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Post by bugged1 on Jul 18, 2005 15:41:58 GMT -5
First off thanks for all of the great responses to my hobbies thread. One thing that really struck me about it was that everyone is more than just a little creative - you are all VERY creative, and talented! And yes JJ, you can thro me into the creative category too as I really enjoy photography and working with different lighting for effects. But then my darn head starts spinning again, maybe I think too much but I can't help it and I think there's more to it than merely "coincidence" that everyone with this is artistic/creative. So I'm thinking we may be genetically predisposed and I start digging for genetic markers and... well I don't know if you want to read this or not but it scares the bejeezus outta me. I KNOW I have HLA-B27 genetic marker (a lot of us with Native American blood do) but I'm not sure about the HLA-DR4 marker. In any case, I think it would be VERY wise for you all to have these checked for when your doctor does any blood work. I'm sure IGeneX could do it too. But I'm now guessing this is genetically related and it freaks me out because this bacteria is turning our immune system against us. Lord help us. God Bless YOU ALL, Chemist G PS - Please let me know if you have these genetic markers. The final answer/cure may be a combo of antibiotics and gene therapy. arthritis.about.com/library/weekly/aa020398.htm
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Post by Jeff on Jul 18, 2005 15:49:29 GMT -5
Chem, I hope you are wrong on that, and I think basing it on creativity may be a false path. I'm thinking creative people are more likely to respond on a message board, and probably are more desirous of interaction with others who can relate to the condition, so it's a self-selecting sample.
That's my story and I hope I can stick to it, because this theory is to scary. "I'm not afraid." "You will be."
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Post by Dr jekyl on Jul 18, 2005 15:51:50 GMT -5
Dont know if I have the marker but my great grandmother was a fullblooded cherokee Indian.
Some of my family has that straight hair and my uncles never had facial hair,
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JLR
Junior Member
Posts: 61
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Post by JLR on Jul 18, 2005 15:59:56 GMT -5
Being that the computer is a 'creative tool' for most of us, and a means of communication for the rest I honestly think theres a connection since this is the only problem area for me at home and at one time work (also computer related field).
JLR
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Post by jj on Jul 18, 2005 16:33:36 GMT -5
ChemG, Good thinkin and searchin as usual. I also feel that there is a genetic aspect to all this as well. Seeing more mutation and illness in future generations. I know this is a touchy subject but am also curious how many of us would also fall into ....... let me phrase it this way; prone to perfectionism, OCD, and ADD type behaiviors. Will see how this flies before taking it further. ........... Still hangin, JJ
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Post by bugged1 on Jul 18, 2005 16:44:50 GMT -5
Yes, I'm a total perfectionist JJ - probably why I'm still single.
If I'm right about this one it will be one more piece of evidence that the medical field cannot ignore and more in our arsenal against a DOP diagnosis - but I do hope I'm wrong... because it becomes way more difficult to deal with.
Chemist G
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Post by bugged1 on Jul 18, 2005 18:08:09 GMT -5
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Post by Jeff on Jul 18, 2005 19:04:25 GMT -5
Chem, now you're depressing me! I'll work on being a human guinea pig and you try to prove the worst possible option.
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Post by jodyann52 on Jul 18, 2005 19:50:38 GMT -5
chemist g im all of them...OCD AND ADD, MY MOM HAS OCD i also have a lot of native american blood.there is this group of people where im from they r called (mulungeons)....negro, native american,portugeese, jewish could very well be in the genes..who knows?
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Post by itchingntexas on Jul 18, 2005 20:37:43 GMT -5
OK, I haven't read that link yet, but I will. For now, let me say that I have both mexican and cherokee blood. Then my father's side islike Scottish or something I think?? Anyway, I, too, am also highly intelligent and DEFINITELY ADD, OCD, wired. However, it is true that an extreme introvert might be far less likely to respond on one of these sites. I am a research hound. So I advocate the researching everyone is doing. After all...who else will do it???
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Post by Dr Jekyl on Jul 18, 2005 22:41:09 GMT -5
Dont get discouraged Bugged1. You are going to make a difference. Its just a matter of time... besides its not impossible to be cured.
I passed this to my son a yr ago. Four months ago he had a slight reoccurrence.
He was fine again in a month. I caught his really early.
He remains symptom free.
Improbable and impossible are not in my get well plan.
cheer up and give ur brain a rest.
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Post by bugged1 on Jul 18, 2005 23:16:27 GMT -5
I'm trying to let this one go but I can't. I'm almost afraid to read anymore of the hobby thread because everyone is a singer/dancer/designer/musician/poet/metal crafter/photographer and it's not like they dabble - they're ALL darn GOOD! It's too much for just coincidence - I've been on plenty of forums before and NEVER have I seen a group like this. One thing's for sure - we would have QUITE the party if we ever all got together!!! (Vegas anyone???)
We all got a good kick out of the genetic thread Hope started about the glow-in-the-dark rabbit (and yes, that was a true story). Well those types of guys may just be what we need to attack this. Modern medicine has been reactionary whereas genetic therapy will be preventative. I know a lot of you are concerned over this whole "playing God" deal but gene research IS the future of medicine. Because of that I do think we have a chance at an all out cure - eventually. But for now, I can't help you all because antibiotics on their own won't cut it when this bacteria-from-the-pit-of-HELL mimics your own immune system. I'm devastated. I thought I had the answer. I DO think that those WITHOUT the HLA-DR4 gene marker have a good shot with just antibiotics. For those that do have it, I think antibiotics can make their lives "liveable". From what I know now, the Schwartz protocol is the best bet for those without HLA-DR4. The Marshall protocol will be the best bet for those with it. It can possibly trick the bacterium "out-of-hiding" using Benicar. Who knows, staying on it long enough may eradicate the picker. I recommend blood work before any antibiotic treatment.
Anyone know a good geneticist???
Chemist G
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Post by Dr jekyl on Jul 18, 2005 23:26:09 GMT -5
The one important point you missed about my new friend ...whom I dubbed miss dae glo ( hahaha) joke sweet Hopey pie) is that her skin glows under that black light. Not only whats on top but underneath her skin....keep lookin, you are bound to find an answer.
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Post by jj on Jul 19, 2005 0:40:29 GMT -5
Yep, am blown away by the hobby thread too. A very deep thinking, analytical, artsy craftsy, obsessed bunch we are and damb good at it too! ............ Still hangin, JJ
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Post by susiebelle on Jul 19, 2005 1:27:58 GMT -5
A few weeks ago someone posed the question about what we all had in common. From everything I've read I have concluded that most of us are somewhat sensitive, open minded, and trully care about helping others. Also it's evident that we have a stubborness to find an answer and not accept what the so called experts tell us. One thing that I enjoy is everyone's sense of humor. As much as everyone is suffering they can find a way to look at the lighter side and not dwell on the doom and gloom. I love psychology and what I've observed over the years is that creative people tend to have more emotional ups and downs and feel things much deeper than most, and find it difficult to shrug things off. I read an article a few months ago about a recent study that found an enzyme that was lacking in people that were prone to chemical addictions and depression. I don't know if this is could be connected to morgellons but it might be a piece to the puzzle.
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Post by CHAZ Tell us on Jul 19, 2005 15:48:12 GMT -5
Hi It's Spec Chaz will tell you that he has lots of exposure and is native american.. It could be genetic related, sure why not, but why quit? I would bet the genetic marker we all carry is actually the "tenacious gene", and if someone decided to infect a population on purpose... well they picked the wrong damn group get some rest. spec
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linda
New Member
Posts: 0
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Post by linda on Jul 20, 2005 0:58:38 GMT -5
Hey Chem and all,
As I stated before, I began this quest trying to understand why all of my children are add or adhd. My research led me to believe that, at least in our case, the add/adhd may have a genetic basis, but it was caused by some sort of physical issue (whatever Morgellons is). I learned that most add/adhd children are born to mothers with autoimmune disorders (strange?), and that there is something going on with the DRD4 gene in both autoimmune people and add/adhd people. The gene is repeated too often or something. So, is it possible that we are genetically predisposed to becoming infected with the sorts of things that impare or enhance (the creativity element) our cognitive functioning while imparing our immune system?
I mentioned that I was a learning addict. Still, when I think of my experience in college classes, I was always a different, more diversified thinker than most other students. I actually like philosophy. All I am saying is, something has been playing with my brain. Is it possible that we, Morgellonites, are always either just a little intoxicated, or a little hung-over as a result of this scorage? If it is a fungus, then it would be as if we were dealing with the effects of small amounts of LSD (ergot) over a long period of time. When I watch my kids, I'm sure that is what is going on with them. When I first read of ergot poisoning in France, St. Anthony's Fire, I thought it sounded EXACTLY like the first time I experienced my Morgellons infection.
Just some food for thought,
Linda
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Post by susiebelle on Jul 21, 2005 8:07:07 GMT -5
I remember watching a show on the discovery channel about mulungeons that jodyann mentioned. Two famous people that are considered mulungeon are Elvis and Ava Gardner. I thought at the time that my mother has alot of those characteristics, black hair and black eyes, but I don't really know what her ancestors were. I look like my dad's side, fair and blue eyes. His parents came from Ireland and Lithalania(sp). I'm what you call a messy perfectionist, from one extreme to the other, definitely OCD, and somewhat ADD, but not ADHD.
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