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Post by Jeff on Jul 12, 2005 19:56:16 GMT -5
Just wondering if anyone else was immunocompromised when this started-- I was a couple years out of a very heavy but short-term (4 months) dosage of chemo and a few surgeries. I would think that I was better, immune system-wise, but maybe not. What brings this up is that other people in the house seem to occasionally get a tiny bit of what I have, but it clears up. It's like I've been colonized and they haven't.
Does this make sense to anyone, or am I on the wrong track?
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Post by susiebelle on Jul 12, 2005 23:14:43 GMT -5
Yes I totally agree, because I know that my husband and two sons have had symptoms but for a numjber of different reasons they never get as bad as mine. I think that they are all carrying the culprit (whatever it is) and whenever they have a major problem they always come up with simple explainations. In my case I got rundown so gradually and kept pushing myself to keep up and because the doctors said it was in my head I believed them. Then when the major skin problems started the delusional and self mutilating diagnosis was always the answer as soon as they knew I was dealing with fatigue and stress. I know that so many of you can relate to this. I want to get better so bad but if I don't I just hope I know the cause befor I die. Not that I'm planning on dieing anytime soon. susiebelle
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Post by Lisa on Jul 13, 2005 4:26:03 GMT -5
Same thing in my household. That's how I would explain too. I'm colonized. I have it the worst. My son's symptoms are minor (thank you God) and my husband is loaded with "stuff" that I see on his side of the bed, his sink area, clothes, etc... He doesn't get sores, or the stinging and biting though. I do know he has some bug bites that are taking there time to heal, so we'll see what happens with that. He doesn't like me pickin' on him. Considering the Lyme-like symptoms hit me first before the Morgellons, I guess I was immune compromised. But the funny thing is, I never got sick....as in flu and colds. Strep throat every once in a while but that's it. You would think someone whose immune system was compromised would be sick more often, right? I continually had deep pain and extreme fatigue though. I just thought of this. As I said, my son has minor symptoms. When I first realized that this was a war against some unknown disease, I started having him take Olive Leaf. I wonder if that's what has kept it at bay? Jeff, don't answer if it's an uncomfortable subject, but what did you have the chemo for? I hate to think you got over one disease and acquired another.
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Post by susiebell on Jul 13, 2005 6:24:21 GMT -5
Lisa I think it is great that your son is taking the olive leaf. We are learning so many new things about our health and how important it is to have a healthy diet while growing up. I figure anything we can do to influence our children will help them later in life. I am like you as far as never getting really sick. I rarely have colds or flu or even headaches but the fatigue is disabeling. I often wondered if my sons(adults now) fought this off because they would change clothes and shower 2 or 3 times a day. My husband complained about the water and I whined about the laundry but it probably helped.
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Post by Jeff on Jul 13, 2005 8:20:52 GMT -5
"Jeff, don't answer if it's an uncomfortable subject, but what did you have the chemo for? I hate to think you got over one disease and acquired another. "
It's pretty unconfortable, but no worse than going into classrooms and telling teenage boys to check for this regularly -
Had testicular cancer. They had to take that out, do a mediastinal resection and a wedge resection of the lung, and then a lymph node dissection. Not fun, and the chemo was a killer. It shouldn't always be as bad as that, but by the time it was dxed, the mediastinal tumor was almost a foot long and four inches wide, and the spread in the lymph nodes was pretty bad.
Aren't you sorry you asked, lol?
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Post by Jeff on Jul 13, 2005 9:54:15 GMT -5
And, just for the record, the back/side pain I had for about a year before diagnosis was supposedly all in my mind, too. Must just be a coincidence that the location of the pain corresponded perfectly to the location of the second largest tumor. I figured this out when the biopsy exactly reporduced the same pain.
Another reason not to trust any doc who tells you your symptoms aren't real.
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Post by Lisa on Jul 13, 2005 11:07:55 GMT -5
Got your yellow bracelet on? I'm from Texas, so we have a lot of Lance Armstrong lovers here.
Thanks for sharing. You should be commended for educating young men. What a horror story though. When are physicians going to learn that we KNOW our bodies better than they do? We drag them around with us everyday. That should count for something.
Are you thinking that you might have contracted the Morgellon stuff while in the hospital?
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Post by Jeff on Jul 13, 2005 11:20:44 GMT -5
I have no idea regarding where I got it -- so many strange factors in my life that I'd hate to guess and be wrong -- here's a bunch of possibilities:
We live in the boonies, between farms and mountains.
Our apartment was infested with mice, and tons of bats live in the attic.
When I was away getting treated, all of the furniture was stored in a garage and storage unit.
I drink bottled water (don't trust the wells - too many pig and chicken farms around).
I travel to Mexico, Honduras, Belize, and other Caribbean places. More often than I can afford too, now, because the sun and salt seem to help for a short time.
Chemo.
Operations.
IV's for a week at a time.
The inside of the back wall to the apartment building has layers and layers of mold.
I swim/dive in quarries (but not before it started).
We have pet birds and fish.
The abandoned barn across the street is loaded with stray cats.
We just moved into this apartment building when it seemed to start. We moved to another apartment upstairs (same building). At that point, it stopped getting worse. Just stable and miserable.
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