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Post by rickndebby on Jul 22, 2005 2:16:12 GMT -5
It seems that alot of us are night owls, and as I sit at this keyboard, Debby is watching as these creatures are tunneling through her skin.....From the bend in her elbow down her arm...It's obvious as hell and frustrating because they don't seem to want to move when being examined by our doctors..(plural)...After reading many postings here I'm sure we are not alone....Allthough she is infected greatly I am not so bothered...Or at least I haven't been yet...These lesions that sprout these fibers must be some sort of " lifeline " because when she has put certain ointments and or creams on them it brings them out of the skin....My problem is that when I examine a specimen under my microscope it's tainted....Does anyone know how we can get a specimen without surgery??? Also we have noticed that they do not like it when she eats salty foods....She never uses salt and I am a salt freak....Does this ring bells for anyone else here??? We have read about detoxing the body with doses of vitamin c and salt.... Theres a web site lymephotos.com that I found...The pictures posted on that site are very much like some of the things we have seen under our scope....We have seen infectious specialists at the University of Michigan still waiting the results...After reading what they were testing for we realized that Lyme is not being considered...It makes us wonder if this is a waste of time and more money...Thanks folks for being here....Rick of rickndebby
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Post by bugged1 on Jul 22, 2005 3:14:07 GMT -5
Unfortunatley Rick you can get all the samples you want and they won't look at them because we're all delusional. Your best bet is to get tested for Lyme and HLA-DR4 by IGeneX and throw that at the doctors. Then when they start getting a CLUE you can have them culture for S. Maltophilia bacteria. Looking for parasite specimens is a losing battle and part of the reason Morgs patients are labelled as delusional - they're rarely found and if they are they're probably collembola.
No SLEEP for the DELUSIONAL,
Chemist G
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Post by Hope on Jul 22, 2005 11:38:31 GMT -5
I say, “get this stuff on video!” How can they call you delusional if they can see it with their own two eyes? It also serves as an insurance policy to keep one out of the mental institution. I got tested for Lyme and so did my Son, our positive tests that cost 250.00 each, didn’t seem to matter much to anyone. Nobody will treat us for Lyme or Morgellons. A month or so ago I went to the University of Pittsburgh Hospital to see an Infectious Disease doctor. What a total waste of time, energy, and hope. He ordered no tests what so ever, told me it was impossible that I had babseosis (even thought my test was positive), and his answer about Morgellons was “Well, we just don’t know enough about it.” I just about ran out of his office. My Son’s ID doc (Pittsburgh) told me that Lyme cannot be passed on to a child through breast milk. Since this contradicted everything I had read, I decided to call the Igenex lab myself. I had a need to know why their web site stated that they collected samples of breast milk and semen to test. igenex.com/formset3.htmSNIP "MISCELLANEOUS 462 MULTIPLEX PCR for Miscellaneous (Fluids, Tissue) Freeze Tissue samples, breast milk, semen, misc fluids. Ship within 4 days of collection. SHIP WITH COLD PACK. (Synovial Fluid can be drawn in Red Top)" SNIP According to them Lyme can be passed in vitro as well as breast milk. So much for the “top of the line” doctors. And I had to pay to be this misinformed! I still have a problem believing a mere artist like myself could know more than any doctor when it comes to any disease. I have no medical background what so ever. Strange hu? Don’t get your hopes up too high about your MI appt., GET VIDEO! Septra will sprout many things out of your skin and nothing else is needed so you can get a clean sample very easily if you take some of that. Have your video camera ready! ;D Good luck. Peace, Hope
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Post by itchingntexas on Jul 22, 2005 12:10:14 GMT -5
We get the 'track-marks', as we call them, too. Especially on the kids, I will just notice them popping up at random. Sometimes they are raised! we have just never has big lesions as others describe so often. Perhaps small ones here and there, which don't go away for a good while. But we have been health nuts for a while, now. We hardly even eat anything unhealthy, and I cook healthy and from scratch. .. Too bad it was apparently too late!!
But we have the track-marks, sure enough. You know, my hubby doesn't have bad symptoms, either??! Neither does (poster) Lisa's...
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Post by SpecueLatin on Jul 22, 2005 15:26:37 GMT -5
Hello rickndebby, In regard to a clean specimen, just to let you know. I had a very painful track/nodule it feels like something is tearing or bulling its way through, always moving in one direction with in the track. I really wanted this UN-adulterated lump examined by my derm, who is wonderful, and sees this as parasitic infection, he is very open to learning what the hell this is. He is very very supportive. I am so incredibly lucky to be a student at this university where he works one day a week. It took him about a minute, a painless minute. He snipped the top of the lump open and removed the dude with his jewelers forceps. The lump went down, the pain stopped that day. A small amount of stuff came up out of where he bandaid it. He sent the thing to the state department of health. This was in May and we are still waiting for the electrifying results. We asked for the digital pic, no matter what, for reference. Atleast it will be professionally obtained/verifiable if not identifiable. Just thought I would let you know it is possible to remove some of these little bastards. Is it a morg? I doubt it. I think the morg is a microscopic entity, but these other parasites are opportunistic, climb aboard, maybe feed on the morg or it's biproduct, and they do show their horrible little selves. Mine did not start to show up coming out of the lesions until the ninth year. And that was only when I had put clove oil on the lesions. Within 20 minutes they were coming out all over and the clove oil also stopped the itch temporarily. Be careful if you use essential clove oil it isn't to be ingested and i think it can cause some skin irritation if too much is used. The actual thing I used the first time was very expensive, caused no irritation, but was a combination and expensive as it also had ylang-ylang ($$) in it, and vanilla, I think was the other ingredient. Then I switched to the plain clove oil, but it is rougher on the skin. So be careful, boys and girls. spec
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Post by rickndebby on Jul 22, 2005 20:29:51 GMT -5
Thanks to all of you.... I am going to video as much as I can.....Documentation is what we need a this point if for any reason to at least find out what these critters aren't...Debby has used many different things to get them to pop through her skin....Johnson n Johnsons foot soap brings them out the best....We sincerely hope that we can " activate " these bastards as she is being examined again on August 2nd......If we are told this is " DELUSIONAL " I think I'll try a witch doctor....What do we have to lose??
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