Post by bb on Jul 14, 2005 20:48:31 GMT -5
I'm pumped. I sent a letter to Mrs. Bush. I got a note today from the Director of Correspondence of the Office of the First Lady. I got the address from the internet. Please everyone write to her and tell her your story!
The note says........
"THE WHITE HOUSE, WASHINGTON. On behalf of Mrs. Bush, I would like to thank you for your letter. I have shared your information with members of the White House staff who work directly with the agency that has jurisdiction over your issue. The appropriate agency will review your information and be in touch iwth you directly.
Mrs. Bush appreciates your taking the time to write and hopes the circumstances you face will be resolved soon."
Here is my letter that they are responding to. I realize the card is a form letter, but still.............hope keeps me afloat.
May 4, 2005
The White House
ATTENTION: Mrs. Laura Bush
1600 Pennsylvania Avenue NW
Washington, DC 20500
Dear Mrs. Bush:
I felt compelled to write you regarding a growing epidemic in America that is being ignored by American doctors. My life is forever changed, for the worse, by this condition. I am very sick, and yet doctors turn their backs to me. Even when I ask to be referred to a specialist I am blown off. American doctors do not want to let the cat out of the bag. Parasites are making people ill, and thereby making doctors rich. I truly believe that, because I am a perfect example of what happens when you mention “parasites” in a doctor’s office. You will find yourself on a shrink’s couch eating pills like candy. American doctors will only give a “Delusions of Parasitosis” diagnosis for the many sufferers. There is a website I beg you to check out. It is morgellons.com.
Morgellons is a rare disease that has been around since 1640 when Africans were brought to America, along with African diseases. No one knows what Morgellons is. No official research is being conducted, because it is not a state or federally recognized disease. There are, at the very least, some two thousand sufferers registered at Morgellons.com, but I believe there are many more that have not found the website. We are comforted knowing we are not alone, and we are not crazy. It can be an embarrassing disease; no one wants to discuss parasites. But I decided early on that this is something that has happened to me, and I will not be ashamed. I have been in the Austin news two times, and in Florida news once, in attempts to bring attention to a growing crisis in America with hotspots being Texas, California and Florida. I have been in a newspaper article in the UK that questions if the American doctors are delusional themselves, or lying through their bleached-white teeth. I loved reading those words. The article validated everything for me. This disease is not only real, it is an inescapable, daily torture. The itching, crawling sensations and biting would drive anyone nuts. I am sure the mental institutions are full of people with Morgellons, as I could see that was where I was headed if I kept trying to get help from American doctors. People need to know there is some help available, and it could literally save their lives because they won’t feel the need to commit suicide to end the torture.
This is what happened to me. Shortly after my husband and I went on a cruise ship vacation to Cozumel, Mexico, I began experiencing intense itching, crawling and biting from head to toe. After going to my doctor three times I realized I was totally alone with this. My husband is an exterminator and his poisons seemed to help very little. That is when the thought of suicide did enter my mind. The torture and hopelessness are just too much. My sister came running to my house with her Bible, and she had me read out loud from the Bible. Thank the Lord for His amazing grace. His word saved me. I am strengthened for the battle ahead.
In desperate attempts to kill my enemy, or reduce his numbers, we have burned our carpet and furniture. We have moved out of our home, and are remodeling to make our home more nature-proof. We will never have carpet or cloth furniture again. We have asked that everyone stay away from our home, just to be safe.
Next I went to a dermatologist who glanced over my body with a lit magnifying glass for 30 seconds and smugly announced me free of skin disease. Next I went to another doctor who said she believed me! Then she left the room to make an appointment, came back in and told me the appointment was for me, with a shrink!?! I decided I did want to go see him because his drugs would help me through this hell. I am taking Seroquel, which is an anti-psychotic drug that knocks me out at night so I can sleep through the torture. Every time I have asked to be referred to a specialist I have been blown off. My shrink said “Let’s wait and see how you do on your meds”. What? The meds knock me out, but I don’t think it is going to knock out whatever this is!
Of course I did a lot of research on the internet, and found Ginger Savely in Austin. She is a Lyme Disease Specialist who is finding some 10% of Lyme patients have the symptoms I am experiencing. Most people with Morgellons have lost their jobs because the physical symptoms cause us to lose our skills as workers. The brain-fog alone will get you fired. I am managing to hang on to my job for now, but I have been warned that my position is not secure, even after 15 years with the company. There are other physical symptoms of Morgellons including extreme fatigue, cough, joint pain, digestion problems, etc. These are symptoms also of Lyme disease. People with Morgellons are reporting finding tiny black specks, threads, fibers, bundles of fibers, on their skin. Ginger tested my husband and me for Lyme disease. We both have it. Guess what, Lyme disease can be sexually transmitted! We are now on long-term antibiotics for the Lyme (Thank God my husband does not have the Morgellons symptoms). The theory is that if the Lyme is treated, the Morgellons goes away on its own.
I’m not 100% behind this theory though. I know I was attacked by something, and perhaps it gave me Lyme disease, who knows. Another theory is that our skin immunity is so compromised that normal things in nature now are bothering us, that wouldn’t bother someone with normal immunity. One volunteer researcher thinks it is a virus. One doctor thinks it is bacteria from drinking bottled water. There are many theories related to parasitic infections. I have studied them all. For instance, the sandfly (or no-see-um) can infect a person with parasites that the sandfly picked up from biting an animal. We may have brought this scourge home with us from Cozumel, Mexico! Also we could have picked up something on the cruise ship, even on our suitcases! I read that bed bugs hitch a ride on your suitcase, when all the suitcases are put together getting on the ship and getting off. Supposedly bed bugs do not pass disease on to man. But who really knows. I am so tired of studying something so complicated, and how do you prove anything…….but I am determined to find the truth. Even my Lyme doctor does not do any kind of testing to try to find out what this could be. So I have made an appointment with an Environmental Doctor (which I had never heard of before), in another attempt to find the truth. I pray this appointment will uncover this mystery.
Salt baths help a lot. Castor oil on my skin helps a lot. I am taking all kinds of good things for my health. No one has contracted this from me, but I read on the internet how someone can have it for years then suddenly someone else in the family will catch it. Also, there are entire families that have it. I don’t know what the future holds for me, but I will be fighting the battle to help others. Some people with Morgellons are going on 20 years and more!
Please pray for us! Then, please, ask yourself what you can do for us! We are in desperate need of help and research. No one should have to endure such agony in American and be totally neglected by the very medical community we count on every day for our health!
Sincerely,
Becky Bailey
beckybailey2892@hotmail.com
The note says........
"THE WHITE HOUSE, WASHINGTON. On behalf of Mrs. Bush, I would like to thank you for your letter. I have shared your information with members of the White House staff who work directly with the agency that has jurisdiction over your issue. The appropriate agency will review your information and be in touch iwth you directly.
Mrs. Bush appreciates your taking the time to write and hopes the circumstances you face will be resolved soon."
Here is my letter that they are responding to. I realize the card is a form letter, but still.............hope keeps me afloat.
May 4, 2005
The White House
ATTENTION: Mrs. Laura Bush
1600 Pennsylvania Avenue NW
Washington, DC 20500
Dear Mrs. Bush:
I felt compelled to write you regarding a growing epidemic in America that is being ignored by American doctors. My life is forever changed, for the worse, by this condition. I am very sick, and yet doctors turn their backs to me. Even when I ask to be referred to a specialist I am blown off. American doctors do not want to let the cat out of the bag. Parasites are making people ill, and thereby making doctors rich. I truly believe that, because I am a perfect example of what happens when you mention “parasites” in a doctor’s office. You will find yourself on a shrink’s couch eating pills like candy. American doctors will only give a “Delusions of Parasitosis” diagnosis for the many sufferers. There is a website I beg you to check out. It is morgellons.com.
Morgellons is a rare disease that has been around since 1640 when Africans were brought to America, along with African diseases. No one knows what Morgellons is. No official research is being conducted, because it is not a state or federally recognized disease. There are, at the very least, some two thousand sufferers registered at Morgellons.com, but I believe there are many more that have not found the website. We are comforted knowing we are not alone, and we are not crazy. It can be an embarrassing disease; no one wants to discuss parasites. But I decided early on that this is something that has happened to me, and I will not be ashamed. I have been in the Austin news two times, and in Florida news once, in attempts to bring attention to a growing crisis in America with hotspots being Texas, California and Florida. I have been in a newspaper article in the UK that questions if the American doctors are delusional themselves, or lying through their bleached-white teeth. I loved reading those words. The article validated everything for me. This disease is not only real, it is an inescapable, daily torture. The itching, crawling sensations and biting would drive anyone nuts. I am sure the mental institutions are full of people with Morgellons, as I could see that was where I was headed if I kept trying to get help from American doctors. People need to know there is some help available, and it could literally save their lives because they won’t feel the need to commit suicide to end the torture.
This is what happened to me. Shortly after my husband and I went on a cruise ship vacation to Cozumel, Mexico, I began experiencing intense itching, crawling and biting from head to toe. After going to my doctor three times I realized I was totally alone with this. My husband is an exterminator and his poisons seemed to help very little. That is when the thought of suicide did enter my mind. The torture and hopelessness are just too much. My sister came running to my house with her Bible, and she had me read out loud from the Bible. Thank the Lord for His amazing grace. His word saved me. I am strengthened for the battle ahead.
In desperate attempts to kill my enemy, or reduce his numbers, we have burned our carpet and furniture. We have moved out of our home, and are remodeling to make our home more nature-proof. We will never have carpet or cloth furniture again. We have asked that everyone stay away from our home, just to be safe.
Next I went to a dermatologist who glanced over my body with a lit magnifying glass for 30 seconds and smugly announced me free of skin disease. Next I went to another doctor who said she believed me! Then she left the room to make an appointment, came back in and told me the appointment was for me, with a shrink!?! I decided I did want to go see him because his drugs would help me through this hell. I am taking Seroquel, which is an anti-psychotic drug that knocks me out at night so I can sleep through the torture. Every time I have asked to be referred to a specialist I have been blown off. My shrink said “Let’s wait and see how you do on your meds”. What? The meds knock me out, but I don’t think it is going to knock out whatever this is!
Of course I did a lot of research on the internet, and found Ginger Savely in Austin. She is a Lyme Disease Specialist who is finding some 10% of Lyme patients have the symptoms I am experiencing. Most people with Morgellons have lost their jobs because the physical symptoms cause us to lose our skills as workers. The brain-fog alone will get you fired. I am managing to hang on to my job for now, but I have been warned that my position is not secure, even after 15 years with the company. There are other physical symptoms of Morgellons including extreme fatigue, cough, joint pain, digestion problems, etc. These are symptoms also of Lyme disease. People with Morgellons are reporting finding tiny black specks, threads, fibers, bundles of fibers, on their skin. Ginger tested my husband and me for Lyme disease. We both have it. Guess what, Lyme disease can be sexually transmitted! We are now on long-term antibiotics for the Lyme (Thank God my husband does not have the Morgellons symptoms). The theory is that if the Lyme is treated, the Morgellons goes away on its own.
I’m not 100% behind this theory though. I know I was attacked by something, and perhaps it gave me Lyme disease, who knows. Another theory is that our skin immunity is so compromised that normal things in nature now are bothering us, that wouldn’t bother someone with normal immunity. One volunteer researcher thinks it is a virus. One doctor thinks it is bacteria from drinking bottled water. There are many theories related to parasitic infections. I have studied them all. For instance, the sandfly (or no-see-um) can infect a person with parasites that the sandfly picked up from biting an animal. We may have brought this scourge home with us from Cozumel, Mexico! Also we could have picked up something on the cruise ship, even on our suitcases! I read that bed bugs hitch a ride on your suitcase, when all the suitcases are put together getting on the ship and getting off. Supposedly bed bugs do not pass disease on to man. But who really knows. I am so tired of studying something so complicated, and how do you prove anything…….but I am determined to find the truth. Even my Lyme doctor does not do any kind of testing to try to find out what this could be. So I have made an appointment with an Environmental Doctor (which I had never heard of before), in another attempt to find the truth. I pray this appointment will uncover this mystery.
Salt baths help a lot. Castor oil on my skin helps a lot. I am taking all kinds of good things for my health. No one has contracted this from me, but I read on the internet how someone can have it for years then suddenly someone else in the family will catch it. Also, there are entire families that have it. I don’t know what the future holds for me, but I will be fighting the battle to help others. Some people with Morgellons are going on 20 years and more!
Please pray for us! Then, please, ask yourself what you can do for us! We are in desperate need of help and research. No one should have to endure such agony in American and be totally neglected by the very medical community we count on every day for our health!
Sincerely,
Becky Bailey
beckybailey2892@hotmail.com