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Post by bugged1 on Jul 20, 2005 13:22:35 GMT -5
Well the good news is that while I was on tetracycline, my symptoms went away - TOTALLY! The bad news is, once I got off of them, they came back. The good news is tetracycline isn't that hard on your body so you can stay on it for long periods of time and I haven't yet tried it in conjunction with D-mannose (I'm optimistic).
Anyway... I find that IF I don't wash my sheets, by the third night the "crawlers" are on me in DROVES! Does anyone else have this? I put my sheets in the freezer on the days I don't wash them and that really seems to help as I don't want to have to wash the darn things every day. The other thing is they're the expensive egyptian cotton ones - maybe I need to look at synthetics? Do you all use mattress covers too? What does Dr. Schwartz's book say about all this? The only thing I know of that could reproduce that fast to cause the problem would be bacteria. I've tried spraying the linens with Kleen Free, Febreze anti-bacterial, and a combo of Kleen Free and diatomaceous earth to no avail. Comments?
Thanks,
Chemist G
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Post by SpecueLatin on Jul 20, 2005 14:22:45 GMT -5
Hello Chemist,
I put a plastic sheet on the mattress and that was definitely an improvement. I treated the mattress well with Kleen Free first. I notice the same with the sheets. Two days max. You can Stuff the sheet in the dryer and just dry it on high heat sometimes if no time to wash and dry too. Sounds gross, but desperate times call for desperate measures.
"jwf" posted he and his wife used a product called medi-bed. Never heard where it is available, but I am sure it could be found. maybe hospital supply.
How does the salvation army treat donations for the resale of mattresses?
Of course some here do advocate burning all belongings...
spec
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Post by laggica on Jul 20, 2005 14:26:24 GMT -5
I spray my furniture and bed with OFF DEEP WOODS with deet it seems to help Ive rather have the smell than the itchiez I dont know maybe its in my head that its helping maybe you want to experament (sp) any ways maybe its dumb tell me if it is thanks Jessica
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JLR
Junior Member
Posts: 61
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Post by JLR on Jul 20, 2005 14:34:49 GMT -5
I'm sleeping on an inflatable mattress plastic side up; since I got rid of my fairly new bed. I have quite a few California king size sheets that belonged to my bed so I just use one, fold it in half and sleep in it. Next morning I get up, bag the sheet in a plastic tied bag for washing later that week. Wipe down the plastic mattress with an ammonia/water mixture and paper towel then stand it in a corner where the sunlight hits the wall. I use the same pillow but change the cover everday as well. Then at the end of the week I wash everything including pillows in hot water detergent and ammonia + hot dryer setting. It's been a real pain in the ass but I'm kinda getting used to the routine now. I'm also not sleeping in my room but in my livingroom now my room seems to be the main problem area left mainly around my computer work area.
Monday I woke up with this red mark beneath my eye and on my neck, like if something bit me. Don't know what it was from but I was experiencing hot flashes later in the day, which totally sucks in humid desert weather. So I'm staying with my parents for a bit, I cracked the windows to my apartment and turned on the central fan in hopes whatevers in there will exit. Plus my place smells like all the chemicals, ammonia and god knows what else lately. I needed to get away.
JLR
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Post by Chemist G on Jul 20, 2005 15:34:18 GMT -5
I spray my furniture and bed with OFF DEEP WOODS with deet it seems to help Ive rather have the smell than the itchiez I dont know maybe its in my head that its helping maybe you want to experament (sp) any ways maybe its dumb tell me if it is thanks Jessica That one is NOT in your head Jess - I've had success with it too but I was spraying right on my skin before bedtime. Continual application of DEET on your skin is not a good idea tho so I stopped however I didn't think to spray it straight on your sheets and dry out during the day. I think I'll try the ammonia and water trick first and if that doesn't help I'll do the Off thing! Thanks for the tip on medi-bed Spec! I'm gonna buy those covers (I have allergies to dust mites anyway). I've seen the thread on burning your beds and carpeting. NOT an OPTION here - I have a large home with a LOT of carpeting and a custom bed. And I also think Morgs sufferers are genetically inclined to this pathogen that isn't infectuous to a large portion of the population. I know of several sufferers who's spouses do not get the disease so I think burning and not going out in public isn't warranted. Sheesh I hope I don't have to sell my home tho. A buddy wants me to split rent with him in LaJolla - not a bad place to live! Thanks Y'all! Chemist G
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Post by ANTHILL on Jul 20, 2005 16:16:59 GMT -5
nothing like a good old fashoned bed burning dont know if its infested ? burnt it
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Post by Dr Jekyl on Jul 20, 2005 20:27:48 GMT -5
I spray my furniture and bed with OFF DEEP WOODS with deet it seems to help Ive rather have the smell than the itchiez I dont know maybe its in my head that its helping maybe you want to experament (sp) any ways maybe its dumb tell me if it is thanks Jessica I also covered my mattress in vinyl and the box spring. Fully covered. I use one sheet also to sleep on. I fold it in half and when I get up in the morning I sticky roller the sheet then spray with the ammonia water mixture with a lil essential oils added. I spray the vinyl cover and wipe thats it. I let it air dry. I can do this a whole week with no problems at all. BUT I sleep in pajamas and socks. And I cover my head in a scarf. Even my pillow is covered in vinyl. I have restful sleep and never get bitten when Im in bed anymore. Hell sometimes I even skip the sheet its easier. I burn menthol crystal in my house too once a day. That helps.
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Post by Jess on Jul 20, 2005 20:58:24 GMT -5
they also have those new disposable sheets for on the boat when out to sea no washer out there. I was also thinking does anyone know the life expectansy of thes things I have most of my things in storage maybe i could just set off a bug killer in there also Im going scuba diving tomarrow maybe the presure will kill um thats wishful thinking i've got a lot of that lol or maybe the tanning bed u b rays. i'll try anything thanks laggica
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Post by Jeff on Jul 20, 2005 21:05:49 GMT -5
Chem, I've tried soaking the sheets in permethrin, with some success. This week, I've been putting dae all over the bed and vacuuming most of it up right before I go to bed (but not vacuuming it up too well - leaving some behind in the material. I'm thinking it's helping a bit -- I'll let you know in time.
Jess,
I have found that diving helps with the itching - but think it's mostly the cold water and giving the hair a good prolonged cleanout.
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Post by susiebelle on Jul 20, 2005 22:37:31 GMT -5
I have a waterbed and I don't have alot of problems with my sheets, but when my skin problems started I had an egg carton foam mattress pad and that was a haven for them. I also use amonia in laundry and vinegar in 2nd rinse. I read in my froogle book to cut up 4 lemons in a 1/2 gallon of water and boil, let cool, then strain and use as a spray or to wipe off surfaces. It says pests hate lemon and it smells better than amonia. It also said to use the lemon amonia to repel pests. I shake a little antifungal or antiseptic powder on the sheets sometimes. It also mentioned that sprinkling baking soda around deters them.
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Post by itchingntexas on Jul 21, 2005 1:15:57 GMT -5
Cool, susiebell! Thanks. I have been using an ammonia mixture, too, which seems to work well. A natural practitioner --who knew nothing of Morgellons but wanted to help--told me that eucapyptus is a natural de-miter. So I use that, ammonia, applecider vinegar, salt, and a couple of drops of the Ajax anti-bacterial dish liqiud. Spraying the sheets and covers is a regular part of making the beds. I wash every few days (never more than a week). We, too, have mattress covers. I consider these a necessity. Symptoms at night went WAY down after we did this! Why can't we kill the freakin' springtails??? What will do it? Do you think the diatomaceous earth did it, Chem?? And also, Chem, based on what you said, it's only the springtails which are contagious, and not the other, except through prolonged skin-to-skin or bodily fluids? I would really like to know, because my kids are involved in a homeschool group enrichment classes on Fridays, and I would really like for them to beinvolved in some other group extra-curricular activities on other days...but I am so scared of inflicting this on anyone.
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Post by SpecueLatin on Jul 21, 2005 3:09:15 GMT -5
good ideas here, I always wondered why they made the sudsy lemon ammonia. This all motivates me so much I think I will just go back to bed.
does anyone know if the ammonia in the laundry will destroy elastic in the clothes?
About the springtails itchin'. the cooperative extension service told me that the swarm that had hit my area might just up and leave at some point. And they did!
They told me they are attracted to moisture and to light. I don't know if they can see bug lights, but all my lights in my house that I have on for general lighting are you-guessed-it bug lights.
I also purchased mosquito barrier from the same company that makes garlic barrier, same product different label, but same actual price for either. Only farmers can buy garlic barrier. I did spray it several times around the house and I don't know if it helped or there are just less bugs this year, that could be the case.
spec
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Post by SUSIBELL on Jul 21, 2005 5:18:58 GMT -5
Spec: I wouldn't think you would need a sauna with the temperatures you are having out there. It's only 92 degrees hear, but the humidity is the killer. I haven't noticed any problem with the elastic in clothing, but I only use 1/2 cup. I get the quart bottle for $.50 at Ithe dollar store. I really think the albendazole is working cause I'm shedding skin like a snake. I think the critters have been hiding in every joint of my body. Do you know of a good way to get them out of your scalp? The top of my head is so tender I'm afraid it's going to erupt and I might lose the little bit of brain that is left. Also have you read anywhere how long the meds stay active in your system?
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Post by SpecueLatin on Jul 21, 2005 5:37:24 GMT -5
Hi Susiebelle.
I noticed the stuff exiting around the sides of the joints, surrounding the knee cap and also where there are "inbetween muscle" spaces.
A few square on top of the crest of the muscle, but these especially I think are the WART!!
You are going to feel much better as this stuff is out! I sure do. The joints themselves feel much better, especially across the ankle.. where the maryjane strap use to be.
I don't know about the scalp, I have fortunately not had to deal with any real scalp issues. My mother (not a sufferer)suggested to tell you all that she used Walgreens generic of Neutrogena's coal tar shampoo. I think it might help draw stuff out, and control itching. You can always return it if it fails. That stuff is nice shampoo.
Okay, I'm on it, I am ordering the albendazole. According to my doc the derm at the university, if the med should not be repeated for a period of time, that is the length of time that it is active in the body tissues.. as in Ivermectin is every 90 days. It may not be in the bloodstream anymore, but it is there.
The circular that sometimes comes with the meds should tell this info. I will be ordering a whole bottle so maybe it will tell. Also, I will see if the website will provide the information we seek for free.
spec
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Post by SpecueLatin on Jul 21, 2005 5:42:35 GMT -5
One other idea, and be careful, is this around the "softspot" on the top of the head? or is it truly in the scalp only?
Why not try some of this miconazole nitrate cream on the scalp, leave it on for like a half hour and see what happens? I say this because I have notice the little mean sticky psuedo skin type things seem to die when this is applied. What do you see coming from the scalp, anything at all?
I don't know about leaving substances on OverNIGHT! especially if you are experimenting at first.
spec
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Post by SUSIBELL on Jul 21, 2005 6:02:46 GMT -5
I don't really know what comes out of my scalp but I get the these little sores that feel like they go to the center of my brain and the top of my head is real tender when I brush it. I am really loosing alot of the hair on my crown. I usually wash it it dog flea and tick shampoo. I lather it up and put a shower cap on while I soak. My stomach has really been bloated for the past two weeks, but my ribcage feels so much better. 2 1/2 years I lost 10 lbs quickly but the area around my ribs got bigger. When I asked the dr about it he said he had no idea in that very derogatory tone that we all know so well.
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Post by SpecueLatin on Jul 21, 2005 12:35:36 GMT -5
I will bet the sores that feel like they go to the center of your brain, are similar to what Ruth was calling the pop-bead wyrm and I have on my back. They feel like they go very deep.
Give the miconazole a try, I am serious. Because I noticed there was a tendency for the sore to sort of indent as if it were anchoring itself lower than the skin. The sores seemed to lose this tendency, rising to be equal to the surface with the use of the miconazole nitrate 2%. They are tender!
You will probably only need to use it in the area where this is taking place and somewhat around it, maybe less than an inch boundary around the area.
In between you could try to gently blot the area with these little Biore cloths for pore cleansing. Like I said, this stuff is not something you want your skin to get a huge dose of, just a little bit will seep into the "skin" psuedo-skin or whatever the substance is, and allow A) the exchange with the blood stream (you saw my post elsewhere about this "wart" concept right?) and B) to allow the miconazole nitrate 2% better absorption as well. or what Wally was using a product from neutrogena with the salictate acid, this might work better than the cleansing cloth on the sores.
I think this tetrasil is doing something very good as well, but don't want to say too much too soon.
spec
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Post by laggica on Jul 22, 2005 12:14:18 GMT -5
I have been using nutrogena T-Gel it helps I use it on my entire body somtimes i put on and leave it on. is that bad for me Im also thinking of using NAIR on my entire body exept my head of course to vain to go bald
jessica
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Post by jodyann52 on Jul 22, 2005 15:31:21 GMT -5
JESSICA BE CAREFUL, I USED IT ON MY FACE... THIS STUFF COME OUT SO BAD THE SORES WERE SO BIG. BUT I DON'T HAVE ANY ON MY FACE.ONE ON MY NOSE THAT WILL NOT HEAL. SO I DON'T THINK I WILL DO AGAIN.
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Post by jodyann52 on Jul 22, 2005 15:34:32 GMT -5
JESSICA BE CAREFUL, I USED IT ON MY FACE... THIS STUFF COME OUT SO BAD THE SORES WERE SO BIG. BUT I DON'T HAVE ANY ON MY FACE.ONE ON MY NOSE THAT WILL NOT HEAL. SO I DON'T THINK I WILL DO AGAIN.
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