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Post by Hope on Jul 1, 2005 1:51:38 GMT -5
Ant, Honey you know how I am so you better have chains! ;D
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Post by ANTHILL on Jul 1, 2005 9:29:32 GMT -5
Got chains so release the beast! ;D
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Post by itchingntexas on Jul 2, 2005 2:45:40 GMT -5
Went to the link. Collemboliasis sounds much like what we have...but no mention of the fibers! What about them? Dude. Do any of you, like me, wish that you'd wake up tomorrow, and someone would show up at your door and be like, "Hello, God sent me. You 100%, absolutely, positively have 'xyz blah, blah, blah'. You treat it with 'blah, blah, blah', and it will be gone in two days. Have a great life." ...Or is it just me??
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Post by Hope on Jul 2, 2005 3:20:06 GMT -5
Many hair like fibers are coming off still. Most are a lot smaller than previously and my oil trick takes ¼ the time it used to. This is all good!!!! The texture in my skin is unbelievably smoother in many areas and especially my neck. It feels so good to get this crap off of me finally. You just don’t know how happy I am that those floaters are gone because I had become hypersensitive to them and people were bound to ….. Well, let’s just say they never would have understood and I was having a very hard time being the only one to really know what was going on.
I know I still have the clear/cottony ones because I scrubbed my floor yesterday, used a very strong cleaner, and this made those ones surface on my arm and hand. But, I find 90% less of them on my hair. The splinters have almost stopped surfacing too. I only had two today and that’s down from about 10-15 a day (yea it was bad). Still finding some black specks but that is down too and strangely, only one sand thing in four days.
Speaking of strange guess what? I witnessed for the first time ever a small patch of fine glitter on my arm. It was kind of like in between the glitter and crystal stage and the size of a nickel. It resembled what your skin looks like after a swim in the ocean and the salt water dries, you know, that crystaly residue. I waited and watched it for twenty mins and nothing ever changed so I just washed it off. This is a first for me because I have only ever seen the glitter one at a time before.
I am only doing half of the dosage that is recommended by Schwartz and still having these results. I’m going to try to space out what little I have left until my shipment arrives as I have just ordered a two month supply.
May the Schwartz be with you.
Peace, Hope
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Post by Chemist G on Jul 2, 2005 4:25:58 GMT -5
Itching: you must have missed this paragraph then (and yes, I do believe about half of the readers here have this and half have the bacterial infection that Dr. Schwartz refers to):
Affected patients complained of slightly raised red, black, and/or white lesions that itched, and it felt as if something was crawling beneath the skin. When scraped or rubbed with vinegar or antifungal cream, some areas produced short red or white "fibres" that moved. In a few instances, entire creatures with "scorpion-like tails that curved downward" were teased out. In some instances, the patients reported seeing small, round, white "nit"-like objects adhering to their head hairs.
Chemist G
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Post by guestwondering on Jul 2, 2005 17:25:54 GMT -5
Dear Chemist G, I am currently taking 200mg doxycycline a day. Do you think this will work? I am taking a 100mg pill when I wake up, and another when i goto sleep. I just stated the dosage today. Thanks.
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Post by Hope on Jul 2, 2005 18:05:06 GMT -5
Dear Good Chemist, What are your thoughts on that crystal residue that is seeping through my skin in small patches? Tiny crystal like structures have been observed comming off of my arms and once I had many inside the worst lesion I ever had. WTF???
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Post by Hope on Jul 5, 2005 0:55:08 GMT -5
Had to cut my Septra way down to space it out. It’s clearly not enough as I have seen a slight increase in floaters. My skin is still way better but healing has slowed down.
There is a steady increase in crystals/glitter that can be observed on my arms and elsewhere. I’ve never seen so many in such a short period of time. I scoped them tonight and one had six symmetrical sides to it.
Dear God help me because I don’t have any answers to any of this and I’m terrified, shaking, and crying right now.
How bad do I have this? Adapted I think you might be able to answer that. Remember when I found one near my face? I think you knew because of what you said to me. My neck is clear now and I almost had a break down looking at what I was taking it off of it.
A large painful lump has developed under an almost healed lesion. It hurts pretty bad and is exactly like the ones between my shoulders on my back for years. My hair is falling out so fast now I don’t know what to do. I don’t even know what is my hair anymore. I’m still running a slight temperature and I don’t know if I’ll ever be able to face another doctor for the rest of my life.
Sorry for the break down guys but thanks for listening. I always get like this when I use my microscope. I don’t handle it very well.
Send me some prayers please.
And may my Septra get here quickly.
Peace, Hope
And now I’m stuck in the web you’re spinning. You’ve got me for your prey.
Sorry I’m not home right now I’m walking into spiderwebs so leave a message and I’ll call you back. A likely story, but leave a message and I’ll call you back.
Now it’s gone to deep. You wake me in my sleep. My dreams become nightmares because you’re ringing in my ears.
Sorry I’m not home right now I’m walking into spiderwebs so leave a message and I’ll call you back. A likely story, but leave a message and I’ll call you back. ~ No Doubt - Tragic Kingdom
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Post by bugged1 on Jul 5, 2005 1:50:46 GMT -5
Dear Chemist G, I am currently taking 200mg doxycycline a day. Do you think this will work? I am taking a 100mg pill when I wake up, and another when i goto sleep. I just stated the dosage today. Thanks. Doxy is a bacteriastat - it keeps them in check and theoretically from reproducing, not immediatley kill them so don't expect a miracle overnight (same with septra but septra can have a quicker kill). That dose sounds about right but I really need the info from an expert like Dr. Schwartz. I need his protocol. In any case you all NEED to know this - being on Spetra or Doxy for any length of time can and will compromise your intestinal flora so you NEED to supplement with acidopholus after treatment. You SHOULD reach a point where your body will fight off any remaining bacteria (or whatever this godforsaken pathogen is). You WILL notice a slight relapse in symptoms when this happens but give your body a little time to see if it can't fight it off on it's own before resorting to going back on. I do NOT, and I repeat NOT recommend experimenting with avermectins - you can have some serious neuro problems if you're dosing too high and they may not be the answer at all (but I, of course, do want to hear of any positive results and specific dosing levels). Be Well, Chemist G
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Post by bugged1 on Jul 5, 2005 1:56:53 GMT -5
Dear Good Chemist, What are your thoughts on that crystal residue that is seeping through my skin in small patches? Tiny crystal like structures have been observed comming off of my arms and once I had many inside the worst lesion I ever had. WTF??? Hang in there Hope! I don't know what they are but I have them too - on my fingertips on occasion. Do this for me and tell me what happens - rub some DAE (diatomaceaous earth) on those areas and leave on overnight. That seems to cure that problem. Do you have any more stinging? Get well! Chemist G
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Post by Hope on Jul 5, 2005 9:39:23 GMT -5
Thanks Chemist,
I'll go to the feed store today and see if I can find DE (food grade of course).
I have very little stinging now (1-2 times a day) and mostly just that constant feeling like a hair is on me in different areas of my body. Sometimes I find it, sometimes I don’t. I get fluttering deep in my muscles also so I'm very scared I have this bad.
Dr. Martin says he finds crystals in his stealth virus cultures.
I’m trying to hang in there but it’s very difficult to see such wonderful progress and healing slowed down so much.
Having no answers to any of this is like trying to find your way through a labyrinth blindfolded.
Peace, Hope
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Post by Chemist G on Jul 5, 2005 13:51:00 GMT -5
Hope,
The DAE will make the "hair" feelings go away... for good. You're definitely on the right track, just have to ba a little patient. I also suggest you start mega-dosing with Ester C (1000 mg every time you take septra - 3 times a day), like NOW! That will boost your immune system and prevent relapses while on the septra. Green tea and ecinachea would also be a wise move.
Chemist G
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Post by bannanny on Jul 7, 2005 2:47:04 GMT -5
Hope Hill has a nice ring to it!!! People will think you're related to Faith. (lol) Hang in there babe.....sometimes things always get worse just before they get better, ya know? Could you guys please tell me what this remedy (or combination of remedies) is? I have so much of the hair or cobweb feelings, the microscopic rocks hitting me feelings, and now, more and more, these "wryms" in my hair seem to be growing with sharp points on them, and their pierce is painfull as sharp glass. Then there's that "electric like rubberband" feeling when I get one and pull it out.....(these last two really freaking me out lately cuz they seem so much bigger and stronger than usual). I've lost it so much lately, I don't know what to do anymore. Thanks my friends, for all of your help and support.
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Post by Hope on Jul 8, 2005 17:34:45 GMT -5
Schwartz recommends Septra 2 pills three times a day and Avelox, I think that one is once a day. Someone help me if I’m wrong please. I couldn’t afford the Avelox yet and I had a small amount of Septra but ran out. Since I have been off of it, I have noticed these tiny red/blood pin prick like looking spots. New bites? And they seem to have migrated to my head or something because it’s bad up there now. I’ve been trying to acquire the DE that Chemist was recommending but have no luck finding it locally yet. I’m so tired of this crap! May the Schwartz be with you. Peace, Hope
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Post by Chemist G on Jul 8, 2005 20:04:55 GMT -5
Hmmm,
I had been wondering how Cipro (ciprofloxacin) would work against this. It is, without a doubt, the most effective antibacterial drug I have ever tried so I figured it may prove useful. It is in a class of drugs called fluoroquinolones - very effective gram negative bacteria controlling drugs. Moxidectrin (Avelox) is a second generation fluoroquinolone with efficacy against anaerobes and gram positive bacteria as well as increased mutation resistance.
Make no mistake - Dr. Scwartz is pulling out the "BIG GUNS" for this bear! Do you know how long his regimen is Hope? That is an absolutely wicked combo - your body's intestinal microflora would definitely be compromised but to get rid of this beast it may be worth it.
I would like to hear from anyone who's taken Cipro or Avelox and your results.
Thanks,
Chemist G
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Post by Chemist G on Jul 8, 2005 20:07:02 GMT -5
OOPS - I meant moxifloxacin (AVELOX), not moxidectrin!!!
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Post by itchingntexas on Jul 8, 2005 21:00:50 GMT -5
Bananny, I am praying for you. Those 'losing it' days really bite. I just start getting so P.O.ed each time the itching'/stinging starts up. Mine is mostly in the evening. Sorry you are having a hard time. Sorry for all of us.
Chem G, thank you for all the wonderful information.
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Post by Chemist G on Jul 8, 2005 21:30:16 GMT -5
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Post by bannanny on Jul 10, 2005 22:19:08 GMT -5
Thanks guys.....I'll see what I can find and hope it will work. And speaking of Hope, I'm also so very tired of all this crap too! I'm afraid the hope in me seems to be fading.....what a freakin shame this life has become just short of nothin. And it sucks, this system of ours sometimes. In the search for a cure, these government agency's can't see beyond first, receiving letters upon letters from their loving voter's just shy of screaming for help, and then more letters from your own dr., saying.....well yes, this patient is in need...DAH...of a cure, but of course I don't know what that cure might be as this seems to be a new and very real emerging disease... which is where you all come in to the picture. We need to get on with some trials, research, and the whole shabangy, and we need to get on it now!! Oh..... um.....ok.....that's how many thousands you say need to become infected first before we can figure this beasty boy out?? We have some great minds behind us working so hard to try and find some answers.....it's too bad they need that proof from them of something unknown first just to get started and, of course, the paperwork it takes to put the unknown on and copies.....more paperwork, gotta have as much paperwork they can think of to have printed up so they have more paperwork that makes them look busy busy! Oh, it would be so nice if things didn't have to work that way...we could all get together with Mary and Doc Martin in a skating rink, an arena, Disneyland, the beach (gotta have a little bit of fun while attempting to dose us with the right dose so we're finally dosed and done with it). You'd think all the buerocrats would actually see something like the dr.s and their diseased coming together to find an answer as being logical and rather time and suffering saving...ok, maybe not the Disneyland thing...and see it as a burden being lifted off their "must be proven beyond a sh ~load of paperwork" shoulders. Doing away with all the ridiculous paperwork under a few other great piles of paperwork could probably buy some research. Who knows better anyway, all of us who are desperate to end the suffering this thing inflicts on us and our family's, or those guys who gotta go thru this guy first, then maybe that guy will roll on with it to the next guy, who forgets about it until he hears about all these diseased people who went to congress for help...maybe. Life is really so very simple.....why it had to be made so damn difficult.....I'll never understand that. Well, I got to ramblin on and lettin it out....sorry bout that. I think it's time for me to get a grip...dunno why it's so hard to do lately. But I must. Haven't been any kind of shoulder for you guys lately, have I.....I've been bitching a little too much I think. I'm gonna shut up and listen now. I luv ya's
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iit2
New Member
Posts: 5
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Post by iit2 on Jul 11, 2005 19:13:43 GMT -5
I have ordered Septa online. Can someone tell me the dosage required?
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