would be the right person. Although I went to college for 3 years studying English Literature, now I can't remember a paragraph I read since this disease. You can reach me if you want to ask me anything at Craftyladymj@aol.com. Mari
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